Maopopo iaʻu ka makaʻu a me ka hopohopo o ka makuahine a makua paha ke ʻike lākou i kahi mea ʻē ma ke kino o kā lākou keiki liʻiliʻi. ʻOiai ke ulu koke nā kiko polū-poni i kahi pēpē hānau hou ma ko lākou ʻili, hiki ke hopohopo nui. ʻO kēia kūlana ka mea a mākou e kapa nei ma ke ʻano lapaʻau ʻo "Blueberry Muffin Rash." He mea ʻē paha kēia inoa, akā he mea nui e makaʻala iā ia no ka mea he nui nā kumu koʻikoʻi ma hope ona.
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He aha kēia 'blueberry muffin rash'?
I ka ʻōlelo maʻalahi, he maʻi ʻili kēia e hiki ke hoʻopilikia i nā pēpē hānau hou a me nā pēpē ʻōpio. Ua kapa ʻia ʻo ia ʻo 'blueberry muffin rash' no ka mea ua like nā kiko me nā kiko polū-poni ma kahi muffin blueberry. Hiki iā lākou ke ʻike ʻia he mau ʻāpana poepoe a i ʻole he mau nodules i hāpai ʻia ma ka ʻili.
ʻO ka mea nui, ʻaʻole kēia mau kiko ma ka ʻili o ka ʻili, akā me he mea lā ua hana ʻia i loko o ka ʻili . ʻAʻole kēia he ʻōhū maʻamau.
ʻEkolu mau kumu nui e hiki ai ke ʻike ʻia kēia mau kiko:
1. Hematopoiesis Extramedullary: ʻO ka maʻamau, hana ʻia ko mākou koko i loko o ka iwi iwi. Eia nō naʻe, ma muli o kekahi mau kūlana olakino, hoʻomaka nā ʻāpana hana koko e hōʻiliʻili a hana i nā hui ma waho o ka iwi iwi, e like me ka ʻili. ʻO kēia mau hui o nā ʻāpana ka mea e ʻike ʻia me he mau kiko lā.
2. Ke kahe ʻana o ke koko i loko o ka ʻili (Purpura): Hiki ke loaʻa kēia ʻano kiko poni i ka wā e kahe ai ke koko i loko o ka ʻiʻo o ka ʻili ma muli o ka hōʻino ʻia ʻana o nā kīʻaha koko a i ʻole ka nāwaliwali o ke kaʻina hana koko.
3. Ka laha ʻana o nā hunaola kanesa (Metastasis): I kekahi mau ʻano kanesa, hiki i nā hunaola kanesa ke laha i ka ʻili mai nā wahi ʻē aʻe o ke kino a hana i nā puʻupuʻu e like me kēia.
ʻO ka hapa nui o nā kūlana olakino e hoʻokumu ai i kēia mau mea ʻekolu he mea kākaʻikahi. Eia kekahi, e loaʻa pinepine i kāu pēpē nā hōʻailona ʻē aʻe me kēia mau kiko. ʻAʻole e ho'ōla kēia mau kiko iā lākou iho. No laila, ʻo ka 'blueberry muffin rash' he hōʻailona ikaika ia e pono ai kāu pēpē i ka mālama koke ʻia e ke kauka.
He aha nā kumu nui e hiki ai ke hoʻoulu i kēia?
Mai hopohopo, e kamaʻilio maopopo mākou e pili ana i nā ʻano nui o nā kumu e hoʻopilikia ai i kēia, pākahi.
Nā maʻi TORCH
He huaʻōlelo pōkole ʻo TORCH no kekahi mau hui o nā maʻi e hoʻopilikia ana i ka ʻōpū a i ʻole ke keiki hānau hou i loko o ka ʻōpū. Hiki ke laha kēia mau maʻi mai ka makuahine a i ke keiki i ka wā hāpai, i ka wā hānau, a ma hope paha o ka hānau ʻana.
