Inā loaʻa i kāu keiki kahi maʻi kanesa i kapa ʻia ʻo Neuroblastoma, hiki i ke kauka ke hoʻoholo e hoʻohana i kahi lāʻau i kapa ʻia ʻo Naxitamab. Ke lohe ʻoe i kahi inoa e like me kēia, hiki iā ʻoe ke makaʻu iki a hopohopo. He mea maʻamau kēlā. ʻO ia ke kumu e kamaʻilio ai mākou i kēia lā e pili ana i kēia lāʻau, kāna hana i ke kino, a me nā mea e pono ai mākou e makaʻala. He mea maʻalahi loa ia, no laila hiki iā ʻoe ke hoʻomaopopo.
He aha ke ʻano lāʻau lapaʻau ʻo Naxitamab?
I ka ʻōlelo maʻalahi, ʻo Naxitamab (inoa inoa DANYELZA) he lāʻau lapaʻau i loko o kahi papa kūikawā o nā lāʻau lapaʻau i kapa ʻia ʻo monoclonal antibodies . E noʻonoʻo iā ia e like me ke koa i aʻo ʻia e kōkua ana i kā mākou ʻōnaehana pale ponoʻī. Kōkua nā protein kūikawā i loko o kēia lāʻau lapaʻau i ka ʻōnaehana pale o ko mākou kino ponoʻī e ʻimi a ʻike i nā hunaola kanesa (ʻo ia hoʻi nā hunaola Neuroblastoma), hoʻouka iā lākou, a luku iā lākou.
He lāʻau lapaʻau i hoʻolālā ʻia kēia e hana ʻokoʻa ana ma mua o ka chemotherapy maʻamau. ʻO ia hoʻi, ke kuhikuhi nui nei ia i nā hunaola kanesa. Akā hiki ke hoʻohana ʻia no nā mea ʻē aʻe. E kamaʻilio me kāu kauka e pili ana i ia mea.
ʻO nā mea nui e haʻi aku i ke kauka ma mua o ka hāʻawi ʻana iā ia i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana o kāu keiki i kēia lāʻau lapaʻau, he mea nui loa ia e haʻi maopopo i ke kauka i kekahi mau mea. Mai hūnā i kēia mau mea, no ka mea, he mea nui kēia ʻike no ka palekana o ke keiki.
- Ke koko kiʻekiʻe: Inā he koko kiʻekiʻe kāu keiki a ke lawe nei paha i ka lāʻau lapaʻau no ia mea, e haʻi pono iā lākou.
- Nā Allergies: E haʻi mai iā mākou inā ua loaʻa iā ʻoe kahi hopena allergies i kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a i ʻole kala, ʻaʻole wale iā Naxitamab.
- Hāpai: E haʻi i kāu hui lapaʻau inā ʻoe (ka makuahine a kahu paha o ke keiki) e hāpai ana, e hoʻāʻo ana e hāpai, a i ʻole he kānalua paha ʻoe e hāpai ana. (Pili nō hoʻi kēia ʻōlelo aʻoaʻo i nā poʻe ʻōpio e lawe ana i kēia lāʻau lapaʻau).
- Ka hānai waiū: Inā ʻoe e hānai waiū ana i kāu pēpē, pono ʻoe e haʻi i kēlā.
Pehea e hāʻawi ai i kēia lāʻau lapaʻau i kahi keiki?
ʻAʻole kēia he pila a syrup paha e lawe ma ka home. He mea hoʻokomo ʻo Naxitamab i loko o kahi aa . Hāʻawi ʻia ia i kāu keiki e kekahi limahana lapaʻau i aʻo ʻia ma kahi haukapila a i ʻole ke keʻena lapaʻau, e like me ka wai saline.
I kekahi manawa, hāʻawi ʻia kēia lāʻau lapaʻau i nā keiki e like me hoʻokahi makahiki, akā pono e mālama ʻia nā hana palekana kūikawā. Na kāu kauka e wehewehe i kēia iā ʻoe.
He aha kāu e hana ai inā ʻaʻole ʻoe e hele i kahi manawa hoʻopaʻa lāʻau lapaʻau?
Aia kekahi mau lā kikoʻī i hoʻonohonoho ʻia ai kēia lāʻau lapaʻau. He mea nui loa ka hele ʻana mai i ka haukapila i kēlā mau lā. Mai hōʻalo i kēia mau manawa no kekahi kumu.Inā ʻaʻole hiki iā ʻoe ke hele i kāu manawa i hoʻonohonoho ʻia, e kāhea koke aku i kāu kauka a i ʻole ka haukapila a e hoʻomaopopo iā lākou.
He aha inā lawe nui wau i ka lāʻau lapaʻau?
Hāʻawi ʻia kēia ma kahi haukapila, no laila ua haʻahaʻa loa ka manawa e hiki ai kēia. Eia nō naʻe, inā manaʻo ʻoe ua loaʻa i kāu keiki ka nui o ka lāʻau lapaʻau, e kelepona koke i ke Kikowaena ʻIke Poisons National ma ka Halemai Lahui ʻo Colombo , a i ʻole e lawe i kāu keiki i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa.
