Aia kekahi puʻupuʻu e like me kēia i loko o kou pepeiao? (Acoustic Neuroma) E aʻo kākou e pili ana i ia mea!

Ke manaʻo nei ʻoe i kekahi manawa ua emi kou lohe ʻana ma kekahi pepeiao? A i ʻole ke lohe wale nei ʻoe i ke kani mau ʻana i loko o kou pepeiao, i kekahi manawa ke poniuniu nei, a nalowale paha kou kaulike? ʻOiai he mau mea kēia a mākou e nānā ʻole ai i kekahi manawa, aia paha he kumu liʻiliʻi ma hope o kēia. I kēia lā e kamaʻilio mākou e pili ana i kahi puʻupuʻu i loaʻa paha ia kumu, akā ʻaʻole ia he maʻi kanesa, a ʻo ia ke ʻano i kapa ʻia ʻo 'Acoustic Neuroma' .

He aha ka Neuroma Acoustic?

I ka ʻōlelo maʻalahi, he puʻupuʻu maikaʻi ʻole ka neuroma acoustic. ʻO ia hoʻi, ʻaʻole ia e laha i nā ʻāpana ʻē aʻe o ke kino. Ua kapa ʻia hoʻi he vestibular schwannoma . Hoʻomohala kēia puʻupuʻu ma luna o kahi aʻalolo e hele ana mai kou pepeiao i loko a i kou lolo. I ka pololei, hoʻomohala ia ma ka aʻalolo cranial 8 (vestibulocochlear nerve) i loko o ko kākou poʻo. Kōkua nui kēia aʻalolo iā ʻoe e lohe (lohe) a mālama i kou kaulike (kaulike).

E noʻonoʻo i kēia aʻalolo e like me ke kaula liʻiliʻi e lawe ana i nā leka mai ka pepeiao a i ka lolo. No laila, ke kūkulu ʻia kahi puʻupuʻu liʻiliʻi ma kēia kaula, hiki iā ia ke hoʻopilikia i ka hoʻoili ʻana o kēlā mau leka. Pēlā e pili ai ka lohe a me ke kaulike.

ʻOiai ʻaʻole e laha kēia mau puʻupuʻu ma ke kino e like me ke kanesa , i ko lākou ulu ʻana, hiki iā lākou ke hoʻopilikia i ka lohe, ke kani mau ʻana o nā pepeiao (tinnitus), nalowale ke kaulike, a i kekahi manawa ke kumu o ka maneʻo a nāwaliwali paha ma kekahi ʻaoʻao o ka maka. ʻO nā lāʻau lapaʻau no kēia e komo pū me ke ʻoki kino a me ka radiation therapy. ʻAʻole pono pinepine ka chemotherapy.

Ua kapa ʻia anei kēia kūlana he neuroma acoustic maʻamau?

ʻAʻole, ʻaʻole ia he mea maʻamau. Ma kahi o hoʻokahi i loko o 100,000 mau kānaka e loaʻa i ka maʻi i kēlā me kēia makahiki. ʻOi aku ka nui o ka poʻe ma waena o 65 a me 74 mau makahiki e loaʻa i ke ʻano ma mua o ka poʻe ʻōpio a me nā keiki liʻiliʻi.

He aha nā hōʻailona o kahi neuroma acoustic?

ʻAʻole hiki koke mai nā hōʻailona o kēia. I ka hapa nui o ka manawa, ʻike mālie lākou.

Nā hōʻailona hiki ke ʻike ʻia i nā pae mua:

• Ka nalowale mālie o ka lohe ʻana ma kekahi pepeiao: ʻO kēia ka hōʻailona mua maʻamau. ʻAʻole paha ʻoe e lohe maopopo ma kekahi pepeiao i ke kamaʻilio ʻana ma ke kelepona, a i ʻole e manaʻo paha ʻoe ua emi ke kani ma kekahi ʻaoʻao i ka wā e kamaʻilio ana kekahi.
• Tinnitus: ʻO kēia ka lohe mau ʻana i nā leo like ʻole i loko o nā pepeiao (e like me ke kani ʻana, ka buzzing, a i ʻole ke kani hū). Hiki i kēia ke lilo i mea hoʻopilikia loa i kekahi poʻe.
• Nā pilikia kaulike: Manaʻo paha ʻoe e hāʻule ana ʻoe i ka wā e hele ana, a he mea paʻakikī paha ke noho ma kahi hoʻokahi.
• Vertigo: He manaʻo o ka wili ʻana a puni ʻoe. Hiki i kēia ke koʻikoʻi loa.

