Ebia woate "anemia" anaa "anemia" ho asɛm ɛnte saa? Sɛ yɛbɛka no tiawa a, ɛyɛ bere a yɛn nipadua no ntumi nyɛ mogya mu nkwammoaa kɔkɔɔ a ɛdɔɔso anaasɛ mogya mu nkwammoaa kɔkɔɔ a yɛwɔ no ntumi nyɛ adwuma yiye no. Mogya mu nkwammoaa kɔkɔɔ na ɛde mframa pa kɔ yɛn nipadua nyinaa mu titiriw. Enti sɛ wɔba fam a, yebetumi ate ɔbrɛ ne ɔbrɛ nka bere nyinaa. Wɔyɛ mogya mu nkwammoaa kɔkɔɔ yi wɔ nnompe mu ntini, ntini a ɛyɛ mmerɛw na ɛte sɛ sponge a ɛwɔ yɛn nnompe mu no mu. Diamond-Blackfan Anemia (DBA) yɛ mogya a ɛtɔ kɔ nipadua mu titiriw bi a ɛba bere a nnompe mu ntini no ntumi nyɛ mogya mu nkwammoaa kɔkɔɔ a ɛdɔɔso no.
Dɛn na ɛde Diamond-Blackfan Anemia (DBA) ba?
Diamond-Blackfan Anemia a ɛtɔ da bi a wɔfrɛ no ``acquired pure red cell aplasia'' no, nnuruyɛfo taa hu ansa na abofra adi afe biako. Nea ɛde eyi ba titiriw ne nsakrae, anaa nkwaadɔm mu nsakrae, wɔ awosu mu nneɛma a ɛkyekye yɛn nipadua no mu.
Kae sɛ ɛtɔ mmere bi a, wobetumi anya saa awosu mu dɛmdi yi afi ɛna no anaa agya no hɔ. Nanso ɛnyɛ bere nyinaa na ɛte saa. Mmofra awosu bi nso tumi sesa wɔn ho ara kwa. Mmofra a wɔwɔ DBA no mu dodow no ara wɔ saa tebea yi esiane awosu mu nsakrae foforo nti. Enti, sɛ́ awofo no, ɛho nhia sɛ yɛhaw yɛn ho wɔ eyi ho a ɛho nhia. Ɛwom sɛ ɛkame ayɛ sɛ wɔahu awosu mu ade pɔtee bi a ɛde DBA ayarefo fã ba de, nanso wɔ nnipa binom fam no, wonnya nhuu nea ɛde tebea yi ba pɔtee.
Dɛn ne DBA ho sɛnkyerɛnne ahorow?
Mmofra a wɔwɔ DBA nso betumi anya mogya a ɛtɔ kɔ nipadua no mu ahorow afoforo ho sɛnkyerɛnne ahorow pii. Ɛyɛ,
- Ɔbrɛ a ɛkɔ so daa
- Wora a ɛyɛ mmerɛw
- Sɛ́ wobɛte nka sɛ wayɛ mmerɛw
Wɔ nneɛma a ɛtaa ba yi akyi no, mmofra bi a wɔwo wɔn a wɔwɔ DBA no betumi anya akyi nneɛma pɔtee bi wɔ wɔn anim ne wɔn nipadua so. Momma yɛnhwɛ nea wɔyɛ.
| Nipadua fã | Nneɛma a wotumi hu |
|---|---|
| Tire | Ti a ɛyɛ ketewaa sen sɛnea ɛte daa a wubenya. |
| Anim | Aniwa ne hwene a ɛyɛ tratraa ntam kwan a ɛkɔ soro. |
| Aso | Aso nketewa abien a wɔde asisi fam sen sɛnea ɛte daa. |
| Apantan | Sɛ wowɔ anom a ɛwɔ fam ketewaa bi. |
| Kɔn | Kɔn tiaa bi a wɔde nhama ayɛ. |
| Mmati so | Mmati so nsensanee nketewa. |
| Nsa | Nsateaa a wɔayɛ no soronko. |
| Anom | Sɛ wowɔ anom anaa anofafa a apaapae. |
Nea ɛka ho no, DBA betumi ama obi anya asaabo mu haw , komayare , ne aniwa mu haw te sɛ aniwa a ɛyɛ mmerɛw ne atiridiinini . Mmarimaa nso betumi anya awo mu dɛmdi bi a wɔfrɛ no hypospadias, a ɛyɛ bere a ɔkwan a wɔfa so tow nsu no nni ɔbarima akyi berɛmo no ano.
