Ke luaʻi nui nei kāu pēpē a ke ʻeha nei ka ʻōpū i nā hola ma hope o ka ʻai ʻana? He FPIES paha ia (Food Protein-Induced Enterocolitis Syndrome)!

Ua hoʻomaka anei kāu keiki liʻiliʻi e luaʻi a loaʻa paha ka maʻi diarrhea i loko o kekahi mau hola o ka ʻai ʻana i kahi meaʻai hou? A i ʻole he ʻeha ʻōpū wale nō? I kekahi manawa hiki ke ʻoi aku kēia ma mua o ka ʻeha ʻōpū wale nō. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi ʻokoʻa iki, akā he mea nui loa ia e ʻike. ʻO ia ka FPIES (Food Protein-Induced Enterocolitis Syndrome) . ʻOiai ke kani lōʻihi iki ka inoa, he pane wale nō ia i loko o ko mākou kino, ʻoi aku hoʻi i loko o nā ʻōpū, i nā protein i loko o kekahi mau meaʻai.

He aha ka FPIES? E hoʻomaopopo maʻalahi kākou.

I ka ʻōlelo maʻalahi, ʻo ka FPIES (Food Protein-Induced Enterocolitis Syndrome) kahi pane maʻamau ʻole o ka ʻōnaehana pale o ko mākou kino i kekahi mau meaʻai. Hoʻopilikia nui ia i kā mākou ʻōnaehana hoʻoheheʻe (Gastrointestinal - GI system) . ʻO ia hoʻi, ʻo nā hōʻailona e like me ka luaʻi a me ka diarrhea ka mea maʻamau.

ʻAʻole e like me nā maʻi ʻaleka meaʻai, hoʻomaka nā hōʻailona FPIES e ʻike ʻia i kekahi mau hola ma hope o ka ʻai ʻana . ʻO kēia ka mea e hoʻolilo ai i kēia kūlana i mea kūikawā. E noʻonoʻo, ʻai ʻoe i ka ʻaina kakahiaka a hoʻomaka e maʻi a puni ke awakea.

ʻOiai ʻo FPIES ka mea maʻamau i nā pēpē a me nā kamaliʻi ʻōpio , hiki iā ia ke hoʻopilikia i nā pākeke i kekahi manawa, no laila he mea nui i nā mea a pau ke ʻike i ia mea.

He aha nā meaʻai e hoʻoulu ai i nā FPIES?

ʻOiai hiki i kekahi meaʻai ke hoʻoulu i ka FPIES, aia kekahi mau meaʻai e hiki ke hoʻoulu i ke kūlana. ʻO lākou kēia:

• Waiū: Nā waiū holoholona e like me ka waiū bipi a me ka waiū kao.
• Ka waiū pēpē: Hiki i kekahi mau pēpē ke maʻi alerika i ka waiū pēpē.
• Soy.
• ʻOati.
• Laiki.
• Hua manu.
• Meaʻai Kai: ʻOi aku ka iʻa paʻa e like me nā pāpaʻi, ʻōpae, a me nā ʻano iʻa ʻē aʻe.

ʻOkoʻa paha nā meaʻai nui e hoʻoulu ai i nā FPIES ma muli o ka ʻāina a me ka ʻāina āu e noho ai. Ma Sri Lanka, ua hōʻike ʻia nā hihia o nā FPIES i hoʻokumu ʻia e kēia mau meaʻai. E noʻonoʻo, ua hoʻomaka wale ʻoe i kāu pēpē i ka laiki, a ua hāʻawi paha ʻoe iā ia i ka yogurt, a i kekahi mau hola ma hope mai, e luaʻi mau ana kāu pēpē a ua huhū kona ʻōpū. A laila pono ʻoe e kānalua no kēia.

ʻElua ʻano nui o nā FPIES:

Hiki ke hoʻokaʻawale ʻia nā FPIES i ʻelua mau ʻano nui:

1. Nā FPIES koʻikoʻi:

• I kēia hihia, ʻike ʻia nā hōʻailona i loko o hoʻokahi a ʻehā mau hola o ka ʻai ʻana i ka meaʻai i nīnau ʻia.
• Hiki i ka luaʻi a me ka maʻi pākī ke koʻikoʻi loa i kekahi manawa. E hoʻomau ka pēpē i ka luaʻi ʻana, a hiki i ke kiko o ka nalowale ʻana o ka ʻike.
• Akā ʻo ka mea maikaʻi, ʻo ia ka nalowale loa ʻana o kēia mau hōʻailona i loko o 12 a 24 mau hola ma hope o ka hoʻōki ʻana i ka meaʻai allergenic.