ʻO ke ʻano o TORCH:
- T - Toxoplasmosis
- O - Nā maʻi ʻē aʻe - no ka laʻana syphilis, chickenpox, parvovirus B19
- R- Rubella
- C - Cytomegalovirus (CMV)
- H - ka maʻi Herpes simplex (HSV)
Me kēia mau maʻi, hiki i ka pēpē ke hōʻike i nā hōʻailona ʻē aʻe e like me ke kuni, ka paʻakikī i ka hānai ʻana, ka jaundice, ke kaumaha hānau haʻahaʻa, ka lohe ʻole, a me ka hepatosplenomegaly.
Hōʻike kēia i ke koʻikoʻi o ke kipa ʻana i ke kauka i ka manawa kūpono a hana i nā hoʻokolohua e pono ai i ka wā hāpai. Ma o kēia, hiki iā ʻoe ke ʻike mua inā loaʻa iā ʻoe kēia ʻano maʻi a i ʻole he palekana kou iā lākou.
Kekahi mau Tumors a me nā Cancers
Hiki i kekahi ʻano maʻi ʻaʻai kamaliʻi ke hana i kēia 'blueberry muffin rash'. He mau maʻi kakaikahi loa kēia.
- ʻO ka histiocytosis
- Leukemia (maʻi ʻaʻai koko)
- ʻO ka mastocytosis
- ʻO ka Neuroblastoma
- ʻO ka maʻi ʻōpū (Rhabdomyosarcoma)
- Ka maʻi myeloproliferative kuʻuna - He mea maʻamau kēia i nā keiki me Down syndrome.
Hiki i kēia mau kūlana ke hele pū me nā hōʻailona e like me ka luhi nui, ke kuni, ka pohō kaumaha, ka maeʻele (ma muli o ka anemia), nā ʻāpana lymph pehu, a me ka paʻakikī o ka hanu ʻana.
Nā pilikia ʻē aʻe e pili ana i ka hana koko (Extramedullary Hematopoiesis)
E like me kā mākou i kūkākūkā ai ma mua, ua hoʻokumu ʻia kēia mau kiko e ka hematopoiesis extramedullary. ʻO kekahi mau kumu ʻē aʻe e kōkua i kēia:
- ʻO ka maʻi hemolytic o ke keiki hānau hou: Ka haki wikiwiki ʻana o nā hunaola koko ʻulaʻula o ka pēpē ma muli o nā kumu e like me ke kūlike ʻole o ke ʻano koko ABO ma waena o ka makuahine a me ke pēpē.
- ʻO ka spherocytosis hoʻoilina: He ʻano hoʻoilina e hoʻololi ai i ke ʻano o nā keena koko ʻulaʻula.
- ʻO ka maʻi hoʻoili koko māhoe-a-māhoe: Ke kahe like ʻole o ke koko ma waena o nā māhoe e kaʻana like ana i ka placenta like.
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Check Availability →Pehea e ʻike ai nā kauka i ke kumu maoli?
E nānā pono ke kauka o kāu pēpē i kāu pēpē a nānā i nā hōʻailona ʻē aʻe. A laila, e paipai lākou i kekahi mau hoʻokolohua e ʻike i ke kumu pololei.
| Hoʻāʻo | He aha kāna e nānā ai? |
|---|---|
| Nā hoʻāʻo koko | Helu koko piha (CBC), nā hoʻāʻo no nā maʻi a me nā ʻano koko ʻē aʻe. |
| Ka nānā ʻana i ka mimi | Nā hōʻailona o kekahi mau maʻi a me nā kūlana olakino. |
| ʻO ke kī ʻana o ka iwi kuamoʻo/Lumbar Puncture | E nānā i ka wai cerebrospinal (CSF) e ʻimi i nā hōʻailona o ka maʻi. |
| ʻO ka biopsy ʻili | No ka nānā ʻana i ka maʻi leukemia a i ʻole nā pūnaewele maʻi ʻē aʻe. |
| ʻO ka biopsy iwi | Ke ʻimi nei i ka maʻi leukemia, nā ʻano koko ʻē aʻe, nā maʻi, a me ke kanesa. |
| ʻO ka ultrasound ʻōpū | Ke nānā ʻana no ke akepaʻa a me ka spleen i hoʻonui ʻia a me nā puʻupuʻu e like me ka neuroblastoma. |
Inā kānalua ʻia kahi maʻi TORCH, hiki i ke kauka ke ʻōlelo i nā hoʻokolohua kūpono no ka makuahine.
