No ke aha i emi koke ai ke koko i loko o ke kino? E kamaʻilio kākou e pili ana i ka Aplastic Crisis

Ua ʻike a lohe paha ʻoe i kahi kūlana kahi e loaʻa koke ai i kekahi poʻe, ʻoiai nā kamaliʻi liʻiliʻi, ka nalowale nui o ke koko, luhi loa, a i kekahi manawa hiki ke hoʻoweliweli i ke ola? ʻO ia kekahi o nā kūlana koʻikoʻi a mākou e kamaʻilio ai i kēia lā, i kapa ʻia ʻo ka pilikia aplastic . ʻOiai paha he mea weliweli iki kēia inoa, inā ʻike mākou, hiki iā mākou ke hoʻoponopono maikaʻi i kēia kūlana.

He aha maoli kēia pilikia aplastic?

I ka ʻōlelo maʻalahi, ʻo ka pilikia aplastic ka wā e pau koke ai ka hana ʻana o ka iwi iwi i loko o ko kākou kino i nā hunaola koko ʻulaʻula hou. I kēia manawa ke noʻonoʻo nei paha ʻoe, "No laila he aha ka mea e hana ai inā pau ka hana ʻana o nā hunaola koko ʻulaʻula?" ʻO kēia mau hunaola koko ʻulaʻula ka mea e lawe ana i ka oxygen ma o ko kākou kino. No laila, ke pau kā lākou hana ʻana, emi nui ka helu o nā hunaola koko ʻulaʻula i loko o ke kino, e hoʻoulu ai i ka anemia koʻikoʻi . He kūlana kēia e hiki ai ke hoʻoweliweli i ke ola.

ʻO ka maʻamau, hoʻopilikia ka pilikia aplastic i nā kānaka me nā maʻi koko e like me ka anemia cell sickle . ʻO ke kumu nui o kēia he maʻi viral maʻamau i kapa ʻia ʻo Parvovirus B19 . Mai kahaha, ʻoiai e hoʻopilikia kēia maʻi i nā kānaka he nui, hiki wale mai ka pilikia aplastic ke loaʻa ka maʻi i nā kānaka me nā maʻi koko me kēia maʻi. ʻOi aku ka maʻamau o kēia ʻano i nā keiki ʻōpio, ʻoi aku hoʻi nā pēpē. Akā aia ka nūhou maikaʻi, aia nā lāʻau lapaʻau no kēia e like me ke kahe koko a me ka intravenous immunoglobulin (IVIG) .

He maʻi anei kēia e pili ana i nā kānaka a pau?

ʻAʻole, ʻaʻole loa. E like me kaʻu i ʻōlelo ai ma mua, he maʻi maʻamau loa ʻo Parvovirus B19 . Eia naʻe, ʻaʻole nā ​​​​mea a pau i loaʻa i kēia maʻi e loaʻa i ka pilikia aplastic. Hana wale kēia i ka wā e loaʻa ai kekahi me kahi maʻi koko i ka Parvovirus B19.

ʻO nā keiki hānau hou, nā pēpē, a me nā keiki me ka anemia cell sickle ka mea i pilikia nui. ʻO ka poʻe me nā kūlana ʻē aʻe e hoʻoulu ai i ka luku ʻana o nā cell koko ʻulaʻula a me ka anemia hemolytic , aia pū kekahi i ka pilikia o ka hoʻomohala ʻana i kahi pilikia aplastic inā loaʻa lākou i ka maʻi parvovirus B19. ʻO kekahi o kēia mau kūlana:

• ʻO ka Spherocytosis hoʻoilina
• Ka maʻi Hemoglobin C
• Thalassemia
• ʻO ka maʻi hemahema G6PD
• Ka hemahema o Pyruvate Kinase
• Anemia Hemolytic Autoimmune
• ʻO ka Hemoglobinuria Pō Paroxysmal
• ʻO ka Elliptocytosis hoʻoilina

Inā loaʻa iā ʻoe a i ʻole kāu keiki kēia ʻano maʻi koko, he mea nui loa ia e mālama pono i kēia.

He aha nā hōʻailona o ka pilikia aplastic?

ʻO nā pākeke, a me nā keiki a me nā pēpē, i loaʻa i ka pilikia aplastic, loaʻa pinepine nā hōʻailona e pili ana i ka anemia koʻikoʻi. Hiki i nā pēpē a me nā keiki liʻiliʻi ke ʻoi aku ka huhū a huhū paha ma mua o ka maʻamau. No ka laʻana, inā e uē nui ana kāu keiki, ʻaʻole makemake i kekahi mea, a i ʻole e huhū mau ana, he hōʻailona paha kēia o kekahi mea e like me kēia.

