Ua māhele ʻia kou puʻu i ʻelua? E aʻo kākou e pili ana iā (Bifid Uvula)!

Ua nānā anei ʻoe i loko o ke aniani a ʻike i kahi ʻāpana ʻiʻo liʻiliʻi e kau ana mai ke kua o kou puʻu? ʻO ia ka mea a mākou e kapa nei ʻo "uvula." I kekahi poʻe, hiki ke māhele ʻia kēia ʻāpana ʻiʻo i ʻelua ma kahi o hoʻokahi, e like me ka ʻō. ʻO kēia ka mea a mākou e kapa nei ma ke ʻano lapaʻau he `(Bifid Uvula)` a i ʻole "split uvula." E makaʻu iki paha ʻoe i kou lohe ʻana i kēia, akā i kou ʻike ʻana i ke ʻano o ia mea, e ʻike ʻoe ʻaʻole ia he mea weliweli loa.

He aha ka `(Bifid Uvula)`? E wehewehe maʻalahi kākou!

I ka ʻōlelo maʻalahi, ʻo ka Bifid Uvula kahi kūlana kahi i māhele ʻia ai ka uvula ma ke kua o kou puʻu i ʻelua ʻāpana ma kahi o hoʻokahi. E noʻonoʻo e like me kahi ʻōpuʻu liʻiliʻi. Ua kapa pū kekahi mau kauka iā ia he Cleft Uvula. ʻO kēia no ka mea he ʻano ʻoluʻolu ia o kahi kūlana i kapa ʻia ʻo Cleft Palate. E like me ka Cleft Palate, he Congenital Condition ka Bifid Uvula, ʻo ia hoʻi, aia ia i ka wā hānau. Hānau ʻia kekahi mau pēpē me kēia kūlana.

He mea nui: I ka hapa nui o ka manawa, ʻaʻole koʻikoʻi ʻo Bifid Uvula. Eia nō naʻe, i kekahi manawa hiki ke lilo i hōʻailona o kahi maʻi olakino ʻē aʻe.

He mea maʻamau anei ka loaʻa ʻana o kahi `(Bifid Uvula)`?

ʻAe, i ka nui. ʻO ka loaʻa ʻana o kahi `(Bifid Uvula)` ʻaʻole ia he manaʻo he hewa kekahi mea. Hānau ʻia kekahi poʻe me kahi uvula māhele maoli. Eia nō naʻe, i kekahi manawa ʻo ka loaʻa ʻana o kahi `(Bifid Uvula)` hiki ke hōʻike i kahi kūlana i kapa ʻia ʻo `(Submucosal Cleft Palate)`. ʻO kēia ka manawa ʻaʻole i ulu pono ka palate o ka pēpē (ka luna o ka waha) i loko o ka ʻōpū. Eia naʻe, ʻaʻole e like me ka `(Cleft Palate)` maʻamau, ʻaʻole ʻike ʻia kēia `(Submucosal Cleft Palate)` mai waho mai no ka mea ua hūnā ʻia ma lalo o nā ʻiʻo o ka palate.

He aha nā kūlana ʻē aʻe e hiki ai ke hana i ka `(Submucosal Cleft Palate)`?

Ua ʻōlelo mākou he hiki i ka `(Bifid Uvula)` ke lilo i hōʻailona o ka `(Submucosal Cleft Palate)`. Eia kekahi mau kūlana ʻē aʻe e pili ana i kēia kūlana `(Submucosal Cleft Palate)`:

• ʻO Loeys-Dietz Syndrome: He maʻi pili kēia. ʻO kona hōʻailona nui ka hoʻonui ʻia ʻana o ka aorta (ke kīʻaha koko nui e lawe ana i ke koko mai ka puʻuwai a i ke koena o ke kino). Loaʻa paha i ka poʻe me kēia maʻi kahi bifid uvula.
• `(Stickler Syndrome):` He maʻi hoʻoilina kēia. Hiki i kēia poʻe ke loaʻa i ka nalowale o ka lohe (kuli), nā ʻano maka ʻē, nā pilikia hui, a me nā hiʻohiʻona helehelena kikoʻī (no ka laʻana, he maka pālahalaha).
• `(Trisomy)`: ʻO ka maʻamau, loaʻa i kā mākou mau cell nā chromosomes ma nā pālua. Eia nō naʻe, i loko o `(Trisomy)`, aia ʻekolu kope o kahi chromosome kikoʻī ma kahi o ʻelua. Hiki ke pili pū kēia me `(Bifid Uvula).`
• `(ʻO ka maʻi mumū Linear Verrucous Epidermal Nevus Syndrome - ILVEN)`:He kūlana kēia e kū mai ana me ka ulu nui ʻana o ka ʻili. Hoʻomohala kēia poʻe i nā puʻupuʻu e like me ka wart (`Nevi`). Hiki iā lākou ke ʻānai, ʻulaʻula, a i ʻole ka maʻi.
• ʻO ka Velocardiofacial Syndrome (VCFS): Loaʻa paha i ka poʻe me kēia maʻi nā ʻano like ʻole o ka palate cleft. Loaʻa paha iā lākou ka maʻi puʻuwai, nā pilikia ʻōlelo, a me nā pilikia ʻai. Ua kapa ʻia hoʻi ʻo DiGeorge Syndrome a i ʻole 22 Q Deletion Syndrome.

