Wake waphawula ukuthi umhlathi ongezansi nesilevu somntwana wakho osanda kuzalwa kuncane kakhulu? Ingabe kubonakala sengathi uphefumula kanzima, ikakhulukazi uma elele ngomhlane? Ingabe kubonakala sengathi uminywa ubisi kancane? Kuvamile ukuthi umama azizwe esaba uma ebona izinto ezinjengalezi. Namuhla sizokhuluma ngesimo esingavamile kodwa esibalulekile esingadala lezi zimpawu. Sisibiza ngokuthi i-Pierre Robin Syndrome (PRS).
Iyini i-Pierre Robin Syndrome (PRS)?
Kalula nje, i-Pierre Robin Syndrome (PRS) iyisifo sokuzalwa esingavamile esenzeka ngesikhathi umntwana esakhula esibelethweni. Odokotela ngezinye izikhathi basibiza ngokuthi i-Pierre Robin Sequence. Lesi simo sithinta kakhulu ubuso bomntwana, ikakhulukazi umlomo nomhlathi. Lezi zinkinga zingenza kube nzima ngengane ukuphefumula, ukuncela, noma ukuphuza ebhodleleni.
Cabanga ngakho, izingxenye zobuso bethu kufanele zikhule ngokulandelana. Ngemva kokuba umhlathi ongezansi wakheke kahle, ulimi lufika endaweni yalo efanele. Bese kwakheka ulwanga olungaphezulu. Kodwa ku-PRS, lokhu kuhleleka kuyaphazamiseka. Yingakho ngezinye izikhathi kubizwa ngokuthi "Ukulandelana".
Lesi simo asivamile kakhulu. Ngokwesilinganiso, cishe ingane eyodwa kuphela kwezingu-8,500 inethuba lokuthola lesi simo. Ngakho-ke ungakhathazeki uma uzwa ngalokhu. Kodwa kubaluleke kakhulu ukuqaphela lokhu.
Ngingazi kanjani ukuthi ingane yami ine-PRS? Yiziphi izimpawu eziyinhloko?
Ngokuvamile, odokotela bangazibona lezi zimpawu ngokushesha nje lapho umntwana ezalwa. Kunezinguquko ezithile zomzimba kanye nezimpawu ezibonakala kakhulu ku-PRS. Ake sizibheke ngokwehlukana.
| Uhlobo lwesici | Incazelo elula |
|---|---|
| Umehluko Omkhulu Womzimba | |
| Umhlathi omncane ongezansi kanye nesilevu (Micrognathia) | Umhlathi ongezansi wengane kanye nesilevu kuncane kakhulu ngobukhulu. Lokhu kubonakala kahle uma ubheka iphrofayili yobuso. |
| I-Cleft Palate | Ingxenye engenhla yomlomo, okungukuthi, ulwanga, ayivalwanga ngokuphelele. Kukhona isikhala phakathi nendawo. Lokhu kuvumela ubisi ukuthi luphume ekhaleni uma uphuza. |
| Ulimi oluya emphinjeni (i-Glossoptosis) | Ngenxa yokuthi umhlathi ongezansi mncane, awekho indawo eyanele yokuthi ulimi lungene kahle emlonyeni, futhi ulimi lubuyela emuva, okungukuthi, lubheke emphinjeni. Lena yimbangela eyinhloko yobunzima bokuphefumula. |
| Ulwanga olunezinsika eziphakeme | Kwabanye abantwana abangenalo ulwanga oluqhekekile, ulwanga lungase lube phezulu kakhulu kunoluvamile, njenge-arch. |
| Ukuba namazinyo ngesikhathi sokuzalwa (amazinyo aseNatali) | Akuvamile kakhulu ukuthi ezinye izingane zibe namazinyo elilodwa noma ngaphezulu lapho zizalwa. |
| Izimpawu Eziphumelayo | |
| Ukuphefumula (Stridor noma Stertor) | Njengoba ulimi luwela emphinjeni, lungavimba indlela yokuphefumula futhi luveze umsindo wokuhogela noma wokushaya ikhwela. Lo msindo uzwakala kakhulu uma ingane ilaliswe ngomhlane wayo ukuze ilale. |
| Ubunzima bokuphuza ubisi | Ngenxa yolimi oluqhekekile kanye nokuma kolimi, ingane ingase ingakwazi ukunamathela kahle engonweni futhi imunce ubisi. Ubisi lungase lubhajwe nasemphinjeni. |
| Izinkinga zokuzuza isisindo | Ngenxa yokuthi kunzima ukuncelisa, umntwana angase angatholi ukudla okunomsoco okudingekayo futhi angase angakhuluphali kahle. |
Kungani lokhu kwenzeka? Iyini imbangela yalokhu?
Eqinisweni, odokotela abakayitholi imbangela eqondile yalokhu, kodwa siyazi ukuthi kungase kubangelwe izinguquko eziningana zofuzo ezenzeka ngesikhathi umntwana ekhula esibelethweni.
