Ingabe into emhlophe yengane yakho yonakele? Ake sixoxe nge-Periventricular Leukomalacia (PVL)

Uma ingane yakho yazalwa ngaphambi kwesikhathi, noma uma ubhekene nanoma yikuphi ukubambezeleka kokukhula, lokhu kubaluleke kakhulu kuwe. Ngezinye izikhathi, izindawo ezincane zobuchopho ezinganeni zingalimala. Lesi yisimo esibizwa ngokuthi i-periventricular leukomalacia, noma i-PVL ngamafuphi. Ungakhathazeki ngalokhu, ake sixoxe ngakho ngokuningiliziwe.

Kuyini i-PVL? Ake sikuqonde kalula.

Kulungile, ake sibone ukuthi iyini i-PVL (Periventricular Leukomalacia) . Uyazi, ubuchopho bethu buyisitho esiyinkimbinkimbi kakhulu nesimangalisayo. Bunezingxenye ezahlukene. Ingxenye ebalulekile 'into emhlophe' . Lokhu kufana nohlelo 'lwentambo' ebuchosheni bethu. Amangqamuzana obuchopho, okungukuthi, amangqamuzana ezinzwa (ama-neurons) , ayaxhumana futhi asuka ebuchosheni aye emgogodleni, futhi ashintshana ngolwazi ngalolu hlelo 'lwentambo', okungukuthi, (into emhlophe) .

Ngakho-ke, uma ingane yakho ine-leukomalacia engaphakathi kwe-periventricular, kusho ukuthi kukhona umonakalo engxenyeni yale nto emhlophe . Lo monakalo ungabangela ukubambezeleka kokukhula kwamakhono okunyakaza kwengane, okuyindlela elawula ngayo imizimba yayo, kanye namakhono ayo obuhlakani, okuyindlela ecabanga futhi eqonda ngayo izinto. Akukhona lokho kuphela, kodwa izingane ezinalesi simo nazo zisengozini enkulu yokuthola isimo esibizwa ngokuthi i-cerebral palsy .

Ake sichaze leli gama elide elithi 'periventricular leukomalacia' kancane bese siliqonda. Khona-ke kuzocaca:

• 'I-Peri' isho 'ukuzungeza' noma 'ukuzungezile'.
• 'I-Ventricular' ibhekisela ezimbotsheni ezigcwele uketshezi ngaphakathi kobuchopho. Siphinde sibize lawa ma-ventricle .
• Igama elithi 'Leuko' lisho 'umhlophe'. Lokhu kubhekisela endabeni emhlophe yobuchopho.
• I-malacia 'ukuthamba' okungavamile kwezicubu okwenzeka lapho izicubu zonakele. Odokotela bangakubona lokhu ngokuhlolwa.

Ngakho-ke, kafushane nje, i-periventricular leukomalacia iwumonakalo wento emhlophe ezungeze ama-ventricle ebuchosheni bomntwana wakho, okubangela ukuba athambe.

Izingane ezizalwa ngaphambi kwamasonto angu-32 okukhulelwa, noma ngaphambi kwesikhathi, zisengozini enkulu yokuthola i-PVL. Le ngozi iyanda lapho iminyaka yokukhulelwa yazo imfushane, noma lapho zizalwa zisencane kangakanani.

Uma ingane yakho yazalwa ngaphambi kwesikhathi, ngiyaqonda ukuthi unemibuzo eminingi nokwesaba engqondweni yakho. Cishe unemicabango eminingi ngempilo nekusasa lengane yakho. Kodwa khumbula, ithimba lezokwelapha lengane yakho lihlala likhona ukukusiza uqonde lesi simo, futhi likusize futhi likuqondise wena nomndeni wakho.

Yiziphi izimpawu zomntwana one-PVL?

