He pilikia paha kou me nā kīʻaha koko e alakaʻi ana i kou lolo a me ke kaula kuamoʻo? E aʻo kākou e pili ana i ka CNS Vasculitis ma ke ʻano maʻalahi!

Aloha! Ua lohe paha ʻoe i kahi maʻi i kapa ʻia ʻo `(CNS Vasculitis)`? Malia paha he paʻakikī iki ke kani ʻana o ka inoa, akā mai hopohopo. I kēia lā e kamaʻilio maʻalahi mākou e pili ana iā ia, ma ke ʻano e hiki ai iā ʻoe ke hoʻomaopopo. He aha ka `(CNS Vasculitis)`, no ke aha e hana ʻia ai, he aha nā hōʻailona, ​​pehea e ʻike ʻia ai, a aia kekahi lāʻau lapaʻau?

He aha ka `(CNS Vasculitis)`? I ka ʻōlelo maʻalahi...

I ka ʻōlelo maʻalahi, ʻo `(CNS Vasculitis) ` kahi kūlana kahi e pehu ai a mumū paha nā kīʻaha koko e hoʻolako ana i ke koko i ka lolo a me ke kaula spinal (ke kaula nerve i loko o ke kaula spinal). E noʻonoʻo iā ia e like me ka paipu wai e ālai ʻia, a i ka wā e pehu ai kēia mau kīʻaha koko, emi ke kahe o ke koko i ka lolo a me ke kaula spinal. ʻO kēia ke kumu o nā pilikia like ʻole. I kekahi manawa kapa nā kauka i kēia `(Primary Angiitis of the Central Nervous System)` a i ʻole `(Granulomatous Angiitis)`. ʻOiai he paʻakikī iki kēlā mau inoa, ʻo ka mea nui e hoʻomaopopo ai, he mumū kēia e hoʻopilikia ai i nā kīʻaha koko o ka ʻōnaehana nerve waena. ʻO kā mākou ʻōnaehana nerve waena `(CNS)` ua like ia me ka lumi hoʻomalu o ko mākou kino. ʻO nā mea a mākou e hana ai me ka ʻike, e noʻonoʻo e pili ana iā ia, ke heluhelu nei ʻoe i kēia ʻatikala, ʻaʻole wale nā ​​​​mea e like me ka hoʻohana ʻana i kou mau manamana lima a me ka ʻōlelo ʻana, akā ʻo nā mea a mākou e hana ai me ka ʻike ʻole e like me ka hanu ʻana a me ka helu o ka puʻuwai, ua hoʻomalu ʻia e kēia ʻōnaehana nerve waena. No laila hiki iā ʻoe ke noʻonoʻo i ke koʻikoʻi o ia mea inā pili ia i kahi maʻi.

Aia kekahi mau ʻano o ka `(CNS Vasculitis)`?

ʻAe, ua hoʻokaʻawale nā ​​kauka i ka CNS Vasculitis i ʻelua ʻano nui: 1. CNS Vasculitis mua: ʻO kēia ka wā e puka mai ai ka mumū o kēia mau kīʻaha koko ma kāna iho, me ka ʻole o ka mana o kekahi kūlana olakino ʻē aʻe. ʻO ke ʻano kēia, ʻaʻohe maʻi ʻē aʻe e hiki ke loaʻa ma ke ʻano he kumu. 2. CNS Vasculitis lua: ʻO kēia ka wā e puka mai ai ka mumū o kēia mau kīʻaha koko ma muli o kekahi kūlana olakino ʻē aʻe i loko o ke kino, ʻo ia hoʻi, ma ke ʻano he hopena ʻaoʻao o kekahi maʻi ʻē aʻe. ʻO nā kūlana e hoʻoulu ai i ka mumū i loko o ke kino, ʻoi aku hoʻi nā maʻi autoimmune (ʻo ia hoʻi, nā maʻi e hoʻouka ai ka ʻōnaehana pale o ko mākou kino i kā mākou mau cell ponoʻī) a me kekahi mau maʻi nā kumu nui.

He aha nā hōʻailona o ka `(CNS Vasculitis)`?

