Wake wabheka isisu somntwana wakho osanda kuzalwa waphawula ukuthi isikhumba sakhe sishwabene kakhulu, njengesithelo esomisiwe? Noma sizizwa sibuthakathaka kakhulu futhi singenanyama? Kujwayelekile ukuthi wesabe njengomama uma ubona izinto ezinjengalezi. Kodwa lokhu kungaba uphawu lwesifo sokuzalwa esingavamile kodwa esibi kakhulu esibizwa ngokuthi i-Prune Belly Syndrome. Namuhla, sizoxoxa ngalokhu ngendlela elula ongayiqonda.
Iyini i-Prune Belly Syndrome?
Kalula nje, i-Prune Belly Syndrome yisimo esingavamile kakhulu esenzeka lapho kuzalwa. Ibizwa nangokuthi i-Eagle-Barrett syndrome. I-"Prune" iyisithelo esifana negilebhisi elomisiwe noma iplamu. Leli gama livela eqinisweni lokuthi laba bantwana babonakala bemibimbi esiswini sabo.
Lesi simo sinezimpawu ezintathu eziyinhloko, yingakho ngezinye izikhathi sibizwa ngokuthi "i-triad syndrome."
1. Ukungabikho noma imisipha yesisu ebuthakathaka kakhulu: Lesi yisibonakaliso esiyinhloko sangaphandle. Imisipha yesisu ayikhuli kahle, okwenza isikhumba esiswini sibonakale sigobile futhi sishwabene.
2. Amasende angakafiki: Lesi simo sithinta kakhulu abafana. Amasende abo ahlala ngaphakathi esiswini, kunokuba ehlele esikhumbeni.
3. Izinkinga zesinyi esikhulu ngokungavamile kanye nesistimu yomchamo: Lena yinkinga enkulu kakhulu yalesi sifo. Isinyi siba sikhulu kakhulu, okubangela izinkinga ezinkulu ohlelweni lomchamo.
Lezi zinkinga zesistimu yomchamo zivimbela ingane ekukhipheni ngokuphelele isinyi sayo, izinso, kanye namapayipi athwala umchamo usuka ezinso uye kwesinye (ureters).
Uma ingane izalwa inalesi simo, ingaba nezinkinga endleleni yomchamo. Isibonelo, i-urethra ingaba banzi ngendlela engavamile, umchamo ungahlangana futhi ugcwale, futhi umchamo ungageleza ubheke emuva ezinso (backflow).
I-Prune Belly Syndrome ingabangela nezinye izinkinga zokuzalwa. Lokhu kufaka phakathi izinkinga emaphashini, enhliziyweni, emathunjini, kanye nasesimisweni samathambo. Nakuba lesi simo singavami ukuthinta amantombazane, ama-95% amacala abikwe kubafana.
Kungani lokhu kwenzeka? Yiziphi izizathu?
Eqinisweni, odokotela abakayitholi imbangela eqondile ye-Prune Belly Syndrome, kodwa kunemibono eminingana ephakamisa ukuthi ingaba imbangela.
- Umbono wokuqala:Njengoba umntwana ekhula esibelethweni, kucatshangwa ukuthi kukhona ukuvaleka kwesinye noma e-urethra. Lokhu kuvimbela umchamo ukuthi ungaphumi emzimbeni, okubangela ukuthi esinyeni, i-ureter, kanye nezinso zikhule. Lapho esinyeni siba sikhulu kakhulu, ingcindezi esiyidalayo ivimbela imisipha yesisu ukuthi ikhule kanye namasende ukuthi ehle.
- Umbono wesibili: Ngenxa yokuthi imisipha yesisu ayikhuli kahle, kunzima ngengane ukuchama. Lokhu kubangela ukuthi uhlelo lomchamo luvuvuke, okubangela izifo nezinkinga.
- Umbono wesithathu: Mhlawumbe lobu buthakathaka bemisipha nezinkinga zesistimu yomchamo kufana ngokuthile, futhi kungase kube nembangela esingayazi (isibonelo, iphutha ohlelweni lwezinzwa).
Njengoba kube nemibiko eminingana yalesi simo esenzeka ezinganeni zakubo emndenini ofanayo, kwenziwa ucwaningo ukuze kutholakale ukuthi kukhona yini ukuxhumana kwezakhi zofuzo nalokhu.
Ziyini izimpawu zalesi simo?
Uhlobo kanye nobukhali bezimpawu kungahluka kuye ngengane ene-Prune Belly Syndrome. Kodwa-ke, kunezimpawu ezithile ezivamile. Bheka ithebula elingezansi.
| Isibonakaliso | Incazelo elula |
|---|---|
| Isisu esishwabene | Isikhumba sibonakala sigobile futhi somile ngenxa yokuntuleka kwemisipha esiswini. |
| Ukuvuvukala esiswini esingezansi | Isisu esingezansi sibonakala sivuvukele ngenxa yokukhula kwesinyi. |
| Ukuphuma kwamathumbu | Isimo samathumbu esimahhadla sibonakala esikhumbeni ngenxa yobuthakathaka bolwelwesi lwesisu. |
| Ukutheleleka okuvamile komgudu womchamo (UTIs) | Ukutheleleka okuvamile okubangelwa ukuchama okungafanele. |
| Ubunzima bokuhlala nokuhamba | Ubunzima bokulawula umzimba ngenxa yokuntuleka kwamandla angaphakathi. |
| Ukuthulula i-scrotum | Amasende ezingane zesilisa awekho esinqeni. |
Ngaphezu kwalokho, ezinye izingane zingase zibe ne-clubfoot, isimo lapho unyawo luzalwa khona unyawo lubheke ngaphakathi, kanye ne -spina bifida , ukukhubazeka kokuzalwa lapho imizwa emgogodleni ingakhuli kahle.
