Ke manaʻo nei ʻoe i kekahi manawa e nalowale mālie ana kou ikaika i kou mau lima a me kou mau wāwae? A i ʻole ke manaʻo nei ʻoe i ka ʻūlū ʻana, a i ʻole ke manaʻo nei ʻoe i kahi mea ʻokoʻa, make ola ʻole? Inā ua piʻi mālie kēia kūlana no nā mahina ʻelua a ʻoi, mai hoʻokuke wale iā ia me he mea maʻalahi lā. I kēia lā, ke kamaʻilio nei mākou e pili ana i kahi kūlana e hiki ai ke hana i kēlā mau hōʻailona, he mea kakaikahi iki, akā he mea pono ke ʻike. ʻO ia ka CIDP.
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I ka ʻōlelo maʻalahi, he aha ka CIDP?
Mai makaʻu i ka inoa lōʻihi ʻo CIDP. E mālama kākou i ka maʻalahi. ʻO CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) kahi maʻi lōʻihi kahi e hoʻouka hewa ai ka ʻōnaehana pale o ko mākou kino, ʻo ia hoʻi ka ʻōnaehana pale, i ko mākou mau aʻalolo ponoʻī.
E noʻonoʻo i ko kākou mau aʻalolo e like me nā uea uila. E like me ka uhi ʻana o nā uea uila a puni lākou, aia pū kekahi uhi pale i kapa ʻia ʻo myelin i ko kākou mau aʻalolo. ʻO kēia ʻūpā myelin ka mea e hiki ai i nā hōʻailona mai ka lolo ke hele wikiwiki a pololei i nā lālā. Ma CIDP, hoʻouka kā mākou ʻōnaehana pale ponoʻī i kēia ʻūpā myelin. Me he mea lā ua wehe ʻia ka ʻūpā ma luna o ke uea uila, ua hoʻopilikia ʻia ka hoʻoili ʻana o nā hōʻailona. ʻO ka hopena kēia i nā hōʻailona e like me ka nāwaliwali a me ka mae ʻole o nā lālā.
He ʻano like ka CIDP me ka maʻi Guillain-Barre (GBS). Eia nō naʻe, hiki mai ka GBS ma hope o kahi maʻi, e like me ke anu a i ʻole ka ʻōpū, a laila hoʻōla. Hoʻopau koke ia. Eia naʻe, ʻaʻole hiki mai ka CIDP ma hope o ia ʻano maʻi, a he ʻano lōʻihi ia.
He aha nā hōʻailona o CIDP?
ʻAʻole like kēia mau hōʻailona no kēlā me kēia kanaka. Akā aia kekahi mau mea nui āu e ʻike ai. E hoʻomanaʻo, no ka kānalua ʻana i ka CIDP, pono e kū kēia mau hōʻailona no ka liʻiliʻi he 8 mau pule .
ʻO ka hōʻailona mua a maʻamau ka nāwaliwali o nā ʻiʻo e mau ana no ʻelua mahina . Hoʻopilikia pinepine kēia i nā ʻaoʻao ʻelua o ke kino.
| ʻAno o ka hōʻailona | Wehewehena |
|---|---|
| Nā hōʻailona nui |
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| Nā hōʻailona ʻē aʻe | |
| Nā hiʻohiʻona kakaikahi |
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Check Availability →No ke aha e ulu ai ka CIDP? He mea laha anei ia?
ʻAʻole ʻike ʻia ke kumu kikoʻī o CIDP. Akā, ʻike mākou ua hoʻokumu ʻia ia e kahi pilikia me ka ʻōnaehana pale. ʻAʻole ia he mea laha iki. ʻAʻole hiki iā ʻoe ke hopu iā ia mai kekahi mea ʻē aʻe, ʻaʻole hoʻi hiki iā ʻoe ke hoʻolaha iā ia i kekahi.
ʻAʻole i ʻike ʻia he pilina hoʻoilina a i ʻole i hoʻokumu ʻia e kekahi maʻi. ʻOiai hiki i kekahi ke loaʻa iā ia, ʻoi aku ka maʻamau i nā poʻe ma waena o 50 a me 60 mau makahiki a me nā kāne .
Pehea e ʻike ai ke kauka i ka CIDP?
ʻAʻohe hoʻokolohua hoʻokahi e hiki ke haʻi maopopo iā ʻoe inā he CIDP kou. No laila, e nīnau mua kāu kauka iā ʻoe e pili ana i kāu mau hōʻailona. I ka manawa hea i hoʻomaka ai lākou, pehea lākou e manaʻo ai, a inā paha e ʻoi aku ka ʻino? A laila e hana lākou i kahi hoʻokolohua kino.
Eia kekahi, hiki ke hana ʻia kekahi mau hoʻokolohua e hōʻoia i kēia kūlana a e kāpae i nā kūlana olakino ʻē aʻe.
- Nā hoʻāʻo koko a me ka mimi: E nānā i nā kumu ʻē aʻe.
- Haʻawina Hoʻokele Aʻalolo a me EMG:E nānā inā ua hōʻino ʻia ka ʻupena myelin o nā aʻalolo a pehea e hoʻoili ʻia ai nā hōʻailona.
- Lumbar Puncture: E nānā i nā pae kiʻekiʻe o nā protein e pili ana me CIDP i loko o ka wai o ka spinal.
- Nā hoʻokolohua MRI: E nānā no ka pehu ʻana o nā aʻa o ke aʻalolo.