Ɔkwan bɛn so na wobetumi ahu yare yi pɛpɛɛpɛ?
Wo duruyɛfo betumi ayɛ nhwehwɛmu pii de ahu sɛ ebia wo ba no wɔ DBA anaa. Mmofra a wɔwɔ DBA no mogya mu nkwammoaa kɔkɔɔ dodow sua, nanso mogya mu nkwammoaa fitaa ne mogya mu nkwammoaa kɔkɔɔ dodow a ɛfata.
Nea ɛho hia sen biara ne sɛ ɛnsɛ sɛ wobɔ hu bere a wuhu saa sɛnkyerɛnne ahorow yi no, na mmom wobɛkɔ oduruyɛfo a ɔfata nkyɛn ntɛm ara sɛnea wubetumi. Ɔbɛyɛ sɔhwɛ ahorow a ɛho hia na wama wo nsɛm a ɛyɛ nokware sen biara.
Eyinom yɛ nhwehwɛmu atitiriw a oduruyɛfo no yɛ no bi.
| Sɔhwɛ | Dɛn na ɛhwehwɛ? |
|---|---|
| Mogya Dodow a Edi Mu (CBC) . | Wɔsusuw nneɛma pii wɔ mogya no mu, te sɛ mogya mu nkwammoaa kɔkɔɔ dodow, mogya mu nkwammoaa fitaa, mogya nkwammoaa, protein a ɛde oxygen kɔ hemoglobin, ne mogya mu nkwammoaa kɔkɔɔ dodow (hematocrit) . |
| Reticulocyte dodow a ɛwɔ nipadua no mu | Eyi kyerɛ mogya mu nkwammoaa kɔkɔɔ a ennyinii, anaa nea aba foforo no dodow. Eyi betumi akyerɛ sɛ ebia nnompe mu ntini no reyɛ nkwammoaa kɔkɔɔ yiye anaa. |
| Hwɛ eADA dodow | Nnipa a wɔwɔ DBA no mu bɛyɛ 80% wɔ enzyme bi a wɔfrɛ no erythrocyte adenosine deaminase (eADA) dodow a ɛkɔ soro . Eyi ne nea sɔhwɛ yi hwehwɛ. |
| Hemoglobin dodow a ɛwɔ awotwaa mu | Eyi ne hemoglobin a nkokoaa wɔ wɔ awotwaa mu. Ɛsɛ sɛ ɛso tew wɔ awo akyi. Nanso, ebia mmofra a wɔwɔ DBA no da so ara wɔ dodow a ɛkɔ soro bere a wɔrenyin no. |
| Nnompe mu ntini a wɔtwetwe ne biopsy | Wɔde ade na eyi nkwammoaa ne nsu kakraa bi fi nnompe mu ntini no mu na wɔsɔ hwɛ. Mmofra a wɔwɔ DBA no wɔ mogya mu nkwammoaa kɔkɔɔ a ɛte apɔw kakraa bi pɛ wɔ wɔn nnompe mu. |
| Awosu mu nhwehwɛmu | Eyi hwehwɛ awosu mu nkwaadɔm a ɛfa DBA anaa mogya a ɛtɔ kɔ nipadua mu afoforo a wonya fi awofo hɔ ho. |
Nsɛnnennen afoforo bɛn na ebetumi aba esiane DBA nti?
