Ke ʻike nei paha ʻoe i ka pōkole o ka hanu, ka paʻa ʻana o ka umauma? A i ʻole ua haʻi aku kāu kauka iā ʻoe he kiʻekiʻe kou koko i loko o kou mau māmā (Pulmonary Arterial Hypertension - PAH) a ua kuhikuhi ʻo ia i kahi lāʻau i kapa ʻia ʻo Macitentan. No laila, i kēia lā e kamaʻilio kikoʻī mākou e pili ana i kēia lāʻau, pehea e hoʻohana ai, a me nā mea e makaʻala ai. E like me ke kamaʻilio ʻana me kahi hoaaloha, maʻalahi.
He aha ʻo Macitentan? No ke aha i hāʻawi ʻia ai?
I ka ʻōlelo maʻalahi, ʻo Macitentan kahi lāʻau lapaʻau i hoʻohana ʻia e kāohi i ke koko kiʻekiʻe i loko o kou mau māmā. Ua ʻike ʻia kēia ʻano ma ke ʻano lapaʻau ʻo Pulmonary Arterial Hypertension, a i ʻole PAH. E noʻonoʻo ua paʻa iki a ua ʻūlū ʻia nā kīʻaha koko i loko o kou mau māmā. A laila pono kou puʻuwai e hana ikaika e pamu i ke koko i kou mau māmā. ʻO ia ka manawa e piʻi ai ke kaomi i loko o kou mau māmā.
No laila, ʻo ka hana a kēia lāʻau lapaʻau i kapa ʻia ʻo 'Macitentan' , ʻo ia ka hoʻomaha iki ʻana i nā kīʻaha koko i loko o kou mau māmā. Hoʻohaʻahaʻa kēia i kou koko a hiki i kou puʻuwai ke pamu i ke koko me ka maʻalahi. ʻOi aku ka maʻalahi o kou hanu ʻana, a hāʻawi iā ʻoe i ka ikaika e holo a lele iki, a hana i kekahi hana.
Hiki iā ʻoe ke kūʻai i kēia lāʻau lapaʻau ma nā hale kūʻai lāʻau lapaʻau ma lalo o ka inoa inoa `(Opsumit)`. Hiki ke hoʻohana ʻia kēia lāʻau lapaʻau no nā kūlana olakino ʻē aʻe. Pono ʻoe e nīnau i kāu kauka a mea kūʻai lāʻau paha no ka ʻike hou aku.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻohana ʻana i kēia lāʻau lapaʻau
ʻAe, e nānā kākou i nā mea āu e pono ai e haʻi aku i kāu kauka ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau ʻo 'Macitentan'. He mea nui loa kēia, ʻo ia hoʻi he mea nui loa.
- He maʻi akepaʻa kou? A i ʻole ua loaʻa mua iā ʻoe?
- He haʻahaʻa anei kou pae o nā hunaola koko ʻulaʻula ? ʻO ia hoʻi, he anemia kou.
- Loaʻa iā ʻoe kahi hopena maʻi ʻaleka i kēia lāʻau lapaʻau, ʻo Macitentan, kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, kala, a mea hoʻomalu paha?
- Ke hāpai nei ʻoe i kēia manawa? A i ʻole ke manaʻolana nei ʻoe e hāpai? He mea nui loa kēia, a e kamaʻilio hou mākou e pili ana i kēia ma hope.
- He makuahine hānai waiū ʻoe?
He mea nui loa no kou palekana e wehewehe pono i kēia mau mea i kāu kauka.
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
I kēia manawa, e nānā kākou pehea e lawe ai i kēia lāʻau lapaʻau. Ua kākau ke kauka ma ka pepa lāʻau lapaʻau pehea e lawe ai. Pono ʻoe e hahai i kēlā kaʻina hana pololei.
- Pono e lawe ʻia kēia lāʻau lapaʻau ma ka waha.
- ʻOi aku ka maikaʻi o ka lawe ʻana i ka lāʻau i ka manawa like i kēlā me kēia lā. Ma kēia ʻano, e hana like ka lāʻau lapaʻau.
- Mai uhaʻi, kuʻi, a nau paha i ka papa.E ale i ka papa me kahi wai.
- Hiki iā ʻoe ke lawe i kēia ma mua a ma hope paha o ka ʻai ʻana. Eia nō naʻe, inā ʻeha iki kou ʻōpū, ʻoi aku ka maikaʻi o ka lawe ʻana me ka meaʻai.
- Pono ʻoe e hoʻomau i ka hoʻohana ʻana a hiki i ka wā e ʻōlelo ai kāu kauka iā ʻoe e "hoʻōki i kēia lāʻau lapaʻau i kēia manawa. " Mai hoʻōki koke.