Ungasibona kanjani lesi simo?
Esikhathini esiningi, odokotela bangasibona lesi simo ngesikhathi sokuhlolwa kwe -ultrasound ngesikhathi sokukhulelwa kwakho. Uma kungenjalo, lezi zimpawu zizobonakala ngokucacile ngesikhathi sokuhlolwa kokuqala kwezokwelapha ngemva kokuzalwa komntwana.
Udokotela wakho angenza izivivinyo eziningana ukuqinisekisa ukuxilongwa nokuthola ukuthi lesi sifo sibucayi kangakanani.
- I-Ultrasound Scan: Lokhu kusiza ukubona isimo sezinso nezinye izitho zohlelo lomchamo.
- Ukuhlolwa kwe-X-ray: Kunezinhlobo ezimbili ze-X-ray ezisebenzisa udayi okhethekile ukuze zifakwe emzimbeni. Enye i-pyelogram ye-intravenous (IVP) kanti enye i-voiding cystourethrogram (VCUG). Lokhu kungabonisa ngokusobala ukuvinjelwa nezinkinga ohlelweni lomchamo.
- Ukuhlolwa kwegazi: Lokhu kuhlolwa kusiza ekunqumeni ukuthi izinso zengane yakho zisebenza kahle kangakanani.
Yiziphi izindlela zokwelapha?
Ngenxa yokuthi izimpawu nobunzima be-Prune Belly Syndrome kuyahlukahluka, kunezindlela eziningi zokwelapha. Udokotela uzonquma ukwelashwa okufanele kakhulu ngokusekelwe esimweni sengane. Ngokuvamile, kudingeka ukuhlinzwa okuningana.
| Igama lokuhlinzwa (Igama lesiNgisi) | Kalula nje, kusho ukuthini lokhu? |
|---|---|
| I-Vesicostomy | Kwenziwa imbobo encane esiswini iye esinyeni, okuvumela umchamo ukuthi udlule kalula. |
| I-Orchiopexy | Amasende esiswini afakwa ngokuhlinzwa esikhumbeni bese elungiswa. |
| I-Cystoplasty | Lokhu ukuhlinzwa kokwakha kabusha noma ukwakha kabusha isinyi. |
| Ukwandiswa kwe-Detrusor | Ukuhlinzwa kokuqinisa imisipha yesinye. Ngezinye izikhathi, ngisho nengxenye yemisipha evela endaweni yesinqe ingasetshenziswa. |
| Ukufakelwa kwezinso | Ezimweni ezimbi kakhulu, uma izinso zingasebenzi kahle, ingane ingadinga ukufakelwa izinso. |
Lizoba njani ikusasa lomntwana? (Isibikezelo)
Kunzima ukunikeza impendulo eyodwa kulo mbuzo, ngoba ikusasa lomntwana lincike ebunzimeni besifo, ubudala bomntwana, kanye nempilo yakhe iyonke.
Kunezimo lapho ezinye izingane zishona zisesesiswini (zizalwa zifile). Ezinye izingane zingase zife zingakapheli izinyanga ezimbalwa zizelwe. Lena inkinga ebucayi kakhulu ngempela.
Kodwa-ke, ngisho noma belashwa, ezinye izingane zingase zibe nokwehluleka kwezinso . Ukwehluleka kwezinso kwenzeka lapho izinso zilahlekelwa cishe u-85-90% womsebenzi wazo, kuze kube yilapho zingasakwazi ukusebenza kahle. Ngemuva kwalokho, imfucuza namanzi engeziwe kuqongelela emzimbeni, okwenza ingane igule kakhulu. Izimpawu zifaka phakathi ukukhathala, ukulahlekelwa yisifiso sokudla, ukulunywa, kanye nemilenze evuvukele.
Uma izinso zehluleka ukusebenza, ukwelashwa kuba yi-dialysis noma ukufakelwa izinso .
Okokugcina, uma usola ngisho nokuncane ukuthi ingane yakho ibonisa noma yiziphi zalezi zimpawu, bona udokotela ngokushesha . Ukuxilongwa kusenesikhathi kanye nokuqala ukwelashwa okufanele kungaholela emphumeleni ongcono enganeni yakho.
Umlayezo Wokuya Nawe Ekhaya
- I-Prune Belly Syndrome iyisifo esingavamile kakhulu esithinta kakhulu izingane zabesilisa.
- Izimpawu ezintathu eziyinhloko zalesi simo isikhumba esishwabene esiswini, imisipha ebuthakathaka, kanye nezinkinga zesistimu yomchamo.
- Nakuba imbangela eqondile yalokhu ingakatholakali, kukholakala ukuthi kungenzeka ukuthi ibangelwa ukuvaleka kwesistimu yomchamo ngesikhathi sokukhulelwa.
- Lokhu kungatholakala ngokusebenzisa ama-scan ngesikhathi sokukhulelwa noma ngemva kokuzalwa komntwana.
- Ukuhlinzwa kuvame ukudingeka njengokwelashwa. Uma isimo sibi kakhulu, kunengozi yokwehluleka kwezinso.
- Uma ingane yakho inanoma yiziphi zalezi zimpawu, ungalibali bese ubona udokotela wakho ngokushesha . Ukungenelela kusenesikhathi kubaluleke kakhulu.
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