Akukho ubuhlungu obukhulu kumama noma kubaba njengokubona ingane yabo igula. Sikhathazeka kangakanani ngomkhuhlane ovamile? Uma lokho kwenzeka, ubuhlungu umzali abuzwayo lapho ezwa ukuthi ingane yakhe inesifo esibi njengomdlavuza abuchazeki. Namuhla sizokhuluma ngohlobo lomdlavuza wobuchopho olungavamile kodwa oluyingozi kakhulu oluvela ezinganeni. Lokhu kubizwa ngokuthi i-DIPG, noma i-Diffuse Intrinsic Pontine Glioma. Nakuba igama lingase libonakale liyinkimbinkimbi kancane, ake sixoxe ngalo kalula.
Kwenzekani ngempela ebuchosheni ku-DIPG?
Kulungile, ake siqale sibheke ukuthi kuyini lokhu. Kalula nje, i-DIPG iyisimila somdlavuza esikhula engxenyeni yesiqu sobuchopho esixhuma ebuchosheni bethu. Ngokukhethekile, lesi simila sikhula endaweni yesiqu sobuchopho ebizwa ngokuthi "ama-pons."
Cabanga nje, ukube umzimba wethu ubuyisakhiwo esikhulu, le ngxenye ebizwa ngokuthi "ama-pons" ibiyoba njengegumbi lokulawula likagesi eliyinhloko laleso sakhiwo. Kulapha lapho imisebenzi ebaluleke kakhulu nebalulekile empilweni yethu ilawulwa khona.
- Ukuphefumula
- Isilinganiso senhliziyo (ukushaya kwenhliziyo)
- Ukushaya kwegazi
- Ukugwinya ukudla
- Ukubona nokunyakaza kwamehlo
- Ibhalansi yomzimba
Uma umdlavuza uvela endaweni lapho izinto ezibalulekile kangaka zilawulwa khona, ungacabanga ngomthelela onawo emzimbeni.
Lo mdlavuza ungoweqembu elibizwa ngokuthi i-glioma, okusho ukuthi uqala kumaseli e-glial ebuchosheni. Yingakho ngezinye izikhathi ubizwa ngokuthi i-pontine glioma.
Ubani onamathuba amaningi okuthola lesi sifo?
I-DIPG yisifo esithinta izingane kakhulu kunabantu abadala. Nakuba singavamile kakhulu, sivame ukuthinta izingane eziphakathi kweminyaka engu-4 nengu-11. Izingane ezingu-200 kuya ku-400 kuphela ezitholakala zinalesi sifo minyaka yonke emhlabeni jikelele. Sithinta abafana namantombazane ngokulinganayo.
Ziyini izimpawu ze-DIPG?
Lezi zimila zikhula ngokushesha kakhulu. Ngakho-ke izimpawu zomntwana zingaba zimbi kakhulu ngesikhathi esifushane kakhulu. Njengoba isimila sikhula, sicindezela ingxenye "ye-pons" yobuchopho. Lokhu kuphazamisa imisebenzi yomzimba elawulwa yileyo ngxenye. Qaphela lezi zimpawu enganeni yakho.
| Isigaba sezimpawu | Indlela yokubonisa |
|---|---|
| Ibhalansi nokuhamba | Umuzwa ongazelelwe wokungazinzi lapho uhamba, njengokungathi ulahlekelwa yibhalansi yakho. |
| Izinguquko ebusweni nasemlonyeni | Ubunzima bokuhlafuna nokugwinya, izinguquko ekukhulumeni, kanye nokugoba kolunye uhlangothi lobuso. |
| Izinkinga zamehlo | Ukungakwazi ukulawula ukunyakaza kwamehlo, ukubona okubili, ukugoba kwamehlo. |
| Izinkinga zokuzwa | Ukulahlekelwa ukuzwa ngokushesha noma ukulahlekelwa ukuzwa ngokuphelele. |
| Ezinye izici ezivamile | Isicanucanu nokuhlanza, ikakhulukazi ekuseni noma ngemva kokuhlanza, ikhanda elibuhlungu, ubuthakathaka ezingalweni nasemilenzeni. |
Lezi zimila zingakhula futhi zibe zinkulu, zithinte kakhulu imisebenzi ebalulekile njengokuphefumula nokushaya kwenhliziyo, futhi zingaba yingozi ngisho nokuphila.
