He pilikia like kou me kou mau maka? E aʻo kākou e pili ana i ke kūlana o Retinoschisis!

Ua lohe paha ʻoe ua māhele koke ka retina i loko o kou maka, ka ʻāpana e like me ka pale o kou maka e hana ana i nā kiʻi a mākou e ʻike ai, i ʻelua a ʻoi aku paha papa? He kūlana ʻē akā he mea nui ia e ʻike ai. ʻO kēia ka mea a nā kauka e kapa nei he (Retinoschisis). Mai hopohopo, e kamaʻilio maʻalahi kākou e pili ana.

He aha ka Retinoschisis? E hoʻomaopopo maʻalahi kākou.

I ka ʻōlelo maʻalahi, ʻo (Retinoschisis) ka wā e māhele ai ka retina i loko o kou maka i nā papa. I ka pololei, māhele ia i ʻelua a ʻoi aku paha nā papa. Ua ʻike anei ʻoe, he membrane paʻakikī loa ko kākou retina. Loaʻa iā ia kahi papa e pili ana i ka mālamalama, a me kahi papa o nā cell e lawe ana i nā hōʻailona i ka lolo ma o ka optic nerve. No laila, ke māhele kēia mau papa e like me kēia, hiki iā ia ke hoʻopilikia i kou ʻike. E noʻonoʻo e like me nā ʻaoʻao o kahi puke i hoʻopili ʻole ʻia a ua hoʻokaʻawale ʻia. Hiki i kēia mau māhele ke hana ma waenakonu o ka retina, akā ʻo ka hapa pinepine e hana ʻia ma nā kihi, ʻo ia hoʻi, ma ka periphery.

He aha nā ʻano nui o ka retinoschisis?

He mea laha ʻole kēia ʻano maʻi, ʻo ia hoʻi ʻo "Retinoschisis". Akā, ʻelua ʻano nui o kēia. Hoʻokahi i loaʻa , a ʻo kekahi he hānau ʻia .

ʻO ka Retinoschisis hoʻomaka ma hope (Retinoschisis i loaʻa)

Ua kapa ʻia kēia ʻo 'degenerative retinoschisis' . ʻO ia hoʻi, he mea ia e kū mai ana me ka ʻelemakule, kahi mea e pili ana i kahi ʻāpana o ke komo ʻana a me ka haehae. ʻO ka hapa nui o ka manawa, ʻike ʻia kēia ma kahi o 50, 60, a i ʻole 70 makahiki. ʻO ia ke kumu i kapa ʻia ai e kekahi poʻe he 'senile retinoschisis' . Eia nō naʻe, i kekahi manawa hiki i ka poʻe ʻōpio ke loaʻa i kēia maʻi.

ʻElua ʻano o ka retinoschisis degenerative. ʻO kekahi ke ʻano maʻamau , a ʻo kekahi ke ʻano bullous a reticular paha. I ke ʻano bullous, hana ʻia nā pehu wai liʻiliʻi ma ka retina. He mea paʻakikī iki ke hoʻokaʻawale ma waena o nā ʻano ʻelua. Eia nō naʻe, ʻoi aku ka nui o ka hiki i ke ʻano bullous ke loaʻa nā lua retinal a me ka retinal detachment.

Aia kekahi ʻano ʻē aʻe o ka myopic macular schisis . Ua kapa ʻia hoʻi ʻo ia he myopic traction maculopathy a i ʻole myopic foveoschisis . Loaʻa ia ma ka ʻaoʻao waena o ka retina, i kapa ʻia ʻo ka macula , a ma ke kikowaena o ka macula, i kapa ʻia ʻo ka fovea . ʻIke pinepine ʻia ia i nā poʻe me ka myopia koʻikoʻi a i ʻole ka nearsightedness.

ʻO ka Retinoschisis hānau

ʻIke ʻoe, ke ʻōlelo mākou i kahi mea hānau ʻia, ʻo ia hoʻi kahi mea i loko o ko mākou kino i ka wā i hānau ʻia ai mākou. ʻO kēia ʻano (Retinoschisis) ua kapa ʻia ʻo juvenile X-linked retinoschisis.He kūlana ia e hoʻomaka ana i ka wā ʻōpiopio, a i ka wā kamaliʻi paha, a ua pili ia i ka chromosome X. Hoʻopilikia pinepine ia i nā maka ʻelua.

ʻO kēia maʻi, ʻo ia hoʻi ka juvenile X-linked retinoschisis, pili nui i nā keikikāne. Loaʻa i ko lākou mau makuahine ka gene no ia mea, akā i ka hapanui o nā hihia, ʻaʻole i loaʻa i nā makuahine ke ʻano.

