Àdi be yeanya nu tso Amniotic Band Syndrome, si nye nɔnɔme si me afɔku le si me kaƒomɔ̃wo xatsa ɖe viwòa ŋua?

Èbua viwòa ƒe nyonyo ŋu ɣesiaɣi le fufɔɣi, alo? Ɣeaɖewoɣi ne èkpɔ nu sue aɖe le fotoɖeɖe me la, vɔvɔ̃ ɖoa wò ŋutɔ. Aleae vidada geɖe tsia dzimaɖi, gake ne wona nènya nyuie la, woate ŋu akpɔ nɔnɔme sia si woyɔna be amniotic band syndrome gbɔ. Mina míaƒo nu tso eŋu bɔbɔe, le mɔ si gɔme nàte ŋu ase nu.

Nukae nye Amniotic Band Syndrome ƒe dɔléle?

Kpuie ko la, esia dzɔna ne tsi ƒe ka tsɛ siwo tso amniotic sac (si míeyɔna be ``Amniotic Sac'') si ƒo xlã vidzĩ si le vidzidɔ me la xatsa ɖe vidzĩa ƒe ŋutilã ŋu. Bu vidzĩa be ele abe ʋuƒo si me tsi yɔ fũu ene. Ne lãkusi tsɛ si le amnion la me gblẽ le mɔ aɖe nu la, ate ŋu agbã azu ka siwo le abe ka ene alo anɔ abe ka ene eye wòanɔ tsia dzi le amniotic kotokua me. Esia nye nusi míeyɔna be ``Amniotic Bands''. Ka siawo siwo le tsia dzi, abe ka ƒe bɔl ene, ate ŋu abla ɖe vidzĩa ƒe alɔ, afɔ, asibidɛ, alo eƒe ŋutilã ƒe akpa bubu aɖe ŋu le vidzidɔa me. Ne ka siawo xaxa sesĩe la, ʋu si sina yia akpa ma dzi ɖena kpɔtɔna, eye ɣeaɖewoɣi gɔ̃ hã la, etɔna keŋkeŋ. Ekema akpa ma metsina nyuie o. Ɣeaɖewoɣi la, esia ate ŋu agblẽ nu le vidzĩa ƒe ŋutinuwo kple vidzidɔa gɔ̃ hã ŋu. Esia ate ŋu ahe vidzidzi ƒe gbɔdzɔgbɔdzɔ (Congenital Disorders) vɛ eye le nɔnɔme sesẽwo me la, woalã eƒe lãme. Alesi nɔnɔmea nu sẽe nɔ te ɖe alesi woxatsa kaawo sesĩe kple afisi woxatsa wo le le vidzĩa ƒe ŋutilã ŋu dzi. Ðewohĩ ŋutigbalẽ suesuesue siwo le sesẽm koe anɔ vidzĩ aɖewo ŋu le wo dzidzi me. Ke hã, woate ŋu adzi vidzĩ aɖewo abɔ, afɔ, alo asibidɛ manɔmee. Ne ka siawo tso vidzĩa ƒe ʋu si tso vidzidɔa me la, ate ŋu ade eƒe agbe afɔku me. Ðɔktawo ate ŋu atsɔ ultrasound scan akpɔ dɔlélea le fufɔɣi ɣeaɖewoɣi. Gake zi geɖe la, womeɖoa kpe esia dzi o vaseɖe esime wodzi vidzĩa vɔ hafi. Nɔnɔme sia mebɔ boo o. Edzɔna le vi siwo wodzi agbagbee siwo ade 1 le 1,200 va ɖo 15,000 me. Wogayɔnɛ be:

• Amniotic Band ƒe Ðoɖowɔwɔ
• Constriction Band/Rings ƒe Dɔléle
• Amniotic Band ƒe Tɔtɔ ƒe Dɔwɔƒe
• Vidzidzi ƒe Constricting Bands/Rings
• ADAM Complex `(ADAM Complex - Vidzidɔ ƒe Nɔnɔmetɔtrɔ/ Adhesions /Mutilations)`
• Ablɔdzidɔwɔlawo ƒe Nya si Mesɔ O

Nukae nye esia ƒe dzesiwo? Aleke woawɔ ade dzesii?