I ka ulu ʻana o ka puʻupuʻu, hiki ke ʻike ʻia nā hōʻailona like ʻole:

• ʻO ka maʻi lolo a i ʻole ka numbness o ka maka: Aia paha he ʻano ʻūlū ma kekahi ʻaoʻao o ka maka, a i ʻole ka manaʻo o ka nāwaliwali o nā ʻiʻo ma kēlā ʻaoʻao.
• ʻEha poʻo: Pinepine, i kekahi manawa ʻeha poʻo nui.
• Ka luaʻi a me ka luaʻi.
• Nā loli o ka ʻono: ʻOkoʻa paha ka ʻono o ka meaʻai ma mua o ka mea maʻamau.
• Ka paʻakikī i ke ale ʻana (Dysphagia).
• Nā pilikia ʻike: ʻIke pōwehiwehi a ʻike pālua paha.

E hoʻomanaʻo, ʻo ka loaʻa ʻana o kēia mau hōʻailona ʻaʻole ia he manaʻo he acoustic neuroma kou. Eia nō naʻe, inā hoʻomau ʻoe i kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​​​he mea nui e ʻike i ke kauka no ka ʻōlelo aʻo.

No ke aha e hana ʻia ai kēia neuroma acoustic?

ʻAʻole maopopo i nā kānaka noiʻi ke kumu o kēia mau puʻupuʻu. Akā, ʻo ka mea i ʻike ʻia, ua hoʻokumu ʻia lākou e ka ulu ʻana o kahi ʻano cell i kapa ʻia ʻo Schwann cells . ʻO kēia mau cell Schwann he mau cell e hana ana ma ke ʻano he pale pale a puni nā aʻalolo i loko o kā mākou ʻōnaehana nerve, ʻoiai nā mea e pili ana i ka lohe a me ke kaulike.

ʻO kekahi mea ʻē aʻe, ʻo ka poʻe me ke ʻano genetic i kapa ʻia ʻo 'Neurofibromatosis type 2' (NF2) ʻoi aku ka nui o ka hoʻomohala ʻana i nā neuromas acoustic bilateral ma nā aʻalolo auditory ma nā ʻaoʻao ʻelua o ka lolo.

Pehea ʻoe e ʻike ai i kēia?

Ke hele ʻoe i ke kauka, e nīnau mua ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona. A laila e hana lākou i kahi hoʻokolokolo kino. Eia kekahi, hiki iā lākou ke hana i nā hoʻokolohua e like me:

• Nā hoʻokolohua kiʻi: Hiki i kēia ke kōkua i ka hoʻoholo pololei inā loaʻa kahi puʻupuʻu, pehea kona nui, a me kona wahi.
• MRI (Magnetic Resonance Imaging): ʻO ke ala maikaʻi loa kēia e ʻike ai i ka neuroma acoustic.
• ʻO ke scan CT (Computed Tomography): Hoʻohana ʻia kēia i kekahi manawa.
• Nā hoʻāʻo lohe: Hana ʻia nā hoʻāʻo like ʻole e ʻike i ka maikaʻi o kou lohe ʻana. ʻO kekahi o ia mau hoʻāʻo ʻo ia ka Auditory Brainstem Response (ABR) .
• Nā hoʻāʻo kaulike: Aia kekahi mau hoʻāʻo e nānā i kāu kaulike.
• Electronystagmography (ENG): Hoʻāʻo kēia i ka pilina ma waena o ka neʻe ʻana o nā maka a me ke kaulike.

He aha nā lāʻau lapaʻau no ka neuroma acoustic?

ʻO ke ʻano o ka mālama ʻana i kēia ma muli o kekahi mau kumu. ʻO kēia mau mea:

• ʻO ka nui o ka puʻupuʻu a me kona wahi.
• Pehea ka nui o ka hopena o ka puʻupuʻu i kou lohe a me ke kaulike.
• Kou makahiki a me kou olakino holoʻokoʻa.

Aia kekahi mau koho lapaʻau nui:

1.Nānā ʻana:

• I kekahi manawa, inā liʻiliʻi loa ka puʻupuʻu, inā lohi loa ka ulu ʻana, a inā ʻaʻohe ou hōʻailona nui, e ʻōlelo paha kāu kauka e hana ʻole i kekahi mea i kēia manawa a nānā i ka puʻupuʻu me nā scan MRI maʻamau . He nui ka poʻe e hele no nā makahiki me ka ʻole o nā pilikia.