- Ke loaʻa iā ʻoe kēia lāʻau lapaʻau mai ka hale kūʻai lāʻau lapaʻau, e hāʻawi ʻia iā ʻoe kahi pepa kuhikuhi kūikawā ``(MedGuide) .`` E heluhelu pono i kēlā pepa i kēlā me kēia manawa āu e loaʻa ai kahi lāʻau lapaʻau hou. Aia i loko ka ʻike koʻikoʻi.
E hoʻomanaʻo: Nou wale nō kēia lāʻau lapaʻau. Mai hāʻawi i kēia lāʻau lapaʻau i kahi hoaaloha a ʻohana paha, ʻoiai inā loaʻa iā lākou nā hōʻailona like me ʻoe. Hiki ke lilo i mea weliweli.
Pono anei e hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki liʻiliʻi?
Inā ʻoe e hāʻawi ana i kēia lāʻau lapaʻau i nā keiki ʻōpio, pono ʻoe e kamaʻilio me kāu kauka e pili ana i ia mea a e mālama pono.
He aha kāu e hana ai inā lawe nui ʻoe i ka lāʻau lapaʻau?
Inā hana kēlā, ʻo ia hoʻi ke manaʻo nei ʻoe ua lawe ʻoe i nā lāʻau lapaʻau ma mua o kou manaʻo, e hele koke i ka lumi pilikia haukapila kokoke loa, a i ʻole e kelepona i kahi kikowaena kaohi lāʻau make.
He aha kāu e hana ai inā e hala ʻoe i kahi manawa hoʻopaʻa lāʻau lapaʻau?
ʻĀ, hiki nō kēlā, ʻeā? Inā poina ʻoe i kahi lāʻau lapaʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau lapaʻau aʻe, e kāpae i ka lāʻau lapaʻau i poina a lawe i kāu lāʻau lapaʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua lāʻau lapaʻau i ka manawa hoʻokahi, ʻo ia hoʻi, mai lawe i kahi 'lāʻau lapaʻau pālua'.
He aha nā mea ʻē aʻe e hiki ke launa pū me kēia lāʻau lapaʻau?
Ke lawe ʻoe iā Macitentan, pono ʻoe e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe, nā mea kanu, nā huaora, a me nā mea hoʻohui meaʻai āu e lawe nei. Hiki i kekahi mau lāʻau lapaʻau ke launa pū me Macitentan. ʻO ke ʻano kēia e hiki iā lākou ke hoʻopilikia i ke ʻano o ka hana a Macitentan a hoʻonui paha i nā hopena ʻaoʻao.
Eia kekahi mau laʻana:
- ʻAmiodarone (he lāʻau lapaʻau no ka maʻi puʻuwai)
- ʻO kekahi mau lāʻau antiviral i hāʻawi ʻia no ka maʻi HIV a i ʻole Hepatitis (ka mumū o ke akepaʻa)
- ʻO kekahi mau lāʻau antifungal, no ka laʻana: `(Fluconazole)`, `(Ketoconazole)`, `(Itraconazole)`, `(Posaconazole)`
- `(Rifampin)` (he lāʻau lapaʻau i hoʻohana ʻia no ka mālama ʻana i ka maʻi puʻupuʻu)
ʻAʻole i piha kēia papa inoa. No laila, ʻoi aku ka palekana o ka haʻi ʻana i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe nei, ʻoiai nā lāʻau lapaʻau lāʻau. Eia kekahi, e haʻi i kāu kauka inā ʻoe e puhipaka, inu waiʻona, a hoʻohana paha i nā lāʻau lapaʻau ʻē aʻe i kū ʻole i ke kānāwai . Hiki i kēia mau mea ke hoʻopilikia i ke ʻano o ka hana ʻana o kēia lāʻau.
Nā mea kūikawā e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau
Aia kekahi mau mea e pono ai ʻoe e makaʻala hou aʻe i ka wā e hoʻohana ana iā Macitentan.
- E ʻike pinepine i kāu kauka. E nānā pinepine kāu kauka iā ʻoe e ʻike pehea kou kūlana a inā paha e hana ana ka lāʻau lapaʻau.
- NāuInā ʻaʻole e hoʻomaikaʻi kou mau ʻōuli, a inā paha e ʻoi aku ka ʻino, e haʻi koke aku i kāu kauka.
- Pono ʻoe e hana i kekahi hana koko i kou wā e lawe ana i kēia lāʻau. E hana i kēia mau hoʻokolohua e like me ka ʻōlelo a kāu kauka.
Ka nānā kūikawā i ka wā hāpai! He mea nui loa kēia!
