Uma udokotela wakho ekutshela ukuthi unesifo esibizwa ngokuthi i-PBC (Primary Biliary Cholangitis), cishe unemibuzo eyinkulungwane egijima engqondweni yakho. Kuvamile ukuzibuza, "Luhlobo luni lwesifo lolu? Kuzokwenzekani empilweni yami? Ngenzenjani manje?" Kungokwemvelo ukuzizwa wesaba futhi ukhathazekile lapho ufunda ukuthi lesi yisifo esingelapheki, sesikhathi eside. Kodwa ungakhathazeki, akudingeki udlule kulolu hambo wedwa. Uma uqonda kahle lesi sifo futhi wakha uhlelo lokusekela olungakusiza, ungaphila impilo eqinile nejabulisayo ngalesi simo. Ake sibone ukuthi ungawathola kanjani amandla nolwazi oludingayo kulolu hambo.
Umhlahlandlela wakho wokuqala nongcono kakhulu: Udokotela wakho
Uma ufunda ngalesi sifo, umuntu ongaphendula imibuzo yakho kangcono udokotela wakho. Ngakho-ke, kubaluleke kakhulu ukwakha ubuhlobo obuhle nobuqinile nethimba lakho lezokwelapha.
Cabanga ngakho, mingaki imibuzo onayo ngalesi sifo, uhlobo lwaso, ukuthi sithinta kanjani impilo yakho, imithi okudingeka uyithathe, ukudla, ukuzivocavoca? Khuluma nodokotela wakho ngazo zonke lezi zinto ngaphandle kokwesaba nangokusobala. Ungazinaki njengezinkinga ezincane. Lalela konke okusengqondweni yakho.
Kuzoba lula kuwe uma wenza lezi zinto:
- Bhala phansi imibuzo yakho: Ngaphambi kokuba uye kudokotela, bhala phansi yonke imibuzo ofuna ukuyibuza encwadini. Ngezinye izikhathi uma sibona udokotela, siyakhohlwa ukuthi besifuna ukubuza ini. Uma uyibhala kanje, ngeke uphuthelwe yinoma yimuphi waleyo mibuzo.
- Bhala phansi konke okushiwo udokotela, njengemiyalelo akunikeza yona, imininingwane yemithi, kanye nokuhlolwa okudingeka ukwenze. Kuzokusiza ukuthi ukubukeze lapho ufika ekhaya.
- Khuluma: Uma ungaqondi okuthile, ungesabi ukubuza futhi. "Dokotela, angikuqondanga okushilo. Ungakuchaza futhi ngendlela elula?"
Ngokuhlanganyela ngenkuthalo enkambisweni yakho yokwelashwa ngale ndlela, uzokwazi ukubhekana nalesi sifo ngokulawula okwengeziwe , ngaphandle kokwesaba okungadingekile.
Qaphela kakhulu lapho usesha ulwazi kwi-inthanethi!
Namuhla, indawo yokuqala esiphendukela kuyo lapho sifuna ulwazi nganoma yini yi-inthanethi. I-inthanethi ingaba yindawo enhle yokuthola ulwazi mayelana ne-PBC. Kodwa-ke, ifana nenkemba esika nhlangothi zombili. Akulona lonke ulwazi oluku-inthanethi olunembile. Ngezinye izikhathi, ulwazi olungalungile noludukisayo lungakuphambanisa futhi lonakalisa impilo yakho.
Ungashiyi konke ku-"Dkt. Google." Ngaphambi kokwenza isinqumo sokugcina nganoma yiluphi ulwazi oluthola ku-inthanethi, qiniseka ukuthi ukhuluma nodokotela wakho ngalo.
Amanye amawebhusayithi angase ashicilele izikhangiso ezingamanga ezinjengokuthi "Lo muthi uzokwelapha ukugula kwakho ezinsukwini eziyisikhombisa." Noma, angase akudukise ngezindlela ezahlukene zokwelapha ezingakafakazelwa ngokwesayensi. Ungakhohliswa yilokhu.
Ngakho-ke, singayithola kanjani iwebhusayithi ethembekile?
Ukuze uthole ulwazi oluhle noluthembekile, kufanele uhlole amawebhusayithi aqhutshwa yizikhungo zezempilo zikahulumeni, izibhedlela ezidumile, kanye nezikole zezokwelapha zaseyunivesithi. Kukhona nolwazi oluningi olubalulekile kumawebhusayithi amaqembu aphesheya kwezilwandle asekela iziguli. Isibonelo, izinhlangano ezifana ne-American Liver Foundation kanye ne-PBCers Organisation zingashiwo.
