Yala aw den kɔnɔbara bɛ kurukuru wa? Yala o ye Prune Belly Syndrome ye wa? An k'an janto nin ko in na.

Ni aw ye aw den bangenen kura lajɛ, yala aw y’a kɔlɔsi ko a kɔnɔbara fari bɛ kurukuru i n’a fɔ jirisunba wa? Walima a kɔnɔbara bɛ i ko a ka bon cogo la min tɛ deli ka kɛ wa? A bɛnnen don ba walima fa o fa ka siran ni u ye o fɛnw ye. Nka o bɛ se ka kɛ bana dɔ taamasiɲɛ ye min man teli ka kɛ, n’o bɛ wele ko Prune Belly Syndrome. Aw kana aw hakili ɲagami, an bɛna kuma fɛn bɛɛ kan cogo jɛlen na ani cogo nɔgɔman na.

Prune kɔnɔbara basigilen ye mun ye?

N’an y’a fɔ cogo nɔgɔman na, Prune Belly Syndrome ye bana ye min man ca kosɛbɛ, a bɛ sɔrɔ bange waati (a bangenen don). O tɔgɔ in bɔra a la ko denmisɛn ninnu kɔnɔbara fari bɛ i n’a fɔ kurukurulen, wa a bɛ i n’a fɔ jirisunba. O sababu bɛ bɔ fɛnba saba de la.

1. Kɔnɔbara fasaw barika ka dɔgɔn walima minnu tɛ yen : Den kɔnɔbara fasaw tɛ yiriwa ka ɲɛ, o bɛ kɛ sababu ye fari min bɛ kɔnɔbara kan, o bɛ kɛ i n’a fɔ a bɛ sɔgɔsɔgɔ ani ka kurukuru.

2. Musow ma jigin : Cɛdenw na, cɛya ma jigin ka bɔ fari la ka don cɛya la, u ka kan ka kɛ yɔrɔ min na.

3. Sugunɛ gɛlɛyaw : Gɛlɛya bɛ den ka sugunɛ kɛcogo la, n’o ye sugunɛ ni sugunɛ ye.

Ka fara nin ko kunbaba saba ninnu kan, nin bana in bɛ se ka den farikolo yɔrɔ wɛrɛw fana minɛ. Misali la, a bɛ se ka kɛ dusukun, fogonfogon, banakɔtaa ani kolotugudaw la. O bɛ wele fana ko Triad Syndrome walima Eagle-Barrett Syndrome.

Nin bana in ka ca cogo di?

Nin ye bana ye min man ca kosɛbɛ. A bɛ den kura 30 000 fo 40 000 la kelen ɲɔgɔn minɛ. Min bɛ mɔgɔ kabakoya kɛrɛnkɛrɛnnenya la , o ye ko nin bana in 95% bɛ sɔrɔ cɛdenw de la .

Nin bana in taamasiɲɛ kunbabaw ye jumɛnw ye?

Prune Belly Syndrome taamasiɲɛ 50 ni kɔ bɛ yen. Nka, o taamasiɲɛw bɛ se ka ɲɔgɔn ta den ni den cɛ. Aw ka dɔgɔtɔrɔ bɛna aw den sɛgɛsɛgɛ ani ka sɛgɛsɛgɛliw kɛ minnu ka kan ka kɛ walasa ka bana in dɔn.

An ka fɛnba dɔw lajɛ minnu bɛ ye tuma caman na.

Mun na o bɛ ka kɛ? O kun ye mun ye?

Ɲininikalaw ma sababu Sɔrɔ tiɲɛ na o ko in na fɔlɔ, nka hakilina damadɔ bɛ yen minnu b’a Jira ko a bɛ Se ka Kɛ o sababu ye.