Eia kekahi o nā hōʻailona nui:

• Luhi: Manaʻo nui i ka luhi, hiki ʻole ke hana i kekahi mea.
• Kuni: Hiki i ka mahana o ke kino ke piʻi i 38 degere Celsius (101 degere Fahrenheit) a ʻoi aku paha.
• Pōniuniu: Manaʻo ia e wili ana kou poʻo, a e lilo paha kou mau maka i polū.
• Pōkole o ka hanu / dyspnea: Pōkole o ka hanu ʻoiai ke neʻe iki nei, e manaʻo ana he luhi loa i ka piʻi ʻana i ke alapiʻi.
• Puʻuwai wikiwiki a kūpono ʻole paha: ʻOi aku ka wikiwiki o ka puʻuwai ma mua o ka maʻamau, a ʻaʻole paha e kuʻi iki, akā hiki ke kūpono ʻole.
• Keʻokeʻo: ʻOi aku ka mae o ka ʻili, nā lehelehe, nā ʻāʻī, a i ʻole nā ​​​​kui ma mua o ka maʻamau. ʻO kēia ke kala i ʻike ʻia ke nele ke koko.

Inā ʻike ʻoe i kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​ʻoiai inā he maʻi koko kou a i ʻole kāu keiki, he mea nui loa ia e ʻimi koke i ke kōkua lapaʻau .

No ke aha e kū mai ai kēia pilikia aplastic? He aha ke kumu?

ʻO ke ʻano o ka huaʻōlelo "aplastic" ua pau ka hana ʻana o kekahi mea i loko o kou kino. ʻO ia ka mea e hana ʻia i loko o kēia pilikia aplastic. ʻAʻole hiki i kou iwi iwi ke hana i nā hunaola koko ʻulaʻula olakino. ʻO ke kumu o ia mea, ʻo ia ka Parvovirus B19 aʻu i ʻōlelo ai ma mua. Hoʻopilikia pololei kēia maʻi i nā hunaola koko ʻulaʻula ʻōpiopio i oʻo ʻole. Hoʻopōʻino ia iā lākou.

Loaʻa i ko mākou kino nā mea e like me nā hunaola koko ʻulaʻula, kekahi mau hunaola koko keʻokeʻo, a me ka plasma mai ka iwi iwi. No laila, ke pau ka hana mau ʻana o nā hunaola koko ʻulaʻula, loaʻa iā ʻoe ka anemia koʻikoʻi . E noʻonoʻo, ʻo kēia ka mea e hana ʻia ke pau koke ka hana ʻana o ka hale hana koko o ko mākou kino.

He aha nā pilikia e hiki mai ana o kēia maʻi?

Hiki i ka pilikia aplastic ke alakaʻi i nā pilikia like ʻole, ʻoi aku hoʻi i ka poʻe me ka anemia cell sickle . He mea koʻikoʻi loa kēia.

• Ka pilikia Vaso-occlusive lōʻihi (VOC):He ʻeha koke a koʻikoʻi ka VOC i loaʻa i nā poʻe me ka anemia cell sickle. Hiki i kēia ʻeha ke lōʻihi ma muli o ka pilikia aplastic.
• Myocarditis: ʻO kēia ka mumū o ka puʻuwai puʻuwai, kahi ʻano e like me ka pehu ʻana.
• ʻO ka hoʻokaʻawale ʻana o Splenetic: Hoʻopaʻa ʻia nā hunaola koko ʻulaʻula maʻamau i loko o ka spleen, e hoʻonui ai i ka spleen.
• Glomerulonephritis: He maʻi puʻupaʻa kēia, inā ʻaʻole mālama pono ʻia, hiki ke alakaʻi i ka hāʻule ʻana o ka puʻupaʻa.

ʻO ia ke kumu a mākou e ʻōlelo nei he mea nui loa ka makaʻala i kēia kūlana.

Pehea e ʻike ai nā kauka i kēia?

Ke hōʻike ʻoe a i ʻole kāu keiki i kēia mau hōʻailona, ​​ke ʻike ʻoe i ke kauka, e nīnau mua ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona. A laila e hana ʻo ia i kahi hoʻokolokolo kino. Eia kekahi, hiki ke hana ʻia kekahi mau hoʻokolohua e hōʻoia i ke kūlana:

• Helu Koko Piha (CBC): Nānā kēia i ka helu o nā hunaola koko ʻulaʻula, nā hunaola koko keʻokeʻo, a me nā platelets i loko o ke kino. I ka pilikia aplastic, haʻahaʻa loa ka helu o nā hunaola koko ʻulaʻula.
• Helu Reticulocyte: He mau hunaola koko ʻulaʻula ʻōpiopio nā Reticulocytes. Ana kēia hoʻāʻo i ka nui o nā hunaola koko ʻulaʻula hou e hana ʻia nei e ka iwi iwi. I ka pilikia aplastic, haʻahaʻa loa kēia helu.
• Hoʻāʻo Parvovirus B19: Hana ʻia kēia hoʻāʻo e hōʻoia inā ua loaʻa iā ʻoe kēia maʻi.

