Ngezinye izinsuku, kuzwakala kubi kakhulu, umbono wakho uba mubi kakhulu, umzimba wakho uzizwa ubuthakathaka... Kodwa ngemva kwesikhathi, konke lokhu kuba ngcono. Ngemva kwesikhathi, lezi zimpawu ziyavela futhi. Ingabe uke waba nalokhu okuhlangenwe nakho? Lena yindlela ye-RRMS, uhlobo oluvame kakhulu lwe-Multiple Sclerosis (MS). Ngenxa yemvelo yalezi zimpawu, kuvamile ukuzizwa ukhathazekile kakhulu futhi wesaba ngezinye izikhathi. Ake sixoxe ngalokhu kalula, ngendlela ongayiqonda.
Kuyini i-RRMS kalula?
I-RRMS imele `(Relapsing-Remitting Multiple Sclerosis)`. Lolu uhlobo oluvame kakhulu lwe-`(Multiple Sclerosis)` noma i-MS. Cishe iziguli ezingu-80 kuya ku-85 kwezingu-100 ze-MS zinalesi simo.
Lokhu kunencazelo egameni lakho.
- Ukubuyela emuva: Lokhu kubhekisela ekuveleni kwezimpawu ezintsha ngokuzumayo noma ukuba kubi kwezimpawu ezikhona. Lokhu kungahlala kusukela ezinsukwini ezimbalwa kuya emavikini ambalwa. Lokhu kubizwa nangokuthi "ukuqubuka" noma "ukukhushulwa".
- Ukuyeka: Lokhu kwenzeka lapho izimpawu zesifo ezaziba zimbi kakhulu ziphela kancane kancane noma ziphele ngokuphelele ngokuhamba kwesikhathi. Phakathi nalesi sikhathi, ungaphila impilo evamile ngaphandle kwezimpawu.
Cabanga ngakho njengesiphepho. Ngokungazelelwe, izimpawu zifika njengesiphepho zikwenze ungakhululeki. Bese isiphepho siyathula, bese siphinde sithule isikhashana. Yileyo ndlela i-RRMS eba ngayo.
Lesi sifo sihlukaniswe ngale ndlela ukuze sikusize wena nodokotela wakho niqonde inkambo yesifo futhi nikhethe ukwelashwa okufanele kakhulu kuwe.
Yiziphi izimpawu ezivamile ezibonakala ku-RRMS?
Izimpawu ze-RRMS zingahluka kakhulu kumuntu nomuntu, kodwa kunezimpawu ezimbalwa ezivamile. Ake sibheke ukuthi ziyini.
| Isibonakaliso | Incazelo elula |
|---|---|
| Izinguquko zombono | Izinto ezifana nokungaboni kahle, imibala engabonakali kahle, ukubona okubili, kanye nobuhlungu lapho uhambisa amehlo. |
| Ukuzwa ubuhlungu noma ukulahlekelwa umuzwa | Umuzwa wokudabuka ezingxenyeni ezahlukene zomzimba, njengezandla, imilenze, nobuso. Ngezinye izikhathi, kungase kungabi namuzwa kulezo zindawo. |
| Ukuqina kwesifuba/isisu | Kuzwakala sengathi othile ukugona ngokuqinile esifubeni noma esiswini sakho. Abanye abantu bakubiza nangokuthi "ukugona kwe-MS." |
| Ukukhathala okungenakucatshangwa | Ukukhathala okukhulu, okungachazeki okuzwayo ngisho nangemva kokulala kahle. Lokhu kuhluke kakhulu ekukhathaleni okuvamile. |
| Izinkinga zomchamo kanye namathumbu | Izinkinga ezinjengokungakwazi ukuyeka uma udinga ukuchama (ukuphuthuma), noma ukuba nobunzima bokuqala uma ufuna ukuchama (ukungabaza). |
| Ukuzizwa sengathi ushaqekile ngogesi. | Uma ugoba intamo yakho phambili, ungase uzizwe sengathi ugesi uyashaqeka emgogodleni wakho. |
| Ubunzima bokuhamba nezinkinga zemisipha | Ulahlekelwa ibhalansi yakho lapho uhamba, imisipha yakho iba buthakathaka, noma uzizwa uqinile. |
| Izinkinga ngenkumbulo nokunaka | Kuba nzima ukukhumbula izinto, futhi awukwazi ukugxila entweni eyodwa. Lokhu kubizwa nangokuthi "inkungu yobuchopho". |
Ngesikhathi sokuqubuka kobuhlungu, izimpawu eziningana zingase zivele ndawonye. Kwabanye abantu, lezi zimpawu ziyanyamalala ngokuphelele ngesikhathi sokululama. Kwabanye, ezinye izimpawu zingase ziqhubeke. Kodwa ungakhathazeki , kunezindlela zokwelapha ezitholakalayo zokulawula lezi zimpawu eziqhubekayo.