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He aha ka ʻokoʻa ma waena o ka Retinal Detachment a me ka Retinoschisis?

ʻOiai ke kani like nei kēia mau mea ʻelua, aia kahi ʻokoʻa iki. E noʻonoʻo e pili ana i ia mea, ʻo ka retinal detachment ka wā e kaʻawale loa ai ka retina mai ke kino kākoʻo a hemo. Ua like ia me kahi pepa hoʻolaha e puka mai ana mai kahi paia.

ʻAʻole ʻo Retinoschisis kahi hemo ʻana o ka retina, akā he kaʻawale ʻana o ka retina i nā papa. Hiki i kekahi manawa ke paʻakikī ke ʻike i kēia kūlana, ʻoiai no kahi kauka maka. Eia nō naʻe, hiki i nā hoʻokolohua kūikawā ke kōkua i kāu kauka e hoʻoholo pololei i ke ʻano o ia mea.

I kekahi manawa, hiki ke loaʻa kēia mau kūlana ʻelua, ʻo ia hoʻi ʻo (Retinal detachment) a me (Retinoschisis), i ka manawa like. He kiʻekiʻe loa kēia pilikia inā loaʻa iā ʻoe ke ʻano (congenital) o (Retinoschisis) i loaʻa i ka wā hānau.

Pehea ka maʻamau o kēia ʻano i kapa ʻia ʻo Retinoschisis?

Wahi a nā kānaka noiʻi, ʻo ke kūlana hānau ʻo juvenile X-linked retinoschisis e kū mai ana ma kahi o hoʻokahi i loko o 5,000 a i ʻole hoʻokahi i loko o 25,000 poʻe. He pakeneka haʻahaʻa loa ia.

ʻO ka degenerative retinoschisis, kahi kūlana e kū mai ana me ka ʻelemakule, ua manaʻo ʻia e hoʻopilikia i kahi 4% o ka poʻe ma luna o 40 mau makahiki. Manaʻo ʻia kekahi noiʻi ʻē aʻe e hoʻopilikia paha ia ma waena o 1% a me 4% o ka poʻe ma luna o 50 mau makahiki.

He aha nā hōʻailona o Retinoschisis? Loaʻa iā ʻoe kēia mau mea pū kekahi?

ʻO ka mea kupaianaha, i kekahi manawa hiki iā ʻoe ke loaʻa i kēia maʻi me ka ʻole o nā hōʻailona . Akā inā loaʻa iā ʻoe nā hōʻailona, ​​e nānā kākou i ke ʻano o ia mau mea.

Inā loaʻa iā ʻoe ka 'juvenile X-linked retinoschisis' hānau mua, e ʻike paha ʻoe i nā hōʻailona e like me kēia:

• Me he mea lā ua huli nā maka i ka ihu (e like me nā 'maka keʻa').
• ʻAʻole noho nā maka ma kahi hoʻokahi a neʻe i mua a i mua (nystagmus).
• Ma muli o ka wahi o ka haehae retinal, hiki ke nalowale ka ʻike waena a i ʻole ka ʻike foveal a i ʻole ka ʻike peripheral.
• Nā pilikia me ka ʻike mamao (pinepine i ka ʻike mamao).

Inā ua loaʻa iā ʻoe ka retinoschisis, hiki iā ʻoe ke ʻike i kēia mau mea:

• ʻAʻole hiki ke ʻike maopopo i nā ʻaoʻao ʻelua (nalowale ka ʻike peripheral).
• I kekahi manawa, ʻaʻole hiki ke ʻike ʻia nā hōʻailona.

Eia nō naʻe, inā lilo kou retinoschisis i mea koʻikoʻi, a inā hele pū ʻia me ka retinal detachment, hiki iā ʻoe ke ʻike i nā hōʻailona e like me:

• Ke ʻike ʻana i nā mea ʻeleʻele liʻiliʻi e lana ana i mua o nā maka (floaters) a me ka ʻike ʻana i nā kukui uila koke (flashers).
• Ke ʻike ʻana i nā mea i kīkoʻo ʻia a hoʻopāpā ʻia ('nā kiʻi i hoʻopāpā ʻia').
• Ma muli o ka wahi o ka haehae retinal, hiki ke nalowale ka ʻike waena a i ʻole ka ʻike peripheral.

Mea nui: Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​e ʻike koke i ke kauka maka. No ka mea, he mea nui loa ka mālama mua ʻana no nā pilikia ʻike.

No ke aha e kū mai ai ʻo Retinoschisis? He aha nā kumu?

