Makemake pū ʻoe e ʻike e pili ana i kēia maʻi (Pilocytic Astrocytoma)? E kamaʻilio kākou!

ʻAuē, loaʻa iā ʻoe a i ʻole kāu keiki kekahi manawa kahi ʻeha poʻo e hoʻi mau mai ana? A i ʻole e luaʻi mau ana ʻoe? ʻO ke kumu o kēia paha kekahi mea āu i noʻonoʻo ʻole ai. I kēia lā e kamaʻilio mākou e pili ana i kahi maʻi i ʻike ʻia he koʻikoʻi iki, akā hiki ke mālama pinepine ʻia. He ʻano puʻupuʻu lolo i kapa ʻia ʻo (Pilocytic Astrocytoma) . He mea weliweli iki ke kani o ka inoa, ʻeā? Akā, mai hopohopo, e kamaʻilio kākou e pili ana i nā kikoʻī.

He aha kēia (Pilocytic Astrocytoma)?

I ka ʻōlelo maʻalahi, ʻo ka Pilocytic Astrocytoma kahi puʻupuʻu e ulu ana i loko o ka lolo. Loaʻa i ko kākou lolo kahi ʻano cell i kapa ʻia ʻo astrocytes . He mau cell ʻano hōkū kēia. ʻO kā lākou hana nui ke kōkua i nā cell nerve i loko o ko kākou lolo, nā neurons e lawe ana i nā leka, e hana pono. No laila, ulu kahi puʻupuʻu i kapa ʻia ʻo Pilocytic Astrocytoma mai kēia mau astrocytes.

Ua hoʻokaʻawale ka World Health Organization i kēia mau puʻupuʻu ma ke ʻano he Papa I , ʻo ia hoʻi, ʻaʻole lākou he maʻi ʻino . ʻO ke ʻano o ka Papa I, ke nānā ʻia ma lalo o ka microscope, ua like nā pūnaewele i loko o ka puʻupuʻu me nā pūnaewele maʻamau, ʻaʻole nā ​​pūnaewele maʻi kanesa. Lohi loa hoʻi ko lākou ulu ʻana . ʻAʻole lākou e laha pinepine i nā ʻāpana ʻē aʻe o ke kino. Eia nō naʻe, hiki iā lākou ke ulu iki i ka nui. I ka hapanui o nā hihia, hiki i ke ʻoki kino e wehe i ka puʻupuʻu ke ho'ōla i ka maʻi.

Pehea ka maʻamau o kēia kūlana?

ʻO ka Pilocytic Astrocytoma ke ʻano maʻamau o ka puʻupuʻu lolo i nā keiki . Ma ʻAmelika Hui Pū ʻIa wale nō, ua manaʻo ʻia e pili ana kēia maʻi i hoʻokahi i loko o 100,000 mau keiki ma lalo o 20 mau makahiki. ʻO kēia ʻano he 15% o nā puʻupuʻu lolo āpau i nā keiki. I nā pākeke, ʻaʻole ia he mea maʻamau, e helu ana he 5% o nā puʻupuʻu lolo āpau.

He aha nā hōʻailona o ka Pilocytic Astrocytoma?

Hiki ke ʻokoʻa nā hōʻailona o ka Pilocytic Astrocytoma mai kēlā kanaka a kēia kanaka. Aia nui ia i ka nui o ka puʻupuʻu a me kona wahi pololei i loko o ka lolo . I kekahi manawa, ʻaʻole paha e hōʻike ka puʻupuʻu i kekahi mau hōʻailona a hiki i ka wā e nui ai. Eia nō naʻe, aia kekahi mau hōʻailona maʻamau e ʻike ʻia:

• ʻO ke poʻo pinepine .
• Ka luhi, a i ʻole ka hiamoe mau (Lethargy) .
• Luaʻi .
• Nā loli i ke ʻano, ke ʻano, a me ke ʻano . Hiki iā ʻoe ke lilo i mea paʻakikī a huhū ma mua o ka wā ma mua.
• Nā loli i ka hiki ke noʻonoʻo, aʻo, a me ka noʻonoʻo .
• ʻĀʻī paʻakikī .
• ʻIke pōwehiwehi, ʻike pālua, a i ʻole ka neʻe wikiwiki ʻana o ka maka .
• Ka nāwaliwali o nā lālā a me ka pilikia me ka hoʻonohonoho ʻana i ka wā e hele ai a i ʻole e hana ana i nā hana .
• ʻO ka wā ʻōpiopio mua ma muli o nā loli hormonal.