Ngokuvamile kunzima ukubona ngokushesha ukuthi ingane ine-PVL ngokuyibuka nje. Lokho kusho ukuthi kungase kungabi khona izimpawu zangaphandle ezisobala . Kodwa ngokuhamba kwesikhathi, i-PVL ingabangela eyodwa noma ngaphezulu kwalezi zimpawu ezilandelayo. Kubalulekile ukuqaphela lezi:

• Ukulibaziseka kwemisipha: Ubunzima bokuhlala, ukukhasa, ukuhamba, noma ukusebenzisa imilenze kahle. Isibonelo, ezinye izingane zingase ziphuze ukubamba izintamo zazo kahle, noma zingase ziphuze ukugoqa noma ukuhlala kunezinye izingane.
• Ukulibaziseka kwengqondo / (Ukukhubazeka kwengqondo): Ukuntuleka kokuqonda nekhono lokufunda. Lokhu kungafaka phakathi izinto ezifana nokulibaziseka ekukhulumeni amagama noma ubunzima bokuqonda imiyalelo elula.
• Izinkinga zokulinganisela: Ubunzima bokugcina ibhalansi.
• Ukukhubazeka kokubona nokuzwa.
• I-Spastic quadriplegia (ukuqina kuzo zonke izinyawo ezine, ngokunembile, ubunzima bokugoba noma ukwelula) noma i-diplegia ( ukuqina kwemilenze emibili kuphela) - lokhu kungaba futhi izimpawu ze-cerebral palsy .

Lezi zimpawu zivame ukubonakala lapho umuntu eneminyaka engu-2. Into eyodwa okufanele uyikhumbule ukuthi i-PVL iyahlukahluka kuye ngosana. Ayithinti wonke umuntu ngendlela efanayo.

Yiziphi izimbangela ze-PVL?

Imbangela eyinhloko ye-PVL yilapho ubuchopho bomntwana bungatholi igazi noma umoya-mpilo owanele , ngaphambi noma ngemva kokuzalwa. Cabanga ngakho, amangqamuzana ethu obuchopho adinga umoya-mpilo kanye nezakhamzimba ukuze aphile futhi asebenze. Uma lokhu kunganikezwa kahle, lawo maseli ayalimala.

Njengoba kushiwo ngaphambili, izingane ezizalwa ngaphambi kwesikhathi (ngaphambi kwesikhathi) , noma lezo ezizalwa zincane ngesikhathi sokukhulelwa (zincane ngesikhathi sokukhulelwa), zisengozini enkulu. Lokhu kungenxa yokuthi ubuchopho bazo busakhula, okubenza buthaka kakhulu. Ngakho-ke, zisengozini enkulu yokulimala.

Ezinye izinto ezingase zihlotshaniswe ne-PVL zifaka:

• Ukopha okuya ebuchosheni (i-Intraventricular hemorrhage) .
• Ukuqhekeka kwesikhwama se-amniotic ngaphambi kwesikhathi ngesikhathi sokukhulelwa.
• Ukutheleleka kwesibeletho sikamama ngesikhathi sokukhulelwa.

Odokotela bayixilonga kanjani i-PVL?

Uma ingane yakho izalwa ngaphambi kwesikhathi, odokotela bazokwenza ukuhlolwa okukhethekile ezinsukwini ezimbalwa zokuqala namasonto okuphila kwengane yakho.Lokhu kwenziwa ukuze kutholakale noma yikuphi ukulimala kobuchopho kusenesikhathi. Ngezinye izikhathi, ukuhlolwa kungase kungenziwa kuze kube yilapho ingane ikhombisa izimpawu zalesi simo, njengokulibaziseka kokukhula.

Kunezivivinyo eziningana ezingaxilonga i-PVL ngokunembile:

• Ukuskena kwe-Brain MRI: Ukuskena kwe-MRI (Magnetic Resonance Imaging) kungathatha izithombe ezicacile nezinemininingwane yobuchopho bengane yakho. Lokhu kungabheka amaphethini omonakalo ku-white matter yobuchopho, okuhambisana ne-PVL.
• I-ultrasound yekhanda: I-ultrasound isebenzisa amaza omsindo ukudala izithombe zezicubu zomzimba. Lena futhi indlela esetshenziselwa ukuxilonga i-PVL. Uma ingane yakho ine-PVL, i-ultrasound ingabonisa izinguquko endabeni emhlophe yobuchopho.

Yiziphi izindlela zokwelapha i-PVL?