Nɔnɔme sia ƒe dzesiwo nɔ te ɖe afisi ka la bla ɖe vidzĩa ƒe ŋutilã ŋu kple alesi wòblae sesĩe dzi koŋ.Dɔléle siwo ade 80 le alafa me gblẽa nu le abɔwo kple afɔwo ŋu. Gake ka siawo ate ŋu abla ɖe ta, kɔ, kple dɔgbo hã me. Ɣeaɖewoɣi la, esia mesẽna nenema gbegbe o. Ðeko wòɖea ʋu si sina yia ŋutigbalẽa ƒe gowo dzi dzi kpɔtɔna. Emegbe ne wodzi vidzĩa la, nuwo ate ŋu anɔ anyi abe ŋutigbalẽa ƒe asigɛ siwo xea mɔ na ame ene, alo abɔ kple afɔwo ƒe nɔnɔme madeamedzi suesuesuewo. Gake ɣeaɖewoɣi la, ka siawo xaxana sesĩe hedea to ale gbegbe be ʋu si sina yia ŋutinu alo ŋutilã ƒe akpa ma me la nu tsona keŋkeŋ. Ekema akpa ma ate ŋu abu, ʋua nu ayi, eye ɣeaɖewoɣi la, kuxi siwo ate ŋu ade ame ƒe agbe afɔku me ate ŋu ado mo ɖa. Dzesi bubu siwo woate ŋu akpɔ le nɔnɔme sia mee nye:

• Be wodzi ame abɔ, afɔ, alo asibidɛ manɔmee.
• Asibidɛ siwo lé ɖe wo nɔewo ŋu (Syndactyly). Ðewohĩ ŋutigbalẽ anɔ asibidɛawo dome, abe dadi tɔ ene.
• Afɔawo le kpuie eye wometsi nyuie o.
• Vuvu le afisi kaawo xatsa le.
• Kluvi ƒe afɔ .
• Nuyi si Mã Kple Aɖu si Gã .
• Ƒu ƒe dɔmawɔmawɔ nyuie, abe ƒumeŋuɖui ene.
• Choanal Atresia (ŋɔti ƒe tsitsi si mede blibo o). Esia ate ŋu ana vidzĩa ƒe gbɔgbɔ nasesẽ.
• Ŋku siwo le sue ŋutɔ alo wometsi nyuie o (Microphthalmia).

Kuxi kawoe esia ate ŋu ahe vɛ?

Amniotic band syndrome ate ŋu ahe kuxi geɖe vɛ, eye wo dometɔ aɖewo ate ŋu axɔ ame ƒe agbemeŋkekewo katã. Kuxi aɖewo nu sẽ ŋutɔ eye woate ŋu ade ame ƒe agbe afɔku me gɔ̃ hã. Le kpɔɖeŋu me:

• Do siwo le tagbɔ (Encephalocele) me. Le go sia me la, ahɔhɔ̃a ƒe akpa aɖe ate ŋu ado go to taɖua me.
• Do alo nusiwo gblẽ le ƒodo alo akɔta ƒe gliwo ŋu.
• Nusiwo gblẽ le ɖoɖo veviwo abe dɔgbo ƒe dɔwɔwɔ alo vidzinuwo ƒe aɖuɖɔtoe ŋu ene.
• Kuxi siwo ate ŋu ado mo ɖa ne ka siawo xatsa ɖe vidzidɔa me eye woxe mɔ na vidzĩa ƒe ʋu ƒe sisi .