Uma ubheka ulwazi kwiwebhusayithi, zibuze le mibuzo ukuze ubone ukuthi luthembekile yini.
| Indaba okufanele icatshangelwe | Umbuzo okufanele uzibuze wona |
|---|---|
| Izinhloso zokuhweba | Ingabe le webhusayithi izama ukuthengisa noma yimiphi imikhiqizo noma izinsizakalo? Ingabe ixhaswe yinhlangano engenzi nzuzo? |
| Ukubandlulula | Ingabe le webhusayithi iqokomisa kuphela imibono yomuntu noma yeqembu elithile? |
| Isiqinisekiso sezokwelapha | Ingabe ulwazi lapha lubuyekezwe uchwepheshe wezokwelapha? Ingabe lolu lwazi luqinisekiswe yizifundo zesayensi? |
| Umthwalo wemfanelo kanye nobunikazi | Ungakwazi yini ukuhlonza ngokucacile ukuthi obani abanikazi bale webhusayithi nokuthi obani odokotela ababuyekeza ulwazi? |
| Umbono olinganiselayo | Ingabe le webhusayithi inikeza ulwazi olulinganiselayo oluvela emibonweni ehlukene ngesihloko esithile? |
Ukwazisa umndeni wakho nabangani nakho kuyisici esibalulekile.
Uma uphila nesifo esifana nalesi isikhathi eside, ukusekelwa umndeni wakho nabangane abaseduze yikona okukunika amandla amakhulu. Kodwa ukuze bakusize, nabo kudingeka baqaphele lesi sifo.
Khuluma nabo ngokukhululekile ngesimo sakho nendlela ozizwa ngayo. Bachazele ukuthi i-PBC ayithelelani nokuthi ingathinta kanjani indlela yakho yokuphila. Kuzoba lula ngabo ukukusiza uma beqonda ukuthi ungase uzizwe ukhathele ngezinye izinsuku noma ungase ungakwazi ukudla ukudla okuthile. Kungumqondo omuhle futhi ukuletha umyeni wakho, umkakho, noma ilungu lomndeni eliseduze nawe uma uya kudokotela.
Ungakhohlwa ngempilo yengqondo kulolu hambo.
Kuvamile ukuzizwa udabuke, ukhathazekile, futhi ngezinye izikhathi uthukuthele uma uthola ukuthi unesifo esifana ne-PBC. Ungazami ukubhekana nale mizwa wedwa. Ukukhuluma ngemizwa yakho nomuntu omethembayo kungaba umthombo omkhulu wenduduzo. Lokhu kungaba umlingani wakho, umngane oseduze, noma ilungu lomndeni.
Uma uphila nesifo esinjengalesi , impilo yengqondo ibaluleke njengempilo yomzimba . Awukwazi ukuba nempilo enhle ngaphandle kwenhliziyo ejabule.
Uma uzizwa sengathi unenkinga yokulawula ukukhathazeka nokucindezeleka kwakho, khuluma nodokotela wakho ngakho. Uma kudingeka, uzokudlulisela kudokotela wengqondo ukuze akusize. Asikho isizathu sokuba namahloni noma sokukwesaba.
Umlayezo Wokuya Nawe Ekhaya
- Nakuba ukuxilongwa nge-PBC kungaba yinselele eshintsha impilo, ngolwazi olufanele kanye nokusekelwa, ungaqhubeka uqine.
- Udokotela wakho kufanele abe umthombo wakho oyinhloko nowethembekile wolwazi mayelana nesimo sakho sezokwelapha.
- Qaphela kakhulu uma ufuna ulwazi ku-inthanethi. Sebenzisa njalo amawebhusayithi athembekile kuphela futhi uxoxe ngolwazi olutholayo nodokotela wakho.
- Umndeni wakho nabangani bakho bangamandla akho amakhulu. Khuluma nabo ngokukhululekile ngesimo sakho futhi ucele ukwesekwa kwabo.
- Ukulondoloza impilo yakho engokomzimba kubaluleke njengempilo yakho yengqondo. Unganqikazi ukufuna usizo lochwepheshe uma kudingeka.
- Khumbula, awuwedwa kulolu hambo!
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