E kamaʻilio anei kākou e pili ana i ke kanesa o nā hunaola momona i kapa ʻia ʻo Myxoid Liposarcoma?

He puʻupuʻu liʻiliʻi paha kou ma lalo o kou ʻili e ʻeha iki ana? A i ʻole ke manaʻo nei ʻoe i kekahi manawa luhi ʻole me ke kumu ʻole, a me he mea lā e emi ana ke kaumaha o kou kino? He mau hōʻailona paha kēia a mākou e lawe ʻole ai i ko mākou ola o kēlā me kēia lā. Eia naʻe, he mea kakaikahi loa, hiki i kēia mau mea ke lilo i mau hōʻailona o kahi ʻano maʻi kanesa kakaikahi loa i kapa ʻia ʻo 'Myxoid Liposarcoma'. No laila, i kēia lā e kamaʻilio mākou e pili ana i kēia me ka kikoʻī iki a maʻalahi. He hoʻāʻo kēia e hāʻawi iā ʻoe i kahi ʻike maopopo o kēia.

He aha ka Myxoid Liposarcoma? Ma nā huaʻōlelo maʻalahi...

ʻO ka mea mua, e nānā kākou i ke ʻano o kēia 'Liposarcoma'. ʻO Liposarcoma kahi ʻano maʻi kanesa e hoʻomaka ana i loko o nā hunaola momona i loko o ko kākou kino. He mea kākaʻikahi loa kēia. No laila, ʻo 'Myxoid Liposarcoma' kahi ʻano o kēlā ʻano maʻi kanesa i kapa ʻia ʻo liposarcoma.

E noʻonoʻo, hiki i kēia ke noho i loko o kou kino no nā makahiki, me ka ʻole o ka hōʻike ʻana i kekahi mau hōʻailona. Hoʻomaka pinepine ʻoe e ʻike i nā hōʻailona ma hope o ka ulu iki ʻana o kēia puʻupuʻu. ʻIke pinepine ʻia kēia ʻano ma ke ʻano he puʻupuʻu e ʻike ʻia ma lalo o ka ʻili ma kou mau wāwae a i ʻole nā ​​​​lima. Hoʻopilikia pinepine kēia ʻano i nā poʻe ma waena o 20 a me 40 mau makahiki. Hoʻohana nā kauka i nā mea e like me ke ʻoki kino, chemotherapy a/a i ʻole radiation therapy e mālama ai.

He koʻikoʻi anei kēia maʻi kanesa i kapa ʻia ʻo Myxoid Liposarcoma?

ʻO ka hapa nui o ka manawa, ʻaʻole. ʻO ka hapa nui o nā puʻupuʻu myxoid liposarcoma e ulu lohi loa. ʻO ia hoʻi, ulu koke lākou a laha lohi loa.

Akā, eia kahi mea liʻiliʻi e ʻike ai. I loko o kekahi mau puʻupuʻu myxoid liposarcoma, aia paha he hui pū ʻana o nā pūnaewele myxoid liposarcoma a me nā "pūnaewele poepoe." A laila kapa nā kauka i kēia ʻo 'Myxoid/Round Cell Liposarcoma' (MRCLS). Loaʻa ka inoa "nā pūnaewele poepoe" mai ke ʻano o ka nānā ʻana o nā kauka lapaʻau i nā pūnaewele ma lalo o kahi microscope.

ʻO ka mea nui, ʻoi aku ka nui o ka hiki ke hoʻouka a metastasize kēia mau puʻupuʻu myxoid/round cell liposaccama (MRCLS) i nā ʻāpana ʻē aʻe o ke kino ma mua o nā myxoid liposaccamas maʻamau. No ka laʻana, hiki iā lākou ke laha mai kou mau lima a me kou mau wāwae i nā ʻiʻo palupalu kokoke, e like me nā ʻiʻo a me ka ʻili. I kekahi manawa, hiki i kēia ʻano liposaccama ke ulu i loko o kou mau iwi, nā iwi pelvic a i ʻole ka iwi kuamoʻo, a i ʻole i loko o nā ʻōpū o loko e like me kou puʻuwai, nā māmā a i ʻole ka esophagus.