ʻAʻole hiki ke loaʻa pinepine nā maʻi ʻeha, akā, ʻaʻole ia he mea maʻamau.

Ma hea e hoʻokumu ʻia ai kēia mau puʻupuʻu (Pilocytic Astrocytoma)?

ʻO ka hapa nui o ka manawa, ulu kēia mau puʻupuʻu (Pilocytic Astrocytoma) i loko o ko kākou ʻōnaehana nerve waena , ʻo ia hoʻi ka lolo a me ke kaula kuamoʻo. Loaʻa pinepine ʻia lākou ma kahi ʻāpana i kapa ʻia ʻo ka cerebellum . ʻO ka cerebellum ka ʻāpana o ko kākou lolo ma ke kua, lalo, kahi e hui ai ke poʻo a me ka ʻāʻī.

Ma waho aʻe o kēlā, hiki i kēia mau puʻupuʻu ke ulu i nā wahi aʻe, ʻoiai i kahi liʻiliʻi:

• ʻO ke aʻalolo optic - Ke aʻalolo e hoʻopili ai i ko mākou mau maka i ko mākou ʻike.
• ʻO Hypothalamus - He ʻāpana koʻikoʻi o ka lolo e kaohi ana i nā hormones.
• ʻŌpū lolo - ʻO ka ʻāpana e hoʻohui i ka lolo i ke kaula kuamoʻo.
• ʻO ke kaula kuamoʻo .

He aha ke kumu o kēia?

ʻOiaʻiʻo, ʻaʻole mākou i ʻike pono i ke kumu o kēia mau pūnaewele astrocyte e ulu koke a lilo i puʻupuʻu. Eia nō naʻe, ua ʻike ʻia e ka noiʻi kekahi mau kumu e hiki ke kōkua i kēia:

• Nā loli genetic : Ua ʻike ʻia kekahi mau loli i loko o ka gene (BRAF) e pili ana me kēia.
• Ka ʻike ʻia ʻana i ka radiation ionizing : I ka wā e loaʻa ai ka radiation therapy ma ke ʻano he lāʻau lapaʻau no nā ʻano maʻi ʻē aʻe, no ka laʻana, leukemia a i ʻole lymphoma.

Eia kekahi, hiki ke ʻike ʻia ka Pilocytic Astrocytoma me kekahi mau kūlana genetic . Nā laʻana:

• (Neurofibromatosis ʻAno 1)
• (Li-Fraumeni syndrome)
• (ʻO ka sclerosis tuberous)

He aha nā pilikia e hiki ai i kēia ke hana?

Hiki ke loaʻa kekahi mau pilikia ma muli o ka Pilocytic Astrocytoma. ʻO kēia mau mea:

• Ka nalowale ʻana o ka ʻike .
• Nā maka ʻōhū .
• Ka pohō a i ʻole ka piʻi ʻana o ke kaumaha .

I nā hihia kakaikahi a koʻikoʻi loa, hiki i kahi a me ka nui o ka puʻupuʻu ke hoʻoulu i ke kaomi ma luna o ka lolo (ka hoʻopili ʻana o ka lolo) a i ʻole kahi kūlana i kapa ʻia ʻo hydrocephalus, hiki ke hoʻoweliweli i ke ola.

Pehea e ʻike ʻia ai kēia maʻi (Pilocytic Astrocytoma)?

E ʻike mua ke kauka iā ʻoe a i ʻole kāu keiki ma ka nānā kino ʻana iā lākou, e hoʻolohe pono i kāu mau hōʻailona, ​​a e lawe i kāu mōʻaukala olakino . A laila e hana lākou i nā hoʻokolohua e kāpae i nā kūlana ʻē aʻe e hiki ai ke hoʻoulu i nā hōʻailona like.

Nā Scans (Radiology) e ʻike i ka Pilocytic Astrocytoma

Loaʻa pinepine kēia puʻupuʻu a ua hōʻoia ʻia ka hōʻailona.He scan i kapa ʻia ʻo (MRI - Magnetic Resonance Imaging). I kekahi manawa, pilikia nā keiki ʻōpio me nā hōʻailona o nā pilikia o ka ʻōnaehana nerve e noho mālie i ka wā o ka scan (MRI). I ia mau hihia, paipai nā kauka i kahi (CT scan - Computed Tomography scan) . Hiki i kēia mau scan ke hoʻoholo i ka nui, ke ʻano, a me kahi kikoʻī o ka puʻupuʻu. He mea kōkua nui kēia i ka hoʻolālā ʻana i ka mālama ʻana.