I kēia manawa, ke noʻonoʻo nei paha ʻoe, "Auē, he aha kēia maʻi?" Mai hopohopo. ʻAʻole loaʻa kēia mau maʻi a pau i nā kānaka a pau me ka `(Bifid Uvula)`. He mau maʻi kakaikahi loa kēia. ʻO ka hapa nui o ka poʻe me ka `(Bifid Uvula)` ʻaʻole lākou e ʻike i kekahi o kēia mau hōʻailona. Akā, ma ke ʻano he kauka, he mea nui e makaʻala i kēia.

Pehea ka maʻamau o ka `(Bifid Uvula)`?

ʻAʻole kakaikahi ka Bifid Uvula e like me kou manaʻo. No ka laʻana, ua hōʻike ʻia ma kahi o 2% o ka heluna kanaka ma ʻAmelika Hui Pū ʻIa i loaʻa i kēia maʻi. ʻOi aku ka maʻamau i waena o kekahi mau hui lāhui. ʻOi aku ka maʻamau i waena o ka poʻe o ka hanauna ʻAsia a me nā ʻAmelika ʻōiwi. ʻOi aku ka maʻamau o ka Bifid Uvula i waena o nā pēpē kāne.

He aha nā hōʻailona o ka `(Bifid Uvula)`?

ʻO ka hōʻailona nui a maopopo loa, he uvula bifid e like me ka ʻō. Hiki i kāu kauka ke ʻike maʻalahi i kēia i ka wā o ka hoʻokolokolo maʻamau. Eia nō naʻe, ʻaʻole paha e ʻike koke ʻia kahi uvula bifid i nā pēpē hānau hou. ʻO kēia no ka mea e hoʻomau ka ulu ʻana o ka uvula i ka hala ʻana o ka manawa.

I kēia manawa, inā ʻo ka `(Bifid Uvula)` he ʻāpana o kahi `(Submucous Cleft Palate)`, hiki i ka pēpē ke hōʻike i nā hōʻailona ʻē aʻe:

• ʻŌlelo kani ihu: Lohe paha ʻoe i ke kani o ka ihu ke anu ʻoe.
• Nā pilikia hānai: No ka laʻana, hiki ke puka mai ka meaʻai mai ka ihu i ka wā e hānai waiū ai a i ʻole e hānai ana i ka laiki. Hiki i ka pēpē ke paʻakikī i ka omo pono ʻana.
• Manaʻo e like me ke kahe ʻana o ka ea mai kou ihu ke ʻōlelo ʻoe: Hiki ke hana kēia i ka wā e haʻi ʻia ai kekahi mau leka.

Inā ʻike ʻoe i kekahi mea e like me kēia i kāu pēpē, ʻoi aku ka maikaʻi o ka ʻike koke ʻana i kahi kauka pediatric no ka ʻōlelo aʻo.

He aha nā kumu o `(Bifid Uvula)`?

Ua kūkākūkā mākou he hiki i ka `(Bifid Uvula)` ke lilo i hōʻailona o `(Submucosal Cleft Palate)`. Ma waho aʻe o kēlā, hiki i nā mea pili i ke kaiapuni ke hoʻopilikia i kēia. Eia kekahi laʻana:

• Ka puhipaka ʻana o ka makuahine i ka wā hāpai: He hopena maikaʻi ʻole kēia i ka ulu ʻana o ka pēpē.
• Loaʻa i ka makuahine ka maʻi diabetes: He mea nui loa ka kaohi ʻana i ka maʻi diabetes i ka wā hāpai.
• Kekahi mau lāʻau lapaʻau: Mai lawe i kekahi lāʻau lapaʻau i ka wā hāpai me ka ʻole o ke aʻo ʻana a ke kauka. Hiki i kekahi mau lāʻau lapaʻau ke hoʻonui i ka pilikia o kāu pēpē e loaʻa ana i ka `(Bifid Uvula)` a i ʻole `(Cleft Palate)`.
• Nā kumu hoʻoilina: I kekahi manawa hiki ke hoʻoilina ʻia kēia. Inā loaʻa i kekahi o ka ʻohana ka `(Bifid Uvula)` a i ʻole `(Cleft Palate),` hiki i ka pēpē ke piʻi iki aʻe ka pilikia.

