Yala aw bolokɔniw ni aw kɔ fasaw bɛ kirin k’a sɔrɔ aw tɛ se ka u yɛrɛ minɛ wa? An ka kuma Focal Dystonia kan!

Yala i delila k’a ye ko n’i ye fɛn dɔ sɛbɛnni daminɛ, i bolokɔnincininw bɛ barika daminɛ ka girin walima ka yɛrɛyɛrɛ wa? Walima n’i bɛ fɔlifɛn dɔ fɔ i n’a fɔ gitari, yala i b’a ye ko i bolokɔnincininw bɛ barika wuli walima ka yɛrɛyɛrɛ k’a sɔrɔ i ma i yɛrɛ minɛ wa? N’a sɔrɔ i kɔ bɛ barika biri fan kelen fɛ, walima i kan bɛ Changé walima ka yɛrɛyɛrɛ n’i bɛ kuma wa? Ninnu tɛ fɛnw ye minnu bɛ kɛ k’a sɔrɔ u ma kɛ cogo si la. o fɛnw bɛ se ka kɛ bana dɔ taamasiɲɛw ye min bɛ wele ko Focal Dystonia . Hali n’a tɔgɔ bɛ se ka kɛ siranfɛn ye dɔɔnin, bi an bɛna kuma nin kan cogo nɔgɔman na, aw bɛ se ka min faamuya.

Distonie Focal ye mun ye?

N’an y’a fɔ cogo nɔgɔman na, distonie focal ye hakiliɲagami bana ye. O cogo la, i farikolo yɔrɔ kɛrɛnkɛrɛnnen dɔ fasaw bɛ daminɛ ka sɔgɔsɔgɔ u yɛrɛ ma, k’a sɔrɔ i ma i yɛrɛ minɛ. O kɔrɔ ye ko farikolo yɔrɔw bɛ daminɛ ka sɔgɔsɔgɔ k’a sɔrɔ i t’a fɛ u ka kɛ. Daɲɛ "focal" kɔrɔ ye "localized" ye. O kɔrɔ ye ko bana in bɛ dan yɔrɔ kelen na, sanni a ka farikolo bɛɛ minɛ.

O bɛ se ka nɔ bila aw kɔ la farikolo yɔrɔw la (distonie de l’cervique walima torticollis spasmodique), aw ɲɛw (blepharospasme), aw dawolo la (dystonie oromandibulaire), walima aw kanbaraw (distonie laryngeal walima dysphonie spasmodique). Distoniya focal fana bɛ se ka kɛ aw bolo yɔrɔw la, i n’a fɔ aw bolokɔni, aw bolokɔniw ani aw bolokɔniw.

Distonie ye kumasen ye min bɛ fɔ kosɛbɛ hakiliɲagami banaw ma minnu bɛ farikolojidɛsɛ bila mɔgɔ la min tɛ se ka kunbɛn. Distonie focal ye distonie suguya dɔ ye.

Task-specific Focal Dystonia ye mun ye?

O fana ye ko kɛrɛnkɛrɛnnen ye kosɛbɛ. Mɔgɔ dɔw fɛ, nin Focal Dystonia bana in bɛ sɔrɔ dɔrɔn ni u bɛ baara kɛrɛnkɛrɛnnen dɔ kɛ. O kɔrɔ ye ko u bɛ ka ɲɛ waati wɛrɛw la, nka n’u y’o baara daminɛ dɔrɔn, u bɛ daminɛ ka yɛrɛyɛrɛ ani ka u yɛrɛ minɛ tuguni. An bɛ min wele ko Task-specific Focal Dystonia , o ye nin ye .

Miiri nin misali suguw la:

• Sɛbɛnnikɛla ka kirinni: N’a sɔrɔ i ye nin kelen in mɛn. Ni i bɛ to ka sɛbɛnni kɛ, walima n’i bɛ ɛkizamɛnw kɛ, i bolo ni i bolokɔnincininw farikolo bɛ barika gɛlɛya, o b’a to sɛbɛnni tɛ se ka kɛ. Mɔgɔ dɔw yɛrɛ tɛ se ka sɛbɛnnikɛlan minɛ ka ɲɛ.
• Fɔlikɛla ka distoniya: O bɛ se ka kɛ mɔgɔw ye minnu bɛ fɔlifɛnw fɔ i n’a fɔ gitari, violon ani piano. Bolo ni bolokɔnincininw farikolo yɔrɔw bɛ barika gɛlɛya, ka kirin, wa u tɛ se ka fɔlisenw fɔ. Mɔgɔ minnu bɛ nɛgɛ walima jirifiyɛlanw fɔ, olu fana bɛ se ka gɛlɛya sɔrɔ dawolo, dawolo walima kan fasaw la (embouchure dystonia).
• Sarati minnu bɛ Kɛ ntolatannaw la ("the yips"): An bɛna kuma o kan dɔɔnin.