Yini ebangela i-DIPG? Ingabe ingavinjelwa?
Lona ngumbuzo omkhulu ofika engqondweni yakho njengomzali. Ungase uzibuze, "Kungani lokhu kwenzeke enganeni yami? Ingabe kwakuyiphutha lami?"
Sicela ukhumbule into eyodwa: I-DIPG ayisona isifo esibangelwa yinoma yini oyenzile kabi.
Amathumba e-DIPG angaba nezinguquko ezithile zofuzo (odokotela bawabiza ngokuthi ukuguqulwa kwezakhi zofuzo). Kodwa-ke, akusona isifo esidluliselwa kusuka kubazali siya ezinganeni ngezakhi zofuzo. Futhi asibangelwa ukuchayeka kunoma yini emvelweni, njengomusi, amakhemikhali, noma imisebe. Ngakho-ke , akukho esingakwenza ukuvimbela lesi sifo noma ukunciphisa ingozi yokuba izingane zethu zisithole.
Odokotela bakholelwa ukuthi lesi sifo singase sihlobane nendlela ubuchopho bengane obukhula ngayo. Lawa mathumba avame ukwakheka lapho ubuchopho bushintsha ngokushesha.
Ungasithola kanjani lesi sifo ngokunembile? (Ukuxilongwa)
Uma ingane yakho inalezi zimpawu, kufanele uqale uyiyise kudokotela wezingane. Udokotela uzohlola ingane yakho bese ebuza ngezimpawu zayo kanye nomlando wezokwelapha. Ngemuva kwalokho, bangenza izivivinyo ezithile ukuqinisekisa ukuxilongwa.
1. Ukuskena kobuchopho (Ukuthwebula izithombe)
Ukuskena kobuchopho, ikakhulukazi ukuskena kwe-CT kanye nokuskena kwe-MRI, kungasiza ekuqinisekiseni i-DIPG. Ngezinye izikhathi, ukuhlolwa okukhethekile okubizwa nge-magnetic resonance spectroscopy (MRS) nakho kungenziwa. Ukuze kuboniswe isimila ngokucacile, uketshezi olukhethekile olubizwa ngokuthi idayi yokungafani lungafakwa ngaphambi kwe-MRI. Odokotela bangase basole i-DIPG ngokubheka indawo yesimila esiqwini sobuchopho nokuthi sisakazeke kanjani ezicutshini ezizungezile.
2. Ukuhlolwa kwe-biopsy
Nakuba i-MRI ivame ukuxilonga lesi sifo, ezinye izingane ezinezimpawu ezingavamile kungadingeka ukuthi zihlolwe i-biopsy ukuqinisekisa ukuxilongwa okungu-100%. Lokhu kwenziwa udokotela wezinzwa wezingane. Lokhu kuhilela ukwenza imbobo encane kakhulu ekhanda, ukufaka inalithi encane ngayo ebuchosheni, bese kuthathwa ingxenye encane kakhulu yezicubu ezivela esimila. Le ndlela ibizwa ngokuthi "i-stereotactic biopsy". Udokotela wezifo ube esehlola isampula yezicubu ngaphansi kwe-microscope ukuqinisekisa ukuthi kukhona yini amangqamuzana omdlavuza.
Yiziphi izindlela zokwelapha i-DIPG?