Pehea e ʻike ai i ka `(Bifid Uvula)`?

ʻO ka hapa nui o ka manawa, ʻike nā kauka i ka Bifid Uvula i ka wā hānau a i ʻole i ka wā o nā nānā maʻamau. I kekahi manawa, ʻaʻole maopopo, akā inā hōʻike ka pēpē i nā hōʻailona ʻē aʻe, e like me ka meaʻai e puka mai ana mai ka ihu i ka wā e ʻai ana, kānalua paha ke kauka iā Bifid Uvula a i ʻole Submucosal Cleft Palate.

A laila hiki i ke kauka ke nānā pono i loko o ka waha. I kekahi manawa, hiki iā lākou ke hoʻokomo i kahi kāmela kūikawā (kahi `endoscope`) i loko o ka puʻu e ʻike ai inā he māwae ma ke kaupaku o ka waha.

Pono ʻoe e mālama i ka `(Bifid Uvula)`?

ʻO kēia ka pilikia i loaʻa i nā poʻe he nui. ʻAʻole pono ka nui o ka poʻe me `(Bifid Uvula)` i kekahi lāʻau lapaʻau. Noho lākou i kahi ola maʻamau me ka ʻole o ka ʻoluʻolu ʻole.

Eia nō naʻe, inā pilikia ka ʻōlelo ʻana ma muli o Bifid Uvula (e like me ka hiki ʻole ke haʻi maopopo i kekahi mau leka) a i ʻole ka pilikia hānai (e like me ke kahe ʻana o ka ihu i ka wā e hānai ai i ka waiū, ka ʻū pinepine ʻana), hiki i kāu kauka ke kuhikuhi iā ʻoe no ka mālama ʻana.

• Lapaʻau ʻŌlelo: Inā pilikia ʻoe i ka ʻōlelo ʻana, hiki i kahi mea hoʻoponopono ʻōlelo ke kōkua iā ʻoe e hoʻomaʻamaʻa i ka haʻi pololei ʻana i nā huaʻōlelo.
• Lapaʻau Hānai: Hiki ke aʻo ʻia nā pēpē i pilikia i ka ʻai ʻana i nā ala e kōkua ai iā lākou e ʻai palekana a maʻalahi hoʻi.
• ʻOki kino: I kekahi manawa, i nā hihia koʻikoʻi loa, hiki ke ʻōlelo ʻia ke ʻoki kino inā pili nui ia i kou hiki ke ʻōlelo, ʻai, a ola paha. Pili kēia i ka humuhumu ʻana i nā ʻiʻo i haehae ʻia. Eia naʻe, ʻaʻole pono kēia i ka hapa nui o nā hihia.

Hiki ke pale ʻia ʻo Bifid Uvula?

No ka mea, he hoʻoilina ka Bifid Uvula i kekahi manawa, ʻaʻole hiki ke pale ʻia i nā manawa a pau. Eia nō naʻe, ua hōʻike kekahi mau noiʻi e hiki i ka pale ʻana i kekahi mau mea pili i ke kaiapuni i ka wā hāpai (e laʻa, ʻaʻole puhi paka, ʻaʻole lawe i nā lāʻau lapaʻau ʻaʻole i kuhikuhi ʻia) a me ka lawe ʻana i nā huaora prenatal, ʻoiai ka waikawa folic, ke hōʻemi i ka pilikia o kāu pēpē e loaʻa iā Bifid Uvula a i ʻole Cleft Palate.

He mea nui loa e hahai i nā ʻōlelo aʻo a kāu kauka i ka wā hāpai.

He aha kāu e manaʻo ai inā loaʻa iā ʻoe kahi `(Bifid Uvula)`?

No ka hapa nui, ʻo ka poʻe me `(Bifid Uvula)` ke ola nei i nā ola maʻamau a olakino . ʻAʻole paha ia e hoʻopilikia i kou ola o kēlā me kēia lā ma kekahi ʻano.