Distoniya focal min bɛ kɛ baara kɛrɛnkɛrɛnnen na, o bɛ ye ka caya mɔgɔw la minnu bɛ baara kɛ walima ɲɛnajɛ minnu bɛ farikoloɲɛnajɛ kɛcogo ɲuman caman wajibiya. Misali la, teniskɛlaw, kunsigicilaw ani ja dilanbagaw.

Danfara jumɛn bɛ Focal Dystonia ni Carpal Tunnel Syndrome cɛ?

Tuma dɔw la, nin bana fila in taamasiɲɛw bɛ se ka kɛ ɲɔgɔn fɛ dɔɔni, o bɛ se ka kɛ sababu ye ka mɔgɔw hakili ɲagami. Nka, o bana fila sababuw tɛ kelen ye fewu.

distoni focal bɛ sɔrɔ gɛlɛya dɔ fɛ i hakili ni i nɛrɛmuguma cɛ kumaɲɔgɔnya la . O kɔrɔ ye ko gɛlɛya bɛ taamasiɲɛw la minnu bɛ bɔ kunsɛmɛ na ka taa farikolo yɔrɔw la.

Nka, Carpal Tunnel Syndrome ye bana ye min bɛ sɔrɔ ni nɛrɛ (nɛrɛ cɛmancɛ) min bɛ tɛmɛ bolokɔni fɛ, o bɛ degun. A ka ca a la o bɛ sɔrɔ bolokɔni lamagacogo segin-segin fɛ (a kɛli kojugu) walima gɛlɛya wɛrɛw fɛ farikolojidɛsɛ la.

O la, hali ni a taamasiɲɛw bɛ ɲɔgɔn ta, a sababu tɛ kelen ye, o la a furakɛcogo tɛ kelen ye. O de kama a nafa ka bon kosɛbɛ ka bana sɛgɛsɛgɛli tigitigi sɔrɔ.

"Yipw" ye mun ye?

"The yips" ye tɔgɔ ye min dira an kumana bana min kan ka tɛmɛ, Task-specific Focal Dystonia, o bɛ farikoloɲɛnajɛlamɔgɔw de minɛ, kɛrɛnkɛrɛnnenya la minnu bɛ farikoloɲɛnajɛ kɛ minnu bɛ bolo walima bolokɔni baara caman wajibiya Miiri k’a filɛ, ni kirikirimasiyɛnla dɔ bɛna bololabaara kɛ walima ka bɔgɔdaga kɛ, walima ni gɔlfkɛla dɔ bɛna bolokurun gosi, a barika banna ka a bolo minɛ, a bɛ girin, wa a tɛ se ka baara kɛ ka ɲɛ. An bɛ min Weele ko "yips" o de ye. O ka teli ka kɛ gɔlfkɛlaw ni baseballkɛlaw la.

Jɔn de ka teli ka Focal Dystonia sɔrɔ?

Hali ni nin bana in bɛ se ka kɛ mɔgɔ bɛɛ la, a ka ca mɔgɔkɔrɔbaw la minnu si bɛ san 40 ni san 60 cɛ.Sɛgɛsɛgɛliw y’a jira fana ko musow ka teli ka distoniya focal sɔrɔ ka tɛmɛ cɛw kan siɲɛ saba ɲɔgɔn.

Nin bana in ka ca cogo di?

Distoniya ye lamaga-lamagali bana ye min ka teli ka kɛ, nka nin bana kɛrɛnkɛrɛnnen in, n’o bɛ wele ko distoni focal, o man ca dɔɔni. Misali la, Ameriki jamana na, a bɛ mɔgɔ saba ɲɔgɔn minɛ ba tan o ba tan na.

Mun bɛ kɛ sababu ye ka distoniya focal (distonie focal) sɔrɔ?

Tiɲɛ na, hali bi dɔgɔtɔrɔw tɛ se ka focal dystonia sababu tigitigi dɔn. A bɛ fɔ a ma ko ``idiopathic.'' O kɔrɔ ye ko a sababu tigitigi tɛ dɔn.