Okwamanje akukho ukwelashwa okuqondile noma ikhambi le-PVL. Umonakalo ebuchosheni obangelwa yi-PVL unomphela . Kodwa ungakhathazeki. Kunezindlela zokwelapha ezahlukahlukene ezingasiza ukulawula izimpawu zengane yakho nokuthuthukisa ikhwalithi yempilo yayo. Lokhu kunganikeza impumuzo enkulu enganeni yakho. Lokhu kungafaka:

• Ukwelashwa ngokomzimba: Lokhu kusiza ingane yakho ukuthi ithuthukise ukunyakaza kwayo, noma ukulawula umzimba. Lokhu kuhlanganisa kokubili amakhono okunyakaza okuhle (njengokubamba ipensela, ukuchofoza inkinobho, ukubopha izintambo zezicathulo) kanye namakhono okunyakaza okukhulu (njengokuhlala, ukuguqa ngamadolo, ukuhamba, nokugijima). Cabanga ukuthi ingane ingaba namandla kangakanani uma ithola lolu hlobo lokwelashwa isencane!
• Ukwelashwa Komsebenzi: Lokhu kusiza ingane ukuthi ifunde izindlela ezintsha zokwenza imisebenzi yansuku zonke, njengokudla nezitsha nokugqoka, yodwa. Lokhu kubaluleke kakhulu ukwandisa ukuzimela kwengane.
• Ukwelapha ngenkulumo: Uma ingane yakho inenkinga yokukhuluma noma yokuxhumana nabanye, lokhu kwelapha kungasiza. Kungasiza ngezinto ezifana nokuphimisela amagama, ukwakheka kwemisho, kanye nokuqonda.
• Amadivayisi okusiza: Amadivayisi okusiza njengezihlalo zabakhubazekile, izinqola zokuhamba, kanye nezinduku zokusibekela angasiza ekwandiseni ukuhamba kwengane, noma ikhono lokuhambahamba. Lokhu kungasiza ingane ukuthi yenze izinto eziningi yodwa.
• Imithi: Eminye imithi ingabangela ukuqaqamba kwemisipha.Zingasiza ekulawuleni izimpawu ezifana, noma zisize ekulawuleni ezinye izimo zezokwelapha (isib. isifo sokuwa) ingane yakho engase ibe nazo. Lezi kufanele zisetshenziswe kuphela ngaphansi kweseluleko sikadokotela.
• Izinsizakalo zomphakathi kanye nokusekelwa kwezemfundo: Ingane yakho ingadinga ukwesekwa okwengeziwe ngomsebenzi wesikole noma ezinye izici zokuphila kwansuku zonke. Izisebenzi zezenhlalakahle, ochwepheshe bezemfundo, kanye nabanye ochwepheshe banganikeza lolu hlobo lwezinsizakalo zokusekela kanye nosizo.

Into ebaluleke kakhulu ukuthi konke lokhu kwenzelwe ukusiza ingane ukuba iphile impilo enhle, ekhululekile, nejabulisayo ngangokunokwenzeka.

Singakwazi yini ukuvimbela i-PVL?

Akukho lutho ongakwenza ngqo ukuvimbela i-PVL. Umgomo oyinhloko ukuzama ukuvimbela ukuzalwa ngaphambi kwesikhathi . Lokhu kungenxa yokuthi ukuzalwa ngaphambi kwesikhathi kuyisici esikhulu sengozi ye-PVL. Uma usengozini yokuthola umntwana ngaphambi kwesikhathi, ukuya endaweni enezikhungo zezokwelapha ezikhethekile zokubeletha ngaphambi kwesikhathi kungasiza ekuvimbeleni lesi simo ngezinga elithile.

Nakuba ukuzalwa kwangaphambi kwesikhathi kungenakuvinjelwa ngaso sonke isikhathi, unganciphisa ingozi yakho ngokuthatha lezi zinyathelo ngesikhathi sokukhulelwa:

• Ukuze uthole ukunakekelwa okuvamile kwangaphambi kokubeletha , okungukuthi, iya emitholampilo bese ubona odokotela.
• Phatha izimo zakho zempilo, njengesifo sikashukela , umfutho wegazi ophakeme, noma ukucindezeleka .
• Gwema ngokuphelele ukubhema, utshwala, noma ezinye izidakamizwa.
• Yidla ukudla okunomsoco .
• Khulisa isisindo ngendlela enempilo ngesikhathi sokukhulelwa.
• Zivikele ezifweni ezingakulimaza wena kanye nomntwana wakho ongakazalwa.
• Zama ukunciphisa ukucindezeleka ngangokunokwenzeka futhi uhlale ukhululekile.

Uma ingane yami ine-PVL, yini engingayilindela esikhathini esizayo?

Akuzona zonke izingane ezine-PVL ezithinteka ngendlela efanayo. Lokhu kusho ukuthi ingane eyodwa ingahluka kakhulu kwenye . Ukubikezela/umbono ngengane kuncike ezintweni eziningana. Isibonelo, ubukhulu bomonakalo wobuchopho kanye nezinye izinkinga zempilo ingane enazo.

