Ke kaua nei kou kino i kou mau ʻiʻo ponoʻī? E aʻo pono kākou e pili ana i ka myositis!

Ke manaʻo nei ʻoe i kekahi manawa ua mae kou mau lālā, a ua luhi paha ʻoe a ʻaʻole hiki iā ʻoe ke hana i kekahi mea? A i ʻole ua ʻeha a pehu paha kou mau ʻiʻo? ʻAʻole paha ʻoe e nānā nui i kēia mau mea. Eia naʻe, hiki paha kēia mau mea ʻoi aku ma mua o ka luhi wale nō. I kēia lā e kamaʻilio mākou e pili ana i kahi kūlana kahi e hoʻouka ai ka ʻōnaehana pale o kou kino i kou mau ʻiʻo ponoʻī, he mea paʻakikī iki ia, akā he mea nui loa ia e ʻike. ʻO ia ka myositis .

He aha ka myositis? E hoʻomaopopo maʻalahi kākou!

I ka ʻōlelo maʻalahi, ʻo ka myositis ka wā e hoʻouka hewa ai kāu ʻōnaehana pale - ka ʻōnaehana pale o ke kino - i kou mau ʻiʻo ponoʻī. Ua like ia me ka hoʻouka ʻana i kou home ponoʻī. Hoʻoulu kēia i ka mumū mau loa i loko o kou mau ʻiʻo. Hōʻike ʻia ka mumū e ka pehu, ka ʻulaʻula, a me ka ʻeha. Ke hoʻomau nei kēia mumū, nāwaliwali mālie kou mau ʻiʻo. I kekahi manawa hiki i kēia ke alakaʻi i ka ʻeha nui o nā ʻiʻo.

ʻO ka Myositis kahi maʻi e pili ana i kahi hui nui o nā maʻi i kapa ʻia ʻo myopathy . ʻO ka Myopathy kahi huaʻōlelo laulā no kekahi maʻi e hoʻopilikia i nā ʻiʻo e pili ana i ko mākou mau iwi a hoʻoneʻe iā mākou (i kapa ʻia hoʻi he mau ʻiʻo iwi ). No laila, i ka myositis, ʻo ia nā ʻiʻo i hoʻopilikia nui ʻia.

He aha nā ʻiʻo i hoʻopilikia ʻia e ka myositis?

Aia nā ʻano like ʻole o ka myositis, a hiki i kēlā me kēia ʻano ke hoʻopilikia i nā hui ʻiʻo like ʻole o ke kino. Akā ʻo nā mea maʻamau e hoʻopilikia i nā ʻiʻo a mākou e hoʻohana ai no nā hana o kēlā me kēia lā. E noʻonoʻo:

• Nā ʻiʻo i loko o kou mau lima a me kou mau poʻohiwi .
• Nā ʻiʻo i loko o kou mau wāwae a me kou mau pūhaka .
• Nā ʻiʻo i loko o kou ʻōpū a me ke kua (ʻo ia hoʻi, kou kino).

ʻO kēia ka poʻe i hoʻopilikia nui ʻia. Eia nō naʻe, hiki i kekahi poʻe ke loaʻa i ka nāwaliwali o nā ʻiʻo ma nā wahi ʻē aʻe. Eia kekahi laʻana:

• Nā ʻiʻo a puni nā maka .
• ʻO nā ʻiʻo a puni ko kākou esophagus (ʻo kēia nā mea e kōkua iā kākou e ale i ka meaʻai).
• ʻO ko kākou diaphragm ka ʻiʻo nui e kōkua iā kākou e hanu.

ʻAʻole maopopo i nā kauka ke kumu o ka myositis. ʻAʻohe lāʻau lapaʻau no ia mea . Akā, mai hopohopo! E hāʻawi kāu kauka iā ʻoe i ka lāʻau lapaʻau e kōkua i ka hoʻokele ʻana i kāu mau hōʻailona. E paipai pū lākou i nā hoʻoikaika kino a me nā hoʻolōʻihi e kōkua i ka hoʻoikaika a me ka hoʻolōʻihi ʻana i nā ʻiʻo i hoʻopilikia ʻia ʻoiai he akahai kāu mau hōʻailona.

Mea nui:Inā ʻoe e manaʻo koke i ka nāwaliwali, paʻakikī i ka hele wāwae a i ʻole ka hoʻoneʻe ʻana i kou mau lālā, a i ʻole e loaʻa nā ʻulaʻula ʻili hou a ʻeha paha , e ʻike koke i ke kauka . Inā paʻakikī iā ʻoe ka hanu ʻana a i ʻole ke ale ʻana, e hele koke i ka lumi pilikia o ka haukapila . ʻAʻole kēia he mau hōʻailona maikaʻi e pāʻani ai.

