ʻO ka lāʻau pale Ravulizumab (ULTOMIRIS): Ua kuhikuhi ʻia anei kēia nou pū kekahi? E ʻike maʻalahi kākou

Ke kuhikuhi aku kāu kauka iā ʻoe i kahi lāʻau pale i kapa ʻia ʻo Ravulizumab (loaʻa pinepine ʻia ma lalo o ka inoa inoa ʻo ULTOMIRIS), he mea maʻamau ka loaʻa ʻana o nā nīnau he nui. He lāʻau kūikawā loa kēia, akā he ikaika loa. ʻAʻole kēia he lāʻau lapaʻau no ke anu maʻamau a i ʻole ka maʻi flu. No laila e kamaʻilio wau e pili ana i ia mea ma ke ʻano maʻalahi e hiki ai iā ʻoe ke hoʻomaopopo.

I mea e pololei ai, he aha ke ʻano lāʻau lapaʻau ʻo Ravulizumab?

I ka ʻōlelo maʻalahi, ʻo Ravulizumab kahi lāʻau lapaʻau e kāohi ana i kahi hana maʻamau ʻole e hana ʻia ana i loko o ka ʻōnaehana pale o ko mākou kino. I kekahi manawa lilo kā mākou ʻōnaehana pale ponoʻī i mea hana nui a hoʻomaka e hoʻouka i kā mākou mau hunaola olakino ponoʻī. I kēlā mau manawa, kōkua kēia lāʻau lapaʻau i ka kāohi ʻana i kēlā hana makemake ʻole ʻia.

No kēia kahi papa kūikawā o nā lāʻau i kapa ʻia ʻo nā monoclonal antibodies . ʻO ia hoʻi, he protein ia i hana ʻia ma ka hale hana me ka hoʻohana ʻana i ka ʻenehana kūikawā. E like me ka missile homing, hele ia i kahi kikoʻī o ka pilikia i loko o ke kino a kāohi iā ia.

Hoʻohana nā kauka i kēia lāʻau lapaʻau e mālama i kekahi mau maʻi nui:

• ʻO ka maʻi Atypical Hemolytic Uremic (aHUS): He ʻano kēia e haki ai nā hunaola koko ʻulaʻula a hana ʻia nā ʻūpā koko i loko o nā kīʻaha koko liʻiliʻi, e hoʻoulu ai i nā kūlana e like me ka anemia .
• Paroxysmal Nocturnal Hemoglobinuria (PNH): He ʻano kēia e pili ana i ka luku ʻia ʻana o nā hunaola koko ʻulaʻula.
• ʻO Myasthenia Gravis : He maʻi kēia o nā aʻalolo a me nā ʻiʻo. Hoʻonāwaliwali koke ia i nā ʻiʻo a hoʻoulu i ka luhi.
• ʻO ka Neuromyelitis Optica Spectrum Disorder (NMOSD): I kēia maʻi, lilo nā aʻalolo i loko o nā maka a me ke kaula kuamoʻo i pehu.

Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka lawe ʻana i kēia lāʻau lapaʻau

ʻAe, i kēia manawa ma mua o ka hāʻawi ʻana iā ʻoe i kēia lāʻau lapaʻau, e nīnau ke kauka iā ʻoe i kekahi mau nīnau. Akā aia kekahi mau mea āu e ʻōlelo pono ai. No ka mea, ʻo kou palekana ka mea nui loa.

• Loaʻa iā ʻoe kekahi mau maʻi i kēia manawa? E haʻi i kāu kauka e pili ana i kekahi mau maʻi, e like me ke kuni, ke kuni, a i ʻole ke anu .
• He mau maʻi ʻaleka paha kāu?Inā he mau maʻi ʻaleka kou i kēia lāʻau lapaʻau Ravulizumab a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha, e ʻoluʻolu e haʻi mai iā mākou.
• Ke hāpai nei ʻoe? A i ʻole ke kali nei ʻoe i kahi pēpē? E kamaʻilio ākea me kāu kauka e pili ana i kēia.
• He makuahine hānai waiū ʻoe? He mea nui loa e hoʻomaopopo i ke kauka e pili ana i kēia.

Pehea e hāʻawi ʻia ai kēia lāʻau i ke kino?

ʻAʻole kēia he pila a syrup paha hiki iā ʻoe ke lawe i ka home. He inikini kēia āu e hoʻokomo ai i loko o kahi aa. No laila e loaʻa iā ʻoe kēia lāʻau lapaʻau ma kahi haukapila a i ʻole ke keʻena lapaʻau. Na ke kauka a kahu maʻi paha i aʻo ʻia e hāʻawi iā ʻoe.