• Sugunɛ gɛlɛyaw : Mɔgɔ dɔw dalen b’a la ko nin bana in bɛ sɔrɔ sugunɛbaralabana dɔ fɛ min bɛ sɔrɔ den bɛ ka bonya kɔnɔbara la. Sugunɛ tɛ se ka woyo ka ɲɛ, wa a bɛ dalajɛ, o bɛ kɛ sababu ye ka sugunɛbaralabana, sugunɛbaralabana ani sugunɛ funu. Ni sugunɛ bɛ ka bonya, a bɛ degun bila kɔnɔbara fasaw la, o bɛ kɛ sababu ye ka u sɔgɔsɔgɔ.
• Farikolo yiriwali gɛlɛya : Dɔw dalen b’a la ko a sababu fɔlɔ ye den kɔnɔbara fasaw tɛ yiriwa ka ɲɛ.
• Jɛnkulu sababuw: A bɛ da a la ko nin bana in bɛ se ka kɛ sababu ye ka jamu sɔrɔ, i n’a fɔ a bɛ ye balimakɛw la cogo min na. Prune Belly Syndrome bɛ ye fana denmisɛnniw na minnu ka banaw bɛ u la i n’a fɔ Trisomy 18 (Edwards syndrome) ani Down syndrome (Trisomy 21).

Gɛlɛya jumɛnw bɛ se ka sɔrɔ nin bana in fɛ?

Kɔnɔnatumu kɔlɔlɔ ni gɛlɛya caman bɛ sɔrɔ Prune Belly Syndrome fɛ. A bɛ danfara don den ni den cɛ. Olu de ye gɛlɛya kunbabaw ye minnu bɛ se ka ye.

• Kɔnɔboli : Nɔgɔ bɔli gɛlɛya ka a sababu kɛ kɔnɔbara fasaw barika dɔgɔyali ye.
• Kolotugudaw : fɛn minnu bɛ i n’a fɔ kɔkiliw bɔli, bolow, bolokɔniw walima senkɔniw tunun.
• Sugunɛbanaw : Sugunɛbanaw (UTI) ka teli ka sɔrɔ.
• Bangekɔlɔsi walima kansɛri: Ni a ma jigin cɛya la, o bɛ se ka kɛ sababu ye ka bangekɔlɔsi walima kansɛri farati don a la don nataw la.
• Fogonfogon yiriwali dɔgɔyali : Fogonfogonw tɛ yiriwa ka ɲɛ (fogonfogon la jiginni).
• Sugunɛbilenni basigilen : O de ye gɛlɛya jugumanba ye.

Nin bana in bɛ se ka sɛgɛsɛgɛ cogo di?

A ka ca a la, nin bana in bɛ se ka dɔn joona sɛgɛsɛgɛli (fetal ultrasound) senfɛ aw ye min kɛ aw kɔnɔmaya waati. Sɛgɛsɛgɛli bɛ kɛ sababu ye dɔgɔtɔrɔ ka den ka:

• Kolow walima farikolo yɔrɔw tiɲɛni
• Dusukun gɛlɛyaw
• Fogonfogon yiriwali dɔgɔyali
• Dumunikɛcogo gɛlɛyaw
• Sugunɛ bɛ funu.
• Sugunɛw bɛ bonya.

Den bangenen kɔfɛ, dɔgɔtɔrɔ bɛ se ka sigasiga ko nin bana in bɛ den na ni a lajɛli dɔrɔn ye. Walasa k’o sigasigali in dafa, sɛgɛsɛgɛli caman bɛ se ka kɛ, i n’a fɔ:

• Joli sɛgɛsɛgɛliw
• Ultrason (ultrason) sɛgɛsɛgɛli
• X-ray ye
• CT scan (CT scan) kɛcogo
• MRI sɛgɛsɛgɛli
• Voiding cystourethrogramme (VCUG) - O ye ka ji kɛrɛnkɛrɛnnen dɔ pikiri sugunɛ na ani ka rezow ta ka den to koli la walasa ka sugunɛ kɛcogo lajɛ.

A bɛ furakɛ cogo di?