Aia kekahi mau ʻano myositis? E aʻo pū kākou e pili ana i kēlā!

ʻAe, aia kekahi mau ʻano nui o ka myositis. E haʻi pololei kāu kauka iā ʻoe i ke ʻano o ka myositis āu e loaʻa nei ma muli o kāu mau hōʻailona a me kahi o nā ʻiʻo i hoʻopilikia ʻia. ʻEkolu mau ʻano nui:

• ʻO ka polymyositis
• ʻO ka maʻi ʻili
• ʻO ka myositis kino hoʻokomo

E nānā kākou i kēlā me kēia me nā kikoʻī hou aku.

E aʻo kākou e pili ana i ka Polymyositis

Ke ʻōlelo mākou he polymyositis , ʻo ka huaʻōlelo "poly" ʻo ia hoʻi he "nui." ʻO ke ʻano o kēia, ua hoʻopilikia ʻia kekahi mau ʻiʻo i ka manawa like. ʻO ka hapa pinepine, hoʻopilikia ia i nā ʻiʻo e kokoke ana i ke kikowaena o kou kino. E noʻonoʻo i nā poʻohiwi a me nā ʻūhā.

ʻAʻole hiki koke mai kēia ʻano i kapa ʻia ʻo polymyositis. Hōʻike mālie ʻia nā hōʻailona, ​​​​i ka hala ʻana o ka manawa . ʻO ia ka mea maʻamau i nā pākeke. Ua ʻike ʻia hoʻi he ʻelua ka nui o ka loaʻa ʻana o nā wahine i kēia ʻano ma mua o nā kāne.

Inā loaʻa iā ʻoe ka polymyositis, hiki iā ʻoe ke paʻakikī i ka hana ʻana i nā hana maʻalahi o kēlā me kēia lā. Eia kekahi laʻana:

• Ka paʻakikī ke ala aʻe mai ka noho ʻana.
• Ka paʻakikī o ka piʻi ʻana i nā alapiʻi.
• Ka paʻakikī i ka hāpai ʻana i nā mea kaumaha.
• He mea paʻakikī ke piʻi aʻe a hāpai i kahi mea.

He aha ka Dermatomyositis?

ʻO ka ʻāpana "derma" o ka inoa dermatomyositis ( ʻo derma ke ʻano o ka ʻili) ua haʻi paha iā ʻoe e pili ana ia i ka ʻili. ʻAe, hoʻopilikia kēia ʻano myositis i kou ʻili a me kou mau ʻiʻo.

No kekahi poʻe, hiki ke hala nā mahina e ulu ai, akā i kekahi manawa hiki i ka dermatomyositis ke ulu koke, a i ʻole wikiwiki. ʻO ka mea nui loa, ʻo ia ka hoʻomaka ʻana i ka lāʻau i ka wā hikiwawe loa . ʻO ia ka manawa e loaʻa ai iā ʻoe kahi manawa kūpono e pale aku ai i nā pilikia koʻikoʻi.

ʻOiai he mea kakaikahi loa, hiki i ka dermatomyositis ke hoʻoweliweli i ke ola , ʻoiai i loko o ka makahiki mua ma hope o ka hoʻomaka ʻana o nā hōʻailona. Ua ʻōlelo ʻia hoʻi he piʻi iki ka pilikia o ka poʻe me ke ʻano o ka loaʻa ʻana o kekahi mau ʻano maʻi kanesa.

Hiki i ka Dermatomyositis ke hoʻopilikia i kekahi. Ke hoʻopilikia ia i nā keiki ʻōpio, ua kapa ʻia ʻo ia he juvenile dermatomyositis .

He aha inā loaʻa iaʻu ka inclusion body myositis?

ʻO ka inclusion body myositis (IBM) kahi maʻi ʻiʻo degenerative e kū ana i nā poʻe ma luna o 50 mau makahiki .

Hoʻopilikia nui ka IBM i nā ʻiʻo i kou mau lālā, ʻoiai kou mau lima a me nā wāwae ma lalo o nā kuli . Hiki iā ia ke hoʻopilikia i nā ʻiʻo i kou puʻu e kōkua iā ʻoe e ale. Ma kahi o 30% o ka poʻe me IBM e ʻike i ka dysphagia , ʻo ia hoʻi ka paʻakikī i ka ale ʻana.

