Ni aw ka denbaya kɔnɔ, aw ka mɔgɔ kanulen dɔ bɛ ni bana ye min bɛ wele ko Down Syndrome, a ka ca a la, aw bɛ ɲininkali suguya caman kɛ, ani laala hali siran dɔɔni, u ka kɛnɛyako la ni u bɛ kɔrɔbaya. Kɛrɛnkɛrɛnnenya la, n'a sɔrɔla aw ye "Alzheimer bana" tɔgɔ mɛn kosɛbɛ. N’a sɔrɔ aw ye aw yɛrɛ ɲininka kosɛbɛ ni jɛɲɔgɔnya bɛ nin bana fila ninnu cɛ tiɲɛ na. Tiɲɛ don, o bɛ yen. Nka sanni i ka siran, an ka kuma o kan cogo jɛlen na, cogo nɔgɔman na, ani cogo nɔgɔman na.
Mun na a fɔra ko Down syndrome bɛ mɔgɔ minnu na, olu farati ka bon ka Alzheimer bana sɔrɔ?
Walasa k’o faamu, an ka kan ka segin an farikolo yɔrɔ kolomaw kan. Olu ye an ka kolosinsinnanw ye . N’an y’a fɔ cogo nɔgɔman na, o kolosinsinnanw bɛ i n’a fɔ ‘cikanw’ minnu bɛ an farikolo selilɛri kelen-kelen bɛɛ kɔnɔ. Fɛn o fɛn bɛ bɔ an kunsigi kulɛri la ka taa a bila an janya la, o bɛɛ bɛ dɔn ni o kolosinsinnanw kɔnɔfɛnw ye. A ka c’a la, mɔgɔ bɛ ni kolosinsinnan suguya kelen-kelen bɛɛ kopi fila ye.
Nka, Down syndrome bɛ mɔgɔ min na, o tigi bɛ ni kolosinsinnan 21 dɔ wɛrɛ ye, o kɔrɔ ye ko kopi saba . A ni Alzheimer bana bɛ tali kɛ ɲɔgɔn na nin cogo in na: Jɛnkulu min bɛ farikolojɔli dumuni jugu dɔ (beta-amiloïde) dilanni ɲɛminɛ min bɛ bila kunsɛmɛ na ni Alzheimer bana bɔra, o bɛ sɔrɔ o kolosinsinnan 21 kelen in de kan.
O la, ikomi kolosinsinnan 21 kopi wɛrɛ bɛ yen, Down syndrome bɛ mɔgɔ min na, o bɛ o farikolojɔli dumuni jugu in caman dilan a hakili la. Waati tɛmɛnen kɔfɛ, o farikolojɔlifɛnw bɛ dalajɛ ka bila kunsɛmɛ selilɛriw lamini na, ka o farikolokisɛw tiɲɛ ani ka daminɛ k’u tiɲɛ. O de bɛ kɛ Alzheimer bana na.
Ka fara o kan, Down syndrome bɛ mɔgɔ minnu na, olu farikolo ni u kunkolo bɛ kɔrɔya joona ka tɛmɛ mɔgɔ gansan kan (kɔrɔya joona) . O kɔrɔ ye ko Down syndrome bɛ mɔgɔ min na, o farikolo bɛ se ka kɛ i n’a fɔ mɔgɔ min si bɛ san 65 walima san 70 la, o farikolo bɛ se ka kɛ i n’a fɔ jamanaden bɛɛ lajɛlen. Nin kɔrɔya teliya in fana ye sababuba ye min bɛ kɛ sababu ye ka Alzheimer bana daminɛ joona.
A taamasiɲɛw bɛ ye cogo di? Yala u ni Alzheimer bana taamasiɲɛw tɛ kelen ye wa?
Ɔwɔ, nin ye hakilina ye min nafa ka bon kosɛbɛ. Alzheimer bana taamasiɲɛw bɛ se ka kɛ mɔgɔ la min bɛ ni Down syndrome ye, o bɛ se ka kɛ danfara dɔɔni ye ni mɔgɔ kɛnɛman taamasiɲɛw ye. O de kama a bɛ se ka gɛlɛya tuma dɔw la ka nin bana in dɔn.
