Ke nāwaliwali mālie nei kou mau lima a me kou mau wāwae? E aʻo kākou e pili ana i kēia maʻi aʻalolo laha ʻole (Multifocal Motor Neuropathy)

Ua manaʻo paha ʻoe e nalowale mālie ana kou mau lima a me kou mau manamana lima? Malia paha ua lilo nā hana maʻalahi e like me ka paʻa ʻana i ke kīʻaha a i ʻole ke pihi ʻana i kahi pihi i mea paʻakikī? Ke ʻike nei hoʻi ʻoe i ka ʻūlū ʻana o nā ʻiʻo a me ka ʻūlū ʻana? ʻAʻole kēia he mau mea maʻamau wale nō, hiki ke lilo i mau hōʻailona o kahi maʻi aʻalolo kūikawā i kapa ʻia ʻo 'multifocal motor neuropathy ' a mākou e kamaʻilio ai i kēia lā. Mai hopohopo, e kamaʻilio mākou e pili ana i nā mea āpau ma nā ʻōlelo maʻalahi.

He aha ka multifocal motor neuropathy (MMN)?

I ka ʻōlelo maʻalahi, he ʻano laha ʻole ka Multifocal Motor Neuropathy (MMN). Hana ʻia ia i ka wā e hōʻino ʻia ai nā aʻalolo e hoʻomalu ana i ka hana ʻiʻo i loko o ko mākou kino (nā aʻalolo motor). ʻO kēia ke kumu e nāwaliwali mālie ai nā ʻiʻo i ka hala ʻana o ka manawa. Hoʻopilikia nui kēia nāwaliwali i nā lima, nā manamana lima, a me nā wāwae.

E noʻonoʻo i kēia ʻano: ua like nā ʻiʻo o ko kākou kino me nā mea uila. ʻO nā aʻalolo nā uea e hoʻolako ana i ka uila iā lākou. I loko o MMN, hoʻouka kā kākou ʻōnaehana pale ponoʻī i kēia mau 'uea'. A laila, ʻaʻole loaʻa i nā ʻiʻo nā hōʻailona uila e pono ai lākou, no laila e nāwaliwali mālie lākou.

ʻIke pinepine ʻia kēia maʻi i nā kānaka ma waena o 40 a me 50 mau makahiki. Eia nō naʻe, hiki iā ia ke ulu i loko o kekahi ma waena o 20 a me 80 mau makahiki. ʻOi aku ka maʻamau o ke ʻano i nā kāne ma mua o nā wahine.

He aha ke kumu maoli o MMN?

ʻAʻole i loaʻa ke kumu kikoʻī o kēia. Akā, ua ʻike mākou ʻaʻole kēia he mea i hoʻoilina ʻia. ʻO ia hoʻi , ʻaʻole ia he maʻi hoʻoilina .

Ua kapa ʻia kēia he maʻi autoimmune . ʻO ke ʻano kēia, ʻo ka ʻōnaehana pale , ka mea i manaʻo ʻia e pale i ko mākou kino, e hoʻomaka hewa ana e hoʻouka i kā mākou mau hunaola nerve olakino me he mea lā he ʻenemi lākou. Ke hoʻāʻo nei nā kānaka noiʻi e noʻonoʻo i ke kumu o kēia hana.

He aha nā hōʻailona o kēia maʻi?

Hiki paha iā ʻoe ke hoʻomaka mua e ʻike i nā hōʻailona ma kou mau lima a me nā manamana lima.

• Nāwaliwali o nā ʻiʻo: E emi ana ka ikaika, ʻoiai ma nā manamana lima a me nā pulima lima. Hiki ke paʻakikī nā mea e like me ke kikokiko ʻana, ke kākau ʻana me ka peni, a me ke pihi ʻana i kahi pālule.
• ʻO ka ʻōwili ʻana a me ka huki ʻana o nā ʻiʻo (Tw(Manu a me nā ʻūmiʻi): E ʻike paha ʻoe i ka ʻūmiʻi a me ka ʻūmiʻi o nā ʻiʻo i hiki ʻole ke kāohi.
• Kaumaha ma kekahi ʻaoʻao: ʻIke pinepine ʻia kēia mau hōʻailona ma kekahi ʻaoʻao o ke kino (e laʻa, ka lima ʻākau).
• I ka hala ʻana o ka manawa, hiki i kēia nāwaliwali ke hoʻopilikia i nā wāwae.