Nā mea e pono ai mākou e makaʻala nui i ka wā e hoʻohana ai i ka lāʻau lapaʻau
E nānā pono ana nā kauka a me nā kahu maʻi i ke kūlana o kāu keiki i ka wā e lawe ana i kēia lāʻau lapaʻau, akā ma ke ʻano he mau mākua, he mea nui iā ʻoe e makaʻala i kēia mau mea.
- Nā hopena hoʻokomo: Hiki i kekahi mau keiki ke loaʻa koke nā hopena ke hāʻawi ʻia kēia lāʻau iā lākou. No ka laʻana, ke koko kiʻekiʻe, ka paʻakikī o ka hanu ʻana, a i ʻole ka maneʻo. No ka hōʻemi ʻana i kēia pilikia, hiki i kāu kauka ke hāʻawi i kāu keiki i nā lāʻau lapaʻau ʻē aʻe (e like me nā lāʻau ʻeha a i ʻole ka lāʻau allergy) ma mua o ka hāʻawi ʻana iā Naxitamab. No laila e hahai pono i nā ʻōlelo a kāu kauka.
- ʻO ka hāpai ʻana a me ka hānai ʻana i ka waiū: He mea nui loa kēia.
Mai hāpai no kekahi kumu i ka wā e lawe ana i kēia lāʻau lapaʻau a no 2 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau. Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i kahi pēpē i hānau ʻole ʻia. Eia kekahi, e pale i ka hānai waiū ʻana i kāu pēpē i ka wā e lawe ana i kēia lāʻau lapaʻau a no 2 mau mahina ma hope o ka hoʻōki ʻana i ka lāʻau.
- Nā lāʻau lapaʻau ʻē aʻe: ʻAʻohe ʻike piha e pili ana i ke ʻano o ka launa pū ʻana o nā lāʻau lapaʻau ʻē aʻe me kēia lāʻau. No laila, he mea nui loa e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e hāʻawi nei i kāu keiki (me nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui) . Eia kekahi, mai hoʻomaka i kekahi mau lāʻau lapaʻau hou me ka ʻole o ka nīnau mua ʻana i kāu kauka.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki iā Naxitamab ke hana i nā hopena ʻaoʻao. Eia naʻe, ʻaʻole loaʻa i nā kānaka a pau. ʻO ka mea nui loa, ʻo ia ka makaʻala i kēia mau hōʻailona a e hoʻomaopopo koke i kāu kauka inā pono.
| Nā hopena ʻaoʻao o Naxitamab | |
|---|---|
| 🚨 Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka a i ʻole ka haukapila | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo a hives paha, pehu o ka maka, lehelehe a i ʻole ke alelo. |
| Nā pilikia hanu | Paʻakikī ka hanu ʻana, ka wheezing. |
| Nā loli o ka ʻōnaehana nerve | ʻEha poʻo nui, nā ʻūlū, ka huikau, ka paʻakikī i ka ʻōlelo ʻana, ka ʻike maka pōwehiwehi, ka ʻike i ka mālamalama, ka ʻeha, ka mae ʻole a i ʻole ka nalowale o ka ʻike ma nā lālā, nāwaliwali o nā ʻiʻo. |
| Puʻuwai a me ke koko | Hoʻonui ʻia ke koko, ʻeha ka umauma, ka puʻuwai wikiwiki, ka poniuniu, a me ka māmā o ke poʻo. |
| Nā hōʻailona koʻikoʻi ʻē aʻe | ʻEha nui o ka ʻōpū, paʻakikī ke mimi a i ʻole ka loli ʻana o ka nui o ka mimi, ʻeha iwi. |
| 🩺 Nā hopena ʻaoʻao ʻaʻole koʻikoʻi pinepine, akā pono e hōʻike i ke kauka inā hoʻomau lākou | |
| ʻŌnaehana hoʻoheheʻe | Ka nalowale o ka makemake, ka nausea, ka luaʻi ʻana, ka maʻi pākī. |
| Nā hiʻohiʻona ʻē aʻe | Luhi, hopohopo mau, ʻeha, ʻulaʻula, a pehu paha ma kahi i inikini ʻia. |
Inā loaʻa i kāu keiki kekahi mau hōʻailona ʻē aʻe i ʻōlelo ʻole ʻia ma kēia papa inoa, e hoʻomaopopo i kāu kauka e pili ana iā lākou.
Leka Lawe-Home
- He lāʻau lapaʻau kikoʻī ʻo Naxitamab no ke kanesa neuroblastoma. He lāʻau ia i hāʻawi ʻia i loko o kahi aʻa koko ma ka haukapila.
- Ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, e haʻi i ke kauka e pili ana i nā kūlana olakino a pau o kāu keiki (ʻoiai ke koko kiʻekiʻe), nā maʻi allergies, a me nā lāʻau lapaʻau a pau a lākou e lawe nei.
- E makaʻala i nā hopena hoʻokomo a me nā hopena ʻaoʻao koʻikoʻi (ʻeha poʻo nui, hopu ʻana, paʻakikī i ka hanu) e hiki ke hana i ka wā e hāʻawi ʻia ai ka lāʻau.
- E hōʻalo loa i ka hāpai ʻana a me ka hānai waiū i ka wā o ka lāʻau lapaʻau a no 2 mau mahina ma hope o ka hoʻōki ʻana.
- Inā he mau nīnau, hopohopo, a kānalua paha kāu, e nīnau i kāu kauka a kahu maʻi paha. Mai hūnā i kekahi mea iā ʻoe iho.
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