2. ʻO ke ʻoki kino lekiō Stereotactic:

• Ua like kēia me ka radiation therapy me ke ʻoki ʻole ʻana. Hoʻopili ia i nā kukuna radiation ikaika ma ka puʻupuʻu. Hiki iā ia ke hoʻōki i ka ulu ʻana o ka puʻupuʻu a i kekahi manawa hoʻēmi iā ia. He mea liʻiliʻi loa ia e hōʻino ai i nā ʻiʻo olakino a puni. ʻO ka maʻamau he lā hoʻokahi ia e mālama ai.

3. ʻOki liʻiliʻi:

• ʻO kēia wale nō ke ala e wehe loa ai i ka puʻupuʻu. Hana nā neurosurgeons i kēia ʻoki me ke akahele loa me ka hoʻohana ʻana i nā mea hana kūikawā. Hiki ke ʻokoʻa ke ʻano hana ʻoki ma muli o ka wahi a me ka nui o ka puʻupuʻu.

• Aia kekahi mau ʻano o ka microsurgery:
• Ke ʻano o ka fossa waena: Hoʻohana ʻia kēia ʻano hana inā aia ka puʻupuʻu ma ke kahawai pepeiao a he liʻiliʻi iki. Wehe ʻia ka puʻupuʻu ma o kahi ʻoki liʻiliʻi ma ka ʻaoʻao o ke poʻo.
• ʻO ke ʻano hana Retrosigmoid: Ma kēia, hana ʻia kahi ʻoki ma hope o ka pepeiao, a wehe ʻia ka puʻupuʻu ma o kahi ʻāpana o ke poʻo a i loko o ka pepeiao o loko.
• ʻO ke ʻano hana Translabyrinthine : Hiki ke ʻōlelo ʻia kēia ʻano hana inā ua nalowale loa kou lohe ma kekahi pepeiao. Hoʻopau ʻia ka puʻupuʻu ma ka hana ʻana i kahi ʻoki ma hope o ka pepeiao a me ka wehe ʻana i ka iwi o ka pepeiao o loko. Ma hope o kēia kaʻina hana, ʻaʻole ʻoe e lohe hou ma kēlā pepeiao.

4. Kemokalama:

• ʻAʻole hoʻohana pinepine ʻia kēia. Hiki i kahi lāʻau i kapa ʻia ʻo bevacizumab ke kōkua i ka hoʻēmi ʻana i nā puʻupuʻu, ʻoiai hoʻi e mālama i ka lohe ʻana i nā keiki me NF2. Hoʻohana ʻia nō hoʻi ia e mālama i ka radiation necrosis, kahi pilikia e hiki ke hana ma hope o ka radiation therapy.

5. Ka Lapaʻau Hoʻōla Vestibular:

• I kekahi manawa, i ka wā o ke ʻoki kino, pono e wehe ʻia nā ʻāpana o nā aʻalolo e pili ana i ke kaulike. Hiki i kēia ke hoʻopilikia i ke kaulike o ke kino. ʻO ka vestibular rehabilitation therapy kahi moʻo o nā hoʻomaʻamaʻa a me ke aʻo ʻana e hoʻomaʻamaʻa hou i ke kino e uku no ka hana aʻalolo i nalowale. Hana ʻia kēia e kahi physiotherapist.

He aha nā pilikia e hiki ke loaʻa ma hope o ka microsurgery?

E like me nā ʻoki kino āpau, aia kekahi mau pilikia e hiki ke kū mai ma hope o kēia ʻoki kino. E wehewehe mua kāu hui lapaʻau i kēia mau mea iā ʻoe. Mai hopohopo, aia nā lāʻau lapaʻau a me nā koho hoʻokele no ka aneane o kēia mau mea āpau.

• Poho a emi paha ka lohe ʻana ma kekahi pepeiao.
• ʻO ka maʻi lolo o ka maka (hiki ke lilo i manawa pōkole a mau loa paha).
• Tinnitus (ke kani ʻana i loko o nā pepeiao).
• Ka liki ʻana o ka wai Cerebrospinal (CSF).
• Nā pilikia kaulike.
• Paʻakikī ke ale ʻana.
• Pōʻaiʻī.
• ʻIke pālua a i ʻole nā ​​maka maloʻo.
• ʻEha poʻo.
• Nā maʻi.
• ʻO ka meningitis ( kahi maʻi o ka lolo e like me ke kuni - he mea laha ʻole loa).
• Ka ulu hou ʻana o ka puʻupuʻu (kākaʻikahi).