Ma hope o kēia mau hoʻokolohua, hiki i ke kauka ke haʻi maopopo inā he pilikia aplastic maoli kēia a i ʻole kekahi mea ʻē aʻe.

He aha nā lāʻau lapaʻau no kēia?

ʻO ke ʻano nui o ka lāʻau lapaʻau no ka pilikia aplastic, ʻo ia ka hoʻoili koko . ʻO ia hoʻi ka hāʻawi ʻana i ke koko mai waho mai. Hiki i kēia ke hoʻihoʻi koke i ka helu koko ʻulaʻula haʻahaʻa o ke kino. Eia kekahi, hāʻawi ʻia kahi lāʻau i kapa ʻia ʻo Intravenous Immunoglobulin (IVIG) . Hāʻawi ʻia kēia i loko o ke kino ma o kahi vein (IV).

Hoʻōla ka hapa nui o nā maʻi i loko o 10 a 14 mau lā o ka hoʻomaka ʻana o ka lāʻau lapaʻau. ʻO kekahi mea maikaʻi, ʻo ia ka loaʻa ʻana o kekahi i ka parvovirus B19, loaʻa iā lākou ka palekana no ke ola holoʻokoʻa i ka maʻi. ʻO ke ʻano kēia, ua emi nui ka pilikia o ka hoʻomohala ʻana i kahi pilikia aplastic mai ka maʻi.

Aia kekahi ala e pale aku ai i ka pilikia aplastic?

He mea paʻakikī iki ke ʻōlelo aku. No ka mea, kū mai ka pilikia aplastic ke loaʻa i kahi kanaka me ka maʻi koko i ka parvovirus B19 . He maʻi maʻamau loa ʻo Parvovirus B19, a ʻaʻohe lāʻau pale e kūʻē iā ia.

Akā, no ʻoe a me kāu keikiInā loaʻa iā ʻoe kahi maʻi koko e like me ka anemia cell sickle, he mea nui e nīnau i kāu kauka i ka mea hiki iā ʻoe ke hana e hōʻemi i kou pilikia o ka loaʻa ʻana o ka parvovirus B19. No ka laʻana, ʻo nā mea maʻalahi e like me ka noho mamao ʻana mai nā wahi piha kanaka a me ka holoi pinepine ʻana i kou mau lima hiki ke hāʻawi i kahi palekana.

He aha ka mea e hana ma hope o kēia kūlana? (Wānana)

ʻO ka prognosis ka hopena i manaʻo ʻia no kou kūlana. ʻO ka poʻe me ka pilikia aplastic e hoʻōla pinepine i loko o 10 a 14 mau lā o ka hoʻomaka ʻana o ka lāʻau. Eia nō naʻe, hiki i kekahi poʻe ke loaʻa hou nā pilikia aplastic. No laila, he mea nui e hoʻolohe i nā hōʻailona a hahai i nā ʻōlelo a kāu kauka.

Pehea lā wau e mālama ai iaʻu iho? / Pehea lā wau e mālama ai i kaʻu keiki?

ʻO ka pilikia aplastic kekahi o nā pilikia he nui e hiki ke hana me nā maʻi koko e like me ka anemia cell sickle . ʻAʻole paha ʻoe e hiki ke pale aku i ka parvovirus B19, akā aia kekahi mau mea hiki iā ʻoe ke hana e mālama i kou olakino holoʻokoʻa:

• E kiʻi i nā hoʻokolohua maʻamau: Ma ka noho mau ʻana me kāu kauka mālama mua, hiki iā ʻoe ke ʻike i nā pilikia olakino koʻikoʻi ma mua o ko lākou hiki ʻana mai.
• E hōʻemi i kou pilikia o ka maʻi: E kamaʻilio me kāu kauka e pili ana i nā ala e pale aku ai iā ʻoe iho mai nā maʻi maʻamau e like me ka maʻi influenza a me ke anu maʻamau.
• E ʻai i ka meaʻai olakino: E ʻai i ka meaʻai kaulike a inu i kahi 8-10 mau aniani wai i ka lā.
• Hoʻoikaika Kino: Hiki i ka hana kino mau ke hoʻomaikaʻi i kou ʻano a me kou olakino. Akā, e lawe mālie, e hoʻomaha ke luhi ʻoe, a e hoʻomanaʻo e inu i ka wai he nui.

