Yala Ankylosing Spondylitis (AS) bɛ sugunɛ gɛlɛyaw lase mɔgɔ ma wa? An k’a dɔn tigitigi nin ye min ye.

Yala Ankylosing Spondylitis bɛ aw la, walima AS ni a surunyalen don wa? O kɔ, n’a sɔrɔ aw b’a dɔn a bɛ nɔ bila kɔkolo ni kɔkolo cɛ kolotugudaw la cogo min na. Nka n’a sɔrɔ aw tɛ min dɔn, o ye ko AS bɛ mɔgɔ minnu na, olu fana bɛ se ka sugunɛ gɛlɛyaw sɔrɔ. O tɛ kɛ bɛɛ la, nka a nafa ka bon ka o dɔn.

N’an y’a fɔ cogo nɔgɔman na, Ankylosing Spondylitis (AS) ye jolidɛsɛ suguya dɔ ye min bɛ kɔkolo ni a ni a ɲɔgɔnna kolotugudaw minɛ. Fɛn min bɛ Kɛ o la, o ye ko funu kuntaalajan bɛ farikolo la. Nin funu min tɛ se ka kunbɛn farikolo la, o tɛ sigi dɔrɔn. A bɛ daminɛ ka farikolo yɔrɔw degun. Sugunɛ ye o yɔrɔ sugu dɔ ye. Sɛgɛsɛgɛli kuraw y’a jira ko o jɛɲɔgɔnya bɛ se ka caya sisan ka tɛmɛ a tun bɛ miiri min na fɔlɔ. O la, an ka kuma nin kan bi.

Sugunɛ gɛlɛya jumɛnw bɛ se ka sɔrɔ AS fɛ?

Fɛɛrɛba damadɔ bɛ yen AS bɛ se ka sugunɛ de minɛ cogo min na. An k’a lajɛ u ye min ye.

1. Sugunɛbilenni filanan

Nin bɛ se ka kɛ i n’a fɔ tɔgɔ gɛlɛn, nka a ka nɔgɔn. K’a sababu kɛ funu kuntaalajan ye an farikolo la, farikolojɔlifɛn dɔ bɛ se ka sɔrɔ min tɛ bɛn a ma min bɛ wele ko ‘amiloïde’. O farikolojɔli dumuni bɛ daminɛ ka caya dɔɔni dɔɔni sugunɛ kɔnɔ. A bɛ iko nɔgɔ bɛ ka bonya pibiliki kɔnɔ. Ni farikolojɔli dumuni bɛ ka caya, sugunɛ tɛ se k’u ka baara kɛcogo kɔrɔ kɛ tuguni, o min ye ka joli sama. O bana in bɛ wele fana ko ‘AA amyloïdose’.

2. Immunoglobuline A Ɲɛgɛnɛsiraw (IgAN) .

Nin ye sugunɛbana wɛrɛ ye min bɛ se ka ye AS banabagatɔw la. Min bɛ Kɛ o la, o ye ko farikolojɔlifɛn dɔ min bɛ Weele ko IgA, n’o ye an ka farikolo tangacogo dɔ ye, o bɛ Dòn sugunɛ na, ka funu Kɛ yen ka sugunɛ Tiɲɛ. Walasa ka a dɔn ni o ye tiɲɛ ye , biyɔpisi ka kan ka kɛ, o ye farikolo yɔrɔ fitinin ye min bɛ bɔ sugunɛ na ka a sɛgɛsɛgɛ.

3. Sugunɛbana basigilen (CKD) .

Sugunɛbana basigilen, walima CKD, ye bana ye min na sugunɛ bɛ tiɲɛ waati tɛmɛnen kɔfɛ, ka sɔrɔ dɔɔni dɔɔni a tɛ baara kɛ. Hali ni AS bɛ se ka kɛ sababu dɔ ye, bana wɛrɛw, i n’a fɔ sukarodunbana ni tansiyɔn jiginni, olu fana bɛ se ka kɛ sababu ye ka bana in sɔrɔ. Ni sugunɛ tɛ se ka fɛnɲɛnamafagalanw sama ka bɔ joli la ka ɲɛ, o fɛnɲɛnamafagalanw bɛ ɲɔgɔn sɔrɔ farikolo la, o bɛ dɔ fara gɛlɛya jugumanw sɔrɔli kan i n’a fɔ dusukunnabana ni kirinni.

