Ke luaʻi nei kāu keiki liʻiliʻi a ʻeha i ka ʻōpū i nā hola ma hope o ka ʻai ʻana? He FPIES paha ia (Food Protein Induced Enterocolitis Syndrome)!

E nā mākuahine a me nā mākua kāne, ke luaʻi a uē kāu keiki liʻiliʻi ma hope o ka ʻai ʻana, he mea weliweli a ʻeha hoʻi ia, ʻeā? ʻOi loa aku hoʻi i ka wā ʻaʻole hiki iā ʻoe ke ʻike i ke kumu o ia mea. I kēia lā, e kamaʻilio mākou e pili ana i kahi maʻi ʻai ʻokoʻa iki, akā he mea nui loa. ʻO kēia ka mea a mākou e kapa nei he FPIES (Food Protein Induced Enterocolitis Syndrome).

E hoʻomaopopo wale kākou i ke ʻano o ka FPIES (Food Protein Induced Enterocolitis Syndrome)?

I ka ʻōlelo maʻalahi, he maʻi ʻaleka meaʻai lohi ka FPIES. ʻAʻole e like me nā maʻi ʻaleka ʻē aʻe, loaʻa ia i nā hola ma hope o ka ʻai ʻana. E noʻonoʻo i kāu pēpē , e ʻōlelo kākou ua ʻai kāu pēpē i ka laiki no ka ʻaina awakea. Akā ʻelua a ʻekolu paha hola ma hope mai, a ʻoi aku paha ka lōʻihi, hoʻomaka ʻo ia e luaʻi i nā manawa he nui i ka lālani. Me kēlā, loaʻa iā ia ka maʻi diarrhea, a huhū loa ʻo ia. Luhi a hiamoe ʻo ia i kona kali ʻana. Ke hoʻomau ʻo ia i ka luaʻi a me ka maʻi diarrhea, emi ka pae wai o ke kino o ka pēpē a ʻoi aku ka nui o kona make wai. ʻAʻole ia he mea maikaʻi iki.

ʻOkoʻa kēia ʻano maʻi, i kapa ʻia ʻo FPIES, mai nā maʻi ʻaleka meaʻai ʻē aʻe a mākou e ʻike pinepine ai. I nā maʻi ʻaleka ʻē aʻe, ʻike ʻia nā hōʻailona e like me ka hives, ka paʻakikī o ka hanu ʻana, a i ʻole ka luaʻi ʻana i loko o nā minuke o ka ʻai ʻana i ka meaʻai. Eia nō naʻe, no ka mea, hiki mai nā hōʻailona o FPIES i ka wā lohi, hiki ke paʻakikī iki ke ʻike he FPIES ia i ka wā mua. Pono nō hoʻi nā kauka e ʻimi i kēia ʻano.

He aha kēia 'Chronic FPIES'?

Hiki i kekahi mau pēpē ke loaʻa i kahi maʻi i kapa ʻia ʻo 'Chronic FPIES'. ʻO 'Chronic' ke ʻano he lōʻihi . Hana ʻia kēia ke loaʻa i kahi pēpē kahi pilikia mau me ka meaʻai a lākou e ʻai mau ai, e like me ka waiū bipi. Ma waho aʻe o ka luaʻi ʻana, hiki i kēia mau pēpē ke loaʻa nā pilikia me ka piʻi ʻana o ke kaumaha a me ka hiki ʻole ke ulu . Pehea ka hoʻonāukiuki no ka makuahine? Ke hānai ʻoe i kāu pēpē akā ʻaʻole ʻo ia e latch.

He aha nā meaʻai e hiki ke hoʻoulu i nā FPIES?

Aia kekahi mau meaʻai i ʻike ʻia ʻo ia ke kumu nui o ka hoʻoulu ʻana i nā FPIES. ʻO nā mea maʻamau ka waiū, ka soy , ka laiki, a me ka oats . Akā ʻo ka mea nui e hoʻomanaʻo ai, hiki i kēlā me kēia meaʻai ke hoʻoulu i nā hōʻailona FPIES.ʻO ke ʻano kēia, ʻaʻole ia i kaupalena ʻia i nā meaʻai i ʻōlelo ʻia ma luna. Loaʻa paha i kekahi mau keiki ka maʻalahi i hoʻokahi meaʻai. Akā, loaʻa paha i kekahi mau keiki ka maʻalahi i kekahi mau meaʻai.