Kōkua kēia mau mea i ka hoʻoikaika ʻana i ka ʻōnaehana pale o kou kino a kōkua iā ʻoe e noho olakino ma ke ʻano laulā.

Āhea wau e ʻike ai i ke kauka?

He pilikia olakino ka pilikia aplastic.

Inā loaʻa iā ʻoe a i ʻole kāu keiki kahi maʻi koko e like me ka anemia cell sickle , a ʻike ʻoe i nā loli koke i kou olakino, e like me ka nāwaliwali a luhi loa paha , pono ʻoe e ʻike koke i kāu kauka, me ka hoʻokaʻulua ʻole. ʻO ka wikiwiki o kou hoʻomaka ʻana i ka lāʻau lapaʻau, ʻoi aku ka maikaʻi.

He aha nā nīnau e pono iaʻu e nīnau aku i ke kauka?

Inā loaʻa iā ʻoe a i kāu keiki kahi pilikia aplastic, hiki iā ʻoe ke nīnau i kāu kauka i nā nīnau e like me kēia:

• Āhea e hoʻomaikaʻi ai au/kaʻu keiki?
• He aha nā manawa kūpono e loaʻa hou ai iaʻu/kaʻu keiki kahi pilikia e like me kēia?
• He aha kekahi mau mea e pono iaʻu e makaʻala nui ai i ka wā e ola ana me kēia maʻi?

He mea nui loa ka nīnau ʻana i nā nīnau e like me kēia a hoʻopau i kou mau kānalua.

He like anei ka pilikia aplastic a me ka anemia aplastic?

ʻAe, ʻoiai ua pili kēia mau kūlana ʻelua me ka emi ʻana o ka helu o nā kele koko ʻulaʻula, aia kahi ʻokoʻa ma waena o nā mea ʻelua.

ʻO ka pilikia aplastic ka emi koke ʻana o ka helu o nā hunaola koko ʻulaʻula.

ʻO ka anemia aplastic kahi maʻi e ulu mālie ana i ka hala ʻana o ka manawa. I kēia, ʻaʻole wale nā ​​​​​​kelepona koko ʻulaʻula akā ʻo nā ʻano ʻē aʻe o nā kelepona koko (nā kelepona koko keʻokeʻo, nā platelets) e emi paha.

I ka ʻōlelo maʻalahi, he pilikia koʻikoʻi a pōkole wale nō ka Aplastic Crisis. He pilikia lōʻihi ka Aplastic Anemia , pili pono i ka iwi.

ʻO ka mea hope loa, leka lawe i ka home

ʻAe, ke lana nei koʻu manaʻo ua ʻike maikaʻi ʻoe i ka mea a mākou i kamaʻilio ai i kēia lā, ʻo Aplastic Crisis. He pilikia koʻikoʻi kēia e hiki ke hoʻopilikia i ka poʻe me nā maʻi koko e like me Sickle Cell Anemia . ʻO ka mea e hana ʻia, ʻo ka pau koke ʻana o ka iwi o kāu a i ʻole kāu keiki i ka hana ʻana i nā hunaola koko ʻulaʻula, e hoʻoulu ai i ka anemia koʻikoʻi e hiki ke hoʻoweliweli i ke ola.

Hiki i nā pilikia aplastic ke lilo i mea weliweli no ka mea hiki ke hiki koke mai nā hōʻailona a koʻikoʻi. ʻO ka mea pōmaikaʻi, hiki i nā kauka ke mālama iā ia me nā hoʻoili koko a me nā lāʻau lapaʻau.

Inā loaʻa iā ʻoe a i ʻole kāu keiki kahi maʻi koko e hoʻolilo iā ʻoe a i ʻole kāu keiki i ka pilikia nui o ka loaʻa ʻana o kahi pilikia aplastic, e nīnau i kāu kauka i nā hōʻailona e hōʻike ana i kahi pilikia. ʻAʻole paha ʻoe e hiki ke pale aku i kahi pilikia aplastic, akā e ʻike ʻoe i ka mea e hana ai inā hana ia. ʻO kēlā ʻike ka mea nui loa.

ʻO ka pilikia Aplastic, nā hunaola koko ʻulaʻula, ka iwi iwi, ka maʻi anemia, ka Parvovirus B19, ka maʻi anemia cell sickle