2.Nā FPIES Mau Loa:

• Hiki mai kēia kūlana ke ʻai mau ʻia ka meaʻai āu e maʻi ai a pinepine ʻia.
• ʻO kēia ke kumu o ka mumū lōʻihi i loko o nā ʻōpū.
• ʻOiai ʻaʻole i ʻoi aku ka koʻikoʻi o nā hōʻailona e like me nā FPIES koʻikoʻi, hiki iā lākou ke hele a hele aku. Loaʻa paha i kāu pēpē kekahi mau hōʻailona e like me ka maʻi pākī, ka nalowale o ka makemake, a me ka pohō kaumaha.
• Hiki ke hala ʻekolu a ʻumi mau lā ma hope o kou hoʻōki ʻana i ka hāʻawi ʻana i ka meaʻai allergenic.

He aha nā hōʻailona o FPIES? Pehea ʻoe e ʻike ai?

ʻO nā hōʻailona nui o FPIES:

• Ka maʻi kahe: I kekahi manawa hiki ke wai a i ʻole he koko iki i loko.
• ʻEha ʻōpū: Uē nā pēpē liʻiliʻi, paʻa i ko lākou ʻōpū, a hakakā.
• Keʻokeʻo: Ua mae koke ke kino a lilo i kala koko ʻole.
• Luhi: Luhi wale ke pēpē, ʻaʻole pāʻani, a me he mea lā e pani ana kona mau maka.
• ʻO ka pohō kaumaha i manaʻo ʻole ʻia: Hiki ke ʻike ʻia kēia ma nā FPIES lōʻihi.
• Hypothermia: Lilo ke kino i anu.

ʻO ka mea nui, ma FPIES, ʻike ʻia kēia mau hōʻailona i kekahi mau hola ma hope o ka ʻai ʻana i ka meaʻai i nīnau ʻia , ma waena o 1 a me 4 mau hola. I nā FPIES mau loa, hiki ke hele mai a hele aku nā hōʻailona.

E noʻonoʻo i kāu pēpē i inu i kahi ʻōmole waiū i ke kakahiaka. I ke awakea, hoʻomaka ʻo ia e luaʻi mau, ua pehu kona ʻōpū, ua keʻokeʻo kona kino, a me he mea lā ua make ʻo ia. Inā hana ʻia kēlā, he mea nui e kānalua i nā FPIES.

No ke aha e hana ʻia ai nā FPIES? He aha ke kumu?

ʻO ke kumu nui o FPIES, ʻo ia ka manaʻo kuhihewa o ko kākou ʻōnaehana pale kino he "pōʻino" nā protein i loko o kekahi mau meaʻai a hoʻouka iā lākou. Manaʻo ka ʻōnaehana pale kino i kēia mau meaʻai me he mea lā he ʻenemi lākou.

ʻO ka mea e hana ʻia ana ma kēia, ʻo ia ka hoʻāʻo ʻana o nā pūnaewele pale ma loko o kā mākou ʻōnaehana hoʻoheheʻe (ʻōpū a me nā ʻōpū) e hoʻopau i ka meaʻai a lākou e manaʻo ai he "ʻino". ʻO kēia ke kumu o ka pehu ʻana a me ka mumū i loko o ka ʻōpū a me nā ʻōpū. ʻO kēia ke kumu o ka luaʻi a me ka maʻi pākī.

ʻO FPIES kahi ʻano hopena i kapa ʻia ʻo `non-IgE-mediated` . I ka ʻōlelo maʻalahi, ʻaʻole ia e pili ana i nā `antibodies IgE` nāna i kuleana no nā maʻi allergies he nui a mākou i ʻike ai (e.g., nā maʻi allergies peanut). Akā, pili nā cell immune ʻē aʻe. ʻO kekahi mea nui ʻē aʻe, ʻaʻole i hoʻokumu ʻo FPIES i ka mumū o ke kino holoʻokoʻa e kū mai ana i kekahi mau maʻi allergies koʻikoʻi ʻē aʻe. ʻO ke ʻano kēia, ʻaʻole hiki ke hana ʻia ka `anaphylaxis` koʻikoʻi a hoʻoweliweli i ke ola, ka mea e paʻakikī ai ka hanu ʻana (ʻoiai hiki i ka dehydration koʻikoʻi a me ka haʻalulu ke alakaʻi i nā kūlana koʻikoʻi ʻē aʻe).