He maʻi maʻamau anei ka Myxoid Liposarcoma?

Auē. He maʻi ʻaʻai laha ʻole ka Myxoid liposarcoma.ʻO kaʻoiaʻiʻo, ʻo ka myxoid liposarcoma ka helu ma waena o 15% a me 30% o nā maʻi liposarcoma āpau. E noʻonoʻo, e like me nā kuhi mai ka National Cancer Institute ma ʻAmelika Hui Pū ʻIa, ʻo nā kauka e ʻike wale i kahi 2,000 mau hihia o ka liposarcoma i kēlā me kēia makahiki. No laila hiki iā ʻoe ke noʻonoʻo i ka laha ʻole o kēia.

He aha nā hōʻailona o ka Myxoid Liposarcoma?

He mea kupaianaha ia, akā i kekahi manawa hiki iā ʻoe ke loaʻa i ka myxoid liposarcoma me ka ʻike ʻole ʻana i kekahi loli i kou kino. Hoʻomaka ka hapa nui o ka poʻe e ʻike i nā hōʻailona i ka wā, e like me kaʻu i ʻōlelo ai ma mua, e ulu iki ka puʻupuʻu a hoʻomaka e hoʻopilikia i kekahi mea. ʻO nā hōʻailona maʻamau :

• He puʻu i ʻike ʻia ma lalo o kou ʻili.
• ʻEha - Malia paha ma kahi a puni paha o ka puʻu.
• Luhi nui me ke kumu ʻole. (Luhi/Maluhi)
• Ka luaʻi.
• Ka pohō kaumaha i manaʻo ʻole ʻia a i ʻole ka pohō kaumaha i wehewehe ʻole ʻia.

Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​ʻaʻole ia he manaʻo he myxoid liposarcoma kou. Eia nō naʻe, inā hoʻomau lākou, he mea naʻauao ke ʻike i ke kauka no ka ʻōlelo aʻo.

He aha ke kumu o ka Myxoid Liposarcoma?

ʻO kaʻoiaʻiʻo, ʻaʻole i ʻike pono nā kānaka noiʻi lapaʻau i ke kumu o ka myxoid liposarcoma. Akā hoʻokahi mea a lākou i ʻike ai, he nui ka poʻe me ke ʻano i loaʻa kahi mutation i loko o kā lākou mau genes. ʻO kēia mutation ke kumu o nā genes maʻamau, i kapa ʻia ʻo oncogenes, e lilo i mau genes e hoʻoulu ai i ka maʻi kanesa.

I ka ʻōlelo maʻalahi, hiki i kēia mau genes, i kapa ʻia ʻo oncogenes, ke hoʻololi i nā cell maʻamau a olakino i nā cell cancer. A laila māhelehele a hoʻonui kēia mau cell cancer me ke kāohi ʻole ʻia, a laila ulu aʻe i loko o nā puʻupuʻu.

He aha nā kumu pilikia no kēia maʻi?

ʻAʻole ʻike nā kānaka noiʻi i ke kumu pololei, akā hoʻokahi mea i maopopo. Ua hōʻike ʻia nā noiʻi he nui ka pilikia o ka poʻe i loaʻa i ka radiation therapy no nā ʻano maʻi ʻē aʻe i ka loaʻa ʻana o kekahi ʻano sarcoma, me ka myxoid liposarcoma. ʻO ia hoʻi, inā ua loaʻa iā ʻoe ka radiation therapy no ka lymphoma, ka maʻi ʻaʻai umauma, a i ʻole ka maʻi prostate, ʻoi aku ka kiʻekiʻe o kou pilikia. Akā, ʻaʻole ia he manaʻo ʻaʻole maikaʻi ka radiation therapy. He mea nui ia no kēlā mau ʻano maʻi ʻaʻai.