Inā loaʻa iā ʻoe ka myositis kino hoʻokomo (IBM), he mea paʻakikī paha ke hana i nā mea e like me:

• He paʻakikī ke hana i nā hana koʻikoʻi e like me ke pihi ʻana i kahi pālule me kou mau manamana lima.
• He mea paʻakikī ke paʻa i kahi mea liʻiliʻi.
• Ka paʻakikī i ka hele ʻana a i ʻole ke kū pololei ʻana.
• Ka paʻakikī i ka ale ʻana i ka meaʻai.

He aha nā hōʻailona maʻamau o ka myositis?

ʻOiai ke ʻokoʻa iki nā hōʻailona o ka myositis ma muli o ke ʻano, aia kekahi mau hōʻailona maʻamau:

• Nāwaliwali o nā ʻiʻo: ʻO kēia ka hōʻailona nui. Hiki iā ʻoe ke hiki ʻole ke hāpai i kahi lima a i ʻole ka wāwae, a i ʻole e paʻakikī ke ala aʻe mai kahi noho.
• ʻEha hui a ʻeha paha nā ʻiʻo: ʻEha nā ʻiʻo o ke kino, i kekahi manawa me nā hui.
• Luhi: Manaʻo nui i ka luhi ʻaʻole hiki iā ʻoe ke hana i kekahi mea.
• Pehu: Hiki i nā ʻiʻo i hoʻopilikia ʻia ke pehu.
• Paʻakikī i ka hanu ʻana a i ʻole ke ale ʻana: He hōʻailona koʻikoʻi kēia. Hiki ke hana kēia inā pilikia nā ʻiʻo o ka puʻu a i ʻole ka diaphragm.
• Nā hewa o ka puʻuwai (Arrhythmia): Inā pili ka myositis i ka ʻiʻo o ka puʻuwai, hiki ke loli ke ʻano o ka puʻuwai.

ʻAʻole mau loa kēia mau hōʻailona. Hiki ke ʻoi aku ka ʻino i kekahi manawa a ʻoi aku ka maikaʻi i nā manawa ʻē aʻe. Ke koʻikoʻi nā hōʻailona, ​​​​hiki iā ʻoe ke paʻakikī i ka hana ʻana i nā hana o kēlā me kēia lā, luhi koke, a manaʻo ʻoe ʻaʻohe ou mana ma luna o kou mau lālā. E wehewehe kāu kauka i nā hōʻailona āu e manaʻo ai.

No ke aha e kū mai ai ka myositis? He aha nā kumu?

ʻO ka ʻoiaʻiʻo, ʻaʻole hiki i nā kauka ke ʻōlelo maopopo i ke kumu o ka myositis . I kekahi manawa hiki ke hana wale ʻia me ke kumu ʻole. Akā i kekahi manawa hiki ke hoʻoulu ʻia e nā pilikia olakino ʻē aʻe.

E like me ka mea i ʻōlelo ʻia ma mua, ʻo ka myositis kahi maʻi autoimmune.ʻO ke ʻano kēia, ma kahi o ka pale ʻana iā ʻoe, hoʻouka ka ʻōnaehana pale o kou kino i nā ʻāpana o kou kino ponoʻī. ʻAʻole maopopo i ke kumu e pupule ai kēia ʻōnaehana pale e like me kēia. Eia nō naʻe, ʻoi aku ka nui o ka loaʻa ʻana o ka myositis i kekahi poʻe me nā maʻi autoimmune ʻē aʻe. Eia kekahi laʻana:

• Lupus
• ʻO ka ʻāʻī rheumatoid
• ʻO ka ʻeha koko

ʻO ka poʻe me kēia mau maʻi e piʻi aʻe ka pilikia o ka hoʻomohala ʻana i ka myositis.

Eia kekahi, ua loaʻa i kekahi poʻe ka myositis ma hope o kekahi mau maʻi viral . Nā laʻana:

• ʻO ke anu maʻamau
• Ka maʻi palū (ka maʻi palū)
• HIV

Hiki i kēia mau mea ke hoʻonui i ka myositis.