He aha nā pilikia e hiki ke hana ma muli o FPIES?

Hiki i nā hopena FPIES ke alakaʻi i kekahi manawa i nā kūlana koʻikoʻi, a hiki ke hoʻoweliweli i ke ola. ʻO nā mea nui loa o kēia mau mea:

• Pūʻiwa: He haʻahaʻa koke kēia o ke koko. He mea weliweli loa kēia.
• Ka maloʻo ʻana o ka wai: Ke hoʻomau ka luaʻi a me ka maʻi pākī, nui ka wai a me nā paʻakai e nalowale ana mai ke kino. Hiki ke hana koke kēia i nā keiki ʻōpio, no laila pono ʻoe e makaʻala loa.

Pehea e ʻike ai ke kauka i nā FPIES?

E kānalua ke kauka i nā FPIES ma hope o ka nīnau ʻana iā ʻoe a i kāu keiki paha e pili ana i kā lākou mau hōʻailona me nā kikoʻī . He mea nui loa nā mea e like me nā meaʻai āu i ʻai ai, pehea ka lōʻihi o ka hoʻomaka ʻana o nā hōʻailona, ​​a me nā hōʻailona.

I kekahi manawa, hana paha ke kauka i kahi "hoʻāʻo hoʻokūkū meaʻai." ʻO kēia ka hāʻawi ʻana i ke keiki, ma lalo o ka nānā ʻana a ke kauka, i kahi liʻiliʻi o ka meaʻai i manaʻo ʻia e ʻike inā he hopena. ʻAʻole maikaʻi kēia e hana ma ka home, no ka mea, ʻo kahi hopena koʻikoʻi e pono ai ka nānā koke ʻana o ke kauka.

Hiki i kekahi manawa ke paʻakikī ke ʻike i nā FPIES no ka mea hiki ke like kona mau hōʻailona me nā kūlana ʻē aʻe, e like me nā maʻi bacteria. No laila, hiki i kāu kauka ke kauoha i nā hoʻokolohua koko allergy a i ʻole nā ​​​​hoʻokolohua ʻili allergy e nānā i nā allergy ʻē aʻe. Eia naʻe, ʻaʻole hōʻike kēia mau hoʻokolohua he allergy ka mea me FPIES.

He aha nā lāʻau lapaʻau no FPIES?

Hiki i nā kauka ke hoʻohana i kēia mau mea e mālama ai i nā hōʻailona koʻikoʻi i hoʻokumu ʻia e FPIES:

• Nā Steroid: Hāʻawi ʻia kēia mau mea e hōʻemi i ka mumū (pehu ʻana) i loko o nā ʻōpū.
• Nā wai intravenous (nā wai IV): Hāʻawi ʻia nā mea e like me ka saline e pale aku i ka maloʻo ʻana o ka wai a i ʻole e mālama i ka maloʻo ʻana inā loaʻa.
• Nā lāʻau antiemetic: No ka laʻana, kōkua nā lāʻau lapaʻau e like me "Ondansetron (Zofran®)" i ka kaohi ʻana i ka luaʻi ʻana.

Hana ʻia kēia mau lāʻau a pau ma kahi haukapila, ma lalo o ka mākaʻikaʻi ʻana a ke kauka.

He aha ka mea e hana ai inā loaʻa iaʻu a i ʻole kaʻu pēpē nā FPIES?

ʻO ka nūhou maikaʻi, ʻo ka hapa nui o nā keiki liʻiliʻi e pau i ka FPIES i ka wā he 3 a 4 paha ko lākou mau makahiki. ʻO ke ʻano kēia, hiki iā lākou ke ʻai i nā meaʻai a lākou i maʻi ai ma mua ma hope. Eia nō naʻe, ʻoi aku ka maikaʻi o ke kamaʻilio ʻana me ke kauka a hana paha i kahi "hoʻāʻo hoʻokūkū meaʻai" ma mua o ka hoʻolauna hou ʻana i kēlā mau meaʻai.