Nnipa a wɔwɔ DBA no wɔ asiane kɛse mu kakra sɛ wobenya nyarewa ne tebea horow bi. Eyinom bi ne mogya ne nnompe mu kokoram (acute myeloid leukemia), nnompe mu kokoram (osteosarcoma), ne nyarewa afoforo a nnompe mu ntini ntumi nyɛ mogya mu nkwammoaa a ɛte apɔw (myelodysplastic syndrome). Nanso mma eyi ho nhaw wo. Nnuruyɛfo rehwɛ eyi so bere nyinaa, enti wubetumi ayɛ ayaresa ho nhyehyɛe a ɛho hia wɔ bere a ɛfata mu.
Dɛn ne ayaresa ahorow a wɔde sa eyi?
Eyi ne ɔfã a ɛho hia na ɛma awerɛkyekye sen biara. Mmofra a wɔahu sɛ wɔwɔ DBA no betumi atra ase akyɛ na wɔadi yiye bere a wɔde ayaresa ma wɔn. Mmofra binom kɔ ahotɔ koraa mu, a ɛkyerɛ sɛ yare no ho sɛnkyerɛnne no yera bere tenten bi.
Ayaresa atitiriw abien a wɔde di dwuma ne nnuru a wɔde yɛ corticosteroid ne mogya a wɔde ma.
- Corticosteroid nnuru: Nnuru te sɛ `(Prednisone)` kanyan nnompe mu ntini no na ɛboa ma ɛyɛ mogya mu nkwammoaa kɔkɔɔ pii.
- Mogya a wɔde ma: Eyi yɛ ɔkwan pa a wobetumi afa so sɛ nnuru a wɔde sa steroid no ntumi nyɛ adwuma yiye, anaasɛ sɛ mogya a ɛtɔ kɔ nipadua no mu no mu yɛ den a. Nea ɛka eyi ho ne mogya anaa mogya mu nkwammoaa kɔkɔɔ a wɔde bɛma abofra no afi obi a ɔwɔ apɔwmuden hɔ.
- Nnompe mu ntini/ntini mu nkwammoaa a wɔde si ananmu: Eyi nkutoo ne aduru a wɔde sa DBA. Nanso, asiane wom kakra. Afei nso, ɛtɔ mmere bi a ebetumi ayɛ den sɛ wubenya obi a ɔne no bɛma no.
Ɛho hia sɛ wo ne wo duruyɛfo susuw ayaresa akwan yi nyinaa, ne mfaso ne ɔhaw ahorow ho pefee, na wopaw nea eye ma wo ba.
Nkrasɛm a Wɔde Kɔ Fie
- Diamond-Blackfan Anemia (DBA) yɛ awosu mu tebea a ɛntaa nsi wɔ mmofra mu a nnompe mu ntini ntumi mma mogya mu nkwammoaa kɔkɔɔ a ɛdɔɔso.
- Nea ɛka sɛnkyerɛnne ahorow a ɛtaa ba te sɛ ɔbrɛ a wɔtaa yɛ ne honam ani hwɛbea ho no, yare yi nso betumi de akyi nneɛma pɔtee bi aba anim ne nipadua no so.
- Oduruyɛfo betumi afa mogya mu nhwehwɛmu ne nnompe mu nhwehwɛmu so ahu yare yi pɛpɛɛpɛ.
- Ayaresa te sɛ steroid nnuru ne mogya a wɔde ma betumi aboa mmofra ma wɔatra ase akyɛ na wɔanya apɔwmuden. Nnompe mu ntini a wɔde si ananmu nkutoo ne ayaresa a wɔde sa yare.
- Sɛ wowɔ adwenem naayɛ ketewaa bi mpo sɛ wo ba no wɔ saa sɛnkyerɛnne ahorow yi a, mma wo ho nnpopo na kɔ mmofra oduruyɛfo nkyɛn ntɛm ara. Nhwehwɛmu a wɔyɛ no ntɛm ne ayaresa ho hia yiye.
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