Pehea ʻoe e ʻike pono ai inā he myositis kou? (Diagnosis)

I mea e ʻike pono ai inā he myositis kou, e nānā ke kauka iā ʻoe a, inā pono, e hana i kekahi mau hoʻokolohua. ʻO ka mea mua, e hoʻolohe pono ke kauka i kāu mau hōʻailona a nānā i kou manaʻo ke hana ʻoe i kekahi mau neʻe ʻana. A laila, hiki iā lākou ke hana i kekahi mau hoʻokolohua, e like me:

• Nā hoʻāʻo koko: Hiki i kēia ke nānā i kekahi mau enzymes i hoʻokuʻu ʻia i loko o ke koko ke hōʻino ʻia nā ʻiʻo, a me kekahi mau antibodies i ʻike ʻia i nā maʻi autoimmune.
• ʻO ke kiʻi MRI (Magnetic Resonance Imaging): Hiki i kēia ke ʻike maopopo inā he mumū i loko o kou mau ʻiʻo a me kona wahi.
• Hoʻāʻo EMG (Electromyography): Hoʻāʻo kēia i ka hana uila o kou mau ʻiʻo. Kōkua kēia i ka hoʻoholo ʻana inā paha ua hana ʻia ka nāwaliwali o nā ʻiʻo e kahi pilikia me nā ʻiʻo ponoʻī a i ʻole kahi pilikia me nā aʻalolo.
• Biopsy ʻiʻo: Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻiʻo i hoʻopilikia ʻia a nānā iā ia ma lalo o kahi microscope. Hiki i kēia ke nānā i nā loli i ʻike ʻia i ka myositis.

Ma hope o ka hana ʻana i kēia mau hoʻokolohua āpau hiki i ke kauka ke hoʻoholo pono inā he myositis kou, a inā pēlā, he aha ke ʻano.

He aha nā lāʻau lapaʻau no ka myositis?

E like me kā mākou i ʻōlelo ai ma mua, ʻaʻohe lāʻau lapaʻau no ka myositis i kēia manawa . Akā, mai hopohopo. E hāʻawi kāu kauka i ka lāʻau lapaʻau e kāohi i kāu mau hōʻailona a hōʻemi i ka hopena i kou ola o kēlā me kēia lā. ʻO ka pahuhopu nui o kāu kauka, ʻo ia ke kāohi i kāu mau hōʻailona a hoʻihoʻi i kāu myositis i ke kala ʻana . ʻO ka kala ʻana he manawa ia i emi nui ai ka mumū i loko o kou mau ʻiʻo a aneane ʻaʻohe ou hōʻailona.

Eia kekahi mau lāʻau lapaʻau maʻamau no ka myositis:

• Nā Corticosteroids:He mau lāʻau lapaʻau kēia e like me Prednisolone. Hana lākou ma ka hoʻēmi ʻana i ka hana o ka ʻōnaehana pale a me ka kaohi ʻana i ka mumū.
• Nā lāʻau pale kino: No kēia māhele nā ​​lāʻau lapaʻau e like me Methotrexate lāua ʻo Azathioprine. Kōkua pū kēia i ka hōʻemi ʻana i ka hana nui o ka ʻōnaehana pale kino.
• Intravenous Immunoglobulin (IVIG): He lāʻau lapaʻau kēia i hāʻawi ʻia i loko o kahi aa. He hopena ia e loaʻa ana nā antibodies mai nā mea hāʻawi olakino. Kōkua kēia i ka hoʻololi ʻana i nā hana o ka ʻōnaehana pale e hoʻouka hewa ana.

Ma waho aʻe o kēia mau lāʻau lapaʻau, e aʻo aku kāu kauka a mea hoʻoponopono kino paha iā ʻoe i nā hoʻolōʻihi a me nā hoʻomaʻamaʻa kikoʻī . E kōkua kēia i ka mālama ʻana i kou mau ʻiʻo i hoʻopilikia ʻia i ka palupalu a me ka ikaika. E kōkua kēia i ka hōʻemi ʻana i ka ʻeha, ka ʻoʻoleʻa, a me ka pale ʻana i nā hōʻailona e hiki mai ana.

Aia kekahi ala e pale aku ai i ka myositis?

ʻO ka mea pōʻino, ʻaʻohe ala i ʻike ʻia e pale aku ai i ka myositis i kēia manawa . No ka mea, ʻaʻole i ʻike ʻia ke kumu pololei, ʻaʻole hiki ke wānana i ka mea nāna e loaʻa a i ka wā e hoʻomaka ai nā hōʻailona.

He aha ka mea hiki i kekahi me ka myositis ke manaʻo?

ʻOiai ʻaʻohe lāʻau lapaʻau no ka myositis, hiki i ka lāʻau lapaʻau ke hoʻihoʻi pinepine i ka maʻi i ka hoʻomaha ʻana . ʻO ia hoʻi, aia nā manawa i pau ai nā hōʻailona a hiki iā ʻoe ke ola i kahi ola maʻamau. Eia nō naʻe, no nā poʻe he nui, hiki i ka myositis ke lilo i maʻi no ke ola holoʻokoʻa. ʻO ia hoʻi, hiki i nā hōʻailona ke hoʻāla a emi iho.

