Ke pāʻani wale nei kāu keiki liʻiliʻi i loko o kona honua ponoʻī me ka ʻole o ka hui pū ʻana me nā keiki ʻē aʻe? A i ʻole ʻaʻole ʻo ia e nānā i hope ke kāhea ʻoe i kona inoa? Ua ʻike anei ʻoe e hana hou ana ʻo ia i ka mea like i kekahi manawa? Ke ʻike ʻoe i nā mea e like me kēia, he mea maʻamau iā ʻoe, ma ke ʻano he makuahine a makua paha, ke manaʻo iki i ka makaʻu a me ke kānalua. I kēia lā ke kamaʻilio nei mākou e pili ana i kahi kumuhana a nā mākua he nui e makemake ai e ʻike, akā ʻaʻole maopopo loa. ʻO ia ke ʻano i kapa ʻia ʻo autism.
ʻO ka mea mua, e hoʻomaopopo kākou ʻaʻole he maʻi ka autism!
ʻO kēia ka mea mua e pono ai kākou a pau e hoʻomanaʻo. ʻAʻole he maʻi ka autism. ʻAʻole ia he mea e pono ai ke ho'ōla ʻia. No laila he aha kēia?
I ka ʻōlelo maʻalahi, ʻo ka autism kahi hoʻololi i ke ʻano o ka hana ʻana o ka lolo o kāu keiki. Hiki i kēia ke hoʻopilikia i ke ʻano o kā lākou ʻike ʻana i ke ao nei, ka launa pū ʻana me nā poʻe ʻē aʻe, a me ke ʻano. Kāhea mākou i kēia he neurodivergent . ʻO ke ʻano kēia, ʻokoʻa ka hana ʻana o ko lākou lolo ma mua o ka hapa nui o ka poʻe (neurotypical).
E noʻonoʻo e pili ana i ia mea, kākau kekahi poʻe me ko lākou lima ʻākau, a kākau kekahi poʻe me ko lākou lima hema. He ʻokoʻa wale nō ia, ʻaʻole he hewa a he maʻi paha. Pēlā nō ka autism. He ʻāpana ia o ke ʻano o ke keiki.
ʻAʻole hoʻokahi ke ʻano o ka autism. He ʻokoʻa ia e like me nā kala o ke ānuenue. Kāhea mākou iā ia he spectrum . ʻO ia hoʻi, hiki i kekahi keiki me ka autism ke ʻokoʻa loa mai kekahi. ʻAʻole like nā talena a me nā pilikia o kekahi keiki me kekahi. No laila, ʻaʻohe hopena hoʻokahi e kūpono i nā mea āpau. Pono e kōkua ʻia kēlā me kēia keiki ma ke ʻano kūpono iā lākou.
Inā manaʻo wau he autism kaʻu keiki, he aha nā hōʻailona e pono ai iaʻu e ʻimi?
Hiki ke hoʻokaʻawale ʻia nā hōʻailona i ʻike ʻia i loko o kahi keiki me ka autism i ʻelua mau ʻāpana nui. Hiki ke loli kēia mau hōʻailona me ka makahiki o ke keiki. E nānā kākou i ke ʻano o lākou.
1. Nā pilikia i nā pilina pili kanaka a me ke kamaʻilio ʻana: Nā loli i ke ʻano o ke kamaʻilio ʻana a me ka launa pū ʻana me nā poʻe ʻē aʻe.
2. Nā ʻano hana i kaupalena ʻia a hana hou ʻia: Nā mea e like me ka hana ʻana i ka mea like ma luna o nā manawa he nui, ka noʻonoʻo nui ʻana i ka mea like.