Nka, an b’a dɔn ko nin ko in bɛ kɛO bɛ kɛ bawo i hakili ni i nɛrɛmuguma tɛ kumaɲɔgɔnya kɛ ka ɲɛ. Yɔrɔ min bɛ sumaya kɔnɔna na min bɛ wele ko ``Basal Ganglia'', o bɛ dɛmɛ ka farikolo lamagacogo kɔlɔsi. A bɛ miiri ko fɛn dɔw bɛ Changé (Yɛlɛma) o yɔrɔ in baarakɛcogo la.

Tuma dɔw la, o taamasiɲɛw bɛ se ka kɛ ni fɛn dɔw yeli ye mɔgɔ ka delinankow la, i n’a fɔ farikoloɲɛnajɛla, sɛbɛnnikɛla walima dɔnkilidala. I n'a fo:

• Aw bɛ aw ka fɛɛrɛ Changer hakili jogin kɔfɛ.
• Spor walima fɔlifɛn kura dege.
• Ka i sen don degeliw la, ɲɛjiraliw la, walima ɲɛɲini caman na ka tɛmɛ a cogo kɔrɔ kan.

Hali ni ɲininikɛlaw ma a jira fɔlɔ ko jɛɲɔgɔnya bɛ ni jamu ye, u y’a ye ko mɔgɔ tan o tan, minnu bɛ distoniya focal sɔrɔ, kelen ɲɔgɔn bɛ ni o bana ye denbaya kɔnɔ.

Mun de bɛ kɛ sababu ye ka "yips" sɔrɔ?

Mɔgɔ dɔw b'a miiri ko gɔlfkɛlaw bɛ "yips" sɔrɔ k'a sababu kɛ baarakɛcogo jɔrɔnanko ye. O kɔrɔ ye ko degun ni siran min bɛ sɔrɔ ɲɔgɔndan na. O bɛ se ka kɛ sababu dɔ ye. Nka, "yips" fana bɛ se ka sɔrɔ a kɛcogo jugu fɛ walima a tali kojugu fɛ.

Ani fana, kɛnɛyako dɔw bɛ mɔgɔ minnu na, olu ka teli ka "yips" sɔrɔ:

• Kunsɛmɛnasumaya
• Sklerose (Sklerose multiple) banakisɛ (Sclerose multiple).

A taamasiɲɛw ye mun ye?

Distoniya focal taamasiɲɛw bɛ se ka ɲɔgɔn ta ka kɛɲɛ ni farikolo yɔrɔ ye min banana. A ka ca a la, taamasiɲɛ fɔlɔ bɛ se ka kɛ farikolo yɔrɔw baarakɛbaliya dɔɔni ye. Misali la, ni bana bɛ aw bolow la, aw bɛ se ka to ka fɛnw fili. Ni aw da banana, aw bɛ se ka dɔ fara aw kan ni aw bɛ dumuni kɛ walima ni aw bɛ minni kɛ.

Waati tɛmɛnen kɔfɛ, distoniya focal bɛ se ka kɛ sababu ye ka farikolo taamasiɲɛ jugumanw sɔrɔ:

• Farikolo kirinni walima kirinni.
• Farikolodimi.
• Farikolo kirinni walima kirinni (Twitches - myoclonus).
• Farikolo yɔrɔ min bananen don, o jɔcogo tɛ cogo la. Misali la, kɔ bɛ se ka kɔrɔta ka taa fan kelen fɛ.

Ka fara nin taamasiɲɛ kunbaba ninnu kan, distoni focal bɛ mɔgɔ minnu na, olu fana bɛ se ka taamasiɲɛ filananw sɔrɔ . Olu bɛ sɔrɔ hakili ni farikolo degunw fɛ minnu bɛ sɔrɔ bana in fɛ. Olu ni farikolo yɔrɔw tɛ ɲɔgɔn ta tigitigi. O taamasiɲɛ suguw ye:

• Yeli kɛcogo fitini.
• Farifaga.
• Sunɔgɔ gɛlɛya.
• Sɛgɛn kojugu.
• Yɛlɛma barikama minnu bɛ kɛ dusukunnataw la (hakilina jiginni).
• Dimi kunkurunnin.
• Gɛlɛya minnu bɛ mɔgɔ sinsin.

Distoniya focal taamasiɲɛw bɛ se ka juguya waati tɛmɛnen kɔfɛ, o kɔ u bɛ sabati hakɛ dɔ la ka segin. Nka, mɔgɔ dɔw fɛ, bana in bɛ se ka juguya dabila pewu.

Aw bɛ nin bana in sɛgɛsɛgɛ cogo di?