A hiki i kēlā manawa, ʻo ka mea nui loa, ʻo ia ke ʻike pono i nā meaʻai e hoʻoulu ai i kēia a hoʻōki i ka hānai ʻana iā lākou. Hiki i ka luaʻi nui a me ka maʻi pākī ke lilo i mea weliweli loa, no laila e makaʻala pū kekahi no kēlā.

Inā loaʻa i nā pākeke nā FPIES, ʻo ke ala maikaʻi loa e hoʻokele ai, ʻo ia ka ʻike ʻana i nā meaʻai a lākou e maʻi ai a pale aku iā lākou. I kekahi manawa, hiki i nā pākeke ke ulu aʻe ma mua o nā FPIES i ka hala ʻana o ka manawa. Eia nō naʻe, i nā hihia he nui, ʻo nā FPIES e hoʻomaka ana i ka wā makua hiki ke mau i ke ola holoʻokoʻa.

Hiki ke pale ʻia nā FPIES?

Inā ʻike ʻoe he FPIES kou a i ʻole kāu keiki, ʻo ke ala maikaʻi loa e pale aku ai i nā hopena, ʻo ia ka pale loa ʻana i ka hāʻawi ʻana iā lākou i nā meaʻai a lākou e maʻi ai.

Hiki i ka mālama ʻana i kahi puke moʻolelo meaʻai ke kōkua nui i ka ʻike ʻana i nā meaʻai e hoʻoulu ai i ka pilikia. ʻO ia hoʻi ke kākau ʻana i nā mea a pau a kāu keiki e ʻai ai a me ka manawa hea. A laila, inā loaʻa nā hōʻailona, ​​​​hiki iā ʻoe ke nānā i kā lākou meaʻai ma mua o ko lākou hoʻomaka ʻana. I kekahi manawa, hiki i ke kauka ke ʻōlelo aku i kahi 'ʻai hoʻopau' (kahi ʻai e pili ana i ka hoʻāʻo ʻana i kekahi mau meaʻai) .

Inā loaʻa i kāu pēpē nā FPIES, hiki i kāu kauka ke ʻōlelo i kēia mau mea e kōkua ai i ka pale ʻana i kēia mau hopena ʻoiai e hāʻawi mau ana i kāu pēpē i ka meaʻai e pono ai lākou:

• Ke hoʻohana nei i nā waiū pēpē hypoallergenic . Ua hana kūikawā ʻia kēia mau mea i emi iki ka allergenic.
• I ka hoʻomaka ʻana e ʻai i nā meaʻai paʻa no kāu pēpē, e hoʻolauna mua i nā huaʻai a me nā mea kanu ma kahi o nā ʻano palaoa (e laʻa, ka laiki, ka ʻoka).
• Ma hope o ke alapiʻi hoʻolauna meaʻai FPIES . Hōʻike kēia i ke kaʻina a me ke ʻano e hoʻolauna ʻia ai nā meaʻai hou i kāu pēpē.

He aha kaʻu e hana ai ma ke ʻano he kanaka me FPIES?

Inā loaʻa iā ʻoe nā FPIES - a i ʻole ke kānalua nei ʻoe he loaʻa - pono ʻoe e mālama i kahi moʻolelo pono o kāu meaʻai a inu. E kōkua kēia iā ʻoe e ʻike i nā meaʻai e hoʻoulu ai i kāu hopena. Ke ʻike ʻoe i ke kumu, pono ʻoe e pale i kēlā mau meaʻai.

He aha nā manawa kūpono loa e ʻike ai i ke kauka?

Inā manaʻo ʻoe e loaʻa ana i kāu pēpē kahi hopena meaʻai, inā paha i ka waiū formula a i ʻole ka waiū bipi, e ʻike pono i ke kauka. ʻOiai kahi hopena liʻiliʻi hiki ke hoʻopilikia i ka hiki o kāu pēpē ke loaʻa i ka meaʻai e pono ai lākou. I nā hihia o nā hopena koʻikoʻi, pono ʻoe e ʻimi koke i ke kōkua lapaʻau.

I ka manawa hea e pono ai ʻoe e hele i kahi Emergency Treatment Unit (ETU) ?