Pehea e ʻike ʻia ai ka Myxoid Liposarcoma?

Hoʻomaka nā kauka i ke kaʻina hana o ka ʻike ʻana i kēia maʻi ma ka hana ʻana i kahi hoʻokolokolo kino a nīnau iā ʻoe e pili ana i kāu mau hōʻailona. Eia kekahi, hiki iā lākou ke hana i kekahi mau hoʻokolohua, e like me:

• ʻO ke scan CT (Computed Tomography scan): ʻAe kēia i nā kauka e ʻike pono i kahi o nā puʻupuʻu - ʻoiai ke kokoke o lākou i nā ʻōkana nui a me ka nui o ka puʻupuʻu.
• MRI scan (MRI - Magnetic Resonance Imaging): Kōkua kēia MRI scan i ka nānā ʻana i nā aʻalolo a puni, nā kīʻaha koko, a me nā ʻiʻo i hoʻopilikia ʻia e ka liposarcoma.
• Biopsy: Pili kēia i ka lawe ʻana i kahi hāpana liʻiliʻi o ka ʻiʻo mai ka puʻupuʻu a me ka nānā ʻana o kahi pathologist i nā ʻāpana ma lalo o kahi microscope. ʻO kēia ka mea e hiki ke haʻi pololei iā ʻoe inā he maʻi ʻaʻai ia a me ke ʻano o ia mea.
• Hoʻāʻo molekala a me ka hoʻoilina: Hiki i kēia mau hoʻāʻo ke kōkua i ka hōʻoia inā he myxoid liposarcoma maoli ka puʻupuʻu. Hiki iā lākou ke ʻike i nā mea e like me nā hoʻololi hoʻoilina i ʻōlelo ʻia ma mua.

Pehea e mālama ʻia ai ka Myxoid Liposarcoma?

Hiki i kāu kauka ke hoʻohana i hoʻokahi a ʻoi aku paha o nā lāʻau lapaʻau e hiki mai ana e mālama ai i kēia maʻi:

• ʻO ke ʻoki kino: ʻO kēia ka lāʻau lapaʻau nui. Wehe ke kauka ʻoki i ka puʻupuʻu kanesa a me kahi liʻiliʻi o nā ʻiʻo olakino a puni ia (hana ʻia kēia e wehe i nā hunaola kanesa microscopic).
• Lapaʻau radiation: Hāʻawi pinepine ʻia kēia lāʻau lapaʻau ma mua o ke ʻoki ʻana e hoʻēmi i ka puʻupuʻu, e maʻalahi ai ka wehe ʻana. I kekahi manawa, hāʻawi ʻia kēia lāʻau lapaʻau ma hope o ke ʻoki ʻana e pale ai i ka hoʻi hou ʻana o ke kanesa.
• Kemoterapia: Hiki ke hoʻohana ʻia ke kemoterapia e mālama i nā ʻōpū nui loa e hiki ʻole ke wehe ʻia e ke ʻoki ʻana, a i ʻole nā ​​ʻōpū i pālahalaha i nā ʻāpana ʻē aʻe o ke kino.

He aha nā hopena ʻaoʻao a me nā pilikia o ka mālama ʻana?

E like me nā lāʻau lapaʻau āpau, hiki i kēia mau lāʻau ke loaʻa kekahi mau hopena ʻaoʻao. Loaʻa paha ka manawa hoʻōla ma hope o ke ʻoki ʻana, a me nā hopena ʻaoʻao e pili ana i ka chemotherapy a me nā lāʻau radiation (e.g., ka hāʻule ʻana o ka lauoho, ka luhi, ka nausea).