E nānā kākou pehea ke ʻano o kēia mau mea e like me nā pae makahiki ma ka papa ma lalo.
| Pūʻulu makahiki | Nā ʻano i ʻike ʻia ma nā pilina pilikanaka |
|---|---|
| Keiki liʻiliʻi |
|
| He keiki kula | |
| ʻŌpio |
I kēia manawa, e nānā kākou i nā loli e ʻike ʻia i nā ʻano hana.
| Pūʻulu makahiki | Nā ʻano hana |
|---|---|
| Keiki liʻiliʻi |
|
| Ke hele nei i ke kula/keiki ʻōpiopio |
ʻO ka mea nui, ʻo ia ka hana ʻana o nā keiki āpau i kekahi o nā mea i ʻōlelo ʻia ma luna i kekahi manawa. Akā, i ke ʻano o ka autism, ʻaʻole kēia mau mea e nalowale wale i ka hala ʻana o ka manawa. A hiki i kēia mau ʻano ke hoʻoulu i ke keiki e loaʻa i kekahi mau pilikia ma ke kula a i ka wā e launa pū ai me nā hoaaloha.
ʻAʻole paʻakikī nā mea āpau! Loaʻa i nā keiki autistic nā talena kūikawā
E like me kā mākou i kamaʻilio ai e pili ana i nā pilikia, pono pū mākou e kamaʻilio e pili ana i nā ikaika kūikawā a me nā talena i loaʻa i nā keiki a me nā mākua me ka autism. Loaʻa paha i kāu keiki nā talena e like me kēia:
- ʻOiaʻiʻo a me ka pololei: ʻO ka hiki ke hōʻike pololei i kou mau manaʻo.
- Hoʻomanaʻo maikaʻi loa: ʻO ka hiki ke hoʻomanaʻo i kekahi mau mea a me ka ʻike ma ke ʻano kupaianaha.
- Hoʻoikaika Hohonu: ʻO ka hiki ke hoʻoikaika i kahi kumuhana a hana paha āu e koho ai no nā hola he nui a lilo i loea i ia mea.
- Ka nānā ʻana i nā kikoʻī: ʻO ka hiki ke ʻike i nā kikoʻī liʻiliʻi loa a haʻi ʻole ai.
- Ka mana e hana i ka mea kūpono: Loaʻa kahi manaʻo ikaika o ka pono a me ka hewa a me ka hiki ke hana i ka mea kūpono ʻoiai ke nānā ʻole mai nei kekahi.
- Noʻonoʻo ʻokoʻa: ʻO ka hiki ke nānā i nā pilikia mai kahi kihi hou a loaʻa nā hopena hou.
No ke aha e kū mai ai ka autism?
ʻAʻohe kumu hoʻokahi i ʻike ʻia. I kēia manawa, ua manaʻo ʻia he hui pū ʻana o nā kumu hoʻoilina a me nā kumu kaiapuni e pili ana i ka hāpai ʻana . ʻO ke ʻano kēia, hana pū kēia mau mea e hoʻopilikia i ka ulu ʻana o ka lolo o ke keiki, e hana ana i kēia mau loli.
ʻO kekahi mau kumu e hoʻonui iki i ka likelika o ka autism:
- ʻOi aku ka makahiki o koʻu makuahine ma mua o 35.
- Ke hāpai hou nei i loko o hoʻokahi makahiki ma hope o ka loaʻa ʻana o hoʻokahi keiki.
- ʻO ka maʻi diabetes i ka wā hāpai (gestational diabetes).
- Ka hoʻohana ʻana i kekahi mau lāʻau lapaʻau (e like me valproate) i ka wā hāpai.
- Ua hānau ʻia ke pēpē i ka wā ʻōpiopio.
He mea nui: ʻO ka loaʻa ʻana o kēia mau mea, ʻaʻole ia he manaʻo e loaʻa maoli ana i kāu keiki ka autism. A e hoʻomaopopo ʻaʻole na ʻoe kekahi o kēia hewa.
Pehea e ʻike ai i kēia maʻi?
Inā he mau hopohopo kāu e pili ana i kāu keiki, ʻo ka mea mua āu e hana ai, ʻo ia ke kamaʻilio me kāu kauka ʻohana. Hiki ke hana ʻia kēia ma nā keʻena hoʻomohala keiki.