He aha nā lāʻau lapaʻau no ka Pilocytic Astrocytoma?

ʻO ka lāʻau lapaʻau nui i ʻōlelo ʻia e nā kauka no ka Pilocytic Astrocytoma ʻo ia ke ʻoki ʻana e wehe i ka puʻupuʻu . I ka hapanui o nā hihia, inā hiki ke wehe loa ʻia ka puʻupuʻu ma kēia ʻano, hiki ke ho'ōla loa ʻia ke kūlana Pilocytic Astrocytoma.

Eia nō naʻe, i kekahi manawa ʻo ka nui a me kahi o ka puʻupuʻu e paʻakikī ai ke wehe loa. Inā he nui ka pilikia o nā pilikia, hiki i ke kauka lapaʻau ke wehe i kahi hapa wale nō o ka puʻupuʻu a nānā i ka nui a me ka ulu ʻana o ke koena i ka hala ʻana o ka manawa. Inā hoʻi hou ka puʻupuʻu a ulu hou paha ke koena, hiki ke hana ʻia kekahi hana ʻē aʻe.

ʻO kekahi koho lapaʻau i emi iki ka maʻamau, ʻo ia ka radiation therapy . Hiki i kāu kauka ke koho i kēia lāʻau lapaʻau ma muli o kahi o ka puʻupuʻu, ka paʻakikī o ke ʻoki ʻana, a i ʻole inā he mau koho chemotherapy ʻē aʻe kāu. Na kāu kauka e hoʻoholo i ka lāʻau lapaʻau maikaʻi loa iā ʻoe.

ʻO ka mea nui, me nā holomua i ka hoʻāʻo ʻana i ka genetic , me ka hoʻāʻo molekala no Pilocytic Astrocytoma, hiki i ka hoʻāʻo ʻana ma hope o ke ʻoki ʻana ke ʻike i kekahi o nā mutations e hoʻoulu ai i nā hōʻailona, ​​​​e like me BRAF v600E. Aia nā lāʻau lapaʻau i ʻāpono ʻia e ka FDA no kēia mau mutations. Hiki paha iā ʻoe ke kūpono no nā hoʻokolohua hoʻokolohua a i ʻole nā ​​​​hoʻokolohua lapaʻau . He mea maikaʻi paha kēia mau mea iā ʻoe a me nā poʻe ʻē aʻe. No laila, e kamaʻilio me kāu kauka e pili ana i ka hana ʻana i kēia mau hoʻokolohua molekala ma kāu ʻiʻo puʻupuʻu ma hope o ke ʻoki ʻana.

Aia kekahi mau hopena ʻaoʻao o ka lāʻau lapaʻau?

Hiki ke loaʻa kekahi mau hopena ʻaoʻao ma hope o ke ʻoki ʻana e wehe i ka puʻupuʻu Pilocytic Astrocytoma. Eia kekahi laʻana:

• Ke kahe ʻana o ke koko .
• Ka maʻi ʻana .
• Pehu ʻana .
• ʻEha .
• ʻEha poʻo .
• ʻO ka hydrocephalus .

E kūkākūkā kāu kauka ʻoki i kēia mau hopena ʻaoʻao me ʻoe ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau, a e mālama pono lākou e pale i kēia mau hopena ʻaoʻao a i ʻole nā ​​​​pilikia mai ka wā o ke ʻoki ʻana.

Hiki i ka radiation therapy ke hana i kekahi mau hopena ʻaoʻao:

• Luhi .
• Ka luaʻi a me ka luaʻi .
• Ka maʻi pākī.
• ʻEha poʻo .
• Ka hāʻule ʻana o ka lauoho .
• Nā maʻi ʻaleka ʻili, ʻulaʻula .
• ʻAʻohe ʻono o ka meaʻai .
• Ka mimi pinepine ʻana a i ʻole ka pono e mimi koke .

Pehea ka wikiwiki o koʻu ho'ōla ʻana ma hope o ka lāʻau lapaʻau?

(Pilocytic Astrocytoma) Hiki ke hala kekahi mau pule no kou kino e ho'ōla ma hope o ke ʻoki ʻana e wehe i ka puʻupuʻu. E hāʻawi kāu kauka iā ʻoe i nā kuhikuhi no ka mālama ʻana iā ʻoe iho a i ʻole kāu keiki ma hope o ke ʻoki ʻana. Inā he mau nīnau kāu, e nīnau i kāu kauka.