Hiki ke ʻokoʻa nā hōʻailona o ka CNS Vasculitis mai kēlā kanaka a kēia kanaka. Eia kekahi, hiki ke ʻike koke ʻia kēia mau hōʻailona a ulu mālie paha. ʻO kekahi o nā hōʻailona nui:

• ʻEha poʻo nui: ʻAʻole kēia e like me ke poʻo maʻamau, hiki ke lilo i ʻeha poʻo nui a mau loa.
• Ka poina ʻana a i ʻole ka haunaele: E poina koke paha iā ʻoe nā mea, pilikia ka noʻonoʻo ʻana, a hopohopo.
• Ka ʻeha , nā loli o nā manaʻo:Hiki ke hana ʻia nā mea e like me ka mae ʻana o nā lālā a me nā loli i ke ʻano o ka manaʻo o nā mea i ka wā e hoʻopā ʻia ai.
• Manaʻo nāwaliwali i ke kino: Manaʻo paha ke kino ua make a luhi hoʻi.
• Ka hemahema o ka ʻike : Ua lilo ka ʻike i mea pohihihi, a i kekahi manawa hiki ke ʻike ʻia kekahi mea he ʻelua (ʻike pālua).
• Nā ʻūlū : Hiki ke nalowale koke ka ʻike a me nā ʻūlū.
• Nā kūlana i hoʻokumu ʻia e ka pehu ʻana o ka lolo (Encephalopathy): Hiki i kēia ke hoʻololi koke i ke ʻano o ka naʻau, nā loli i ke ʻano, a i ʻole ka hiolo ʻana.

Mea nui: Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​he mea nui loa e ʻimi koke i ke kōkua lapaʻau.

He aha nā pilikia e hiki mai ana mai ka CNS Vasculitis?

Inā loaʻa iā ʻoe kēia maʻi, e pehu a mānoanoa kou mau kīʻaha koko. ʻO kēia ka mea e paʻakikī ai ke kahe ʻana o ke koko ma o lākou. I ka hala ʻana o ka manawa, hiki i ka mumū i hoʻokumu ʻia e kēia maʻi, ʻo CNS Vasculitis, ke hōʻino i kou lolo a i ʻole ke kaula kuamoʻo a hoʻoulu i nā pilikia koʻikoʻi e hoʻoweliweli i ke ola . ʻO nā mea nui:

• Nā hahau
• Nā Hoʻouka Ischemic Kuikilana ( TIA ) a i ʻole nā ​​"mini-strokes"
• Nā aneurysms o ka lolo (hiki i kēia mau mea ke pahū)

Pono kēia mau kūlana āpau i ka mālama olakino ulia pōpilikia. Inā loaʻa iā ʻoe nā hōʻailona o ka hahau ʻana a manaʻo paha he kīʻaha koko kou i loko o kou lolo i pohā, e hele koke i ka haukapila a kāhea aku paha i ka 911.

No ke aha e hana ʻia ai kēia ʻ(CNS Vasculitis)`? He aha nā kumu?

Ua manaʻo ʻia ʻo CNS Vasculitis he maʻi autoimmune . I ka ʻōlelo maʻalahi, ʻo ka maʻi autoimmune ka wā e hoʻomaka hewa ai ka ʻōnaehana pale, ka mea i manaʻo ʻia e pale i ko mākou kino, e hoʻouka i kā mākou mau cell ponoʻī. Ua like ia me ko mākou pūʻali koa ponoʻī e hoʻouka ana i kona poʻe ponoʻī. Loaʻa i ka poʻe me ka CNS Vasculitis mua me ke kumu ʻike ʻole ʻia (idiopathic). ʻO ka maʻamau, hiki mai ka CNS Vasculitis lua me nā kūlana ʻē aʻe e hoʻoulu ai i ka mumū i loko o ke kino. Hiki i nā maʻi autoimmune ʻē aʻe a me kekahi mau maʻi ke hana. Eia kekahi mau laʻana:

• Lupus
• ʻO ka Granulomatosis me ka Polyangiitis
• ʻO ka Granulomatosis Eosinophilic me ka Polyangiitis (EGPA)
• ʻO ka Polyangiitis Microscopic
• ʻO ka maʻi ʻo Behçet
• ʻO ka maʻi Sjögren
• Nā maʻi viral (e.g. Epstein-Barr Virus , Varicella-Zoster Virus - ka maʻi e hoʻoulu ai i ka moa a me ka herpes)
• Nā maʻi bacteria (e.g. Tuberculosis, Syphilis)

ʻO wai ka mea i ʻoi aku ka nui o ka pilikia o ka hoʻomohala ʻana i ka CNS Vasculitis?