He mea kēia e pono ai ʻoe e makaʻala loa. Inā ʻoe e hoʻohana i ka lāʻau lapaʻau ʻo `Macitentan` i ka wā hāpai, a no hoʻokahi mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻau, hiki i ka pēpē i loko o ka ʻōpū ke loaʻa nā kīnā hānau koʻikoʻi loa.
No laila, e hoʻomanaʻo i kēia mau mea:
- Ma mua o kou hoʻomaka ʻana e lawe i kēia lāʻau lapaʻau, pono ʻoe e lawe i kahi hoʻāʻo hāpai e hōʻoia ʻaʻole ʻoe hāpai (maikaʻi ʻole).
- Pono ʻoe e lawe i kahi hoʻāʻo hāpai i kēlā me kēia mahina āu e hoʻohana ai i ka pila, a no hoʻokahi mahina ma hope o kou hoʻōki ʻana i ka lawe ʻana i ka pila. He mea koi kēia hoʻāʻo ʻoiai inā ʻaʻole ʻoe e moe kolohe.
- Pono ʻoe e hoʻohana i ʻelua ʻano palekana hilinaʻi i ka wā e lawe ana i kēia lāʻau lapaʻau a no hoʻokahi mahina ma hope o ka hoʻōki ʻana. ʻAʻole lawa hoʻokahi ʻano hana. E kamaʻilio me kāu kauka e pili ana i kēia a hoʻoholo i nā ʻano hana kūpono iā ʻoe.
- E ʻoluʻolu, inā hāpai ʻoe i ka wā ʻino, a inā ʻaʻole hiki mai kou wā i ka manawa kūpono, a inā paha e hoʻōki ʻoe i ka hoʻohana ʻana i ka kaohi hānau, e kāhea koke aku i kāu kauka, me ka hoʻokaʻulua ʻole.
He mea koʻikoʻi loa kēia, no laila, mai lawe māmā i kēia ma kekahi ʻano.
No nā makuahine hānai waiū?
Inā he makuahine hānai ʻoe, pono ʻoe e kamaʻilio me kāu kauka ma mua o ka lawe ʻana iā Macitentan. Pono paha e hoʻololi i kāu hoʻolālā lapaʻau.
Ke hoʻopilikia nei paha ia i ka hānau keiki? (Kāne hānau ʻole)
Hiki i kēia lāʻau lapaʻau ke hoʻopilikia i ka momona i kekahi manawa, ʻo ia hoʻi, ka hiki ke loaʻa nā keiki (infertility). Inā he mau hopohopo kāu e pili ana i kēia, e kamaʻilio me kāu kauka e pili ana i ia mea.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki iā Macitentan ke hana i kekahi mau hopena ʻaoʻao. Eia naʻe, ʻaʻole loaʻa i nā kānaka a pau. ʻAʻole koʻikoʻi kekahi, akā ua lawa ka koʻikoʻi o kekahi e pono ai ke kōkua koke ʻia e ke kauka.
Nā hopena ʻaoʻao e pono ʻoe e haʻi koke aku i kāu kauka:
- Nā hopena alerika: Inā ʻike ʻoe i nā hōʻailona e like me ka ʻulaʻula o ka ʻili, ka hives, ka maneʻo nui, ka pehu ʻana o ka maka, nā lehelehe, ke alelo, a i ʻole ka ʻāʻī, he pilikia paha kēia.
- ʻEha o ke akepaʻa: Inā loaʻa iā ʻoe ka ʻeha ma kou ʻōpū ʻākau o luna, nalowale ka makemake, nausea, luaʻi, nā ʻōpala māmā (e like me ke keʻokeʻo), mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o nā keʻokeʻo o kou mau maka a i ʻole ka ʻili (e like me ka jaundice), a me ka luhi loa.
- Haʻahaʻa ka pae o nā hunaola koko ʻulaʻula: Inā manaʻo ʻoe ua luhi loa, inā luhi mau ʻoe, inā manaʻo ʻoe ua poniuniu, inā he pinepine kou ʻeha poʻo, inā paʻakikī iā ʻoe ke hanu.
Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, e ʻike koke i ke kauka.
Nā hopena ʻaoʻao ʻaʻole pono ka nānā nui ʻana, akā pono e hōʻike i ke kauka inā hoʻomau lākou:
ʻAʻole koʻikoʻi kēia mau hopena ʻaoʻao a hiki ke emi iho i loko o kekahi mau lā. Eia nō naʻe, inā hoʻomau lākou a hoʻopilikia paha iā ʻoe, e haʻi i kāu kauka.
