Yala i bɛ sɛgɛn tuma bɛɛ wa? Jɛ́? Aw ye kunnafoni sɔrɔ nin joli bana in kan min man teli ka sɔrɔ: Pure Red Cell Aplasia (PRCA) .

Yala i bɛ sɛgɛn tuma bɛɛ, i ɲɛnamini bɛ kɛ, walima a ka gɛlɛn i ma ka wuli eskala la wa? N’a sɔrɔ mɔgɔ dɔ y’i ɲininka ko: “Mun na i ɲɛ bɛ i fari la nin donw in na?” A ka ca a la, ninnu ye jolidɛsɛ taamasiɲɛw ye. Nka bi an bɛna kuma bana dɔ kan min man teli ka sɔrɔ jolidɛsɛ bila mɔgɔ la, mɔgɔ caman ma min mɛn, nka an ka kan k’an janto o la. O ye Pure Red Cell Aplasia ye , walima PRCA ni a surunyalen don.

N’an y’a fɔ cogo nɔgɔman na, Pure Red Cell Aplasia (PRCA) ye mun ye?

Miiri k’a filɛ, an kolo belebelebaw kɔnɔ, kolotuguda, o bɛ i n’a fɔ joli dilanyɔrɔba dɔ. An farikolo mago bɛ farikolokisɛ suguya saba minnu na, n’olu ye joli kuru bilenmanw, joli kuru finmanw ani joli segin furakisɛw ye, olu bɛ dilan o izini in de la. Joli kuru bilenmanw ka baara kunba ye ka oksizɛni ta min bɛ na an fogonfogon la n’an bɛ ninakili, k’a tila-tila farikolo yɔrɔ tɔw bɛɛ la farikolo fan bɛɛ la.

Sisan, cogoya dɔ la min bɛ wele ko Pure Red Cell Aplasia (PRCA) , izini min bɛ joli kuru bilenmanw dilan, o ka fɛn dilanni sira bɛ barika sɔrɔ ka baara dabila. A ka ca a la, farikolokisɛ suguya wɛrɛw dilanni, n’o ye joli kuru finmanw ni joli segin furakisɛw ye, o tɛ fɛn caman Changer. Ni joli kuru bilenmanw dɔrɔn de jɔra, joli kuru bilenmanw hakɛ bɛ dɔgɔya dɔɔni dɔɔni farikolo la. an bɛ min wele ko jolidɛsɛ . Ni farikolokisɛw tɛ se ka oksizɛni ta farikolo fan bɛɛ la, taamasiɲɛ minnu fɔra ka tɛmɛ, i n’a fɔ sɛgɛn ni fangadɔgɔya, olu bɛ daminɛ ka bɔ kɛnɛ kan.

PRCA taamasiɲɛ minnu ka teli ka kɛ, olu ye jumɛnw ye?

PRCA ye bana ye min bɛ jolidɛsɛ jugumanba bila mɔgɔ la, o la a taamasiɲɛw bɛ ye ka tɛmɛ jolidɛsɛbana kan min bɛ ye.

Mun na o ko sugu min man teli ka kɛ?

Sababu kelen tɛ PRCA la. Fɛn damadɔ bɛ yen minnu bɛ kɛ sababu ye k’a kɛ. Tuma dɔw la, a bɛ se ka kɛ fana i n’a fɔ furakɛli bana wɛrɛ kɔlɔlɔ.

