Ua loaʻa koke iā ʻoe kahi ʻūpā koko, a i ʻole he pilikia paha i ka wā hāpai a ua hana ke kauka i kahi hoʻāʻo koko? Ua hopohopo paha ʻoe i ka wā i ʻōlelo ai ka hōʻike 'Lupus Anticoagulant positive'? Ua makaʻu anei ʻoe i kou ʻike ʻana i ka huaʻōlelo 'lupus' a manaʻo he lupus kēia? He mea huikau iki kēia inoa. ʻO ia ke kumu i kuhihewa ai ka poʻe he nui e pili ana i ia mea. E hoʻomaopopo kākou i nā pilikia a pau e pili ana i kēia i kēia lā.
He aha ka Lupus Anticoagulant?
I ka ʻōlelo maʻalahi, he ʻano antibody kēia i hiki ke loaʻa i loko o ko kākou koko.
E noʻonoʻo i ka ʻōnaehana pale o ko kākou kino e like me ka pūʻali koa e pale ana i kahi ʻāina. Ke komo kahi huakino a mea ʻino paha i loko o ke kino mai waho mai, ʻike kēia pūʻali koa i kēlā ʻenemi a hoʻokumu i kahi hui o nā koa kūikawā, i kapa ʻia he antibodies, e luku iā ia. ʻO kēia ka mea maʻamau e hana ʻia.
Akā, i kekahi manawa hele hewa kā mākou ʻōnaehana pale. Ma kahi o ka hoʻouka ʻana i nā mea komo hewa mai nā ʻāina ʻē, hoʻomaka ia e hoʻouka i kā mākou mau hunaola olakino ponoʻī . Pēlā ka lupus anticoagulant (LA) he antibody i hana ʻia ma ka hewa a hōʻino i ko mākou kino ponoʻī.
Hiki i kēia antibody LA, me ʻelua mau antibody ʻē aʻe, ke hana i kahi maʻi i kapa ʻia ʻo Antiphospholipid Syndrome (APS) . He maʻi autoimmune kēia. ʻO ke ʻano nui o kēia, ʻoi aku ka kiʻekiʻe o ka pilikia o ke kūkulu ʻia ʻana o nā ʻōpū koko i loko o nā kīʻaha koko o ke kino ma mua o ke kanaka maʻamau.
No ke aha i kapa ʻia ai kēia he 'lupus'? ʻO ia ka maʻi like me ka lupus?
ʻO kēia kahi e huikau ai ka poʻe he nui a makaʻu. ʻOiai aia kahi ʻāpana 'lupus' i loko o ka inoa, ʻo ka lupus he ʻelua mau mea like ʻole: Lupus Anti-Coagulant (LA) a me ka maʻi Lupus. He moʻolelo hoihoi loa ia pehea i loaʻa ai kēia inoa.
Ua ʻike mua ʻia kēia antibody i nā makahiki he ʻumi i hala aku nei i ka wā i hoʻāʻo ai nā kānaka noiʻi i nā hāpana koko mai nā maʻi lupus. No laila ua manaʻo lākou he mea kūikawā ia no nā maʻi lupus.
Ua ʻike pū lākou ua lōʻihi ka manawa e hoʻopili ai nā hāpana koko i loaʻa kēia antibody ma mua o ka maʻamau. ʻO ke ʻano o 'Anticoagulant' ʻo ia hoʻi 'kāohi i ke kāpili ʻana o ke koko.' No laila, ua kapa lākou iā ia ʻo 'lupus anticoagulant', ʻo ia hoʻi 'kekahi mea i loko o ke kino o nā maʻi lupus e pale ai i ke kāpili ʻana o ke koko.'
Eia nō naʻe, ua ʻike ʻia ua hewa kēlā mau kuhi ʻelua ma hope. ʻO ka ʻoiaʻiʻo, ʻo ka ʻaoʻao ʻē aʻe ka ʻoiaʻiʻo. ʻO ka hana a kēia antibody i loko o ke kino, ʻo ia ka hoʻonui ʻana i ke kāpili ʻana o ke koko, ʻaʻole e pale aku!