- ʻEha poʻo
- Ihu wai a i ʻole ka ihu paʻa
- ʻEha ka ʻāʻī, ʻeha ka ʻāʻī `(ʻEha ka ʻāʻī)`
- Ka pehu ʻana o nā kuʻekuʻe wāwae, nā lima, a i ʻole nā wāwae
Inā ʻike ʻoe i kahi mea ʻē aʻe ʻaʻole ma kēia papa inoa, mai makaʻu e haʻi aku i kāu kauka e pili ana i ia mea.
Pehea ʻoe e mālama ai i ka lāʻau lapaʻau? Pehea ʻoe e hoʻolei aku ai i ka wā e ʻelemakule ai?
He mea nui loa ka mālama pono ʻana i ka lāʻau lapaʻau a me ka hoʻolei pono ʻana i ka lāʻau lapaʻau i hoʻohana ʻole ʻia.
- E mālama mau i nā lāʻau lapaʻau ma kahi kiʻekiʻe loa mai ka hiki ʻana aku o nā keiki a me nā holoholona.
- E mālama ma ka mahana o ka lumi (ma waena o 20 a me 25 kekelē Celsius / 68 a me 77 kekelē Fahrenheit). Mai hoʻokuʻu i ka wela nui, ke anu nui, a i ʻole ka makū.
- Mai hoʻohana i nā lāʻau lapaʻau ma hope o ka lā palena pau i paʻi ʻia ma ka ʻeke lāʻau. Pono e hoʻolei ʻia.
ʻO ke ala kūpono e hoʻolei aku ai i nā lāʻau lapaʻau i hoʻohana ʻole ʻia:
- ʻO ka mea maikaʻi loa e hana ai, ʻo ia ke hele i kahi papahana lawe-hoʻihoʻi lāʻau lapaʻau, inā loaʻa. Hiki iā ʻoe ke nīnau i kāu hale kūʻai lāʻau lapaʻau a i ʻole nā keʻena hoʻokō kānāwai, e like me nā mākaʻi, e pili ana i kēia.
- Inā ʻaʻohe ala e hoʻihoʻi ai, e nānā i ka lepili ma ka ʻeke lāʻau a i ʻole ka pepa kuhikuhi i loko e ʻike ai inā pono e hoʻolei ʻia ka lāʻau i loko o ka ʻōpala a hoʻolei ʻia paha i loko o ka lua. Inā kānalua ʻoe, e nīnau i kāu kauka a kauka lāʻau paha.
- Inā he lāʻau lapaʻau ia e hiki ke hoʻolei ʻia i loko o ka ʻōpala, eia ke ʻano e hana ai:
- ʻO ka mea mua, e wehe i ka lāʻau lapaʻau mai loko mai o kāna ʻōmole a i ʻole ka ʻeke.
- A laila e kāwili maikaʻi i ka lāʻau lapaʻau me kahi mea ʻaʻole e ʻai ʻia e kekahi, e like me ka ʻōpala pōpoki, ka lepo kofe kahiko, a i ʻole ka lepo.
- I kēia manawa, e kau i kēia hui ʻana i loko o kahi ʻeke plastik paʻa a i ʻole kahi pahu me kahi poʻi paʻa.
- ʻO ka hope loa, e hoʻolei i kēia i loko o ka ʻōpala.
Ma ka hana ʻana i kēia, hiki iā ʻoe ke pale i ka lāʻau lapaʻau mai ka hāʻule ʻana i nā lima hewa.
ʻO ka mea hope loa, pono ʻoe e ʻōlelo ...
He hōʻuluʻulu manaʻo wale nō kēia o nā mea a mākou i kūkākūkā ai e pili ana i ka lāʻau lapaʻau ʻo 'Macitentan'. ʻAʻole i loko o ia nā kikoʻī āpau.Inā he mau nīnau a hopohopo paha kāu e pili ana i kēia lāʻau lapaʻau, e ʻoluʻolu e nīnau i kāu kauka, kauka lāʻau, a i ʻole kekahi mea mālama ola kino ʻē aʻe.
Mai hopohopo, e kōkua kēia lāʻau lapaʻau iā ʻoe e hoʻomaikaʻi i kou kūlana. Eia naʻe, ʻo ka mea nui loa, ʻo ia ka hahai pono ʻana i nā kuhikuhi a me ke akahele. Makemake au iā ʻoe e ho'ōla koke!
ʻO Macitentan, Opsumit, Ke koko kiʻekiʻe o ke aʻalolo pulmonary, Ke koko kiʻekiʻe o ka pulmonary, Paʻakikī hanu, Maʻi puʻuwai, Nā hopena ʻaoʻao o ka lāʻau lapaʻau
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