• Pepa leka MedGuide: Ma mua o kēlā me kēia kau lapaʻau, e hāʻawi ʻia ʻoe i kahi pepa leka kūikawā (he `MedGuide`) nona ka ʻike e pili ana i kēia lāʻau lapaʻau. E heluhelu pono a mai makaʻu e nīnau i nā nīnau āu e loaʻa ai.
• Hoʻohana ʻia i nā keiki: Ke noʻonoʻo nei paha ʻoe inā hiki ke hāʻawi ʻia kēia i nā keiki ʻōpio. ʻAe, hiki ke hoʻohana ʻia i nā pēpē e like me hoʻokahi mahina no kekahi mau kūlana olakino i koho ʻia. Akā pono e hana ʻia me ke akahele nui a ma lalo o ka nānā ʻana a kahi loea.
• Inā ʻoe e lawe nui i ka lāʻau lapaʻau: Inā manaʻo ʻoe ua hāʻawi nui ʻia kēia lāʻau lapaʻau iā ʻoe, pono ʻoe e hele koke i ka Emergency Treatment Unit (ETU) o ka haukapila . A i ʻole e kelepona i ke National Poisons Information Centre ma ka Colombo National Hospital no ka ʻōlelo aʻoaʻo.
• Mai kaʻana like: Ua kuhikuhi ʻia kēia lāʻau lapaʻau nou wale nō. Mai kaʻana like me nā poʻe ʻē aʻe.

Nā mea e makaʻala ai i ka wā e lawe ai i ka lāʻau lapaʻau

Pono ʻoe e akahele iki i ka wā e lawe ai i kēia lāʻau.

• E ʻike pinepine i kāu kauka: E nānā pinepine kāu kauka iā ʻoe e ʻike inā e hoʻomaikaʻi ana a i ʻole e ʻino ana kāu mau hōʻailona. E hōʻoia e hele i kēlā mau lā.
• E makaʻala i nā maʻi: ʻO kēia ka mea nui loa. Hiki ke hoʻonui iki ʻia kou pilikia o ka loaʻa ʻana o nā maʻi i ka wā e lawe ana i kēia lāʻau. No laila, inā loaʻa iā ʻoe nā hōʻailona e like me ke kuni, ke anu, ka ʻeha o ke kino, ka ʻeha o ka puʻu, a i ʻole ka lohi o ka ho'ōla ʻana o kahi ʻeha, mai hele e kiʻi i ka lāʻau lapaʻau ma kāu iho . E kāhea koke i kāu kauka a loaʻa ka ʻōlelo aʻo. Eia kekahi, e hōʻemi i ka hele ʻana i nā wahi i maʻi ai ka poʻe.
• Nā lāʻau pale: I mea e hōʻemi ai i kou pilikia o ka maʻi, hiki i kāu kauka ke ʻōlelo aku iā ʻoe e kiʻi i kekahi mau lāʻau pale ma mua o ka hoʻomaka ʻana i kēia lāʻau.
• Kāleka ʻeke kālā maʻi:E hāʻawi ʻia iā ʻoe kahi kāleka kūikawā (ʻO ke Kāleka ʻEke Uku o ka Maʻi). E mālama mau me ʻoe . E hōʻike iā ia inā ʻoe e hele e ʻike i kekahi kauka ʻē aʻe. Aia i loko ka ʻike e pili ana i nā hopena ʻaoʻao koʻikoʻi e hiki ke hana me kēia lāʻau lapaʻau.

He aha nā hopena ʻaoʻao e hiki mai ana?

E like me nā lāʻau lapaʻau āpau, hiki iā Ravulizumab ke hana i nā hopena ʻaoʻao i kekahi poʻe, akā ʻaʻole i loaʻa i nā kānaka a pau. ʻO ka mea nui loa, ʻo ia ke haʻi aku i kāu kauka inā ʻike ʻoe i kekahi mea ʻē.

Hiki i kēia lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau ʻē aʻe?

ʻAe, hiki i kekahi mau lāʻau lapaʻau ke launa pū me kēia. Eia kekahi laʻana, nā lāʻau lapaʻau e like me `Efgartigimod` a me `Immune globulin (IVIG)`.

No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai - inā no nā kūlana ʻē aʻe, nā huaora, nā lāʻau lapaʻau kuʻuna, a i ʻole nā ​​​​mea hoʻohui. Eia kekahi, e haʻi i kāu kauka inā puhipaka ʻoe a inu waiʻona paha.