He aha nā lāʻau lapaʻau no kēia?
He pilikia kēia i loaʻa i nā poʻe he nui. E hoʻomanaʻo, ʻo ka lāʻau no ka 'blueberry muffin rash' ʻo ia ka mālama ʻana i ke kūlana kumu i hoʻokumu ai. ʻO ia hoʻi, ʻoiai he hōʻailona kēia mau kiko, pono mākou e mālama i ke kūlana kumu i hoʻokumu ai i ka hōʻailona.
ʻo kahi laʻana:
- Inā he maʻi TORCH ke kumu, hāʻawi ʻia nā antibiotics, antiparasitics, a i ʻole nā lāʻau antiviral.
- Inā he maʻi ʻaʻai e like me ka neuroblastoma ke kumu, pono paha ke ʻoki kino, chemotherapy, immunotherapy, a i ʻole radiation therapy.
E wehewehe ke kime lapaʻau o kāu pēpē i ka hoʻolālā lapaʻau maikaʻi loa no kāu pēpē, no laila mai kānalua e kamaʻilio me lākou e pili ana i nā nīnau a hopohopo paha āu e loaʻa ai.
Āhea ʻoe e ʻike koke ai i ke kauka?
ʻO ka pane wale nō i kēia, ʻo ia "I kēia manawa koke!"
Inā ʻike ʻoe i kahi kiko polū-poni a i ʻole puʻupuʻu e like me kēia ma ke kino o kāu pēpē, mai hoʻowahāwahā iā ia. Inā ke loaʻa nei kāu pēpē i ka lāʻau lapaʻau ma ka haukapila, e hoʻomaopopo koke i ke kauka a i ʻole ke kahu maʻi. Inā ʻoe ma ka home, e lawe koke i kāu pēpē i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
ʻOiai he mea kakaikahi kēia maʻi, hiki iā ia ke lilo i hōʻailona e hana ana kekahi mea koʻikoʻi i ke kino o kāu pēpē. Hiki ke hopohopo loa kēia, akā ʻo ka mea nui loa, ʻaʻole e hopohopo a hana koke. E ʻike koke ke kime lapaʻau i ke kumu a hāʻawi i ka lāʻau maikaʻi loa no kāu pēpē.
Leka Lawe-Home
- ʻAʻole wale ka Blueberry Muffin Rash he ʻōhū ʻili, hiki ke lilo i hōʻailona o kahi maʻi koʻikoʻi.
- ʻO kahi hiʻohiʻona kūikawā, ʻo ia ka ʻike ʻia ʻana o kēia mau kiko e hana ʻia ana i loko o ka ʻili, ʻaʻole ma luna.
- Inā ʻike ʻoe i kēia ʻano kiko ma ka ʻili o kāu pēpē, mai hoʻokaʻulua a hōʻike koke iā lākou i ke kauka a i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila.
- He mea nui e ʻimi i ke kōkua lapaʻau kūpono a me nā hoʻāʻo ʻana i ka wā hāpai e pale a ʻike paha i nā maʻi e like me TORCH i ka wā mua.
- E kamaʻilio ākea me kāu hui lapaʻau e pili ana i kāu hōʻailona a me ka hoʻolālā lapaʻau. E hāʻawi lākou i ke kākoʻo e pono ai ʻoe a me kāu pēpē.
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