Zi geɖe la, nɔnɔme sia nana wodzia vidzĩa kaba. Afɔkuwo le vidzidzi kaba ŋu. Afɔku hã li be wòaɖe fu alo adzi vi kuku. Ðevi siwo ŋu dɔléle sia le ate ŋu ahiã kamedede kple dɔwɔwɔ ƒe atikewɔwɔ ƒe geɖe, alo vaseɖe esime woatrɔ ɖe kuxi siwo nye abɔ kple afɔ siwo bu alo tsitsi ƒe kuxiwo ŋu.

Nukatae amniotic band syndrome (ABS) dzɔna? Nukawoe gbɔ wòtsona?

Numekuku geɖe ɖee fia be susu aɖeke meli si me kɔ, si koŋ tae wòle alea ɖo o.Wosusui koŋ be amnion (tsi kotoku si ƒo xlã vidzĩa) ƒe akpa si le eme ƒe gbegblẽ gbɔe wòtso. Nusiwo ate ŋu ana tsi kotoku sia nagblẽ dometɔ aɖewoe nye:

• Wowɔa dodokpɔ aɖewo le fufɔɣi , abe Chorionic Villus Sampling (CVS) alo Amniocentesis ene. Esia bia be woatsɔ aŋe ato tsikotokua me eye woaɖe tsi alo lãkusi aɖe le vidzĩa si. Gake ƒã ŋutɔ be dodokpɔ siawo nagblẽ nu le ame ŋu.
• Fugboe ƒe Amekoko le Gaglãgbe: Dɔléle sesẽ ŋutɔ siwo ate ŋu ade ame ƒe agbe afɔku me koe wowɔa esia.

Gake le amniotic band syndrome ƒe nɔnɔme aɖewo me la, tsikotokua megblẽna kura o. Eyata eŋutinunyala aɖewo xɔe se be kuxi aɖe si le ʋu ƒe sisi le vidzĩa ƒe ŋutilã me gbɔe esia tso. Ðewohĩ anɔ eme be vidzĩ aɖewo ƒe ʋu megazɔna nyuie o le domenyiŋusẽfianu ƒe ŋusẽkpɔɖeamedzi ta.

Amekae le afɔku me wu le nɔnɔme sia me?

Mɔnukpɔkpɔ si li be nàdzi vi si ŋu dɔléle sia le ate ŋu asɔ gbɔ vie ne è:

• Ne kuxi bubuwo do mo ɖa le fufɔɣi.
• Ne nɔnɔme aɖe si woyɔna be `(Vascular Ehlers-Danlos Syndrome)` le ŋuwò.
• Ne èno atama le fufɔɣi.
• Ne èle atike siwo womeŋlɔ na wò o zãm atikewɔlawo ƒe aɖaŋuɖoɖo manɔmee, alo ne èle atike aɖewo zãm le fufɔɣi.

Aleke tututu nèwɔna dea dzesi esia?

Zi geɖe la, ɖɔkta dea dzesi nɔnɔme sia le vidzĩa dzidzi vɔ megbe, ne ele vidzĩa dom kpɔ. Gake ɣeaɖewoɣi la, woate ŋu akpɔ esia ƒe dzesiwo hã le ultrasound scan wɔwɔ me le fufɔɣi. Scan la ate ŋu aɖe fli siwo tso ka siwo le sesẽm la gbɔ afia. Gake zi geɖe la, scan la ɖenɛ fiana be abɔ kple afɔwo bu, alo be ŋutilã ƒe akpa aɖewo metsi nyuie o.

Aleke gbegbee woate ŋu akpɔ esia kaba le fotoɖemɔ̃ dzi?

Woate ŋu akpɔ amniotic band syndrome ƒe dzesiwo ɣeaɖewoɣi le fufɔfɔ ƒe kwasiɖa 12 megbe, gake esesẽna ŋutɔ. Zi geɖe la, wò ɖɔkta akpɔ esia ƒe dzesiwo le ŋutilã ƒe wɔwɔme ƒe dodokpɔ me, si wowɔna le kwasiɖa 20 lɔƒo. Ne ɖikeke aɖe li la, wò ɖɔkta ate ŋu abia be woawɔ dodokpɔ bubuwo, abe MRI (Magnetic Resonance Imaging) ene.