• Bana minnu bɛ sɔrɔ farikolo tangalanw fɛ: N’an y’a fɔ cogo nɔgɔman na, o ye waati ye ni an farikolo lafasalitɔn (banakisɛfagalanw) bɛ fili ka bin an yɛrɛ farikolo kan. Tuma dɔw la, nin binkanni in bɛ se ka kolotugudaw fana laɲini minnu bɛ joli kuru bilenmanw dilan. Misali la, PRCA bɛ se ka kɛ ni banaw ye i n’a fɔ `(Systemic Lupus Erythematosus - SLE)` ani `(Rheumatoid Arthritis)`.
• Joli kansɛri : Farati bɛ PRCA sɔrɔli la ni kansɛri suguya dɔw ye minnu bɛ sɔrɔ joli fɛ, kɛrɛnkɛrɛnnenya la, jolidɛsɛ basigilen (CLL) ani jolidɛsɛbanakisɛba (LGL).
• Kansɛribanaw: Timoma ye kansɛribana ye min bɛ sɔrɔ timisi gland la disi la. O fana bɛ se ka kɛ PRCA sababuba ye.
• Banakisɛw ka banakisɛw: Parvovirus B19Banakisɛ min bɛ PRCA bila mɔgɔ la, o de ye a sababuba ye. Nin banakisɛ in bɛ bin kolotugudaw kan minnu bɛ joli kuru bilenmanw dilan. A bɛ se ka sɔrɔ fana sidabanakisɛ, Epstein-Barr banakisɛ, ani sugunɛbilenni banakisɛw fɛ.
• Banakisɛfagalanw : Banakisɛbana jugumanbaw, i n’a fɔ sumaya, olu fana man teli ka kɛ sababu ye ka PRCA lase mɔgɔ ma.
• Fura dɔw : PRCA bɛ se ka kɛ fana fura dɔw kɔlɔlɔ ye.
• Kɔnɔmaya : A man teli kosɛbɛ, muso dɔw bɛ se ka PRCA sɔrɔ waati dɔɔni kɔnɔmaya waati. Nka, a ka ca a la, bana in bɛ ban a yɛrɛ ma jiginni kɔfɛ.

Dɔgɔtɔrɔ bɛ nin bana in sɛgɛsɛgɛ cogo di?

Ni taamasiɲɛ minnu fɔra sanfɛ, ni olu bɛ aw la, dɔgɔtɔrɔ bɛna aw sɛgɛsɛgɛ fɔlɔ ka sɔrɔ ka sɛgɛsɛgɛli caman fɔ aw ye walasa ka bana in sɛgɛsɛgɛ.

• Joli jate dafalen (CBC): O bɛ joli kuru bilenmanw, joli kuru finmanw ani joli segin furakisɛw hakɛ jateminɛ i joli la. PRCA la, joli kuru bilenmanw hakɛ ka dɔgɔn kosɛbɛ.
• Reticulocyte Count : O bɛ joli kuru bilenman kɔgɔbali hakɛ jateminɛ, minnu bɛ sɔrɔ kura ye kolotugudaw la ka fara joli kan. PRCA la, o hakɛ fana ka dɔgɔ kosɛbɛ.
• Joli lamininen : Joli dɔ bɛ ta ka a lajɛ ni mikroskɔpu ye walasa ka joli kuru bilenmanw cogoya n’u cogoya lajɛ.
• Parvovirus B19 Sɛgɛsɛgɛli : Nin sɛgɛsɛgɛli in bɛ kɛ ni siga bɛ a la ko banakisɛ dɔ bɛ a la.
• CT Scan : Nin sɛgɛsɛgɛli in bɛ se ka kɛ ni siga bɛ a la ko kuru dɔ bɛ disi la i n’a fɔ ``Thymoma''.
• Bone Marrow Aspiration/Biopsy : Nin ye sɛgɛsɛgɛli ye min nafa ka bon kosɛbɛ walasa ka bana in sɛgɛsɛgɛ. Pikirijikɛlan fitini bɛ kɛ ka kolotuguda dɔ bɔ yɔrɔ la i n’a fɔ kɔkolo anestezi kɔnɔ. PRCA la, o bɛ se k’a jira ko kolotugudaw banna pewu joli kuru bilenmanw dilancogo la.

PRCA bɛ furakɛ cogo di?

PRCA bɛ furakɛ ni bana sababu dɔnni ye ani ka o sababu ɲɛnabɔ.