Hiki i kēia maʻi i kapa ʻia ʻo `(CNS Vasculitis)` ke hoʻopilikia i kekahi. Eia nō naʻe, ua ʻike ʻia he ʻoi aku ka nui o ka loaʻa ʻana o ia ma mua o nā kāne . Eia kekahi, ʻoi aku ka nui o ka ʻike ʻia ʻana o kēia maʻi ma kahi o 50 mau makahiki. Eia nō naʻe, he mea nui e hoʻomanaʻo e hiki ke loaʻa i kēlā me kēia makahiki.

Pehea e ʻike ai nā kauka i kēia maʻi `(CNS Vasculitis)`?

E ʻike ke kauka i ka CNS Vasculitis ma ka nānā ʻana iā ʻoe a me ka hana ʻana i kekahi mau hoʻokolohua. E nīnau ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona, ​​e like me ka wā i ʻike mua ai ʻoe iā lākou. E haʻi i kāu kauka inā hele mai a hele aku kāu mau hōʻailona, ​​​​​​kū mai i kekahi mau manawa o ka lā, a i ʻole e hoʻonui a emi paha me kekahi mau hana. ʻO ka ʻike ʻana i ka CNS Vasculitis i kekahi manawa hiki ke lilo i kaʻina hana o ka "diagnosis differential." ʻO ke ʻano kēia e kāpae kāu kauka i nā kūlana ʻē aʻe, ʻoi aku ka maʻamau e hiki ke hoʻoulu i kāu mau hōʻailona ma mua o ka manaʻo ʻana he CNS Vasculitis. Pono paha ʻoe e hana i nā hoʻokolohua e like me:

• MRI Scan
• CT Scan
• ʻO Angiogram (kahi hoʻāʻo kūikawā o nā kīʻaha koko)
• ʻO nā Biopsies (i kekahi manawa lawe ʻia kahi ʻāpana liʻiliʻi o ka ʻiʻo mai ka lolo a i ʻole ke kaula kuamoʻo no ka hoʻāʻo ʻana)

Pono paha ʻoe e ʻike i kahi rheumatologist, he kauka i loea i ka mālama ʻana i nā maʻi e pili ana i ka mumū.

Nā Māka ʻIke (CNS Vasculitis)

ʻO nā "Markers" he mau hōʻailona o kahi maʻi i hiki ke loaʻa i loko o kou koko a i ʻole ke kino ma o nā hoʻokolohua hoʻokolohua. Hiki i kāu kauka ke hana i nā hoʻokolohua e like me kēia e nānā ai i nā hōʻailona o ka CNS Vasculitis:

• Nā hoʻāʻo koko: E nānā no nā maʻi e like me ka anemia.
• Hoʻāʻo ESR: No ka ʻike ʻana i nā hōʻailona o ka mumū i loko o ke kino.
• Hoʻāʻo protein C-reactive (CRP): E nānā i nā māka o ka mumū i hoʻokuʻu ʻia e ke akepaʻa.
• Lumbar Puncture a i ʻole Spinal Tap: Hoʻāʻo i kou wai o ka lolo spinal e ʻike ai inā he kiʻekiʻe ka helu o nā keʻena koko keʻokeʻo.

He aha nā lāʻau lapaʻau no ka `(CNS Vasculitis)`?

E ʻōlelo aku kāu kauka i nā lāʻau lapaʻau e kāohi ana i ka mumū. ʻO ka mea nui loa i ka mālama ʻana i ka CNS Vasculitis, ʻo ia ka hoʻēmi ʻana i ka pōʻino o ke ʻano i kou lolo a i ʻole ke kaula kuamoʻo. Pono ka poʻe he nui e lawe i ka hui pū ʻana o nā corticosteroids (nā lāʻau lapaʻau ikaika e hōʻemi ana i ka mumū) a me nā immunosuppressants. I ka wā mua, pono paha ʻoe e lawe i kahi nui o ka lāʻau lapaʻau. Ma hope (ma hope o kekahi mau mahina), hiki i kāu kauka ke hōʻemi i ka nui o ka lāʻau lapaʻau a i ʻole ke alapine o nā inikini. E hoʻāʻo nā kauka e hoʻokomo iā ʻoe i kahi pae hoʻomaha kahi i liʻiliʻi ai kāu mau hōʻailona (a ʻaʻohe hōʻailona iki). Inā loaʻa iā ʻoe ka lua o ka CNS Vasculitis, pono nō hoʻi ʻoe e lawe i nā lāʻau lapaʻau kaʻawale e kāohi i ke ʻano kumu. E wehewehe kāu kauka i kēia iā ʻoe.

