He mea maʻamau ke manaʻo i kahi kaumaha ke haʻi aku kāu kauka iā ʻoe a i ʻole kekahi o kou ʻohana he maʻi neurological koʻikoʻi e like me Amyotrophic Lateral Sclerosis (ALS). He lāʻau lapaʻau kūikawā ʻo Riluzole e kōkua i ka kaohi ʻana i ka holomua o kēia maʻi, ʻo ia hoʻi, ka holomua mālie o ka maʻi. No laila i kēia lā, e kamaʻilio kākou e pili ana i kēia lāʻau lapaʻau koʻikoʻi ma ke ʻano maʻalahi, me he mea lā e wehewehe ana i kahi hoaaloha.
He aha ka Riluzole?
I ka ʻōlelo maʻalahi, ʻo Riluzole kahi lāʻau lapaʻau e hoʻolohi i ka holomua o ka Amyotrophic Lateral Sclerosis (ALS) , kahi maʻi neurodegenerative (i ʻike ʻia hoʻi ʻo ka maʻi ʻo Lou Gehrig). ʻAʻole ia e ho'ōla loa i ka maʻi, akā hiki iā ia ke kōkua i ka kaohi ʻana i ka hōʻino ʻana i nā hunaola nerve a hāʻawi i kahi hōʻoluʻolu. Hiki i nā kauka ke kuhikuhi i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe. Inā he mau nīnau kāu e pili ana i ia mea, ʻoi aku ka maikaʻi o ka nīnau ʻana i kāu kauka.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i ka lāʻau lapaʻau
He mea nui loa e ʻike pono kāu kauka i kou kūlana olakino ma mua o ka hāʻawi ʻana iā ʻoe i kēia lāʻau lapaʻau. E hōʻoia e haʻi i kāu kauka inā loaʻa iā ʻoe kekahi o nā kūlana i helu ʻia ma lalo nei.
| Kou kūlana | No ke aha he mea nui e hoʻomaopopo i ke kauka? |
|---|---|
| Maʻi akepaʻa | Hoʻopau nui ʻia kēia lāʻau lapaʻau mai ke kino ma o ke akepaʻa. Inā loaʻa iā ʻoe kekahi mau pilikia akepaʻa, pono paha e hoʻoponopono ʻia kāu mahele lāʻau a i ʻole pono paha ʻoe e loaʻa nā hoʻokolohua kūikawā. |
| Nā maʻi ʻaleka | Inā he mau maʻi ʻaleka kou i ka riluzole, nā lāʻau lapaʻau ʻē aʻe, nā meaʻai, a i ʻole nā mea hoʻomalu, e ʻoluʻolu e hoʻomaopopo mai iā mākou ma mua. |
| Inā hāpai ʻoe a i ʻole e kali ana i kahi pēpē | ʻAʻohe ʻike piha e pili ana i ka palekana o kēia lāʻau lapaʻau i ka wā hāpai. No laila, pono ʻoe e kūkākūkā i kēia me kāu kauka a hoʻoholo i nā pono a me nā pilikia. |
| Inā hānai waiū ka makuahine i kāna keiki | No ka mea, ʻaʻohe ʻike maopopo e pili ana i ka hele ʻana o kēia lāʻau lapaʻau i ka pēpē ma o ka waiū umauma, he mea nui e hoʻomaopopo i ke kauka inā he makuahine hānai ʻoe. |
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
No ka loaʻa ʻana o ka hopena maikaʻi loa mai ka lāʻau lapaʻau, he mea nui loa ia e hoʻohana pono.
- E ale i kēia pila me ke aniani wai.
- E lawe i kāu lāʻau lapaʻau i ka manawa kūpono, e like me ke kauoha a kāu kauka. Inā ʻōlelo ʻia ʻoe e lawe iā ia i ʻelua manawa i ka lā, e hoʻāʻo e waiho i kahi kaawale o kekahi mau hola ma waena o nā manawa ʻelua.
- ʻO ka mea nui loa: Pono e lawe ʻia kēia lāʻau lapaʻau ma ka ʻōpū ʻole . ʻO ia hoʻi, e lawe iā ia ma ka liʻiliʻi hoʻokahi hola ma mua a i ʻole ʻelua hola ma hope o ka ʻai ʻana. Mai lawe pū me ka meaʻai. Hiki paha i kēia ke hōʻemi i ka omo ʻana o ka lāʻau lapaʻau i loko o ke kino.
- Mai ho'ōki koke i ka lawe ʻana i kāu lāʻau me ka ʻole o ke aʻo a kāu kauka.
- Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like i kāu lāʻau lapaʻau me nā poʻe ʻē aʻe.
He aha inā e hala wau i kahi lāʻau?
Inā poina iā ʻoe ke lawe i kahi lāʻau, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Eia nō naʻe, inā kokoke ka manawa no kāu lāʻau aʻe, e kāpae i ka lāʻau i hala ʻole a lawe i kāu lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi no kekahi kumu.
Nā mea kūikawā e noʻonoʻo ai a me nā hopena ʻaoʻao
E makaʻala i kēia mau mea i ka wā e lawe ai i ka lāʻau lapaʻau.
- Nā hoʻokolohua lapaʻau maʻamau: E hoʻomau i ka hele ʻana i nā keʻena lapaʻau a hana i nā hoʻokolohua koko e like me ka ʻōlelo a kāu kauka iā ʻoe, no ka mea, he mea nui kēia e ʻike inā ke hoʻopilikia nei kēia lāʻau i kou ake.