Walasa ka distoni focal (distoni focal) sɛgɛsɛgɛ, aw ka dɔgɔtɔrɔ bɛna aw ɲininka aw ka bana taamasiɲɛw la, aw ka furakɛli tariku la, ani ka farikolo yɔrɔ min bananen don, o sɛgɛsɛgɛ.

Ni aw bɛ sɛgɛsɛgɛli kɛ, aw ka dɔgɔtɔrɔ bɛna a ɲini ka bana wɛrɛw bɔ kɛnɛ kan minnu bɛ o taamasiɲɛ suguw lase mɔgɔ ma (i n’a fɔ joginw tali kojugu). Aw bɛ se ka sɛgɛsɛgɛliw kɛ fana i n’a fɔ ninnu:

• Joli sɛgɛsɛgɛliw: Aw bɛ a lajɛ ni banakisɛ walima furakɛli bana wɛrɛw tɛ a la.
• CT scan walima MRI scan : Ka kurukuruw walima falenfɛn wɛrɛw ɲini minnu tɛ kelen ye kunsɛmɛ na walima farikolo yɔrɔ min bananen don.
• Elektromiyogramme (EMG): A bɛ i farikolo yɔrɔw baara cogo min na kuran taamasiɲɛw la, o sɛgɛsɛgɛ. O bɛ se ka hakilina di aw ma aw farikolo ni aw farikolo yɔrɔw bɛ baara kɛ cogo min na.

A bɛ furakɛ cogo di?

A fɔ man di nka, fura tɛ yen min bɛ distoni focal (distoniya focal) furakɛ. Nka, furakɛli minnu bɛ sɔrɔ, olu bɛ se ka farikolojidɛsɛ dɔgɔya ani ka bana in bali ka juguya. Distoniya focal furakɛli bɛ se ka kɛ ninnu ye:

• Ɲɛnamaya kɛcogo caman yeli: Tuma dɔw la, ni aw ye aw dusukunnataw Changer aw ka baara kɛtuma na, o bɛ se ka aw hakili dɛmɛ ka lamaga-lamagaliw labɛn ni tiɲɛni caman tɛ. Misali la, violon fɔla dɔ bɛ se ka farikolo lamaga dɔɔni ni a ye gan don. Sɛbɛnnikɛla bɛ se ka bana taamasiɲɛw dɔgɔya ni a y’a ka sɛbɛnnikɛlan minɛcogo Changer. Aw bɛ se fana ka sɔgɔsɔgɔninjɛ walima farikoloɲɛnajɛ kɛrɛnkɛrɛnnenw kɛ walasa ka dusukasi kunbɛn.
• Fura minnu bɛ kɛ:
• Anticholinergiques , i n’a fɔ Trihexyphenidyl (Artane®), olu bɛ dɛmɛ ka farikoloɲɛnajɛ taamasiɲɛw bali minnu bɛ farikolojidɛsɛ bila mɔgɔ la.
• Vesicular Monoamine Transporter 2 (VMAT2) inhibiteurs , i n’a fɔ Tetrabenazine (Xenazine®), olu bɛ kɛ ka kunsɛmɛ furakisɛw Changer minnu bɛ nɔ bila aw farikolo ni aw farikolo yɔrɔw la.
• Tuma dɔw la, fura `(Carbidopa/Levodopa (Sinemet))` fana bɛ se ka bana taamasiɲɛw lajɔ.
• Farikolo lafiya furaw, misali la, Baclofen walima bɛnzodiazepines (Clonazepam), olu fana bɛ se ka kɛ.
• Pikiri minnu bɛ kɛ: Botulinum Toxine (Botox®) .Pikiri ye distoniya furakɛli ye min ka teli ka kɛ. N’a sɔrɔ aw y’a mɛn ko u bɛ kɛ ɲɛgɛnw na, nka u bɛ se kosɛbɛ farikolo gɛlɛyaw fana na. Dɔgɔtɔrɔw bɛ pikiri kɛ farikolo yɔrɔ la min bananen don. Pikiri bɛ taamasiɲɛw bali waati dɔɔni ka bɔ kunsɛmɛ na minnu bɛ kɛ sababu ye ka farikolo lamaga. Mɔgɔ fanba ka kan ka pikiri kɛ kalo saba o kalo saba ɲɔgɔn.
• Opereli: A man teli kosɛbɛ, dɔgɔtɔrɔ bɛ se ka opereli fɔ.
• Deep Brain Stimulation (DBS): O ye ka elekitorode bila yɔrɔ kɛrɛnkɛrɛnnenw na kunsɛmɛ na. O minɛn fitininw bɛ taamasiɲɛw ɲɛminɛ minnu bɛ kɛ sababu ye ka farikolo yɔrɔw sɔgɔsɔgɔ.
• Selective denervation surgery: O la, farikolojidɛsɛ minnu bɛ farikolojidɛsɛ bila mɔgɔ la, olu bɛ dabila walima ka bɔ.