Nukawoe nye atike siwo wozãna na esia?

Zi geɖe la, wowɔa atike na viwòa le viwòa dzidzi vɔ megbe. Atikewɔwɔ ƒe ƒomevi nɔ te ɖe afisi kasɛt la nɔ kple alesi wòsẽe dzi. Le nɔnɔme siwo mesẽ o me la, ɖɔkta ƒe ŋkuléle ɖe eŋu nyuie ate ŋu anye nusi hiã.Gake ne nɔnɔmea nu sẽ ale gbegbe be wòate ŋu akpɔ ŋusẽ ɖe vidzĩa ƒe sidzenuwo dzi la, ehiã be woadae kaba. Ɣeaɖewoɣi la, amekoko ate ŋu aɖɔ kuxiwo abe afɔkpodzi, nuyi kple aɖu si me ʋuʋu, kple ƒunukpeƒetetedɔ ene ɖo. Vidzĩwo kple ɖevi siwo ƒe abɔ kple afɔwo bu alo le kpuie ate ŋu aɖe vi na ametiatia. Lãmesẽfefewɔwɔ kple dɔwɔwɔ ƒe atikewɔwɔ ate ŋu akpe ɖe wo ŋu woazã abɔ kple afɔ siawo siwo wowɔ kple asi eye woƒe dɔwɔwɔ bliboa nanyo ɖe edzi.

Ƒã ŋutɔ hafi ɖɔkta nate ŋu awɔ dɔ aɖe si woyɔna be fetoscopy atsɔ aɖe vidzidɔa ƒe kotokua ɖa esime vidzĩa gakpɔtɔ le vidzidɔa me. Taɖodzinu si le amekoko sia ŋue nye be woaɖe asi le kotoku si me wobla nu le ŋu eye woaxe mɔ ɖe nu bubu siwo agblẽ nu le eŋu nu. Gake dɔ sia ate ŋu ade vidada kple vidzĩ siaa ƒe lãmesẽ afɔku gã aɖe me. Zi geɖe la, ne kotokua xaxa ale gbegbe be wòdea ame ƒe agbe afɔku me ko hafi wowɔa esia.

Ðe vidzĩa ate ŋu anɔ agbe kple nɔnɔme siaa?

Ẽ, vidzĩ geɖe nɔa agbe kple nɔnɔme sia. Ne woatsi agbe alo womatsi agbe o la nɔ te ɖe nusiwo le abe afisi kaawo nɔ kple alesi wosẽe dzi.

Ðe amniotic band siawo le yiyima?

Ao, zi geɖe la , ʋuʋudedi alo abi siwo vidzidɔ ƒe kawo hena vɛ la medzona o. Esia nɔ te ɖe alesi kaawo ge ɖe ŋutigbalẽa me gogloe dzi. Bia wò ɖɔkta tso atike siwo woate ŋu azã na abi siawo ƒomevi ŋu.

Ðe mɔ aɖe li si dzi woato axe mɔ ɖe esia nua?

Le nyateƒe me la, mɔ aɖeke meli koŋ si dzi woato axe mɔ ɖe amniotic band syndrome nu o. Ðɔktawo xɔe se be zi geɖe la, edzɔna le vome, susu aɖeke manɔmee.

Nukae míate ŋu abu tso nɔnɔme sia ŋu le etsɔme? (Nukpɔsusu) .