No ka hoʻomaopopo ʻana i kēia huikau, e nānā i ka papa ma lalo.
| ʻoiaʻiʻo | Lāʻau hoʻōla anticoagulant Lupus (LA) | Maʻi Lupus (SLE) |
|---|---|---|
| ʻAno maoli | He ʻano antibody ʻino i loko o ke koko. | He maʻi autoimmune paʻakikī e hoʻopilikia ai i nā ʻōkana like ʻole o ke kino. |
| Ka hopena nui | Hoʻonui i ka pilikia o nā ʻōpū koko. | Hiki ke hoʻopilikia ʻia nā ʻōnaehana he nui, e like me ka ʻili, nā hono, nā puʻupaʻa, ka puʻuwai, a me ka lolo. |
| Pilina | ʻO ka loaʻa ʻana o LA ʻaʻole ia he manaʻo he lupus kou, akā aia paha i kekahi poʻe me ka lupus ka LA. | ʻO LA hoʻokahi wale nō mea i loaʻa i pili paha me ka lupus. |
No ke aha e hiki mai ai kēia ʻano mea i ko mākou kino?
ʻO kēia no ka mea hana hewa kā mākou ʻōnaehana pale. Hoʻouka kēia mau antibodies LA i nā protein i hoʻopili ʻia i kahi ʻano momona i kapa ʻia ʻo phospholipids ma ka ʻili waho o kā mākou mau cell. Hōʻino kēia hoʻouka i nā cell, e hoʻopili pū ana a hoʻonui i ka pilikia o nā ʻūpā koko.
ʻAʻole maopopo loa i nā loea ke kumu e hoʻomaka ai ka ʻōnaehana pale e hana i kēia mau antibodies hewa ma kahi mua. Manaʻo lākou he hiki ke kumu o nā kumu genetic, nā mana o ke kaiapuni, a i ʻole nā maʻi maʻi ʻē aʻe.
He aha ke ʻano o ka huaʻōlelo LA positive? Pehea e pili ai iaʻu?
ʻO ka loaʻa ʻana o LA i loko o kou koko, ʻo ia hoʻi, aia ʻoe i ka pilikia o ka loaʻa ʻana o kahi maʻi i kapa ʻia ʻo antiphospholipid syndrome (APS). Maanei, 'i ka pilikia'He mea nui loa ka huaʻōlelo "makemake". ʻAʻole ia manaʻo e hiki maoli nō ia.
ʻOiai aia ka antibody LA i loko o ke koko, nui ka poʻe e noho olakino ana i ko lākou ola a pau me ka ʻole o ka loaʻa ʻana o nā ʻūpā koko a i ʻole nā pilikia.
No laila, mai hopohopo nui ʻoe ke ʻike ʻoe i kēia ma kāu hōʻike. Eia nō naʻe, he mea nui i kāu kauka ke makaʻala i kēia a nānā iā ʻoe. ʻOiai ʻoi aku kou hiki ke loaʻa i nā ʻūpā koko ma mua o nā poʻe ʻē aʻe, he mea naʻauao ke makaʻala i ia mea.
He aha nā lāʻau lapaʻau no kēia?
ʻAʻohe lāʻau lapaʻau e hoʻopau loa i kēia antibody LA mai ke kino. Akā, aia nā lāʻau lapaʻau maikaʻi loa e kāohi i ka pōʻino hiki ke hana, ʻo ia hoʻi ke kūkulu ʻia ʻana o nā ʻōpū koko.
Inā ʻaʻohe ou hōʻailona, ʻo ia hoʻi, ʻaʻole ʻoe i loaʻa i kahi ʻūpā koko ma mua, hiki i kāu kauka ke hoʻoholo e nānā wale iā ʻoe me ka ʻole e hāʻawi iā ʻoe i kekahi lāʻau lapaʻau.