Yiziphi izinto ezibangela ukwanda kwalezi zimpawu?
Ngezinye izikhathi ungathola ukuthi izinto ezithile zenza izimpawu zakho zibe zimbi kakhulu. Lokhu sikubiza ngokuthi "Izimbangela." Kodwa khumbula, okuthinta umuntu oyedwa kungase kungathinti omunye.
- Ukucindezeleka: Izimpawu zingase zivele ngezikhathi zokucindezeleka okukhulu.
- Izinga Lokushisa: Ukushisa okukhulu, futhi ngezinye izikhathi ngisho nokubanda okukhulu, kungandisa izimpawu.
- Ukutheleleka: Ngisho nokutheleleka okuncane, njengomkhuhlane noma ukutheleleka komgudu womchamo, kungabangela ukuthi izimpawu ezindala ze-MS ziphinde zivele.
- Ukubhema: Ukusetshenziswa kwemikhiqizo kagwayi kuyimbangela yokwanda kwalesi sifo.
- Ukuntuleka kwevithamini D: Amazinga aphansi evithamini D emzimbeni nawo angathinta.
Kungani i-MS ikhula? Iyini imbangela?
Imbangela eqondile ye-MS ayaziwa okwamanje, kodwa kubhekwa njengesimo sokuzivikela komzimba .
Kalula nje, uhlelo lokuzivikela lomzimba wethu (amasosha omzimba) luhlasela ngephutha izingxenye zomzimba wethu ezinempilo. Ku-MS, lokhu kuhlasela kuqondiswe ohlelweni lwethu lwezinzwa oluphakathi (ubuchopho kanye nomgogodla).
Uma sikhuluma iqiniso, isivikelo esizungeze imizwa ebuchosheni nasemgogodleni siyalimala. Lokhu sikubiza ngokuthi "i-Myelin". Kufana nesivikelo sepulasitiki esizungeze ucingo lukagesi. Uma lesi sivikelo sonakele, imiyalezo yezinzwa ayihambi kahle. Yilapho kuvela khona izimpawu ebesikhuluma ngazo.
Ucwaningo luthole ukuthi lokhu kungase kuthonywe ukuthambekela kwezakhi zofuzo kanye nezici zemvelo njengegciwane le-Epstein-Barr.
Itholakala kanjani i-RRMS?
Ukuxilonga i-MS kungaba yinselele ngoba akukho ukuhlolwa okukodwa nokuqondile. Udokotela wakho uzosebenzisa izimpawu zakho, umlando wezokwelapha, kanye nemiphumela yokuhlolwa okuningana ukuze afinyelele esiphethweni.
- I-MRI scan: Lokhu kungabheka izindawo zomonakalo (ukulimala/izibazi) ku-nerve sheath (myelin) ebuchosheni nasemgogodleni.
- Ukubhoboza Kwethambo: Lokhu kuhilela ukuthatha uketshezi lomgogodla nokufuna izimpawu ze-MS-like oligoclonal bands. Lokhu kunganikeza umbono wokuthi kukhona yini ukuvuvukala ebuchosheni/emgogodleni.
- Ukuhlolwa kwegazi: Lokhu kusiza ekuvimbeleni ezinye izifo ezinezimpawu ezifanayo neze-MS.