Pehea e ʻike pono ai i kēia maʻi?

Ua like loa nā hōʻailona o kēia maʻi me ko ALS (Amyotrophic Lateral Sclerosis) , kahi maʻi neurological koʻikoʻi a hiki ʻole ke hoʻōla ʻia. No laila, huikau nā kauka i kekahi manawa i nā maʻi ʻelua. Eia nō naʻe, ʻoiai he ʻano hiki ke mālama ʻia a hiki ke kāohi ʻia ʻo MMN , he mea nui loa ia e ʻike pololei i ka maʻi .

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​​​pono ʻoe e ʻike i kahi neurologist. E nānā ʻo ia iā ʻoe a nīnau iā ʻoe i kekahi mau nīnau e pili ana i kāu mau hōʻailona. A laila, e kauoha lākou i kekahi mau hoʻokolohua e kāpae i nā kūlana ʻē aʻe a hōʻoia i ka MMN.

Pehea e mālama ʻia ai?

Inā ʻaʻole nui kou mau hōʻailona, ​​ʻaʻole paha ʻoe e pono i ka lāʻau lapaʻau. Eia nō naʻe, inā koʻikoʻi kou nāwaliwali, e kuhikuhi paha kāu kauka i kahi lāʻau lapaʻau mua.

ʻO ka lāʻau lapaʻau nui: IVIG

ʻO ka lāʻau lapaʻau nui a maikaʻi loa no kēia, ʻo ia ka Intravenous Immunoglobulin (IVIG) . He lāʻau lapaʻau kēia i hāʻawi ʻia ma o ka intravenous. Hana ia ma ka kaohi ʻana i ka hana o nā antibodies ʻino a me ka hoʻōki ʻana i ka hōʻino ʻana i nā aʻalolo.

• E ʻike ʻoe i ka hoʻi ʻana mai o kou ikaika ʻiʻo i loko o 3-6 mau pule ma hope o ka loaʻa ʻana o ka lāʻau IVIG.
• Ma muli o ka emi ʻana o nā hopena o kēia lāʻau i ka hala ʻana o ka manawa, pono nā lāʻau hou, ma kahi o hoʻokahi manawa i ka mahina.
• ʻEmi ka nui o nā hopena ʻino o ka IVIG, akā he lāʻau pipiʻi loa ia.

Nā lāʻau lapaʻau ʻē aʻe

Inā ʻaʻole holomua ka lāʻau IVIG a i ʻole ʻaʻole hiki ke hāʻawi ʻia, e noʻonoʻo paha nā kauka i nā lāʻau ʻē aʻe e like me Cyclophosphamide , akā he nui aku nā hopena ʻaoʻao.

Ma waho aʻe o kēia mau mea, hiki i ka hoʻōla kino , ka hoʻoikaika kino, a me ka hoʻōla wela ke kōkua i ka mālama ʻana i ka ikaika a me ka hana o nā ʻiʻo. E kamaʻilio me kāu kauka e pili ana i kēia a koho i ka mea kūpono.

He aha kaʻu e hana ai i koʻu noho ʻana me MMN?

ʻAʻole ʻo MMN ke kumu e hoʻōki ai i kou ola. Me ka hoʻokele kūpono, hiki iā ʻoe ke ola i kahi ola maikaʻi.

• Ola kino: Hiki ke loaʻa ke kaumaha me kekahi maʻi mau. No laila e hoʻokele i kou kaumaha a e ʻimi i ke kōkua o kahi loea olakino noʻonoʻo inā pono.
• He nohona olakino: E ʻai i ka meaʻai kaulike a e hiamoe pono.
• Hoʻoikaika Kino: E noi i kāu kauka a mea hoʻoponopono kino paha no nā hoʻoikaika kino mālie e kūpono iā ʻoe.
• E noi i ke kōkua: Inā pilikia ʻoe i nā hana o kēlā me kēia lā, mai kānalua e noi i ke kōkua.
• Nā Pūʻulu Kākoʻo: ʻO ke kamaʻilio ʻana a me ka kaʻana like ʻana i nā ʻike me nā poʻe e ʻike nei i nā kūlana like hiki ke lilo i kumu ikaika nui nou.

ʻAʻole e hoʻopōkole kēia maʻi i kou ola. Inā ʻike mua ʻia ka maʻi a mālama pono ʻia,Hiki iā ʻoe ke hana ikaika, hana, a ola i kahi ola maʻamau no nā makahiki.