Hoʻokumu pinepine ʻia ka retinoschisis congenital e kahi mutation genetic . Ua ʻōlelo mua mākou he X-linked ia, ʻo ia hoʻi, ua pili ia i nā genes i hoʻoilina ʻia mai ka makuahine.

Eia nō naʻe, ʻaʻole i loaʻa i nā kānaka ʻepekema ke kumu pololei o ke ʻano "acquired retinoschisis." Eia naʻe, ua ʻike ʻia ua piʻi ka pilikia o ka loaʻa ʻana me ka makahiki, ʻoiai ma hope o 40 mau makahiki.

Pehea ʻoe e ʻike pono ai inā he Retinoschisis kou? (Diagnosis)

Hoʻomaʻamaʻa pinepine ʻia kēia ʻano e kahi loea maka (ophthalmologist) . Ma hope o ka hoʻokolokolo maka piha (kahi hoʻokolokolo maka piha), hiki ke hana ʻia nā hoʻokolohua aʻe e hōʻoia i ka hōʻailona:

• ʻOphthalmoscopy a i ʻole fundoscopy: Ma kēia kaʻina hana, hoʻohana ke kauka i kahi mea hana kūikawā (ophthalmoscope) e nānā i loko o kou mau maka, ʻoi aku ka retina.
• ʻO ka Optical Coherence Tomography (OCT): He hoʻāʻo ʻole kēia e hoʻohana ana i ka mālamalama e hana i nā kiʻi maopopo o loko a me ke kua o kou maka. Hiki iā ia ke ʻike maopopo i nā papa o ka retina.
• ʻO ka ultrasonography B-scan: He hoʻāʻo ultrasound non-invasive kēia e hoʻohana ana i nā nalu kani e kiʻi i nā kiʻi o loko o ka maka.
• Electroretinography (ERG): Ke ana kēia hoʻāʻo i ke ʻano o ka pane ʻana o kou mau maka i nā kukui uila koke. Kōkua kēia i ke ana ʻana i ka hana o ka retina.
• Angiography: Lawe kēia hoʻāʻo i nā kiʻi o nā kīʻaha koko i loko o kou retina. Hoʻohana ia i nā kala kūikawā e like me ka fluorescein a i ʻole ka indocyanine green.
• Ka hoʻāʻo ʻana i ka genetic: Inā kānalua kāu kauka he maʻi congenital kou i kapa ʻia ʻo juvenile X-linked retinoschisis, hiki iā lākou ke kuhikuhi i kēia hoʻāʻo.

He aha nā lāʻau lapaʻau no ka Retinoschisis? Hiki ke ho'ōla ʻia?

ʻO kaʻoiaʻiʻo, ʻo ke kūlana (Retinoschisis)ʻAʻole hiki ke ho'ōla loa ʻia. Eia nō naʻe, hiki ke mālama ʻia. Hiki i nā kauka ke ʻōlelo aku i nā aniani a i ʻole nā ​​mea kōkua ʻike haʻahaʻa ʻē aʻe e kōkua i kou ʻike.

• Inā ua loaʻa iā ʻoe ka retinoschisis , ʻaʻole paha ʻoe e pono i kekahi lāʻau lapaʻau. Manaʻo paha kāu kauka he ʻano maikaʻi kēia ʻaʻole pono ka lāʻau lapaʻau. Eia nō naʻe, inā he mau hewa refractive kāu, e like me ka ʻike kokoke a i ʻole ka ʻike mamao, pono paha ʻoe i nā aniani.
• Inā loaʻa iā ʻoe ka 'juvenile X-linked retinoschisis' hānau mua , pono ʻoe e hoʻohana i nā aniani no nā pilikia ʻike.

I kekahi manawa, hiki i nā kīʻaha koko i loko o ka retina ke haki a hoʻoulu i ke kahe koko i loko o ka maka. Inā hana ʻia kēia, hiki i kāu kauka ke ʻōlelo aku i ka cryoablation a i ʻole ka laser therapy e hoʻōki i ke kahe koko.

ʻO ka mea nui loa, inā he retinal detachment kou, pono ʻoe i ke ʻoki kino e hoʻopili hou i ka retina.

Ke hoʻāʻo nei nā kānaka noiʻi e ʻimi i nā lāʻau lapaʻau hou no ka ʻōpio X-linked retinoschisis, me ka gene therapy , ka stem-cell therapy , a me kahi lāʻau i kapa ʻia ʻo dorzolamide .

Aia kekahi ala e pale aku ai i ka retinoschisis?

ʻO ka mea pōʻino, ʻaʻole hiki ke pale aku i ka ulu ʻana o "Retinoschisis" .