Ukulandelana kwalokhu kungokulandelayo:
1. Okokuqala, umhlathi ongezansi womntwana awukhuli kahle. Ukhula ube mncane kakhulu.
2. Ngenxa yokuthi umhlathi ongezansi mncane, ulimi alunandawo yokuphumula kahle, futhi lusunduzwa phezulu nangemuva (lubheke emphinjeni).
3. Ulimi luvela kanje futhi luvimbe indlela yokuphefumula ephezulu.
4. Kuleli qophelo, izingxenye ezimbili zomlomo ongaphezulu womntwana kufanele zihlangane. Kodwa ngenxa yokuthi ulimi oluphakanyisiwe luyahlangana, izingxenye ezimbili zomlomo azikwazi ukuhlangana, okushiya isikhala phakathi.
Lolu chungechunge lwezehlakalo luxhumene, njengohlu lwama-domino awela ngokulandelana. Yingakho lubizwa nangokuthi i-Pierre Robin Sequence.
Ngezinye izikhathi kungaba yifa. Isibonelo, i-PRS ingenzeka njengesici sezinye izimo zofuzo, njenge-Stickler syndrome.
Ingabe lesi simo siyingozi? Ingabe kungaba nezinkinga?
Kuvamile ukuzizwa wesaba uma uzwa lokhu. I-PRS ingahluka kusukela kwencane kuya kwenzima . Ezingeni eliphansi, akuyona inkinga enkulu.
Kodwa-ke, uma une-PRS enzima, izinkinga ezisongela ukuphila zingase zibe khona ngenxa yokuvinjelwa okuqhubekayo kwendlela yokuphefumula.
- Ukucindezeleka kokuphefumula: Ukuvaleka ngokuphelele kwendlela yokuphefumula.
- Amazinga aphansi e-oxygen egazini (i-Hypoxemia): Ukuntuleka kwe-oxygen eyanele emzimbeni.
- Umfutho wegazi ophezulu wamaphaphu: Umfutho wegazi ophakeme emithanjeni ethwala igazi lisuka enhliziyweni liye emaphashini.
- Ukwehluleka kwenhliziyo okubangelwa ukuminyana: Isimo lapho ukusebenza kwenhliziyo kuncipha khona ngenxa yokucindezeleka okufanele ikuthwale.
Kodwa ungesabi lezi zinto. Uma ingane yakho ine-PRS enzima, odokotela nabasebenzi basesibhedlela bazoyiqapha ngokucophelela. Uma kuvela izinkinga, bazobe sebekulungele ukuqala ukwelashwa okudingekayo ngokushesha okukhulu.
Udokotela ukuthole kanjani lokhu ngempela?
Esikhathini esiningi, udokotela wezingane angakwazi ukubona lezi zimpawu ngesikhathi sokuhlolwa okuvamile esibhedlela ngemva kokuzalwa komntwana.
Uma ingane inesimo esibucayi kakhulu, singase singabonakali lapho izalwa. Kodwa-ke, uma ingane ingakhuli noma ingakhiqizi imisindo engavamile ngenkathi iphefumula, udokotela angase abe nokungabaza.
Uma kukhona ukungabaza, udokotela angenza lezi zivivinyo:
- Ukuhlolwa okuphelele ngokomzimba: Lapha, sihlola ngokucophelela izimpawu ezintathu eziyinhloko esikhulume ngazo (isilevu esincane, ulimi olusunduzwa emuva, ulwanga oluqhekekile).
- I-CT scan (i-Computed Tomography scan): Lokhu kusiza ukubona kahle isakhiwo kanye nendawo yamathambo obuso bomntwana.
- Ucwaningo Lokulala: Lolu vivinyo lwenziwa ukuze kutholakale ukuthi ingane ine-obstructive sleep apnea (OSA), isimo lapho ukuphefumula kuyeka khona ngesikhathi sokulala ngenxa yolimi olubuyela emuva.
Yiziphi izindlela zokwelapha lokhu?
Ukwelashwa kuncike ebunzimeni bezimpawu zomntwana wakho.
I-PRS Encane
Isimo sezingane ezithile asisibi kangako. Njengoba zikhula, umhlathi wazo ongezansi nawo uyakhula. Lapho umhlathi ongezansi ukhula, ulimi luba nendawo yokuphumula, ngakho-ke luyayeka ukuwela emphinjeni. Khona-ke ubunzima bokuphefumula buyanyamalala. Izingane ezinjalo zingase zingadingi ukuhlinzwa.
Udokotela ukweluleka:
- Indawo yokulala kwengane: Phendula ikhanda lengane ulibeke eceleni bese ulibeka ngesisu sayo ukuze ilale. Lokhu kuvumela amandla adonsela phansi ukuthi asunduze ulimi phambili, kuvuleke indlela yokuphefumula. Ungalokothi ulale ingane yakho kule ndawo ngaphandle kweseluleko sikadokotela.