Inā ʻike ʻoe a i ʻole kāu keiki i kekahi o nā hōʻailona ma lalo nei, e hele koke i ka lumi pilikia o ka haukapila:

• Ka huikau a i ʻole ka loli o ke kūlana noʻonoʻo.
• Ka mimi iki loa a ʻaʻole loa paha.
• Nā maka i piholo - he hōʻailona kēia o ka maloʻo.
• Ka pehu ʻana o ka maka, nā lehelehe a i ʻole ke alelo .
• Ka pilikia o ka hanu ʻana a i ʻole ke ale ʻana .

Hōʻike kēia mau hōʻailona ua koʻikoʻi ke kūlana.

Nā nīnau koʻikoʻi e nīnau aku i ke kauka

He mea kōkua ke nīnau i kēia mau nīnau ke kipa aku ʻoe i kāu kauka:

• He mea maʻi maʻi maʻamau kēia, a i ʻole FPIES?
• Pehea e ʻike ai i nā meaʻai e hoʻoulu ai i nā FPIES?
• Pehea e hiki ai iaʻu ke pale aku i kēia mau meaʻai e hoʻonāukiuki ai i ka maʻi ʻaleka me ka loaʻa ʻana o ka meaʻai kūpono e pono ai iaʻu/kaʻu keiki?
• He aha kaʻu e hana ai inā loaʻa iaʻu/kaʻu keiki kēia hopena?

E aʻo hou kākou e pili ana i nā FPIES?

• Makahiki o ka hoʻomaka ʻana o FPIES: Hoʻomaka pinepine nā FPIES i nā pēpē ma kahi o 4 mau mahina o ka makahiki , a i ʻole ke hoʻolauna mua ʻia ka meaʻai i pili i ka maʻi allergy. Inā ulu ka FPIES i nā pākeke, ʻike pinepine ʻia ma hope o 40 mau makahiki .
• Pehea ka maʻamau o nā FPIES i nā pākeke?: ʻOi aku ka liʻiliʻi o nā FPIES i nā pākeke ma mua o nā keiki ʻōpio. Ma kahi o hoʻokahi i loko o 450 mau pākeke (0.22%) he FPIES. ʻO ka meaʻai nui e hoʻoulu ai i nā FPIES i nā pākeke, ʻo ia ka pūpū .
• Hiki i nā pēpē hānai waiū wale nō ke loaʻa i nā FPIES?: He mea kākaʻikahi loa kēia, akā ʻae, hiki nō. I kekahi manawa, hiki i nā protein i loko o nā meaʻai a ka makuahine hānai waiū ke hele i kāna pēpē ma o ka waiū umauma a hoʻoulu i nā FPIES. Eia nō naʻe, ʻaʻole i pau ka noiʻi ʻana ma kēia.
• He maʻi autoimmune anei ʻo FPIES?: ʻAʻole, ʻaʻole ʻo FPIES he 'maʻi autoimmune.' ʻO nā maʻi Autoimmune ka wā e hoʻouka hewa ai kā mākou ʻōnaehana pale i kā mākou mau cell ponoʻī. ʻO FPIES kahi pane a ka ʻōnaehana pale i ka meaʻai e komo ana i loko o ke ala ʻai.

ʻO ka mea nui loa - ka leka lawe home

He kūlana kakaikahi ka FPIES, akā i kekahi manawa he maʻi koʻikoʻi e hiki ai ke paʻakikī i kāu keiki a i ʻole ʻoe ke loaʻa ka meaʻai e pono ai lākou. I kekahi manawa hiki iā ia ke hoʻohālike i nā maʻi ʻē aʻe, no laila pono kekahi mau hoʻāʻo a me nā hoʻokolohua e ʻike ai i nā meaʻai e hoʻoulu ai.

Mai hopohopo. Hiki i ke kauka ke kōkua iā ʻoe e noʻonoʻo i nā meaʻai e pale aku ai, a kamaʻilio pū me ʻoe e pili ana i nā ala e noho olakino ai a loaʻa i ka meaʻai āu e pono ai. Inā ʻike koke ʻoe a mālama pono iā ia, hiki iā ʻoe ke noho olakino me kēia maʻi. ʻO ka mea nui loa, ʻo ia ke ʻimi i ka ʻōlelo aʻoaʻo lapaʻau inā he mau hopohopo kāu.

ʻO FPIES, maʻi ʻaleka meaʻai, luaʻi pēpē, maʻi kahe pēpē, nā protein meaʻai, ka maʻi enterocolitis, ʻōnaehana pale