He mau kiko polū/poni paha ko kāu pēpē ma kona kino? E kamaʻilio kākou e pili ana i kēia 'Blueberry Muffin Rash'!

Maopopo iaʻu ka makaʻu a me ka hopohopo o ka makuahine a makua paha ke ʻike lākou i kahi mea ʻē ma ke kino o kā lākou keiki liʻiliʻi. ʻOiai ke ulu koke nā kiko polū-poni i kahi pēpē hānau hou ma ko lākou ʻili, hiki ke hopohopo nui. ʻO kēia kūlana ka mea a mākou e kapa nei ma ke ʻano lapaʻau ʻo "Blueberry Muffin Rash." He mea ʻē paha kēia inoa, akā he mea nui e makaʻala iā ia no ka mea he nui nā kumu koʻikoʻi ma hope ona.

He aha kēia 'blueberry muffin rash'?

I ka ʻōlelo maʻalahi, he maʻi ʻili kēia e hiki ke hoʻopilikia i nā pēpē hānau hou a me nā pēpē ʻōpio. Ua kapa ʻia ʻo ia ʻo 'blueberry muffin rash' no ka mea ua like nā kiko me nā kiko polū-poni ma kahi muffin blueberry. Hiki iā lākou ke ʻike ʻia he mau ʻāpana poepoe a i ʻole he mau nodules i hāpai ʻia ma ka ʻili.

ʻEkolu mau kumu nui e hiki ai ke ʻike ʻia kēia mau kiko:

1. Hematopoiesis Extramedullary: ʻO ka maʻamau, hana ʻia ko mākou koko i loko o ka iwi iwi. Eia nō naʻe, ma muli o kekahi mau kūlana olakino, hoʻomaka nā ʻāpana hana koko e hōʻiliʻili a hana i nā hui ma waho o ka iwi iwi, e like me ka ʻili. ʻO kēia mau hui o nā ʻāpana ka mea e ʻike ʻia me he mau kiko lā.

2. Ke kahe ʻana o ke koko i loko o ka ʻili (Purpura): Hiki ke loaʻa kēia ʻano kiko poni i ka wā e kahe ai ke koko i loko o ka ʻiʻo o ka ʻili ma muli o ka hōʻino ʻia ʻana o nā kīʻaha koko a i ʻole ka nāwaliwali o ke kaʻina hana koko.

3. Ka laha ʻana o nā hunaola kanesa (Metastasis): I kekahi mau ʻano kanesa, hiki i nā hunaola kanesa ke laha i ka ʻili mai nā wahi ʻē aʻe o ke kino a hana i nā puʻupuʻu e like me kēia.

ʻO ka hapa nui o nā kūlana olakino e hoʻokumu ai i kēia mau mea ʻekolu he mea kākaʻikahi. Eia kekahi, e loaʻa pinepine i kāu pēpē nā hōʻailona ʻē aʻe me kēia mau kiko. ʻAʻole e ho'ōla kēia mau kiko iā lākou iho. No laila, ʻo ka 'blueberry muffin rash' he hōʻailona ikaika ia e pono ai kāu pēpē i ka mālama koke ʻia e ke kauka.

He aha nā kumu nui e hiki ai ke hoʻoulu i kēia?

Mai hopohopo, e kamaʻilio maopopo mākou e pili ana i nā ʻano nui o nā kumu e hoʻopilikia ai i kēia, pākahi.

Nā maʻi TORCH

He huaʻōlelo pōkole ʻo TORCH no kekahi mau hui o nā maʻi e hoʻopilikia ana i ka ʻōpū a i ʻole ke keiki hānau hou i loko o ka ʻōpū. Hiki ke laha kēia mau maʻi mai ka makuahine a i ke keiki i ka wā hāpai, i ka wā hānau, a ma hope paha o ka hānau ʻana.

ʻO ke ʻano o TORCH:

• T - Toxoplasmosis
• O - Nā maʻi ʻē aʻe - no ka laʻana syphilis, chickenpox, parvovirus B19
• R- Rubella
• C - Cytomegalovirus (CMV)
• H - ka maʻi Herpes simplex (HSV)

Me kēia mau maʻi, hiki i ka pēpē ke hōʻike i nā hōʻailona ʻē aʻe e like me ke kuni, ka paʻakikī i ka hānai ʻana, ka jaundice, ke kaumaha hānau haʻahaʻa, ka lohe ʻole, a me ka hepatosplenomegaly.