Le vidzĩ siwo ŋu ABS fafɛ le gome la, nukpɔsusua nyo. Zi geɖe la, vidzĩ siwo wodzi kple abɔ kple afɔ aɖewo ƒe dɔmawɔmawɔ nyuie trɔna ɖe ametia ƒe akpa aɖewo wɔwɔ kple wo gbugbɔgaɖɔɖo ƒe ɖoɖowo ŋu nyuie. Gake zi geɖe la, vidzĩ siwo ƒe ŋutinuwo gblẽ vevie eye ʋu mete ŋu toa vidzidɔ me o la metsia agbe o. Vidzidzi kuku siwo ade 1 le 70 ɖesiaɖe me tsoa amniotic band syndrome gbɔ.

Nukae nàwɔ ne amniotic band syndrome le viwòa ŋu?

Ðevi siwo ŋu dɔléle sia le hiã kpekpeɖeŋu sesẽ kple beléle ɣeyiɣi didi.Ele be dzilawo, ƒometɔwo, kple ɖɔktawo katã nawɔ dɔ aduadu akpe ɖe viwòa ŋu wòatrɔ ɖe tɔtrɔ siwo nɔnɔme sia hena vɛ le eƒe dzedzeme kple dɔwɔwɔ me ŋu. Ðewohĩ ahiã be viwòa nayi atikewɔla bibi vovovowo gbɔ. Le kpɔɖeŋu me, ƒumeŋutinunyalawo kple ahɔhɔ̃ŋutinunyalawo (le ŋutilã ƒe akpa siwo wògblẽ nu le nu). Ƒomea me tɔwo kple nɔviwo hã ate ŋu akpɔ kpekpeɖeŋu le kpekpeɖeŋunahawo me na ƒome siwo si ɖevi siwo ŋu dɔléle sia le. Ne èva nya be amniotic band syndrome le viwòa ŋu la, nyabiase kple vɔvɔ̃ geɖe ate ŋu anɔ mewò. Gbã la, ɖo ŋku edzi be wò atikewɔlawo ƒe ƒuƒoƒoa le afima be yewoakpe ɖe mia kple viwòa ŋu, be woakpɔ dziwò nyuie. Wò nɔnɔmea ƒe nɔnɔme tututu anɔ te ɖe alesi kaawo sesẽe kple afisi wole dzi. Esia ate ŋu afia be ahiã be woawɔ ultrasound scan na wò enuenu le wò fufɔɣi. Alo ate ŋu ahiã be woawɔ dɔ na wò le vidzĩa dzidzi vɔ megbe, nàgbugbɔ aɖɔ wò ɖo ɣeyiɣi didi, alo nàzã abɔ kple afɔ siwo wowɔ be wòagawɔ dɔ ake. Mègavɔ̃ be yeaƒo nu kple wò ɖɔkta si kpɔa vidzidzi do ŋgɔ na vidzidzi alo viwòa ƒe atikewɔlawo ƒe ƒuƒoƒo tso dɔléle sia si wokpɔ kple alesi wòakpɔ ŋusẽ ɖe wò ƒomea dzii ŋu o.

Gbedasi Mamlɛtɔ si Wotsɔ Yi Aƒeme

Amniotic Band Syndrome nye nusi dzi ŋɔ ŋutɔŋutɔ, gake ele vevie ŋutɔ be nànyae.

• Esia nye nɔnɔme si mebɔ kura o.
• Zi geɖe la, esia dzɔna le vome, si fia be menye ame aɖeke ƒe vodadae o.
• Vidzĩ geɖe siwo wodzi kple dɔléle sia nɔa agbe nyuie ne wokpɔ wo gbɔ nyuie le atikewɔwɔ kple ƒomea ƒe kpekpeɖeŋu me.
• Ne woate ŋu ade dzesi esia le fufɔɣi la, akpe ɖe ŋuwò nàwɔ ɖoɖo ɖe atikewɔwɔ si hiã na vidzĩa ŋu.
• Ne ɖikeke alo nyabiase aɖewo le mewò la, kpɔ egbɔ be yeƒo nu kple wò ɖɔkta. Woana nyatakaka kple kpekpeɖeŋu siwo katã nèhiã la wò. Mègatsi dzi o, menye wò ɖeka koe o.