- Biopsy aʻalolo: I kekahi manawa e lawe ʻia kahi ʻāpana liʻiliʻi o ke aʻalolo a nānā ʻia.
ʻO ka mea nui loa, ʻo ia ka ʻike mua ʻana i ka maʻi a hoʻomaka i ka mālama ʻana . Hiki i kēia ke hōʻemi i ka hōʻino ʻana o ke aʻalolo. Inā ʻaʻole mālama ʻia, hiki i nā hōʻailona ke ʻoi aku ka ʻino i ka hala ʻana o ka manawa, e alakaʻi ana i ka pono o ka noho huila no kekahi poʻe.
He aha nā lāʻau lapaʻau no CIDP?
He nui ka poʻe me CIDP e pono ai ka lāʻau lapaʻau. ʻO ka wikiwiki o ka hoʻomaka ʻana o ka lāʻau lapaʻau, ʻoi aku ka maikaʻi o ka manawa e hoʻōla piha ai. ʻO ka pahuhopu nui o ka lāʻau lapaʻau, ʻo ia ke kāohi i ka ʻōnaehana pale mai ka hōʻino ʻana i nā aʻalolo.
Nā ʻano lapaʻau nui
- Corticosteroids: He mau lāʻau lapaʻau ʻano steroid kēia e hōʻemi i ka mumū i loko o ke kino a kaohi i ka hana o ka ʻōnaehana pale.
- Immunotherapy: Hoʻopilikia kēia mau lāʻau lapaʻau i nā kaʻina hana o ka ʻōnaehana pale a hoʻōki iā ia mai ka hoʻouka ʻana i ka myelin.
- ʻO ka Intravenous Immunoglobulin (IVIG): Pili kēia i ka hāʻawi ʻana i kahi mahele nui o nā antibodies i lawe ʻia mai nā poʻe olakino ma o ka intravenous (IV). Kōkua kēia i ka kaohi ʻana i ka pane pale ʻokoʻa o ke kino.
- Plasma Exchange (PE): Pili kēia i ka lawe ʻana i ka ʻāpana plasma o kou koko, kānana iā ia e wehe i nā antibodies ʻino, a hoʻihoʻi iā ia i kou kino.
Hoʻōla kōkua
Ma waho aʻe o nā lāʻau lapaʻau nui, pono paha ʻoe i nā lāʻau lapaʻau ʻē aʻe e maʻalahi ai kou ola o kēlā me kēia lā.
- Hoʻōla Kino: He mea nui loa kēia no ke kūkulu hou ʻana i ka ikaika o nā ʻiʻo a hoʻomaikaʻi i ka hiki ke hele wāwae.
- ʻO ka Lapaʻau Hana: Hāʻawi i ka ʻōlelo aʻoaʻo no ka hana ʻana i nā hana o kēlā me kēia lā (e like me ka kuke ʻana, ke kāhiko ʻana) me ka maʻalahi me ke kūlana.
- Hoʻoikaika kino a me ka ʻai: Hiki i ka hoʻoikaika kino kūpono ke kōkua i ke kūkulu ʻana i ka ikaika a hoʻomaikaʻi i ke kaulike. Hiki i ka ʻai kaulike a momona ke kōkua i ka pale ʻana i ka loaʻa ʻana o ke kaumaha pono ʻole a me ke kaumaha o nā ʻiʻo. E kūkākūkā me kāu kauka e pili ana i kēia.
Ke noho nei me CIDP a me ka nohona maikaʻi
Hiki ke paʻakikī ke noho me kahi maʻi lōʻihi e like me CIDP. Aia kahi hui lapaʻau e kōkua iā ʻoe. Hoʻokomo pū kēia i kahi neurologist .Me nā poʻe e like me ka mea hoʻoponopono kino.
Hiki i kēia maʻi ke hoʻoulu i nā manaʻo kaumaha, hopohopo, a me ke kaumaha. He mea maʻamau loa ia. Inā ʻoe e manaʻo nei i kēia ʻano, e kamaʻilio me kou ʻohana a me kou mau hoaaloha e pili ana i ia mea. Mai kānalua e ʻimi i ke kōkua mai kahi loea olakino noʻonoʻo inā pono ʻoe. Hiki iā ia ke lilo i mea kōkua nui i kāu huakaʻi hoʻōla.
He mea nui loa: Inā pilikia ʻoe i ka hanu ʻana, he pilikia ia. E hele koke i ka haukapila kokoke loa i ka Emergency Department (ETU).
Leka Lawe-Home
- ʻO ka CIDP kahi maʻi lōʻihi i hoʻokumu ʻia e ka ʻōnaehana pale ponoʻī o ke kino e hoʻouka ana i nā aʻalolo.
- ʻO ka hōʻailona nui, ʻo ia ka nāwaliwali o nā ʻiʻo a me ka maneʻo e piʻi mālie ana i loko o kekahi mau mahina.
- ʻAʻole kēia he maʻi lele, a ʻaʻole i loaʻa ke kumu pololei.
- Hiki i nā poʻe he nui ke hoʻokō i nā hopena maikaʻi ma o ka ʻike mua ʻana i ka maʻi a me ka loaʻa ʻana o ka lāʻau kūpono.
- Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, mai hoʻowahāwahā iā lākou a e ʻike koke i kāu kauka no ka ʻōlelo aʻo.
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