ʻO ke kaʻina hana no ka ʻike ʻana i ka autism e like me kēia:
1. Nānā ʻana: Ke nānā kāu kauka keiki i ka ulu ʻana o kāu keiki, e nīnau ʻo ia iā ʻoe e pili ana i ke ʻano a me ka ʻōlelo a kāu keiki. Inā he kānalua, e kuhikuhi ʻo ia iā ʻoe i kahi loea.
2. Loiloi loea: E nānā ke kauka hoʻomohala keiki i aʻo kūikawā ʻia, kauka noʻonoʻo, a i ʻole kekahi loea ʻē aʻe i ke keiki. E komo pū ana kēia me:
- E kamaʻilio lōʻihi mākou me ʻoe e pili ana i ke ʻano a me ka ulu ʻana o kāu keiki.
- E kamaʻilio me ke keiki, e pāʻani me ia, e nānā i kāna ʻano.
- Ma ka hoʻohana ʻana i nā pae hoʻohālikelike i ʻae ʻia ma ka honua e like me ka DSM-5-TR, loiloi ʻia nā hōʻailona o ke keiki e ʻike inā kūpono lākou i ka autism spectrum.
ʻAʻohe mea e like me ka hoʻāʻo koko a mimi paha no kēia. He hōʻailona kēia i hana ʻia ma ka nānā ʻana i ke ʻano a me ka ulu ʻana o ke keiki.
He aha nā lāʻau lapaʻau a me ke kākoʻo e hiki ke kōkua i ke keiki?
E hoʻomanaʻo i kā mākou ʻōlelo ʻana i ka hoʻomaka ʻana ʻaʻole kēia he maʻi, no laila ʻaʻohe "lāʻau lapaʻau" no ia mea? Akā, he nui nā ʻano lapaʻau e hiki ke kōkua i kahi keiki e hoʻokele i nā pilikia a lākou e kū nei i ke ola o kēlā me kēia lā a hoʻomohala i ko lākou mau mākau.
He mea nui loa e hoʻomaka i kēia mau mea i ka wā hikiwawe loa.
Loaʻa paha i kekahi mau keiki nā maʻi ʻē aʻe me ka autism. Eia kekahi laʻana:
- Ka maʻi hoʻonui ʻole o ka nānā ʻana (ADHD)
- Hopohopo
- Nā maʻi hiamoe
- ʻEpilepsy
Inā he mau kūlana like ia, e hāʻawi ke kauka i ka lāʻau lapaʻau a me nā ʻōlelo aʻoaʻo e pono ai no lākou. Hiki iā lākou ke kamaʻilio me ke kula a hoʻomohala i kahi Hoʻolālā Hoʻonaʻauao Pilikino (IEP) e kūpono i nā pono hoʻonaʻauao o ke keiki.
Leka Lawe-Home
- ʻAʻole he maʻi ka autism. He loli ia i ke ʻano o ka hana ʻana o ka lolo o ke keiki. No laila, ʻaʻole hiki ke "ho'ōla ʻia" me ka lāʻau lapaʻau. ʻO ka mea e pono ai mākou e hana, ʻo ia ke hoʻomaopopo i ke keiki a kākoʻo iā ia.
- ʻAʻole like nā keiki a pau me ka autism. He ʻano like ia me nā ʻano like ʻole. Loaʻa paha i kāu keiki nā talena a me nā pilikia kūikawā.
- Inā he kānalua iki kou e pili ana i ke ʻano o kāu keiki, mai hoʻopaʻa iā ia a hopohopo no ia mea, akā e ʻike koke i ke kauka kūpono no ka ʻōlelo aʻo.
- ʻO ka wikiwiki o ka hoʻomaka ʻana o ke keiki i ke kākoʻo hoʻōla a lākou e pono ai, ʻo ka maikaʻi hoʻi ia no ko lākou wā e hiki mai ana.
- ʻAʻole ʻoe hoʻokahi i kēia huakaʻi. Aia nā kauka, nā mea hoʻōla, a me nā mākua ʻē aʻe e hiki ke kōkua iā ʻoe a me kāu keiki. Me ka ʻike kūpono a me ke kākoʻo, hiki iā ʻoe ke kōkua i kāu keiki e ola i kahi ola nani a holomua.
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