Aw bɛ o bali cogo di?

I n’a fɔ an y’a fɔ cogo min na ka tɛmɛ, focal dystonia sababu dafalen dɔnnen tɛ, o la cogo si tɛ yen ka da a la ko a bɛ se ka bali. Nka, fɛn dɔw bɛ yen minnu bɛ se ka distoniya focal juguya. O la sa, ka i janto nin kow la, o bɛ se ka i dɛmɛ:

• Aw bɛ aw yɛrɛ tanga segin-ka-bɔnyew ma kojugu walima ka kuma (ka kɛɲɛ ni bana bɛ yɔrɔ min na).
• Degunw kunbɛnni fɛɛrɛ kɛnɛmanw fɛ.
• Aw bɛ dɔ bɔ sɛgɛn na ni sunɔgɔcogo ɲuman ye, farikoloɲɛnajɛ ani dumuni nafama dunni fɛ.

O ko ɲɛnabɔcogo ye mun ye?

Focal Dystonia bɛ se ka jɛnsɛn tuma dɔw la ani ka nɔ bila aw farikolo yɔrɔ wɛrɛw la. A jirala ko bana in bɛ mɔgɔ 6 o 6 la, 1 ɲɔgɔn na, Focal Dystonia bɛ jɛnsɛn yɔrɔ wɛrɛw la.

Nka, kibaru duman ye ko furakɛli bɛ se ka dɔ bɔ distoniya focal taamasiɲɛw siɲɛ hakɛ la ani u juguya hakɛ la. Ni aw ka bana taamasiɲɛw ma ɲɛ furakɛli kɔfɛ, aw ye aw jija ka kuma aw ka dɔgɔtɔrɔ fɛ. A bɛ se ka kɛ ko aw ka furakɛli ka kan ka Changé.

Ne ka kan ka mun wɛrɛ ɲininka dɔgɔtɔrɔ la?

Ni aw taara dɔgɔtɔrɔso la, a ka ɲi aw ka nin ɲininkali ninnu kɛ:

• Ne ka bana taamasiɲɛw sababu ka teli ka kɛ mun ye?
• Ne ka kan ka sɛgɛsɛgɛli jumɛnw kɛ walasa ka Focal Dystonia sɛgɛsɛgɛ?
• Ne bɛ se ka mun kɛ walasa ka Focal Dystonia taamasiɲɛ ninnu kunbɛn?
• Furakɛli suguya jumɛnw bɛ ne bolo?
• Mun bɛ se ka kɛ ni ne ma Focal Dystonia furakɛ?

A laban na, fɛn damadɔw minnu ka kan ka to an hakili la

Focal dystonia ye hakiliɲagami bana ye min bɛ kɛ sababu ye ka farikolo yɔrɔ kelen kɛ farikolo yɔrɔ dɔ la, min tɛ se ka kunbɛn. Focal dystonia, min bɛ bolo, bolokɔni walima bolokɔniw minɛ, o ka teli ka kɛ mɔgɔw la minnu bɛ baara kɛ ni farikoloɲɛnajɛ ɲumanw ye tuma caman (misali la, dɔnkilidala, farikoloɲɛnajɛla, kunsigicilaw, sɛbɛnnikɛlaw).

Hali ni a taamasiɲɛw bɛ se ka kɛ i n’a fɔ hakiliɲagami banaw, focal dystonia bɛ sɔrɔ gɛlɛya dɔ fɛ min bɛ i farikolo, i farikolo ni i kunkolo cɛ kumaɲɔgɔnya la.

Hali ni fura tɛ nin bana in na, a taamasiɲɛw bɛ se ka kunbɛn ka ɲɛ ni ɲɛnamaya kɛcogo caman yeli ye, furaw, pikiri walima opereli. O la, ni nin taamasiɲɛ ninnu dɔ bɛ aw la, aw kana siga ka dɔgɔtɔrɔ ka ladilikan ɲini. Ni aw ye a dɔn joona ani ka a furakɛ, o bɛ na ni kɔlɔlɔ ɲumanw ye tuma bɛɛ.

` Distoni focal, farikolo girinya, neuropathie, sɛbɛnnikɛla bolo sɔgɔsɔgɔ, dɔnkilidala ka distoni, yips, Botox furakɛli