Loaʻa iā ʻoe a i ʻole kekahi o kou ʻohana ka Spinal Muscular Atrophy ( SMA ), kahi maʻi e hoʻonāwaliwali ai nā ʻiʻo o ka iwi kuamoʻo? Inā pēlā, ua kuhikuhi paha kāu kauka i kahi lāʻau lapaʻau i kapa ʻia ʻo Risdiplam. He lāʻau lapaʻau wai kēia āu e lawe ai. No laila, i kēia lā e kamaʻilio mākou e pili ana iā Risdiplam (inoa inoa: Evrysdi), pehea e hoʻohana ai, a me nā mea hiki iā ia ke hana, ma ke ʻano maʻalahi a maopopo.
I ka ʻōlelo maʻalahi, he aha ke ʻano o kēia lāʻau lapaʻau?
He lāʻau lapaʻau ʻo Risdiplam i hoʻohana ʻia e mālama i nā poʻe maʻi me kahi maʻi i kapa ʻia ʻo Spinal Muscular Atrophy (SMA) . Kōkua ia i ka kaohi ʻana i ka nāwaliwali mālie o nā ʻiʻo o ke kino ma muli o SMA.
ʻO ka mea nui loa, ʻaʻole kēia he lāʻau lapaʻau no ka maʻi, akā kōkua ia i ka kaohi ʻana i nā hōʻailona a hoʻomaikaʻi i ke ʻano o ke ola o ka mea maʻi.
Hiki i nā kauka ke kuhikuhi i kēia lāʻau lapaʻau no nā kūlana ʻē aʻe, no laila inā he mau nīnau kāu, e nīnau i kāu kauka e pili ana i ia mea.
Nā mea e pono ai ʻoe e haʻi i kāu kauka ma mua o ka hoʻohana ʻana i ka lāʻau lapaʻau
Ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau, pono ʻoe e hoʻomaopopo i kāu kauka e pili ana i kēia mau mea, no ka mea, he mea nui loa ia no kou palekana.
- E haʻi mai iā mākou inā he hopena maʻi kou iā Risdiplam a i ʻole kekahi lāʻau lapaʻau ʻē aʻe, meaʻai, a mea hoʻoluʻu paha .
- Inā hāpai ʻoe, a i ʻole e hoʻolālā ana e loaʻa koke kahi pēpē, e ʻoluʻolu e haʻi aku.
- Inā he makuahine hānai ʻoe, e hoʻomaopopo i kāu kauka e pili ana i kēia.
Ma muli o kēia ʻike, e hoʻoholo kāu kauka inā kūpono kēia lāʻau lapaʻau iā ʻoe a ʻaʻole paha.
Pehea pololei kaʻu e hoʻohana ai i kēia lāʻau lapaʻau?
ʻOiai he lāʻau lapaʻau wai kēia, pono ʻoe e akahele iki i ka wā e hoʻohana ai. E loaʻa iā ʻoe nā hopena maikaʻi loa inā hoʻohana pono ʻoe.
- He wai waha kēia. E lawe i ka nui e like me ke kauoha a kāu kauka.
- No ke ana ʻana i ka lāʻau lapaʻau, e hoʻohana wale i ka syringe waha kūikawā i hāʻawi ʻia me ka lāʻau lapaʻau . Mai hoʻohana i nā mea e like me nā teaspoon a i ʻole nā kīʻaha syrup mai ka lumi kuke.
- Ma hope o ka huki ʻana i ka nui o ka lāʻau lapaʻau i loko o ka syringe, pono e hāʻawi ʻia i ka mea maʻi i loko o 5 mau minuke .
- E noʻonoʻo ua lawe ʻoe i ka lāʻau lapaʻau i loko o ka syringe a hele e hana i kahi mea ʻē aʻe a ua hala ma mua o 5 mau minuke. Inā hana ʻia kēlā , e hoʻolei i kēlā mahele lāʻau lapaʻau a hoʻomākaukau i kahi mahele hou . Mai hāʻawi i ka mea kahiko.
- E lawe mau i kēia lāʻau lapaʻau ma hope o ka ʻai ʻana .
- E inu i ka wai ma hope o ka lawe ʻana i ka lāʻau.
- E hoʻomaʻamaʻa i ka lawe ʻana i kāu lāʻau lapaʻau i ka manawa like i kēlā me kēia lā. E lawe e like me ka mea a kāu kauka e ʻōlelo ai iā ʻoe.
- Mai ho'ōki koke i ka lawe ʻana i kēia lāʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
- Mai hoʻokuʻu i kēia lāʻau lapaʻau ma kou ʻili a i ʻole i loko o kou mau maka. Inā loaʻa iā ʻoe ma kou ʻili, e holoi pono i ka wahi me ke kopa a me ka wai. Inā komo i loko o kou mau maka, e holoi pono i kou mau maka me ka wai.
- Hāʻawi ʻia kēia lāʻau lapaʻau i nā pēpē hānau hou i kekahi manawa, akā ma lalo o ka mākaʻikaʻi koʻikoʻi loa.
| Inā ʻoe e poina i kahi lāʻau a lawe nui paha | |
|---|---|
| Inā ʻoe e poina i kahi lāʻau | Inā ʻoe e hoʻomanaʻo i loko o 6 mau hola o ka manawa āu e lawe mau ai i kāu pila, e lawe koke iā ia i kou hoʻomanaʻo ʻana. Akā inā ua hala ma mua o 6 mau hola , e kāpae i kēlā mahele āpau a lawe i kāu mahele aʻe i ka manawa maʻamau. Mai lawe i ʻelua mau mahele i ka manawa hoʻokahi. |
| Ka nui o ka lāʻau | Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, e kāhea koke aku i ke Kikowaena ʻIke Poisons Lahui ma ka Halemai Lahui ʻo Colombo . A i ʻole e hele i ka Emergency Treatment Unit (ETU) o ka haukapila kokoke loa. |
Nā mea e makaʻala nui ai i ka wā e lawe ai i ka lāʻau lapaʻau
I ka wā e hoʻohana ai i kēia lāʻau lapaʻau, e makaʻala i kēia mau mea no kou palekana a me ka palekana o kou ʻohana.