I ka wā e pili ana i nā pilikia, ʻoiai me ke ʻoki ʻana, aia nā pilikia me kekahi ʻoki ʻana. E kūkākūkā kāu kauka ʻoki i kēia mau mea me ʻoe ma ke kikoʻī ma muli o kou kūlana. Eia nō naʻe, ʻo kekahi mau pilikia maʻamau e hiki ke hana ʻia:

• Nā hopena maikaʻi ʻole i ka anesthesia laulā.
• Ka nalowale o ke koko.
• ʻAʻole e ho'ōla pono nā ʻeha ʻoki.
• Ka maʻi ʻana.
• Ka hōʻino ʻana i nā ʻōpū a i ʻole nā ​​​​ʻiʻo a puni.
• ʻEha i kāohi ʻole ʻia e nā lāʻau ʻeha maʻamau.

No laila, he mea nui loa e kūkākūkā i kēia mau mea a pau me kāu kauka a e hoʻomaopopo ʻia ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau.

Hiki ke pale ʻia ka Myxoid Liposarcoma?

ʻO ka mea pōʻino, ʻaʻole ka hapa nui o ka poʻe. Loaʻa i ka hapa nui o ka poʻe ka myxoid liposarcoma ma hope o ka loaʻa ʻana o ka radiation therapy no nā maʻi ʻaʻai ʻē aʻe (e like me ka lymphoma, ka maʻi ʻaʻai umauma, a i ʻole ke kanesa prostate). ʻOiai ke hoʻonui nei ka radiation therapy i kēia pilikia, he mea nui ia no nā maʻi ʻaʻai ʻē aʻe. No laila, ʻoi aku ka paʻakikī o ka pale ʻana.

Hiki ke ho'ōla loa ʻia ka Myxoid Liposarcoma?

Hiki ke ho'ōla piha ʻia kēia maʻi e ka "remission. " ʻO ke ʻano o ka "Remission" ua nalowale nā ​​hōʻailona a me nā ʻōuli āpau o ka myxoid liposarcoma me ka mālama ʻana. ʻO ia hoʻi, ua lilo ke kanesa i mea hiki ʻole ke ʻike ʻia ma nā scans.

Akā, eia kahi mea nui e hoʻomaopopo ai. ʻO ka Myxoid liposarcoma kahi maʻi kanesa e hiki ke hoʻi hou mai (recur). No laila, e hoʻomau nā kauka i ka nānā ʻana iā ʻoe ma hope o kou hoʻi ʻana i ke kala ʻana.

He aha ka wānana no ka Myxoid Liposarcoma?

ʻO ka prognosis ka manaʻo o nā kauka e pili ana i ke ʻano o ka holomua ʻana o kou kūlana a me kou manawa e hoʻōla ai. ʻOkoʻa kēia mai kēlā kanaka a kēia kanaka. Aia kekahi mau kumu e hoʻopilikia ai iā ia:

• Kahi e loaʻa ai ka puʻupuʻu.
• ʻEhia ka nui o ka puʻupuʻu i wehe ʻia i ka wā o ke ʻoki ʻana (e like me ka wehe loa ʻia ʻana a i ʻole kekahi i waiho ʻia)
• Inā ua pālahalaha ka puʻupuʻu (metastasized) i nā ʻāpana ʻē aʻe o ke kino.

Ma ke ʻano laulā, ʻoi aku ka maikaʻi o ka prognosis o ka poʻe i mālama ʻia no ka myxoid liposarcoma ma mua o ka laha ʻana ma mua o ka poʻe i loaʻa ka laha ʻana o ka puʻupuʻu. ʻO ke ʻano kēia he ʻoi aku ka maikaʻi o ko lākou manawa e hoʻōla ai a me ke ola lōʻihi. Eia nō naʻe, hiki i kāu kauka ke hāʻawi iā ʻoe i ka ʻike maikaʻi loa e pili ana i ka mea e manaʻo ai ma muli o kou kūlana kikoʻī. No laila, e kamaʻilio me ia e pili ana i nā nīnau āu e loaʻa ai.

E aʻo pū kākou e pili ana i ka nui o ke ola ʻana.