He aha ka wānana no kēia kūlana?

No ka Papa I (Pilocytic Astrocytoma), maikaʻi loa ka wānana . ʻO kēia no ka mea he puʻupuʻu ʻaʻole ia he malignant a ʻaʻole ia e laha pinepine i nā ʻāpana ʻē aʻe o ke kino. ʻO ka wikiwiki o ka loaʻa ʻana o ka puʻupuʻu a me ka mālama ʻia ʻana, ʻoi aku ka maikaʻi o ka manawa e ho'ōla ʻia ai . Eia kekahi, ʻo kou olakino laulā, ka makahiki, a me nā mea ʻē aʻe e hoʻopilikia i ka hōʻailona. Ma muli o kou kūlana, hiki i kāu kauka ke hāʻawi iā ʻoe i kahi hōʻailona pololei.

He aha ka nui o ke ola no (Pilocytic Astrocytoma)?

He kiʻekiʻe loa ke ola o nā keiki a me nā ʻōpio i ʻike ʻia me ka Pilocytic Astrocytoma ma mua o 20 mau makahiki . Ua ʻike ʻia kekahi noiʻi ʻoi aku ka nui o ke ola ʻana he 10 makahiki ma mua o 92%. Piʻi kēia helu inā hiki i nā kauka lapaʻau ke wehe loa i ka puʻupuʻu.

Hiki ke pale ʻia ka Pilocytic Astrocytoma?

Ma muli o ka ʻike ʻole o nā kānaka noiʻi i nā kumu o kēia mau ʻōpū, ʻaʻohe ala e pale aku ai iā lākou i kēia manawa .

Āhea ʻoe e ʻike ai i ke kauka?

Inā manaʻo ʻoe he mau hōʻailona kou a i ʻole kāu keiki o ka Pilocytic Astrocytoma, e ʻike koke i ke kauka. ʻOi loa aku:

• ʻO ke poʻo pinepine .
• Nā loli i ka ʻike .
• Nā loli ʻano .
• Ka nalowale o ke kaohi o ke kino, ka paʻakikī i ka hoʻonohonoho ʻana .

Eia kekahi, e haʻi i kāu kauka inā ʻike ʻoe i kekahi o kēia mau mea ma hope o ke ʻoki ʻana e wehe i ka puʻupuʻu:

• ʻEha nui .
• Pehu ʻana .
• Ka loli ʻana o ka ʻili ma kahi i hana ʻia ai ke ʻoki .

Inā manaʻo ʻoe ua hewa kekahi mea, e kamaʻilio me ke kauka.

He aha nā nīnau āu e nīnau ai i ke kauka?

Mai poina e nīnau i kēia mau nīnau ke ʻike ʻoe i kāu kauka:

• Pono maoli anei au i ke ʻoki kino?
• He aha nā hopena ʻaoʻao o ka lāʻau lapaʻau?
• Pehea wau (a i ʻole kaʻu keiki) e mālama ai iaʻu iho ma hope o ke ʻoki kino?
• He aha nā pilikia e pono iaʻu e makaʻala ma hope o ke ʻoki ʻana?
• He aha koʻu mau manaʻolana e hoʻōla hou ai?
• Aia kekahi mau hoʻokolohua lapaʻau e pili ana i koʻu kūlana?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai

He mea maʻamau ka makaʻu a me ke kaumaha ke ʻike ʻoe ua loaʻa iā ʻoe, kāu keiki, a i ʻole kekahi āu e aloha ai kahi puʻupuʻu lolo. Akā, ʻo ka Pilocytic Astrocytoma kahi maʻi i hiki ke mālama pinepine ʻia a ho'ōla ʻia . ʻAʻole ia e laha i nā wahi ʻē aʻe o ke kino, a hiki ke ho'ōla loa ʻia inā e wehe ʻia ka puʻupuʻu.

E kōkua kāu hui lapaʻau iā ʻoe e ʻimi i ka hoʻolālā lapaʻau kūpono iā ʻoe. E hana pū lākou i kā lākou mea maikaʻi loa e pale aku i nā pilikia a hoʻihoʻi iā ʻoe i kou mau wāwae i ka hikiwawe loa. No laila e hoʻoikaika!

ʻO ka astrocytoma pilocytic, nā puʻupuʻu lolo, ke kanesa o nā keiki, astrocytoma, ʻoki lolo, nā hōʻailona, ​​​​​​lāʻau lapaʻau