I nā manawa e like me kēia, ʻoi aku ka maikaʻi o ke kūkākūkā ʻana me kahi kauka allergist me ka hopohopo ʻole. Hiki iā ia ke aʻo iā ʻoe i nā meaʻai palekana no kāu pēpē a me nā meaʻai ʻaʻole.

Pehea ʻoe e ʻike pono ai inā he FPIES kāu?

He nīnau kēia a nā mākua he nui e nīnau ai. ʻAʻohe hoʻāʻo kikoʻī i kēia manawa e hiki ke hōʻoia pololei inā loaʻa i kekahi FPIES. I kekahi manawa, hiki i nā kauka ke hana i nā hoʻokolohua ʻē aʻe e ʻike ai inā ua hoʻokumu ʻia kēia mau hōʻailona e kekahi maʻi ʻē aʻe.

E nīnau aku ke kauka maʻi ʻaleka iā ʻoe i nā kikoʻī he nui e pili ana i nā hōʻailona o kāu pēpē, e like me nā meaʻai āna i ʻai ai i kēlā lā, pehea ka lōʻihi ma hope o ka ʻai ʻana i ka meaʻai ua hoʻomaka ʻo ia e loaʻa i kēia mau hōʻailona. He mea nui loa nā mea āu e ʻike ai a me nā mea āu e hoʻomanaʻo ai ma ʻaneʻi. Hiki ke kōkua nui i ka ʻōlelo ʻana i kahi mea e like me, "E ke kauka, ua inu ka pēpē i ka waiū i ke kakahiaka, a laila hāʻawi ʻoe iā ia i kēlā porridge hou i ke awakea. Ua hoʻomaka ʻo ia e luaʻi i ʻekolu a ʻehā paha hola ma hope o ka ʻai ʻana." Hiki i ke kauka ke hana i kekahi mau hoʻokolohua allergy e ʻike ai inā he allergy meaʻai maʻamau.

Pehea ʻoe e mālama ai i kahi pēpē me FPIES?

Inā ua hōʻoia ʻia ʻo FPIES, ʻo ka mea nui loa, ʻo ia ke hoʻōki loa i ka hāʻawi ʻana i ka pēpē i ka meaʻai e hoʻoulu ai i ka maʻi allergies. ʻO kēia ka lāʻau lapaʻau mua.

Inā loaʻa i kāu keiki nā FPIES, e hāʻawi ke kauka allergist iā ʻoe i kahi hoʻolālā hana kūikawā . Hiki i kēia hoʻolālā ke komo pū me nā mea e like me:

• He aha nā meaʻai maikaʻi ʻole, a pehea e ʻike ai a pale aku iā lākou.
• He aha kāu e hana ai inā ʻai hewa kāu pēpē i ia ʻano meaʻai a loaʻa nā hōʻailona?
• He aha e hana ai i ka wā pilikia.

ʻAʻole lawa ka lawe wale ʻana i kēia hoʻolālā hana me ʻoe. Pono nō hoʻi ʻoe e wehewehe pono i kekahi mea ʻē aʻe nāna e mālama i ka pēpē (e like me nā kūpuna, nā kumu mālama keiki ). Ma kēlā ʻano, ʻike nā mea a pau i ka mea e hana ai.

He aha e hana ai inā ʻike ʻia nā hōʻailona?

Inā kū mai nā hōʻailona o FPIES, ʻoiai inā he luaʻi nui a me ka ʻeha o ka ʻōpū, pono paha e hāʻawi ʻia i ka pēpē i nā wai IV e pale aku i ka maloʻo ʻana o ka wai . I kekahi manawa, hiki ke hāʻawi ʻia nā lāʻau lapaʻau, e like me nā steroids, e kāohi i nā hōʻailona.