Ni an miirila Alzheimer bana la, a ka c’a la, an hakili bɛ to an hakili la. Nka Down syndrome bɛ mɔgɔ min na, a bɛ se ka kɛ ko hakilijagabɔbaliya tɛ a taamasiɲɛ fɔlɔ ye . Yɛlɛma wɛrɛw bɛ se ka kɔlɔsi fɔlɔ.
An k’a lajɛ o fɛn caman Changements (Yɛlɛma) ye mun ye ja in kɔnɔ min bɛ duguma.
| Taamaʃyɛn | A bɛ cogo min na mɔgɔ la min bɛ ni Down syndrome ye |
|---|---|
| Don o don baara | Fɔlɔ, i tun bɛ se ka fɛn minnu kɛ i yɛrɛ ye, i n’a fɔ ka fini don, ka dumuni kɛ, ka i ko, ani ka te dila, olu bɛ dɛmɛ de wajibiya. O kow kɛli diya ni seko bɛ dɔgɔya dɔɔni dɔɔni. |
| Taamacogo bɛ Changé | O yɔrɔnin bɛɛ, u bɛ kɛ mɔgɔ kuncɛbaw ye, u bɛ u yɛrɛ minɛ cogo la min tɛ hakili sɔrɔ, u bɛ jɔrɔ, walima u bɛ daminɛ ka jɔ kɛrɛfɛ u makuntɔ, k’a sɔrɔ u ma u mago don a fan dɔ la, k’a sɔrɔ u ma kuma. |
| Kɔnɔnafili minnu bɛ daminɛ kura ye | Nin ye taamasiɲɛ ye min nafa ka bon kosɛbɛ. Ni mɔgɔ min ma deli ka kirinni sɔrɔ a ka ɲɛnamaya kɔnɔ, o tigi ye kirinni kura daminɛ a si san 40 kɔfɛ, o bɛ se ka kɛ Alzheimer bana taamasiɲɛ ye. |
| Hakililajigin ni miirili seko | Hali ni hakilijagabɔ tɛ se ka ye a daminɛ na, a bɛ se ka kɛ waati tɛmɛnen kɔfɛ. A bɛ gɛlɛya ka fɛn kuraw to an hakili la. Se min bɛ mɔgɔ la ka ko ɲuman sugandi ka bɔ kojugu la ani ka desizɔnw ta, o bɛ dɔgɔya. |
| Kuma gɛlɛya | I bɛ se ka kuma dɔgɔyali daminɛ, a bɛ gɛlɛya i ma ka daɲɛw sɔrɔ, walima ka i ka kumaw fɔ ka ɲɛ. |
Min nafa ka bon kosɛbɛ, o ye ka fɛn dɔ ye min bɛ fɛn dɔ Changer ka bɔ i den walima i somɔgɔw ka kɛwalew la (baseline) . Ikomi kalanko gɛlɛya dɔw b’u la kabini u bange waati, a bɛ se ka gɛlɛya ka fɛn dɔw dɔn minnu bɛ yeli kɛ u hakili la. Nka n'i y'a ye ko "Nin tigi tun tɛ nin cogo la fɔlɔ, sisan u tɛ kelen ye", o de nafa ka bon kosɛbɛ.
Farati bɛ bonya san jumɛn na?
A ka ca a la, alzheimer bana bɛ sɔrɔ jamanaden bɛɛ la san 65 kɔfɛ.Nka, Down syndrome bɛ mɔgɔ min na, o farati bɛ kɔn o ɲɛ kosɛbɛ.
- A si bɛ san 35 laKɔsa in na, sɛgɛsɛgɛliw y’a jira ko Down syndrome bɛ mɔgɔ minnu na, olu 25% ɲɔgɔn (kelen naani o naani) bɛ se ka Alzheimer bana taamasiɲɛw jira.
- Mɔgɔ caman fɛ, bana taamasiɲɛw bɛ daminɛ ka ye u si san 40 cɛmancɛ la walima u si san 50 daminɛ na.