I ke kamaʻilio ʻana e pili ana i kēia ʻano maʻi kanesa, ua lohe paha ʻoe i ka "Survival Rate." I ke ʻano o ka myxoid liposarcoma, ma ke ʻano holoʻokoʻa, 92% o ka poʻe e ola ana i ʻelima mau makahiki ma hope o ka hōʻoia ʻana. Eia naʻe, ma hope o 12 mau makahiki, hāʻule kēia helu i 55%.

Akā, hoʻokahi mea āu e pono ai e hoʻomanaʻo. He mau kuhi wale nō kēia mau helu ola. Hoʻokumu nā loea iā lākou ma muli o nā ʻike o nā poʻe ʻē aʻe he nui i loaʻa i nā kūlana like. ʻO ka mea ʻoiaʻiʻo no lākou, ʻaʻole paha ia he ʻoiaʻiʻo nou. E like me ka wānana ʻana, ʻo kāu kauka wale nō ke hāʻawi iā ʻoe i ka manaʻo maikaʻi loa o ka lōʻihi o kou ola. Mai hopohopo i kēia mau helu. He ʻokoʻa ka huakaʻi a kēlā me kēia kanaka.

Pehea e hiki ai iaʻu ke mālama iaʻu iho ma hope o ka mālama ʻia no ka Myxoid Liposarcoma?

ʻO ka Myxoid liposarcoma kahi ʻano maʻi kanesa e hiki ke hoʻi hou mai, no laila he mea nui e mālama i kou olakino ma hope o ka mālama ʻia ʻana. Hiki i ke kanesa ke hoʻi hou mai ma ke ʻano he puʻupuʻu hou ma kahi like i hoʻomaka mua ai. A i ʻole, hiki i kahi puʻupuʻu myxoid liposarcoma hou ke hana ʻia ma kahi ʻē aʻe o ke kino.

No laila, e nānā kāu kauka i kou olakino holoʻokoʻa no nā hōʻailona o nā ulu hou. ʻO ia hoʻi , pono ʻoe e hana i nā nānā mau. E nīnau i kāu kauka i ka pinepine o kou hana ʻana i kēia mau nānā. He mea nui e hana pinepine i kēia mau nānā, me ka ʻole o ka haʻalele ʻana iā lākou, no kou olakino lōʻihi.

ʻO ka mea hope loa, leka lawe i ka home

He maʻi kanesa laha ʻole ka Myxoid Liposarcoma, lohi ka ulu ʻana, e hoʻomaka ana i loko o kou mau hunaola momona. I kekahi manawa hiki iā ʻoe ke loaʻa i ke ʻano no ka manawa lōʻihi ma mua o kou loaʻa ʻana o kekahi mau hōʻailona.

ʻO ka mea maikaʻi loa, hiki i ka lāʻau lapaʻau ke wehe pinepine i kēia puʻupuʻu. Eia nō naʻe, aia kahi pilikia e hoʻi hou mai ka myxoid liposarcoma.

Inā loaʻa iā ʻoe kēia maʻi, e kamaʻilio me kāu kauka e pili ana i ka hiki ke loaʻa kahi puʻupuʻu hou. E wehewehe ʻo ia i ka mea hiki iā ʻoe ke manaʻo. Mai nalowale ka manaʻolana. ʻO ka hahai ʻana i nā ʻōlelo aʻoaʻo lapaʻau kūpono, ka loaʻa ʻana o nā hoʻokolohua a me nā lāʻau lapaʻau kūpono, a me ka loaʻa ʻana o kahi ʻano maikaʻi e kōkua iā ʻoe e hakakā i kēia maʻi. Inā he mau nīnau a hopohopo paha kāu, mai makaʻu e kamaʻilio me kāu kauka e pili ana iā lākou.

ʻO Myxoid Liposarcoma, Myxoid Liposarcoma, Kanesa, Kanesa Kelepona Momona, Sarcoma, Nā Hōʻailona Kanesa, Lapaʻau Kanesa