Hōʻike kēia i ke koʻikoʻi o ke kipa ʻana i ke kauka i ka manawa kūpono a hana i nā hoʻokolohua e pono ai i ka wā hāpai. Ma o kēia, hiki iā ʻoe ke ʻike mua inā loaʻa iā ʻoe kēia ʻano maʻi a i ʻole he palekana kou iā lākou.

Kekahi mau Tumors a me nā Cancers

Hiki i kekahi ʻano maʻi ʻaʻai kamaliʻi ke hana i kēia 'blueberry muffin rash'. He mau maʻi kakaikahi loa kēia.

• ʻO ka histiocytosis
• Leukemia (maʻi ʻaʻai koko)
• ʻO ka mastocytosis
• ʻO ka Neuroblastoma
• ʻO ka maʻi ʻōpū (Rhabdomyosarcoma)
• Ka maʻi myeloproliferative kuʻuna - He mea maʻamau kēia i nā keiki me Down syndrome.

Hiki i kēia mau kūlana ke hele pū me nā hōʻailona e like me ka luhi nui, ke kuni, ka pohō kaumaha, ka maeʻele (ma muli o ka anemia), nā ʻāpana lymph pehu, a me ka paʻakikī o ka hanu ʻana.

Nā pilikia ʻē aʻe e pili ana i ka hana koko (Extramedullary Hematopoiesis)

E like me kā mākou i kūkākūkā ai ma mua, ua hoʻokumu ʻia kēia mau kiko e ka hematopoiesis extramedullary. ʻO kekahi mau kumu ʻē aʻe e kōkua i kēia:

• ʻO ka maʻi hemolytic o ke keiki hānau hou: Ka haki wikiwiki ʻana o nā hunaola koko ʻulaʻula o ka pēpē ma muli o nā kumu e like me ke kūlike ʻole o ke ʻano koko ABO ma waena o ka makuahine a me ke pēpē.
• ʻO ka spherocytosis hoʻoilina: He ʻano hoʻoilina e hoʻololi ai i ke ʻano o nā keena koko ʻulaʻula.
• ʻO ka maʻi hoʻoili koko māhoe-a-māhoe: Ke kahe like ʻole o ke koko ma waena o nā māhoe e kaʻana like ana i ka placenta like.

Pehea e ʻike ai nā kauka i ke kumu maoli?

E nānā pono ke kauka o kāu pēpē i kāu pēpē a nānā i nā hōʻailona ʻē aʻe. A laila, e paipai lākou i kekahi mau hoʻokolohua e ʻike i ke kumu pololei.

Inā kānalua ʻia kahi maʻi TORCH, hiki i ke kauka ke ʻōlelo i nā hoʻokolohua kūpono no ka makuahine.

He aha nā lāʻau lapaʻau no kēia?

He pilikia kēia i loaʻa i nā poʻe he nui. E hoʻomanaʻo, ʻo ka lāʻau no ka 'blueberry muffin rash' ʻo ia ka mālama ʻana i ke kūlana kumu i hoʻokumu ai. ʻO ia hoʻi, ʻoiai he hōʻailona kēia mau kiko, pono mākou e mālama i ke kūlana kumu i hoʻokumu ai i ka hōʻailona.

ʻo kahi laʻana:

• Inā he maʻi TORCH ke kumu, hāʻawi ʻia nā antibiotics, antiparasitics, a i ʻole nā ​​​​lāʻau antiviral.
• Inā he maʻi ʻaʻai e like me ka neuroblastoma ke kumu, pono paha ke ʻoki kino, chemotherapy, immunotherapy, a i ʻole radiation therapy.

E wehewehe ke kime lapaʻau o kāu pēpē i ka hoʻolālā lapaʻau maikaʻi loa no kāu pēpē, no laila mai kānalua e kamaʻilio me lākou e pili ana i nā nīnau a hopohopo paha āu e loaʻa ai.

Āhea ʻoe e ʻike koke ai i ke kauka?

ʻO ka pane wale nō i kēia, ʻo ia "I kēia manawa koke!"

ʻOiai he mea kakaikahi kēia maʻi, hiki iā ia ke lilo i hōʻailona e hana ana kekahi mea koʻikoʻi i ke kino o kāu pēpē. Hiki ke hopohopo loa kēia, akā ʻo ka mea nui loa, ʻaʻole e hopohopo a hana koke. E ʻike koke ke kime lapaʻau i ke kumu a hāʻawi i ka lāʻau maikaʻi loa no kāu pēpē.