Ezinye izingane zingase zibe nezimpawu ezincane kakhulu , noma zingabi nazo nhlobo izimpawu. Zingase ziphile impilo evamile. Kodwa-ke, ezinye zingase zibe nokukhubazeka okukhulu ngokomzimba kanye/noma ngokwengqondo . Udokotela wakho uzokwazi ukukunikeza umbono othile ngohlobo lomonakalo ingane yakho eye yabhekana nawo nokuthi ungathinta kanjani intuthuko yayo.

Cabanga nje, ngezinye izikhathi ingane ingase ibonakale iyinkinga enkulu lapho isencane, kodwa ngokwelashwa okufanele, ingangena esimweni esingcono kakhulu ngentshisekelo yayo. Ngakho-ke, ungalilahli ithemba.

Akunakwenzeka ukubikezela ngqo ukuthi ingane yakho izothinteka kanjani. Into engcono kakhulu ongayenza ukukhuluma nochwepheshe abacwaninga futhi belapha i-PVL. Njengoba ingane yakho ikhula, izozuza kakhulu osizweni lwethimba lochwepheshe abangakwazi ukwenza ukwelashwa kwayo kuhambisane nezidingo zayo.

Ingakanani iminyaka yokuphila komuntu one-PVL?

Lokhu kuyinkinga kubazali abaningi. Iningi lezingane ezine-PVL kulindeleke ukuthi liphile impilo ephelele . Kodwa-ke, uma ingane yakho inomonakalo omkhulu wobuchopho noma ezinye izimo zezokwelapha ezimbi , isikhathi sayo sokuphila singase sibe sifushane kancane. Ezinye izici ezingathinta isikhathi sayo sokuphila zifaka:

• Ubunzima bokudla nokuphuza.
• Ukungakwazi ukuhambisa umzimba noma izinkinga zokuhamba.
• Ubunzima bokuphefumula.

Lokhu akuthinti wonke umuntu, kodwa kuhle ukuqaphela izinto ezinjengalezi. Khuluma nodokotela wakho ngalokhu.

Ngakho-ke, ake sibheke ezinye zezinto okudingeka sizikhumbule kulokhu? (Umyalezo Wokuya Ekhaya)

Umama noma ubaba udlula emizweni eminingi ngesikhathi sokuzalwa komntwana nangemva kokuzalwa kwakhe, akunjalo? Ikakhulukazi uma umntwana ezalwa ngaphambi kwesikhathi noma kufanele agcinwe e- NICU (i-Neonatal Intensive Care Unit) , umthwalo owuzwayo ngaleso sikhathi kunzima ukuwubeka ngamazwi. Ngemuva kwalokho, njengoba uchitha izinsuku namasonto nodokotela kanye nokuhlolwa, kungase kudingeke ubhekane nokuningi kunalokho obekucabanga ukuthi kungenzeka. Ungase uzizwe sengathi konke akulawuleki, futhi ungase uzisole.

Kodwa, kulesi simo esibizwa ngokuthi i-periventricular leukomalacia (PVL) , akekho okufanele asolwe . Ngisho nabacwaningi abazi kahle ukuthi yini ebangela lokhu. Enye into ebalulekile ukuthi i-PVL ithinta ingane ngayinye ngendlela ehlukile . Ngakho-ke, kubalulekile ukusebenzisana eduze nethimba lezokwelapha lengane yakho ukuze unikeze ukunakekelwa kwezokwelapha okungcono kakhulu, iseluleko, kanye nokusekelwa njengoba ingane yakho ikhula.

Khumbula, awuwedwa kulolu hambo. Odokotela bakho, abahlengikazi, abelaphi, kanye nomndeni wakho nabangani bakho bonke bakhona ukukusekela.

Futhi, kubaluleke kakhulu ukuzinakekela . Kuphela uma unamandla futhi uphilile lapho unganakekela kahle ingane yakho. Noma nini lapho uzizwa udangele, khuluma nomuntu omethembayo. Uma kudingeka, ungangabazi ukufuna iseluleko. Ukuzinikela okwenzayo enganeni yakho akunakulinganiswa.

'I-leukomalacia ye-periventricular, i-PVL, ukulimala kobuchopho, ukuzalwa ngaphambi kwesikhathi, ukubambezeleka kokukhula, ukukhubazeka kobuchopho, impilo yengane