Loaʻa i ka poʻe me ka myositis kahi pilikia iki o ka loaʻa ʻana o kahi maʻi i kapa ʻia ʻo rhabdomyolysis , ʻo ia ka wā e haki koke ai nā ʻiʻo a kahe ko lākou mau mea i loko o ke koko. Hiki i kēia ke lilo i mea ʻino i nā puʻupaʻa.

He mea kākaʻikahi loa, hiki i kekahi mau ʻano myositis, ʻoiai ʻo dermatomyositis, ke hoʻoweliweli i ke ola. Ma kahi o 5% o ka poʻe me ka dermatomyositis e make i loko o hoʻokahi makahiki o ka hōʻoia ʻana. ʻO ia ke kumu a mākou e ʻōlelo nei, inā loaʻa iā ʻoe nā hōʻailona hou, mai hoʻowahāwahā iā lākou a e ʻike koke i ke kauka.

Āhea wau e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe ka nāwaliwali o nā ʻiʻo hou, ka ʻeha, a i ʻole nā ​​​​hōʻailona ʻē aʻe i hoʻomaikaʻi ʻole i loko o kekahi mau lā , e ʻike koke i ke kauka . Eia kekahi, inā loaʻa iā ʻoe ka myositis, e haʻi i kāu kauka inā e ʻoi aku ka ʻino o kāu mau hōʻailona a i ʻole e pālahalaha ana i nā wahi hou.

Inā ʻike ʻoe i kekahi o nā hōʻailona ma lalo nei, pono ʻoe e hele koke i ka keʻena pilikia o ka haukapila:

• Inā ʻaʻole hiki koke iā ʻoe ke hoʻoneʻe i kahi ʻāpana kino hiki iā ʻoe ke hoʻoneʻe maʻamau.
• Inā pilikia ʻoe i ka hanu ʻana.
• Inā pilikia ʻoe i ka ale ʻana i ka meaʻai a me ka mea inu.

ʻAʻole kēia he mau ʻano maikaʻi e lawe māmā ʻia.

Nā nīnau koʻikoʻi e nīnau aku i ke kauka

Ke hele ʻoe e ʻike i kāu kauka, he mea nui loa ia e nīnau i kekahi mau nīnau e like me kēia:

• Loaʻa iaʻu ka myositis a i ʻole kekahi maʻi ʻē aʻe?
• He aha ke ʻano o ka myositis e loaʻa iaʻu?
• He aha ke ʻano o nā hoʻokolohua e pono ai iaʻu e hana?
• He aha ke ʻano o ka lāʻau lapaʻau e pono ai iaʻu?
• Pehea ka hopena o kēia kūlana i koʻu ola o kēlā me kēia lā?
• He aha nā mea e pono ai iaʻu e makaʻala?

Ma waho aʻe o kēia mau nīnau, e nīnau a wehewehe i kāu mau mea.

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

ʻO ka Myositis kahi mumū ʻiʻo lōʻihi i hoʻokumu ʻia e kāu ʻōnaehana pale ponoʻī e hoʻouka ana i kou mau ʻiʻo. Hiki i kēia ke hoʻāla i nā hōʻailona i kekahi manawa, a i ʻole e pono paha ʻoe e noho me ke kūlana no ke koena o kou ola.

Akā e hoʻomanaʻo, ʻoiai ʻaʻohe lāʻau lapaʻau piha no ka myositis, hiki ke hoʻomalu maikaʻi ʻia kāu mau hōʻailona me ka mālama kūpono a me nā hoʻomaʻamaʻa kino.

E kamaʻilio me kāu kauka a aʻo hou e pili ana i ke ʻano o ka myositis āu e loaʻa ai a me nā loli e kū nei i kou mau ʻiʻo a me kou kino. E ʻimi koke i ke aʻo lapaʻau inā loaʻa iā ʻoe nā hōʻailona hou a i ʻole inā e ʻoi aʻe ka ʻino o kāu mau hōʻailona. ʻAʻole ʻoe hoʻokahi, a aia nā kauka a me nā mea aloha e kōkua iā ʻoe ma kēia huakaʻi.

`Myositis, nāwaliwali o nā ʻiʻo, ʻeha ʻiʻo, maʻi autoimmune, mumū ʻiʻo, lāʻau lapaʻau