Inā loaʻa iaʻu kahi neuroma acoustic, he aha kaʻu e manaʻo ai?

Aia ia i nā mea he nui, e like me kou kūlana, ke ʻano o ka lāʻau i loaʻa iā ʻoe, a me nā pilikia i loaʻa. E wehewehe kāu neurosurgeon i nā koho lapaʻau a me nā pilikia hiki iā ʻoe.

I kekahi manawa, inā loaʻa iā ʻoe ka nalowale o ka lohe, aia nā mea hana e hiki ke kōkua. No ka laʻana, hiki iā ʻoe ke hoʻohana i nā mea e like me 'bone conduction hearing implants' a i ʻole 'cross hearing aids' (CROS - contralateral routing of signals hearing aids) .

Pehea wau e mālama ai iaʻu iho?

Ke ʻike ʻoe he neuroma acoustic kou, e hopohopo iki paha ʻoe, ʻoiai inā hoʻoholo kāu kauka e nānā iā ʻoe me ka ʻole o ka lāʻau lapaʻau. Manaʻo paha ʻoe i nā mea e like me, "E nui aʻe anei kēia puʻupuʻu? E ʻoi aku ka ʻino o koʻu lohe?" I kēlā manawa, e nīnau i kāu kauka i nā loli e hōʻike ana e hoʻopilikia ana ka puʻupuʻu i nā aʻalolo.

Inā loaʻa iā ʻoe nā hōʻailona, ​​a ʻōlelo kāu kauka i ke ʻoki ʻana, hiki ke hoʻopilikia ʻia kou kaulike ma hope o ke ʻoki ʻana. Inā pēlā, hiki i kāu kauka ke ʻōlelo i ka lāʻau hoʻōla vestibular, i ʻōlelo ʻia ma mua. Hiki i kēia ke kōkua iā ʻoe e hoʻi i nā hana maʻamau.

He aha nā nīnau e pono iaʻu e nīnau aku i kaʻu kauka?

Inā loaʻa iā ʻoe kahi neuroma acoustic, makemake paha ʻoe e nīnau i kāu kauka i nā nīnau e like me kēia:

• Pono anei au i ka lāʻau lapaʻau, a i ʻole e nānā ʻia ka puʻupuʻu?
• He aha ka likelika e hoʻopuka ai koʻu pepeiao i kahi pae lohe kūpono?
• He aha ka manawa e hiki ai ke hoʻi hou mai kēia puʻupuʻu ma hope o ke ʻoki ʻana a i ʻole ka lāʻau lapaʻau radiation?
• Aia anei au i ka pilikia kiʻekiʻe o ka hoʻomohala ʻana i nā ʻano tumors ʻē aʻe?
• He aha nā pōmaikaʻi a me nā pōʻino o ke ʻoki ʻana i ka neuroma acoustic?
• E pono anei iaʻu ka lāʻau hoʻōla hou ma hope o ke ʻoki kino?

ʻO ka mea hope loa, nā mea e hoʻomanaʻo ai (Leka Lawe-Home)

He puʻupuʻu ulu lohi ka neuroma acoustic, ʻaʻole ia he maʻi kanesa e hiki ke hoʻopilikia i kou lohe a me ke kaulike. Akā , mai hopohopo, aia nā lāʻau lapaʻau maikaʻi no ia.

Hiki i kāu kauka ke ʻōlelo aku i ke ʻoki kino e wehe i ka puʻupuʻu. Inā pēlā, nui paha kāu mau nīnau e pili ana i ke ʻoki kino, he aha ka mea e hana ʻia ma hope, inā paha e hoʻopilikia ia i kou lohe, a me nā hopena ʻaoʻao ʻē aʻe. He mea maʻamau kēia. Ua mākaukau kāu hui lapaʻau e pane i kāu mau nīnau a pau a hōʻoluʻolu i kou mau makaʻu. No laila, e kamaʻilio me lākou e pili ana i nā mea āpau ma kou manaʻo.

ʻO ka mea nui loa, ʻo ia ke ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe kēia mau hōʻailona. ʻO ka wikiwiki o ka ʻike ʻia ʻana o ka maʻi, ʻo ka holomua nui aʻe o ka lāʻau.

ʻO ka neuroma acoustic, ka puʻupuʻu pepeiao, ka schwannoma vestibular, ke aʻalolo auditory, ka nalowale o ka lohe, tinnitus, vertigo