Nā lāʻau lapaʻau ʻē aʻe
Inā ʻoe e lawe ana i ka lāʻau lapaʻau maʻi diabetes, e like me ka metformin , e haʻi i kāu kauka . Eia kekahi, e hāʻawi i kāu kauka i kahi papa inoa piha o nā lāʻau lapaʻau ʻē aʻe āu e lawe nei (me nā lāʻau lapaʻau no nā kūlana ʻē aʻe, nā huaora, nā lāʻau lapaʻau kuʻuna, a me nā huahana lāʻau). E haʻi pū i kāu kauka inā ʻoe e puhipaka a inu waiʻona paha, no ka mea, hiki i kekahi mau mea ke launa pū me kēia lāʻau.
Ka hāpai ʻana a me ka hānau keiki ʻana
He mea nui loa kēia. E ʻoluʻolu e hoʻolohe pono i kēia.
- No nā wāhine: ʻOiai e lawe ana i kēia lāʻau lapaʻau a no 1 mahina ma hope o ka hoʻōki ʻana i ka lāʻau lapaʻauMai hāpai. Hiki i kēia lāʻau lapaʻau ke hōʻeha nui i kahi pēpē i hānau ʻole ʻia. Inā manaʻo ʻoe ua hāpai ʻoe, e haʻi koke i kāu kauka.
- No nā kāne: Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka helu sperm i kekahi mau kāne, kahi e paʻakikī ai iā lākou ke loaʻa nā keiki. Inā he mau nīnau kāu e pili ana i kou momona, e kamaʻilio me kāu kauka.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai ka lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki iā Risdiplam ke hana i kekahi mau hopena ʻaoʻao, ʻoiai ʻaʻole i loaʻa i nā kānaka a pau.
| Nā ʻano hopena ʻaoʻao | |
|---|---|
| Nā hopena ʻaoʻao e pono e hōʻike koke ʻia i ke kauka | |
| Nā hopena alerika | Nā hōʻailona e like me ka ʻulaʻula o ka ʻili, ka maneʻo, ka hives, ka pehu ʻana o ka maka, nā lehelehe, a i ʻole ke alelo. |
| Nā hopena ʻaoʻao ʻaʻole i koʻikoʻi pinepine, akā pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| Nā pilikia o ka ʻōnaehana hoʻoheheʻe | Paʻa ka ʻōpū, ka maʻi kahe, ka luaʻi. |
| Nā hiʻohiʻona maʻamau ʻē aʻe | Kuke, kuni, ʻeha waha, ʻeha puʻu. |
ʻAʻole i hoʻokomo ʻia nā hopena ʻaoʻao āpau i loko o kēia papa inoa. Inā ʻike ʻoe i kekahi mea ʻē aʻe ma waho aʻe o kēia mau mea, e kamaʻilio pū me kāu kauka e pili ana i kēlā.
Pehea e mālama ai i ka lāʻau lapaʻau?
No ka mālama ʻana i ka maikaʻi o ka lāʻau lapaʻau, pono e mālama pono ʻia.
- E mālama iā ia ma kahi palekana i hiki ʻole i nā keiki ke loaʻa .
- E mālama i ka lāʻau lapaʻau i loko o ka pahu hau . Akā, mai hoʻopaʻahau . Mai hoʻokuʻu i ka lāʻau lapaʻau e paʻahau.
- Ua hōʻea mai ka lāʻau lapaʻau.E mālama iā ia i loko o ka ʻōmole kumu.
- Ma hope o 64 mau lā o ka wehe ʻana i ka ʻōmole, e hoʻolei i nā lāʻau lapaʻau i koe. Mai hoʻohana.
He hōʻuluʻulu manaʻo wale nō kēia pepa ʻike. Inā he mau nīnau hou aku kāu e pili ana i kēia lāʻau lapaʻau, e ʻoluʻolu e kūkākūkā me kāu kauka.
Leka Lawe-Home
- He lāʻau lapaʻau ʻo Risdiplam no SMA, akā ʻaʻole ia he lāʻau lapaʻau no ka maʻi.
- E hoʻohana wale i ka syringe kūikawā i hāʻawi ʻia e ana i ka lāʻau lapaʻau, a e hoʻokomo i loko o 5 mau minuke ma hope o ka huki ʻana.
- E lawe mau i ka lāʻau lapaʻau ma hope o ka ʻai ʻana.
- Mai hoʻōki i ka lāʻau lapaʻau me ka ʻole o ke aʻo ʻana a kāu kauka.
- Mai hāpai i ka wā e lawe ana i ka lāʻau lapaʻau a no 1 mahina ma hope o ka hoʻōki ʻana. Pono nā kāne e kamaʻilio me kā lākou kauka e pili ana i ko lākou hānau keiki.
- E mālama i ka lāʻau lapaʻau i loko o ka friji, wehe, a hoʻolei aku i loko o 64 mau lā.
- Inā he mau pilikia a kānalua paha kāu, mai kānalua e kamaʻilio me kāu kauka.
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