Eia nō naʻe, e like me kā mākou i ʻōlelo ai ma mua, hiki i kekahi poʻe, ʻoiai nā pēpē ʻōpio, ke paʻakikī i ka ʻōlelo ʻana a i ʻole ka ʻai ʻana. Inā loaʻa i kāu pēpē kekahi mau pilikia ma muli o Bifid Uvula, e kamaʻilio me kāu kauka e kūkākūkā i nā koho lapaʻau kūpono. Hiki iā lākou ke paipai i ka ʻōlelo a i ʻole ka hānai ʻana, a i ʻole ke ʻoki kino inā pono.

Āhea ʻoe e ʻike ai i ke kauka?

Inā ʻike ʻoe he Bifid Uvula kou a i ʻole kāu pēpē, a loaʻa iā ʻoe kekahi o nā hōʻailona ma lalo nei, e ʻike i ke kauka:

• Paʻakikī ke ale ʻana: Inā manaʻo ʻoe e ʻū ana ʻoe a i ʻole e ʻeha ana i ka ale ʻana i ka meaʻai a mea inu paha.
• Nā pilikia hiamoe: Ke kani ʻana a i ʻole ka manaʻo ua pio ka hanu i ka wā hiamoe.
• Ka hāhā pinepine ʻana.
• Inā pinepine ʻoe e luhi a hiamoe paha i ke ao ('Luhi a hiamoe paha i ke ao').
• Inā loaʻa pinepine iā ʻoe nā maʻi ʻāʻī a i ʻole ka ʻeha ʻāʻī ('Throth irritation').
• Inā puka mau ka meaʻai mai ka ihu o ka pēpē i ka wā e hānai waiū ai a i ʻole ka wā e hānai ana.
• Inā ʻaʻole maopopo ka ʻōlelo a ka pēpē a i ʻole he kani ʻūhū.

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​​​hiki i ke kauka ke nānā e ʻike inā pili ia iā Bifid Uvula a i ʻole no kekahi kumu ʻē aʻe.

He aha nā nīnau e hiki iā ʻoe ke nīnau i kāu kauka?

Inā ʻoe e hele ana e ʻike i ke kauka e pili ana i ka `(Bifid Uvula)`, hiki iā ʻoe ke nīnau i nā nīnau e like me kēia:

• He aha ke kumu o ka loaʻa ʻana o ka `(Bifid Uvula)` iaʻu/kaʻu pēpē?
• E pono anei nā hoʻokolohua ʻē aʻe, e like me nā scan kiʻi?
• Aia kekahi mau mea ʻē aʻe i ʻike ʻia ma ke poʻo o koʻu/kaʻu pēpē?
• Loaʻa i kaʻu/kaʻu pēpē kahi "Submucosal Cleft Palate"?
• E pono anei ka lāʻau lapaʻau?
• Pono anei au i ke ʻoki kino?
• He aha nā pilikia e hiki ai i kēia kūlana ke hoʻoulu i ka wā e hiki mai ana?
• He aha nā mea e hiki ke hana ʻia e pale aku ai i nā pilikia i ka ʻōlelo ʻana a i ka ʻai ʻana paha?

Leka Lawe-Home

ʻO Bifid Uvula kahi maʻi e māhele ai ka ʻiʻo palupalu ma ke kua o ka puʻu i ʻelua. I ka hapanui o nā hihia, he maʻi ʻino ʻole kēia ʻaʻole pono e mālama ʻia. ʻO ka hapa nui o ka poʻe me Bifid Uvula e ola maʻamau.

Eia nō naʻe, i kekahi manawa, ʻoi aku hoʻi i nā pēpē, hiki ke pilikia i ka ʻōlelo ʻana a i ʻole ka ʻai ʻana. Eia kekahi, i kekahi manawa, hiki ke lilo i hōʻailona o kekahi maʻi ʻē aʻe, e like me ka "Submucosal Cleft Palate".

Inā ʻoe a i ʻole kāu pēpē e ʻike nei i kekahi ʻeha ma muli o `(Bifid Uvula)`, mai kānalua e nīnau i ke kauka. A laila e hoʻoholo lākou i ka hopena kūpono loa iā ʻoe. E hoʻomanaʻo, ʻaʻole pono nā hihia `(Bifid Uvula)` āpau i ka mālama ʻana!

ʻUvula Bifid , Palate Māwae, Palate Māwae Submucosal, Nā kūlana hānau ʻole, Nā pilikia ʻōlelo, Nā pilikia ʻai