- Izindlela zokuncelisa ezikhethekile: Kunconywa ukusebenzisa izinkomishi namabhodlela akhethekile, kanye nokupha umntwana ukudla eme mpo.
I-PRS Enzima
Uma ingane inenkinga enkulu yokuphefumula futhi ingakwazi ukuncelisa, kungase kudingeke ukuba ihlinzwe.
- Ukuhlinzwa kwe-osteogenesis yokuphazamiseka kwe-mandibular: Lokhu kuyindlela yokuhlinzwa evame kakhulu. Kule nqubo, udokotela ohlinzayo uphula ithambo lomhlathi ongezansi womntwana libe yizingxenye ezimbili bese efaka idivayisi encane phakathi kwawo. Bese, ezinsukwini ezimbalwa, idivayisi ijikeleziswa ukuze kususwe izingcezu ezimbili zethambo. Isikhala esiphakathi kwazo sibe sesigcwaliswa ngethambo elisha. Ngale ndlela, umhlathi ongezansi ungandiswa kancane kancane. Njengoba umhlathi ukhula, ulimi luya phambili, luvule indlela yokuphefumula.
- Ukuhlinzwa Kwe-Tracheostomy: Uma ubunzima bokuphefumula bukhulu, kwenziwa imbobo encane ngaphambili kwentamo bese kufakwa ipayipi ngqo epayipini lomoya ukusiza ingane ukuthi iphefumule. Lokhu kwenzelwa ukusindisa impilo yengane esimweni esiphuthumayo.
- Ukunamathela kolimi nomlomo: Lena inqubo engavamile. Kule nqubo, isihloko solimi sithungwa okwesikhashana endebeni engezansi. Lokhu kuvimbela ulimi ukuthi lungaweli emphinjeni. Kamuva, lapho umhlathi womntwana ukhula, imithungo iyanqunywa bese isuswa.
Yini okufanele ngiyenze njengomzali?
Uma uthola ukuthi ingane yakho inalesi simo, ungase uzizwe ukhungathekile ngezinto eziningi okufanele uzicabangele. Lokho kujwayelekile. Khumbula, wena nengane yakho aninodwa. Odokotela nabasebenzi basesibhedlela bahlala bekulungele ukukusiza.
Bazokuchazela lezi zinto:
- Indlela yokuphatha izimpawu zomntwana wakho: Uzochazelwa kabanzi ngokuhlinzwa kanye nezinye izindlela zokwelapha, izinzuzo kanye nokungalungi kwazo, ukuze ukwazi ukwenza isinqumo esingcono kakhulu ngomntwana wakho.
- Indlela yokunakekela ingane yakho ekhaya: Indlela yokulalisa ingane yakho, indlela yokuncelisa, okufanele ukwenze uma kwenzeka isimo esiphuthumayo, njll. Ungesabi ukubuza imibuzo kaninginingi uma ungaqondi.
- Amaqembu okusekela kanye nezinsizakalo: Ungathola ulwazi mayelana namaqembu okusekela lapho abanye abazali bezingane abanezinkinga ezifanayo bengajoyina khona. Ukukhuluma nomuntu oye wadlula entweni efanayo nawe kungaba impumuzo enkulu.
Kufanele ubuze udokotela wengane yakho le mibuzo:
- Ingakanani inkinga yengane yami?
- Ingabe unezinye izimo zezokwelapha ngaphandle kwe-PRS?
- Ungangincoma yini ukuhlinzwa? Kungani?
Khumbula, ayikho ikhambi eliphelele lalokhu, njengoba kuyinto ezuzwa njengefa. Kodwa ngokwelashwa okufanele, izimpawu zingalawulwa ngokuphelele futhi ingane yakho ingaphila impilo enempilo nejwayelekile njengabanye abantwana.
Umlayezo Wokuya Nawe Ekhaya
- I-Pierre Robin Syndrome (PRS) iyisifo sokuzalwa esibangela ukuthi umhlathi ongezansi womntwana ungakhuli kahle. Lokhu kungabangela ukuthi ulimi luwele emphinjeni, okwenza kube nzima ukuphefumula nokuncela.
- Lesi yisimo esingavamile futhi sivame ukutholakala ngokushesha ngemva kokuzalwa komntwana.
- Ukwelashwa kuncike ebunzimeni bezimpawu. Ezinye izingane ziba ngcono njengoba zikhula, kodwa ezimweni ezimbi kakhulu, kungase kudingeke ukuhlinzwa.
- Kuvamile ukuzizwa wesaba uma uzwa ngalesi simo. Kodwa ngokwelashwa okufanele kanye nokunakekelwa kwakho, izingane eziningi ziphila impilo ejwayelekile nenempilo.
- Uma unemibuzo noma ukungabaza, ungalokothi unqikaze ukubuza imibuzo. Udokotela wakho kanye nethimba lezokwelapha bahlala bekulungele ukukusiza.
💬 Comments (0)
Awekho amazwana athunyelwe okwamanje. Faka amazwana akho lapha okokuqala ngqa.
Engeza amazwana akho