Yala aw bɛ jolidɛsɛ suguya dɔw dɔn minnu man teli ka sɔrɔ wa? (Jolidɛsɛ suguya minnu man ca) .

Aw ye miiri joli kuru bilenmanw na aw fari la i n’a fɔ ‘jiginni baara’ min bɛ oksizɛni ta aw farikolo fan bɛɛ la. Sisan, ni o joli kuru bilenman ninnu hakɛ dɔgɔyara, walima ni u ma baara kɛ ka ɲɛ, farikolo yɔrɔw tɛ oksizɛni wajibiyalen sɔrɔ. Nin ye bana ye an bɛ min wele dɔrɔn ko ‘jolidɛsɛ’ walima ‘joli dɛsɛ’. O kɔ, i bɛ sɛgɛn tuma bɛɛ, i barika ka dɔgɔ ani i tɛ ɲɛnamaya sɔrɔ. An fanba bɛ jolidɛsɛ dɔn min bɛ sɔrɔ nɛgɛ dɛsɛ fɛ. Nka jolidɛsɛ suguya dɔw fana bɛ yen minnu bɛ mɔgɔ damadɔ dɔrɔn de sɔrɔ, wa an ma caman mɛn minnu ko la. Bi, an bɛna kuma jolidɛsɛ suguya dɔw kan minnu man ca.

Jolidɛsɛ (Aplastic Anemie) ye mun ye?

An ka joli kuruw bɛ dilan ni jirisunw ye minnu bɛ kolotugudaw la. Olu ye joli-sira-funu bɛɛ kisɛ fɔlɔw ye. Jolidɛsɛ aplasitiki bɛ mɔgɔ min na, o tigi kolotugudaw bɛ tiɲɛ. O de kosɔn, farikolo tɛ se ka joli kuru kura (jolikisɛ bilenmanw, joli kuru finmanw, ani joli segin furakisɛw) caman dilan walasa k’a magow ɲɛ.

Nin bana in bɛ se ka kɛ bangekɔlɔsi fɛɛrɛw ye, o kɔrɔ ye ko a bɛ se ka sɔrɔ bangebagaw ka jamu fɛ. Walima a bɛ se ka kɛ a ka ɲɛnamaya kɔnɔna na. Nin suguya filanan in de bɛ Ye ka caya. Tuma dɔw la, a bɛ se ka kɛ waati dɔɔnin dɔrɔn kɔnɔ.

Kɛnɛma sababuw:

• Bana minnu bɛ sɔrɔ farikolo tangalanw fɛ i n’a fɔ lupu ni sɔgɔsɔgɔninjɛ.
• A tali kemikɛlifɛnw i n’a fɔ fɛnɲɛnamafagalanw, asɛki, ani bɛnzɛni. (Ni aw bɛ sigasiga ko aw ye furakisɛ dɔ min, aw bɛ teliya ka taa jamana ka baga kunnafonidiso la, min bɛ Kolonbɔ jamana dɔgɔtɔrɔso la.)
• Banakisɛw i n’a fɔ sugunɛbilenni, Epstein-Barr banakisɛ, ani sidabanakisɛ.
• Fiɲɛdimi ni chimiothérapie kansɛri la.

Nin bana in taamasiɲɛw ye ninakilidegun, ɲɛnamini, kungolodimi, fari jɛman, disidimi, dusukun tantanni, ani bolow ni senw nɛnɛ. Furakɛli ye jolidonni ni jirisunw cili ye.

Jolidɛsɛ min bɛ kɛ kɛrɛfɛ

Nin fana ye joli-dɛsɛ ye. Min bɛ kɛ yan, o ye ko, hali ni nɛgɛ bɛ farikolo la, a tɛ se ka baara kɛ n’o nɛgɛ ye walasa ka ɛmoɲini dilan. Ɛmoɲini ye farikolojɔlan ye min bɛ joli kuru bilenmanw dɛmɛ u ka oksizɛni ta. Ikomi nɛgɛ tɛ se ka kɛ, nɛgɛ bɛ dalajɛ kolotugudaw la ka joli kuru bilenman suguya dɔ dilan min tɛ cogo la min bɛ wele ko sideroblasts.

O suguba fla bɛ yen. Kelen bɛ sɔrɔ furakisɛ walima fura dɔ tali fɛ ka bɔ kɛnɛma. Tɔɔ kelen bɛ sɔrɔ jamu jiginni fɛ min bɛ tɛmɛn mɔgɔw ka bɔnsɔnw fɛ, o min bɛ ɛmoɲini bɔli tiɲɛ. A taamasiɲɛw ye disidimi, dusukun tantanni teliya, kungolodimi ani ninakili gɛlɛya.

Witamini B6 furakɛli ni kolotugudaw cili fana ye o furaw ye.

Jolidɛsɛ suguya wɛrɛ minnu man teli ka sɔrɔ

Ka fara suguya minnu kofɔlen don sanfɛ, jolidɛsɛ suguya damadɔ wɛrɛw bɛ yen an ma minnu mɛn kosɛbɛ. An ka o fana lajɛ dɔɔnin.

Bana wɛrɛ minnu man ca i n’a fɔ Diamond-Blackfan ani CDA

• Diamant-Blackfan Jolidɛsɛ : O fana bɛ sɔrɔ jamu caman cili fɛ. Kolotuguda tɛ se ka joli kuru bilenman caman bɔ. Nin den ninnu ka surun, u kolo barika ka dɔgɔn, wa u dusukun bɛ se ka ŋunuŋunu.
• Jolidɛsɛ bangenen (CDA): Nin fana ye jolidɛsɛ suguya dɔ ye min bɛ sɔrɔ ciyɛn fɛ. A bɛ dɔ bɔ joli kuru bilenman kɛnɛmanw hakɛ la. A bɛ se ka kɛ ko mɔgɔ dɔw mago tɛ furakɛli si la, nka bana jugumanba bɛ se ka kɛ u mago bɛ jolidon na walima joli seginni na.

I bɛ mun kɛ nin cogo in na?

I n’a fɔ aw ɲɛ b’a la cogo min na, jolidɛsɛ suguya ninnu bɛɛ taamasiɲɛ minnu ka teli ka ye, olu ye sɛgɛnba ye, fari jɛman, ninakilidegun, ani dusukun tantanni teliya. O la ni nin taamasiɲɛ ninnu bɛ aw la tuma bɛɛ, aw kana aw ɲɛmajɔ u la dɔrɔn.

Aw bɛ se ka min kɛ ka ɲɛ, o ye ka taa dɔgɔtɔrɔso la. A bɛna joli sɛgɛsɛgɛli ni kolotugudaw sɛgɛsɛgɛli kɛ, ni a mago bɛ a la, walasa ka bana in sababu tigitigi dɔn. Furakɛli bɛna bɔ a sababu de la. Hali ni bana dɔw bɛ se ka furakɛ ni fura ye, ni a juguman don, a bɛ se ka kɛ aw ka kan ka furakɛlibaw kɛ i n’a fɔ kolotugudaw cili. Ni bana taamasiɲɛ jugumanw bɛ aw la (misali la, kungolodimi juguman, disidimi), a nafa ka bon aw ka taa dɔgɔtɔrɔso la joona joona.