Lena yingxenye enzima kakhulu ukukhuluma ngayo. Ngoba i-DIPG uhlobo lomdlavuza olunzima kakhulu ukwelapha. Izindlela zokwelapha zamanje azikwazi ukwelapha lesi sifo ngokuphelele. Kodwa-ke, kunezindlela zokwelapha ezingasiza ekunciphiseni izimpawu zengane futhi zandise impilo yayo.
- Ukwelashwa Ngemisebe: Lokhu kuyindlela eyinhloko yokwelapha i-DIPG. Kuhilela ukusetshenziswa kwe-X-ray enamandla amakhulu eqondiswe esimila. Lokhu kwenziwa ngezikhathi eziningana nsuku zonke, ngezinye izikhathi kuze kube yizikhathi ezingu-30 sezizonke. Ezinganeni eziningi, lokhu kwelashwa kunciphisa isimila, kunciphisa ingcindezi ebuchosheni futhi kunciphise izimpawu. Lokhu kungandisa impilo yengane ngezinyanga eziningana. Kodwa-ke, umphumela ungowesikhashana. Isimila sizoqala ukukhula futhi ezinyangeni ezimbalwa.
- Ukwelashwa ngamakhemikhali: Imithi emisha ye-chemotherapy ehlolwayo njengamanje inikezwa kanye nokwelashwa ngemisebe. Kodwa-ke, akukho ukwelashwa okusebenzayo okwamanje okutholakale kulolu hlobo lomdlavuza. Njengendlela entsha, ngezinye izikhathi ukwelashwa okuletha imithi yomdlavuza ngqo esigaxeni nakho kuyahlolwa.
- Ukuhlinzwa: Ukuhlinzwa akuvamile ukuba kwenzeke nge-DIPG. Lokhu kungenxa yokuthi isimila sifana nebhotela esiqeshaneni sesinkwa. Okusho ukuthi, sesisabalele futhi sakhula saba amangqamuzana obuchopho aphilile. Ngakho-ke akusona isimila esiqinile esingasuswa kalula. Uma kwenziwa ukuhlinzwa, ingozi yokulimaza izingxenye ezibalulekile zobuchopho ezinempilo iphezulu kakhulu. Kungaba ngisho yingozi empilweni yengane.
Umbono we-DIPG
Eqinisweni, umbono wengane ene-DIPG awumuhle kakhulu. Ngiyazi ukuthi lokhu kubuhlungu kakhulu ukuzwa. Umgomo oyinhloko wodokotela ukwenza ingane ikhululeke futhi ingabi nobuhlungu ngangokunokwenzeka. Ukwelashwa kwamanje kuhloselwe ukulawula izimpawu kunokwelapha lesi sifo.
Ngokwezibalo, izingane eziyi-10% kuphela ezisinda eminyakeni emi-2 ngemva kokuxilongwa. Ezingaphansi kuka-2% zisinda iminyaka emi-5. Ngiyaqonda ukuthi uzizwa kanjani uma uzwa lezi zinombolo. Kodwa kubalulekile ukuqaphela lesi simo.
Umlayezo Wokuya Nawe Ekhaya
- I-DIPG uhlobo olungavamile kakhulu kodwa oluyingozi kakhulu lomdlavuza we-brain stem ezinganeni.
- Lesi sifo asibangelwa yinoma yiliphi iphutha labazali noma ithonya lendawo engaphandle. Ungazisoli.
- Uma ubona ushintsho oluzumayo ekuhambeni kwengane yakho, ekulinganiseni kwayo, ekunyakazeni kwayo amehlo, ekukhulumeni kwayo, noma ekugwinyeni kwayo, xhumana nodokotela ngokushesha .
- Ukuhlinzwa akusebenzi kulesi sifo. Ukwelashwa okuyinhloko ukwelashwa ngemisebe ukuze kuncishiswe izimpawu.
- Lesi isikhathi esinzima kakhulu enganeni nasemndenini. Kubaluleke kakhulu ukufuna usizo kodokotela, kubangani, kanye nabeluleki.
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