O furakɛcogo tɛ kelen ye den ni den cɛ. Kɛrɛnkɛrɛnnenya la, dɔgɔtɔrɔw ka kulu dɔ bɛna jɛ ka furakɛli bolodacogo labɛn min bɛnnen don den ma. O bɛna jateminɛ kɛ fɛn caman na, i n’a fɔ den si hakɛ, a ka kɛnɛya cogoya, a ka bana juguya, ani a bangebagaw sago.

• Bana misɛnniw : Denmisɛn dɔw minnu ka bana taamasiɲɛw man jugu, olu bɛ se ka nafa sɔrɔ banakisɛfagalanw dɔrɔn na walasa ka sugunɛbilenniw bali walima k’u furakɛ.
• Opereli: Nka, denmisɛn caman bɛna opereli caman kɛ walasa ka kɔnɔbara kogo, cɛya ni musoya, sugunɛbaralabana ani sugunɛbaralabana yɔrɔ wɛrɛw dilan.

Ninnu ye opereli suguya kunbaba dɔw ye minnu bɛ kɛ:

• Vesicostomie : Da fitini dɔ bɛ kɛ kɔnɔbara fɛ ka don sugunɛ na, o bɛ kɛ sababu ye ka sugunɛ bɔ a fɛ.
• Orchiopexy (Orchiopexy): Opereli bɛ kɛ ka cɛyajiw jigin ka bɔ farikolo la ka u bila cɛya la.
• Sistoplasti (Sistoplasti) : 1 .Opereli min ka gɛlɛn kosɛbɛ, min bɛ sugunɛbaralabana labɛn kokura pewu.

Ni bana juguman dɔw don, den mako bɛ se ka sugunɛ cili fana kɛ .

O denmisɛnw ka siniɲɛsigi bɛna kɛ cogo di?

Denmisɛn ninnu si hakɛ bɛ bɔ bana juguya hakɛ la. A fɔ man di nka, denmisɛn minnu bangera ni nin bana in ye, olu 10% ni 25% cɛ bɛ sa kɔnɔbara la walima u bɛ sa gɛlɛyaw fɛ u ka ɲɛnamaya dɔgɔkun fɔlɔw kɔnɔ.

Nka, Prune Belly Syndrome bɛ denmisɛn minnu na, olu 40% ɲɔgɔn sugunɛ bɛ baara kɛ cogo bɛnnen na, wa u bɛ se ka ɲɛnamaya kɛ cogo bɛnnen na.

30% wɛrɛw mago bɛna kɛ sugunɛbilenni na waati dɔ la u ka ɲɛnamaya kɔnɔ.

Waati jumɛnw de ka fisa ka taa dɔgɔtɔrɔso la?

Prune Belly Syndrome bɛ denmisɛn minnu na , faratiba bɛ olu la ka sugunɛbilenni (UTI) sɔrɔ, o la ni aw ye sugunɛbilenni taamasiɲɛ dɔw ye, aw bɛ dɔgɔtɔrɔ wele joona.

Ka fara o kan, aw bɛ dɔgɔtɔrɔ ka ladilikan ɲini ni koli gɛlɛya wɛrɛ bɛ den na walima ni taamasiɲɛ wɛrɛw bɛ a la minnu tɛ deli ka kɛ. A nafa ka bon kosɛbɛ fana ka taa ni den ye dɔgɔtɔrɔso la siɲɛ kelen san kɔnɔ .

Den min wolola ni nin bana in ye, o ladonni bɛ se ka kɛ gɛlɛya ye. Nka, i hakili to a la ko i kelen tɛ. Ni aw bɛ baara kɛ ni dɔgɔtɔrɔ ye ani dɔgɔtɔrɔ kɛrɛnkɛrɛnnenw ka jɛkulu ye minnu bɛ nin bana in dɔn, o bɛ se ka fanga ni bilasirali di aw ni den ma, u mago bɛ min na.