Furakɛli fɛɛrɛ caman bɛ yen:

• Banakisɛfagalanw : Ni bana sababu ye gɛlɛya ye farikolo tangalanw ka baara la, furaw i n’a fɔ `(Kɔritikositɛri)` (misali la, Pɛridinizɔni) ani `(Sikilosporini)` bɛ di walasa ka a kunbɛn.
• Jolidoncogo:Ni joli hakɛ dɔgɔyara kosɛbɛ ani ni a taamasiɲɛw ka jugu, jolidon bɛ kɛ ka a lajɔ joona. Nka nin ye waati dɔɔnin fura ye. Ikomi jolidonni basigilen bɛ se ka kɛ sababu ye ka nɛgɛ caman sɔrɔ farikolo la, furakɛli danfaralen (Chelation Therapy) ka kan ka kɛ walasa ka nɛgɛ tɛmɛnen bɔ.
• Opereli : Ni bana in sababu ye tymus gland tumor (Thymoma) ye, opereli bɛ kɛ ka gland bɔ (Thymectomy).
• Kɔnɔnatumuw cili : Jamu dɔw la, jirisun minnu bɔra mɔgɔ kɛnɛman na, olu bɛ cili kɛ walasa k’a ɲini ka kolotuguda kɛnɛman kura dilan.
• Immunoglobuline furakɛli : Ni PRCA sababu bɔra Parvovirus B19 banakisɛ la, o furakɛli bɛ banakisɛ in kunbɛn.

An ka furakɛli kɔlɔlɔw fana dɔn.

I n’a fɔ furakɛli bɛɛ, PRCA furakɛli bɛ se ka kɔlɔlɔ dɔw lase mɔgɔ ma. Nka aw ka dɔgɔtɔrɔ bɛna o bɛɛ ɲɛfɔ aw ye ka kɔn o ɲɛ.

Farikolo tangalanw kɔlɔlɔw

• Kunfilanitu sɔrɔli
• Farati bɛ sukarodunbana sɔrɔli la
• Tansiyɔn jiginni
• Kolotugudaw sɔgɔsɔgɔninjɛ
• Kisɛya sɔrɔli
• Kɔnɔdimi ni kɔnɔboli

Jolidon kɔlɔlɔw

• Sumaya ni faritanabana (nɔgɔ) .
• Banakisɛ sɔrɔli farati
• Nɛgɛ doni kojugu

Ka sigi ni PRCA ye, o bɛ cogo di ani ne bɛ n yɛrɛ ladon cogo di?

PRCA bɛ se ka kɛ bana basigilen ye tuma dɔw la. Bana bɛ se ka ban pewu furakɛli kɔfɛ walima a bɛ se ka segin. O la, fɛn damadɔ bɛ yen aw ka kan ka minnu jateminɛ ni aw bɛ balo ni nin bana in ye.

• Aw bɛ to ka taa dɔgɔtɔrɔso la: Hali ni aw ka bana taamasiɲɛw tununna furakɛli kɔfɛ, aw ye aw jija ka taa sɛgɛsɛgɛli kɛ waatiw la minnu fɔra aw ka dɔgɔtɔrɔ fɛ. O bɛna aw dɛmɛ ka bana in seginni farati fɛn o fɛn dɔn joona.
• Ladonni tata hakɛ : A bɛ se ka kɛ ko mɔgɔ dɔw ka kan ka to ka fura ta ni a tata hakɛ dɔgɔyara walasa ka bana in bali ka segin.
• Ɲɛnamaya kɛcogo ɲuman:
• Dumuni ɲuman : Aw bɛ dɔgɔtɔrɔ ɲininka nɛgɛmafɛn minnu na ani dumuni nafama dunni.
• Aw bɛ ji caman min: Aw bɛ farikolojidɛsɛ bali.
• Farikoloɲɛnajɛ: Aw bɛ farikoloɲɛnajɛ kɛ min tɛ mɔgɔ tɔɔrɔ, min bɛnnen don aw ma, i n’a fɔ dɔgɔtɔrɔ y’a laadi cogo min na.
• Aw bɛ aw yɛrɛ tanga banakisɛw ma:Aw bɛ to ka aw tɛgɛw ko. Aw ye aw janto yɔrɔ minnu na mɔgɔw ka ca. Aw bɛ kuma aw ka dɔgɔtɔrɔ fɛ boloci wajibiyalenw bɛɛ kan.
• Aw ye aw janto aw ka bana taamasiɲɛw la: Ni aw ye fɛn dɔw kɔlɔsi aw fari la walima ni taamasiɲɛ kura dɔw bɛ aw la, aw bɛ o fɔ aw ka dɔgɔtɔrɔ ye.