ʻAʻohe kumu i ʻike ʻia no ka retinoschisis i loaʻa, no laila ʻaʻohe ala e pale aku ai. Eia nō naʻe, inā he moʻolelo ko kekahi o kou ʻohana no ka retinoschisis X-linked juvenile, he manaʻo maikaʻi e nīnau i kāu kauka e pili ana i ke kamaʻilio ʻana me kahi kākāʻōlelo genetic.

He aha kāu e manaʻo ai inā loaʻa iā ʻoe ka retinoschisis?

E like me kā mākou i ʻōlelo ai ma mua, ʻaʻohe lāʻau lapaʻau no kēia maʻi. I kekahi manawa hiki iā ia ke hōʻeha nui i ka ʻike, i kekahi manawa a hiki i ke kūlana makapō. Eia nō naʻe, ʻaʻole pono kekahi poʻe i kekahi lāʻau lapaʻau. Aia ia i ke koʻikoʻi a me ke ʻano o kou maʻi.

Pehea e mālama ai iaʻu iho inā loaʻa iaʻu ka retinoschisis?

Inā loaʻa iā ʻoe ka (Retinoschisis), aia kekahi mau mea nui hiki iā ʻoe ke hana:

• E hoʻokolokolo mau i kou mau maka. ʻO kēia ka mea nui loa. E nānā mau i kou mau maka, e like me ka ʻōlelo a kāu kauka.
• E hoʻohana i nā mea kōkua ʻike haʻahaʻa.Eia kekahi, e aʻo e pili ana i ka ʻenehana adaptive e hiki ke kōkua iā ʻoe e hana i nā hana o kēlā me kēia lā me ka maʻalahi. He mea nui kēia nou a me kāu keiki inā loaʻa iā lākou kēia maʻi.
• Inā ʻike ʻoe i kekahi mau loli i kou ʻike, e haʻi koke aku i kāu kauka. Mai hoʻowahāwahā i kahi loli liʻiliʻi.

Hiki ke hopohopo ka nalowale ʻana o ka ʻike iki. Akā e hoʻomanaʻo, ʻaʻole pono ʻoe e hoʻokele wale iā ia. E hoʻomau i ka launa pū me kāu kauka maka. E nīnau i kāu hui lapaʻau e pili ana i nā hui kākoʻo a me nā kumuwaiwai ʻē aʻe. E hoʻohana i nā lawelawe a lākou e hāʻawi nei. Hiki iā lākou ke hāʻawi iā ʻoe i ka hoʻonaʻauao, kaʻana like ʻana i nā ʻike me nā poʻe ʻē aʻe, a me ke kōkua loea.

ʻO ka mea nui loa āu e pono ai e hoʻomanaʻo mai nā mea a mākou i kamaʻilio ai (Leka Lawe-Home)

ʻAe, no laila, mai nā mea a mākou i kamaʻilio ai, eia nā mea nui e hoʻomanaʻo:

• ʻO Retinoschisis kahi kūlana e māhele ai ka retina i nā papa, hiki ke hoʻopilikia i ka ʻike.
• ʻElua mau ʻano nui o kēia: pili i ka makahiki a me ka hānau ʻana.
• ʻAʻole paha i loaʻa i kekahi poʻe kekahi mau hōʻailona , ​​​​akā hiki i kekahi poʻe ke ʻike i nā hōʻailona e like me ka emi ʻana o ka ʻike a me ka ʻūlū ʻana o nā maka.
• ʻOiai ʻaʻohe lāʻau lapaʻau piha no kēia, hiki ke mālama ʻia. No kēia, he mea nui ka ʻōlelo aʻoaʻo lapaʻau kūpono a me ka hoʻāʻo ʻana.
• Inā loaʻa iā ʻoe a i ʻole kekahi o kou ʻohana kēia maʻi, he mea nui loa e ʻike pinepine i ke kauka maka a hahai i kā lākou ʻōlelo aʻo .
• Inā ʻike ʻoe i kekahi mau loli i kou ʻike, e ʻimi koke i ke kōkua lapaʻau. Hiki i ka ʻike mua ʻana a me ka mālama ʻana ke pale aku i ka ʻino ʻana o ke kūlana.
• ʻAʻole ʻoe hoʻokahi, aia nā wahi a me nā ala e loaʻa ai ke kōkua.

No laila, ke lana nei koʻu manaʻo he mea pono kēia ʻike iā ʻoe. E mālama pono i kou mau maka!

ʻO Retinoschisis, ka hemo ʻana o ka retina, nā maʻi maka, ka nalowale o ka ʻike, ke olakino maka, nā maʻi hoʻoilina, nā hoʻāʻo maka