Āhea wau e ʻike ai i kaʻu kauka?

E makaʻala pono i kāu mau hōʻailona a e hoʻomaopopo i nā loli. Inā ʻike ʻia kāu mau hōʻailona e ʻoi aku ka ʻino a i ʻole e ʻoi aku ka ʻino, e haʻi koke i kāu kauka. Inā manaʻo ʻoe ʻaʻole kōkua kāu lāʻau lapaʻau iā ʻoe e like me kou makemake, e haʻi pū i kāu kauka e pili ana i kēlā. E haʻi aku kāu kauka iā ʻoe i ka pinepine o kou ʻike ʻana i kāu kauka a inā pono ʻoe i nā hoʻāʻo koko a i ʻole nā ​​​​hoʻāʻo ʻē aʻe. Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​e hele koke i kahi lumi pilikia, a i ʻole e kelepona i ka 911:

• Inā manaʻo ʻoe he mau hōʻailona kou o ka hahau ʻana a i ʻole ka haki ʻana o ka aneurysm o ka lolo.
• Inā pilikia ʻoe i ka hanu ʻana.
• Inā e ʻino koke kou ʻike, a inā e nalowale koke kou ʻike.

He aha kaʻu e manaʻo ai inā loaʻa iaʻu ka `(Central Nervous System Vasculitis)`?

ʻAʻohe lāʻau lapaʻau no ka CNS Vasculitis i kēia manawa. Eia nō naʻe, hiki i nā poʻe he nui ke komo i ka hoʻomaha ʻana, a i ʻole kahi manawa o ka hoʻomaha ʻana , ma hope o ka loaʻa ʻana o ka hui pū ʻana o nā lāʻau lapaʻau e pono ai no lākou. Hiki i kekahi poʻe ke hele i nā mahina a i ʻole nā ​​​​makahiki me ka ʻole o nā hōʻailona, ​​​​a laila hiki ke hoʻi mai nā hōʻailona. Hoʻopōkole pinepine ka CNS Vasculitis i kou manaʻolana ola.ʻAʻohe ona hopena nui. Akā, he paʻakikī ke ʻōlelo maopopo. No ka mea, hiki i ka `(CNS Vasculitis)` ke hoʻoulu i nā pilikia koʻikoʻi e like me nā hahau a me nā aneurysms. Inā loaʻa kēlā mau pilikia, aia ka pilikia o ka make ʻana ma mua o ke kanaka maʻamau. Inā hopohopo ʻoe no kou olakino a pehea paha ka hopena o `(CNS Vasculitis)` i kou ola, e kamaʻilio me kāu kauka e pili ana i ia mea.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

He mea maʻamau ke makaʻu i ka wā e lohe ai ʻoe e pili ana i kekahi kūlana e hoʻopilikia ai i ka ʻōnaehana nerve waena (CNS). Hiki ke hopohopo loa i ka wā e ʻike ai ʻoe e hoʻouka ana kāu ʻōnaehana pale ponoʻī i kou lolo a me ke kaula spinal.

Akā ʻo ka nūhou maikaʻi, hiki i ka hapa nui o ka poʻe me CNS Vasculitis ke loaʻa i kahi hui pū ʻana o nā lāʻau lapaʻau e hiki ke kōkua i ka kaohi ʻana i ke kūlana. Ke hoʻomaka ʻoe i ka lāʻau lapaʻau e pono ai nou, hiki i kāu kauka ke kōkua iā ʻoe e hōʻemi i ka hopena o kāu mau hōʻailona i kou ola.

ʻAʻole ia he mea ʻino ke nīnau i nā nīnau e pili ana i kou olakino. E kamaʻilio me kāu kauka e pili ana i nā kānalua a hopohopo paha āu. E pane lākou i kāu mau nīnau a pau, e kōkua iā ʻoe e hilinaʻi i nā mea e hana nei i loko o kou kino, a e kōkua iā ʻoe e ʻoi aku ka maikaʻi o ka hoʻokele ʻana. ʻO ka mea nui loa, ʻo ia ke noho mālie a hahai i nā ʻōlelo a kāu kauka.