Eia nō naʻe, inā ua loaʻa iā ʻoe kahi ʻūpā koko ma mua a i ʻole ua ʻike ʻia ʻoe me APS, ʻo ka lāʻau nui ka anticoagulants a i ʻole nā mea hoʻokahe koko . Hāʻawi ʻia nā lāʻau lapaʻau e like me warfarin a me heparin e hōʻemi i ka pilikia o nā ʻūpā koko. I kekahi manawa, hāʻawi ʻia nā lāʻau lapaʻau e like me corticosteroids e hōʻemi i ka hana nui o ka ʻōnaehana pale.
Hoʻoholo ʻia kēia mau lāʻau lapaʻau a pau e kāu kauka, me ka noʻonoʻo ʻana i nā kumu he nui e like me kou kūlana, ka makahiki, a me nā maʻi ʻē aʻe.
Āhea wau e ʻike ai i ke kauka? He aha ka pilikia?
I ke ola ʻana me kēia kūlana, he mea nui loa ia e ʻike i ka ʻokoʻa ma waena o nā kūlana maʻamau a me nā pilikia.
| Manawa kūpono | He aha e hana ai |
|---|---|
| Nānā laulā | E hele i ke keʻena lapaʻau i ka manawa i hoʻonohonoho ʻia no nā nānā ʻana e like me ka ʻōlelo a ke kauka. E hana lākou i nā hoʻokolohua koko e ʻike ai inā pololei ka nui o ka lāʻau a inā he mau loli ʻē aʻe. |
| Pilikia (e hele koke i ka ETU) |
|
Nā hōʻailona hōʻailona o ke koko koko
- Wāwae (Deep Vein Thrombosis - DVT): Pehu koke, ʻulaʻula, mehana, a me ka ʻeha ma kekahi wāwae.
- ʻO ka Pulmonary Embolism: Pōkole koke o ka hanu, ʻeha nui o ka umauma (ʻoi aku hoʻi i ka wā e hanu ana), ʻū ʻana i ke koko.
- Hahau: kūlou ana o kekahi ʻaoʻao o ka maka, nalowale kekahi lima, paʻakikī ke ʻōlelo.
Inā ʻike ʻia kekahi o kēia mau hōʻailona, e hele koke i ka Emergency Treatment Unit (ETU) o ka haukapila .
Leka Lawe-Home
- ʻAʻole ʻo ka Lupus anticoagulant (LA) he lupus ponoʻī. He ʻano antibody wale nō ia i loko o ke koko.
- ʻO ka loaʻa ʻana o LA i loko o kou koko, ʻo ia hoʻi, ʻoi aku ka nui o kou pilikia o ka loaʻa ʻana o kahi ʻūpā koko. ʻAʻole ia manaʻo e hiki maoli nō ia.
- Mai hopohopo ma hope o ka ʻike ʻana i ka hōʻike. Akā e kamaʻilio pono me kāu kauka e pili ana i kēia a e hahai i kāna ʻōlelo aʻo.
- ʻO ka pahuhopu nui o ka mālama ʻana, ʻo ia ke pale ʻana i ke kūkulu ʻia ʻana o nā ʻūpē koko. Na kāu kauka e hoʻoholo i ke koho lapaʻau maikaʻi loa nāu.
- E makaʻala mau i nā hōʻailona hōʻailona o kahi ʻūpā koko (pehu ʻana i nā wāwae, ʻeha ka umauma, paʻakikī ka hanu ʻana). Inā ʻike ʻia kēlā ʻano hōʻailona, e hele koke i ka ETU.
- He mea maʻamau ka makaʻu a me ka hopohopo ke manaʻo ʻoe he mea hiki ʻole iā ʻoe ke ʻike i loko o kou kino ke hōʻeha iā ʻoe. Ma kahi o ka noho ʻana me ka makaʻu, e noho me ka ʻike a me ka noʻonoʻo pono. Hiki i kāu kauka ke kōkua iā ʻoe ma kēlā huakaʻi.
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