No ka mea, ʻaʻole maʻamau ka FPIES, hiki iā ʻoe ke noi i kāu kauka maʻi ʻaleka no kahi leka kūikawā . E hāʻawi ʻia kēia leka i nā limahana o ka lumi pilikia .(nā limahana lapaʻau). He mea pono loa ia i ka wā pilikia, no ka mea, ua hōʻike maopopo ia i ke kūlana o kāu keiki a pehea e mālama ai.

He aha hou aʻe kā mākou e pono ai e ʻike e pili ana i nā FPIES?

ʻO ka nūhou maikaʻi, ʻoi aku ka nui o nā keiki i ka FPIES i ko lākou wā ʻelemakule, ʻo ia hoʻi, ʻaʻole pono lākou e makaʻu i ka meaʻai a mau loa aku.

No ka ʻike pono ʻana inā loaʻa i ke keiki ka FPIES, hiki i kahi allergist ke ʻōlelo aku i kahi hoʻokūkū meaʻai waha . ʻO kēia ka hāʻawi ʻana i kāu keiki i kahi liʻiliʻi o ka meaʻai a lākou e manaʻo ai ke kumu o ka allergy, ma lalo o ka nānā ʻana o ke kauka, a me ka nānā pono ʻana iā lākou no nā hōʻailona i nā hola e hiki mai ana. ʻAʻole kēia he manaʻo maikaʻi e hana ma ka home. Pono e hana palekana ʻia, ma ke keʻena o ke kauka.

Aia kekahi mau kumuwaiwai pūnaewele kahi e hiki ai iā ʻoe ke aʻo hou aʻe e pili ana i nā FPIES, kaʻana like i nā ʻike me nā mākua ʻē aʻe, a loaʻa ke kākoʻo. Eia kekahi laʻana, he kōkua nui ka pūnaewele 'The FPIES Foundation' no kēia.

No laila, he aha ka mea nui loa e pono ai kākou e hoʻomanaʻo mai kēia mau mea a pau? (Leka Lawe-Home)

ʻAe, eia kekahi mau mea e hoʻomanaʻo ai mai nā mea a mākou i kamaʻilio ai:

• He maʻi ʻaleka meaʻai lohi ka FPIES. ʻO nā hōʻailona nui ka luaʻi ʻana, ka maʻi pākī, a me ka hiamoe nui .
• ʻOiai ʻo ka waiū, ka soy, ka laiki, a me ka ʻoka he mau mea maʻamau i nā allergens, hiki ke hana ʻia nā FPIES e kekahi meaʻai.
• ʻOiai ʻaʻohe hoʻāʻo kikoʻī e ʻike ai i kēia, hiki i kahi allergist ke hōʻoia iā ia ma ka nānā ʻana i kāu mau hōʻailona a me ka mōʻaukala.
• ʻO ka lāʻau nui e mālama ai, ʻo ia ka pale loa ʻana i nā meaʻai hoʻopilikia.
• ʻO ka nūhou maikaʻi, e nalowale ana kēia maʻi no ka hapa nui o nā keiki i ko lākou wā ʻelemakule.
• Mai hopohopo. Inā ʻoe e hoʻokele pono a hahai i nā ʻōlelo aʻoaʻo a kāu kauka, hiki i kāu pēpē ke olakino a hauʻoli . ʻAʻole ʻoe hoʻokahi, aia nā kauka a me nā ʻike e like me kēia e kōkua iā ʻoe.

Inā loaʻa i kāu keiki liʻiliʻi kekahi o kēia mau hōʻailona, ​​e ʻoluʻolu e ʻike i ke kauka i ka hikiwawe loa. ʻO ka ʻike mua ʻana a me ka mālama pono ʻana nā mea nui loa.

ʻO FPIES, ʻAleʻaleʻa Meaʻai, Ola Kino o ke Keiki, Luaʻi, Kahe, ʻAleʻaleʻa Lohi, ʻAiʻaleʻa i Hoʻoulu ʻia e ka Protein Meaʻai Enterocolitis Syndrome