4. Sugunɛbilenni

Sɛgɛsɛgɛli dɔw y’a jira ko AS bɛ mɔgɔ minnu na, kɛrɛnkɛrɛnnenya la minnu ye a sɔrɔ kabini waati jan, olu ka teli ka sugunɛbilenni sɔrɔ ka tɛmɛ mɔgɔ kɛnɛmanw kan. Olu ye fɛn misɛnninw ye minnu ka gɛlɛn, minnu dilannen don ni kɔgɔw ni fɛnɲɛnamafagalanw ye. Tuma dɔw la, u bɛ fasa sugunɛ na, nka a bɛ se ka dimi kosɛbɛ.A bɛ se ka kɛ. Tuma dɔw la, o kabakurunw bɛ se ka siri sugunɛbara la ka bana bila mɔgɔ la.

Sugunɛ gɛlɛya taamasiɲɛw ye jumɛnw ye?

Nin bana ninnu kelen-kelen bɛɛ taamasiɲɛw bɛ u la minnu bɛ kɛ ɲɔgɔn fɛ ani taamasiɲɛ kɛrɛnkɛrɛnnenw. A nafa ka bon kosɛbɛ aw ka aw janto ninnu na, barisa o tuma na aw bɛ se ka taa dɔgɔtɔrɔso la joona.

Ni AS bɛ aw la ani ni aw bɛ nin taamasiɲɛ kelen walima caman sɔrɔ, aw kana aw ɲɛmajɔ a la. Aw ye aw jija ka kuma aw ka dɔgɔtɔrɔ fɛ o ko la.

Mun na o gɛlɛyaw bɛ kɛ? Farati minnu bɛ o la, olu ye mun ye?

A ka gɛlɛn tuma dɔw la ka sugunɛbana sababu tigitigi dɔn, nka kunba caman bɛ yen minnu b’a to a ni AS bɛ tali kɛ ɲɔgɔn na.

• Funu min tɛ se ka kunbɛn: Funu basigilen, n’o ye AS ka bana koloma ye, o de ye a jalakibagaba ye. O de bɛ banaw lase mɔgɔ ma i n’a fɔ Amiloyidi ni IgAN.
• Fura : AS ni kolotugudaw dimimadafura dɔw, kɛrɛnkɛrɛnnenya la AINE (Nonsteroidal anti-inflammatory drugs), olu bɛ se ka tiɲɛni kɛ sugunɛ na ni u kɛra ka mɛn. O la, aw kana dimimadafura tali aw yɛrɛ la ka sɔrɔ aw ma taa dɔgɔtɔrɔso la.
• Furakɛcogo wɛrɛw : Sugunɛbana sɔrɔli farati ka bon hali ni bana dɔw bɛ aw la i n’a fɔ tansiyɔn jiginni, sukarodunbana, dusukunnabana ani fasa.
• Sigarɛtimin ni denbaya ka tariku: Mɔgɔ minnu bɛ sigarɛti min ani ni sugunɛbana bɛ u ka denbaya kɔnɔ, olu farati ka bon.

Furakɛli ni a furakɛcogo cogo di?

Fɛn min ka fisa, o ye ko nin cogoya ninnu bɛ se ka ɲɛnabɔ. Furakɛli suganditaw bɛ bɔ sugunɛ gɛlɛya suguya la min bɛ aw la.

Min nafa ka bon kosɛbɛ, o ye ka i ka AS kɔlɔsi ka ɲɛ. Ni aw bɛ funu kunbɛn ka caya, aw bɛ se ka tiɲɛni min kɛ aw ka sugunɛ na, o bɛ dɔgɔya. O kɔrɔ ye ka tugu dɔgɔtɔrɔ ka furakɛli kɔ, i n’a fɔ fɛnɲɛnamafagalanw (i n’a fɔ TNF balilanw), tigitigi.

Ani fana,

• Aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ aw bɛ fura minnu ta (dimimadafura fana sen bɛ o la) ani ka baro kɛ fura wɛrɛw kan minnu tɛ kojugu kɛ aw ka sugunɛ na.
• Aw bɛ furakɛlicogo wɛrɛw kunbɛn i n’a fɔ tansiyɔn ni sukarodunbana.
• Aw bɛ ji caman min.
• Aw bɛ dɔgɔtɔrɔ ka laadilikanw labato ani ka dumuni kɛ min kɔnɔ kɔgɔ ni farikolojɔli dumuniw ka dɔgɔn.
• Aw kana witamini walima dumuni dafalan si ta ka sɔrɔ aw ma taa dɔgɔtɔrɔso la.

Ni sugunɛbaralabana basigilen (CKD) juguyara, o bɛ se ka kɛ sababu ye ka sugunɛbilenni walima sugunɛbilenni bila mɔgɔ la, o la a ka fisa aw ka aw janto o la joona.