- Kuma bɛɛ la, Down syndrome bɛ mɔgɔ min na, o tigi ka se ka Alzheimer bana sɔrɔ , o ka ca ni jamanaden bɛɛ ta ye siɲɛ saba fo siɲɛ duuru.
Ne ka kan ka mun kɛ i n’a fɔ kɔrɔsibaga?
O kunnafoniw bɛ se ka siran i ɲɛ. Nka, i kana siran. Lafaamuyali ye marifa ɲuman ye. Fɛn nafamaba dɔw bɛ yen i bɛ se ka minnu kɛ.
1. Dɔgɔtɔrɔso lajɛw kɛli tuma bɛɛ: A nafa ka bon ka taa ni i den walima i somɔgɔw ye dɔgɔtɔrɔso la tuma bɛɛ. Kɛrɛnkɛrɛnnenya la, san 30 kɔfɛ, aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ kɛnɛ kan Alzheimer bana farati kan.
2. Jateminɛ daminɛ na: Ni aw si bɛ san 30 la, aw ni aw ka dɔgɔtɔrɔ ka baara kɛ walasa ka aw den hakili to a la, a ka don o don baara kɛcogo ani a ka kɛwalew jateminɛ. O bɛna i dɛmɛ k’a dɔn fɛn o fɛn bɛna Changé don nataw la.
3. I janto fɛn caman Changements: I b’a dɔn kosɛbɛ. O la sa, hali fɛn fitinin minnu b’i kɔlɔsi, i k’u sɛbɛn gafe dɔ kɔnɔ ni don ni waati ye. Aw ye sɛbɛnniw kɛ i n'a fɔ "A ma se k'a ka sanbara don a kelen na bi", "A dusu tiɲɛna kosɛbɛ kabini dɔgɔkun tɛmɛnen." O bɛna dɔgɔtɔrɔ dɛmɛ kosɛbɛ.
4. Aw bɛ taa dɔgɔtɔrɔso la joona: Ni aw ye taamasiɲɛ minnu kofɔlen don sanfɛ, olu kelen walima u caman ye, aw kana kɔnɔni kɛ fo kɔfɛ ka taa dɔgɔtɔrɔso la . Hali ni Alzheimer bana tɛ se ka kɛnɛya pewu, furakɛli ni fɛɛrɛ suguya caman bɛ yen minnu bɛ se ka dɛmɛ don ka bana taamasiɲɛw kunbɛn, ka ɲɛnamaya kɛcogo ɲɛ, ani ka lafiya di aw ni banabagatɔ fila bɛɛ ma.
Take-Home cikan
- Down syndrome bɛ mɔgɔ minnu na, olu ka Alzheimer bana sɔrɔli farati ka bon kosɛbɛ jamu fɛ ka tɛmɛ jamanaden bɛɛ kan.
- A ka ca a la, bana taamasiɲɛw bɛ daminɛ san 40 walima san 50 daminɛ na, ka kɔn o ɲɛ kosɛbɛ ka tɛmɛ jamanaden bɛɛ kan.
- Sani a ka kɛ hakilijagabɔ ye, a taamasiɲɛ fɔlɔw bɛ se ka kɛ fɛn ye min bɛ se ka yeli kɛ a kɛcogo la, a tɛ se ka don o don baara kɛ, walima a bɛ se ka kirin kura.
- Ni aw ye yɛlɛma jɛlen dɔw kɔlɔsi aw diyanyemɔgɔ ka kɛwalew la, a sekow la, walima a ka don o don delinankow la, aw ye aw jija ka kuma aw ka dɔgɔtɔrɔ fɛ o ko la.
- Ni aw ye a dɔn joona ani ka a furakɛ ka ɲɛ, o bɛ se ka banabagatɔ ka ɲɛnamaya kɛcogo ɲɛ ani ka lafiya di aw ma i n’a fɔ a ladonbaga.
💬 Comments (0)
Ko foyi ma bila fɔlɔ. Aw ka kuma fɔlen fara a kan yan a siɲɛ fɔlɔ la.
Aw ka kuma fɔlen fara a kan