- Kuni a me nā Maʻi: Inā loaʻa iā ʻoe ke kuni, ke anu, ka ʻāʻī ʻeha, a i ʻole nā hōʻailona ʻē aʻe o ka maʻi, mai hoʻōla ponoʻī. E kelepona koke i kāu kauka. Hiki i kēia lāʻau lapaʻau ke hoʻohaʻahaʻa i ka hiki o kou kino ke pale aku i ka maʻi.
- Puhipaka: E haʻi i kāu kauka inā ʻoe e puhipaka. Hiki i ka puhipaka ke hoʻemi i ka hopena o kēia lāʻau lapaʻau. Eia kekahi, e haʻi i kāu kauka inā ʻoe e hoʻolālā ana e haʻalele i ka puhipaka.
- Hiamoe a me ka poniuniu: Hiki paha iā ʻoe ke hiamoe iki a me ka poniuniu i ka wā e lawe ai i kēia lāʻau.Hiki paha iā ʻoe ke poniuniu. No laila, mai hoʻokele a hoʻohana paha i nā mīkini a hiki i kou ʻike ʻana i ke ʻano o ka hopena o kēia lāʻau lapaʻau iā ʻoe. ʻOiai inā he ʻelemakule ʻoe, e pale i ke ala ʻana a me ka noho koke ʻana.
Nā hopena ʻaoʻao hiki ke loaʻa
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke hana i nā hopena ʻaoʻao, ʻoiai ʻaʻole i loaʻa i nā kānaka āpau. E makaʻala i nā hōʻailona ma lalo nei.
| Ka hopena ʻaoʻao | Wehewehena |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono e hōʻike koke ʻia i kāu kauka | |
| Nā hopena maʻi ʻaleka | ʻŌhūhū ʻili, maneʻo, pehu o nā lehelehe, ke alelo a i ʻole ka maka, paʻakikī ke hanu. |
| Nā Hōʻailona o ka ʻeha o ke Ake | Mimi melemele ʻeleʻele a ʻeleʻele paha, melemele o nā maka a i ʻole ka ʻili, ʻeha ma ka ʻaoʻao ʻākau o luna o ka ʻōpū, nausea, nalowale o ka makemake e ʻai, luhi loa. |
| Nā Hōʻailona o ka Maʻi | Kuni, anu, a me ka ʻāʻī ʻeha. |
| Nā hopena ʻaoʻao maʻamau e pono e hōʻike ʻia i ke kauka inā hoʻomau a hoʻopilikia paha lākou | |
| Nā maʻi maʻamau | Kuke, ʻeha poʻo, nausea, luaʻi, ʻeha ʻōpū, luhi nui. |
He aha inā lawe ʻoe i ka nui o ka lāʻau lapaʻau? (Overdose)
Inā manaʻo ʻoe ua lawe ʻoe i nā lāʻau lapaʻau ma mua o kou manaʻo, e hele koke i ka Halemai Pilikia (ETU) kokoke loa. A i ʻole, e kelepona i ke Kikowaena ʻIke ʻAi ʻona Lahui ma ka Halemai Lahui ʻo Colombo no ka ʻōlelo aʻoaʻo.
Nā lāʻau lapaʻau ʻē aʻe e launa pū me kēia lāʻau lapaʻau
E haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai, me nā lāʻau lapaʻau i kauoha ʻia a me nā lāʻau lapaʻau kūʻai ʻole ʻia, nā huaora, a me nā lāʻau lapaʻau lāʻau. ʻO kekahi o nā lāʻau lapaʻau e launa pū me ka riluzole:
- ʻAllopurinol
- Nā lāʻau hoʻomalu hānau
- ʻO Ciprofloxacin
- ʻO Fluvoxamine
- ʻO Methoxsalen
- Nā lāʻau lapaʻau e like me ka sulfasalazine.
ʻAʻole i piha kēia papa inoa, no laila ʻoi aku ka palekana o ka haʻi ʻana i kāu kauka e pili ana i nā lāʻau lapaʻau āpau āu e lawe ai.
Leka Lawe-Home
- ʻAʻole lāʻau lapaʻau ʻo Riluzole no ka ALS, akā kōkua ia i ka kaohi ʻana i ka holomua o ka maʻi.
- E lawe mau i kēia lāʻau lapaʻau ma ka ʻōpū ʻole, ʻo ia hoʻi, hoʻokahi hola ma mua a ʻelua paha hola ma hope o ka ʻai ʻana.
- E hōʻoia e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau ʻē aʻe āu e lawe nei, kāu mau ʻano (puahi, waiʻona), a me nā kūlana olakino ʻē aʻe āu e loaʻa ai.
- E ʻimi koke i ke kōkua lapaʻau inā loaʻa iā ʻoe ke kuni, nā hōʻailona o ka maʻi, a i ʻole nā hōʻailona o ka hōʻino ʻia o ke akepaʻa (e like me ka melemele o ka ʻili/maka) i ka wā e lawe ana i ka lāʻau.
- Mai kaʻana like i kāu mau lāʻau lapaʻau i kuhikuhi ʻia me nā poʻe ʻē aʻe. E hahai mau i nā ʻōlelo a kāu kauka.
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