- I-OCT scan (Optical Coherence Tomography): Lolu uhlobo lokuhlola olungenabuhlungu oluhlola imizwa ngemuva kweso (i-retina). Lungahlola umonakalo emithanjeni ye-optic ngenxa ye-MS.
Yiziphi izindlela zokwelapha i-RRMS?
Nakuba kungekho ikhambi elisatholakala lokwelapha i-MS ngokuphelele,Kunezindlela zokwelapha eziphumelela kakhulu namuhla ezingalawula lesi sifo futhi zishintshe indlela esiqhubeka ngayo lesi sifo.
Izinhloso eziyinhloko zalezi zindlela zokwelapha yilezi:
- Ukunciphisa inani lokubuyela emuva.
- Ukunciphisa umonakalo omusha ohlelweni lwezinzwa.
- Ukunciphisa izinga lapho izimpawu ziba zimbi khona.
Le mithi iza ngezindlela eziningana, okuhlanganisa imijovo, imithi yomlomo, kanye nokufakwa ngemithambo yegazi, njenge-saline.
Le mithi ivame ukubizwa ngokuthi "Ama-Disease-Modifying Agents" (ama-DMT). Isebenza ngokushintsha uhlobo lwesifo nokuvimbela umonakalo wesikhathi esizayo ohlelweni lwezinzwa. Ngakho-ke , kubaluleke kakhulu ukuqala ukwelashwa ngokushesha okukhulu.
Qiniseka ukuthi ukhuluma ngokukhululekile nodokotela wakho ngokuthi yikuphi ukwelashwa okukulungele kanye nemiphumela emibi. Uzokunikeza ikhambi elingcono kakhulu.
Impilo izoba njani ngalesi sifo?
Kuvamile ukuzizwa wesaba futhi ukhathazekile uma uthola ukuthi unesifo esingamahlalakhona esinjengalesi. Kodwa iqiniso liwukuthi, ngisho noma une-MS, ungaphila impilo ende, ejabulisayo nephumelelayo.
Kube nentuthuko enkulu ekwelashweni kwe-MS eminyakeni embalwa edlule, okwenza kube lula kakhulu ukulawula inkambo yalesi sifo.
Ngemva kokuba abanye abantu sebene-RRMS isikhathi esithile, bangase babe nesimo lapho izimpawu zanda kancane kancane, kodwa inani lokubuyela emuva liyehla. Lokhu kubizwa ngokuthi "Secondary Progressive Multiple Sclerosis (SPMS)``. Kodwa-ke, ngokwelashwa kusenesikhathi nangokufanele, lesi simo singavinjelwa noma sibambezeleke.
Kufanele ubonane nini nodokotela wakho?
- Uma uba nezimpawu ezintsha noma uma izimpawu zakho ziba zimbi kakhulu.
- Uma ukwelashwa kubangela imiphumela emibi.
- Uma unemibuzo noma ukukhathazeka ngalesi sifo.
Umlayezo Wokuya Nawe Ekhaya
- I-RRMS uhlobo oluvame kakhulu lwe-MS, futhi lubonakala ngemijikelezo yokubuyela emuva kanye nokululama.
- Izimpawu ziyahlukahluka kumuntu nomuntu. Izinkinga zokubona, ukuqaqamba, kanye nokukhathala okukhulu kuvamile.
- Nakuba kungekho imbangela ethile yalokhu, kubhekwa njengesifo sokuzivikela komzimba.
- Nakuba lesi sifo singelapheki ngokuphelele, kunezindlela zokwelapha ezisebenza kahle kakhulu (ama-DMT) namuhla zokulawula lesi sifo nokuvimbela ukulimala kwemizwa.
- Ukuxilongwa kusenesikhathi kanye nokwelashwa kubaluleke kakhulu esikhathini esizayo.
- Khuluma ngokukhululekile nodokotela wakho ngesimo sakho, ukwelashwa, nanoma yimiphi imibuzo onayo.
- Ukuphila nesifo esingamahlalakhona kungaba yinselele engqondweni. Unganqikazi ukufuna usizo lochwepheshe bezempilo yengqondo uma kudingeka.
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