Ke hiamoe nui nei hoʻi ʻoe i ke ao? A i ʻole ke manaʻo nei ʻoe e like me ʻoe e hāʻule ana a hāʻule i ka honua ke ʻakaʻaka ʻoe a i ʻole e kahaha? Ma nā ʻōlelo lapaʻau, kapa mākou i kēia ʻano ʻo Narcolepsy. No laila, ʻo kahi lāʻau lapaʻau kūikawā i hāʻawi ʻia e mālama i kēia ʻano ʻo Sodium Oxybate. Loaʻa ia ma ke ʻano he hopena. I kēia lā, e kamaʻilio mākou e pili ana i kēia lāʻau lapaʻau ma nā ʻōlelo maʻalahi, pehea e hoʻohana ai, nā mea e makaʻala ai, a me nā hopena ʻaoʻao.
He aha ka mea e hana maoli me kēia lāʻau lapaʻau?
I ka ʻōlelo maʻalahi, ʻo kēia lāʻau lapaʻau i kapa ʻia ʻo sodium oxybate ka mea e kaohi ai i kāu narcolepsy.
- Hiamoe i ke Ao: Hana kēia lāʻau lapaʻau ma ka hoʻopilikia ʻana i kou lolo a me ka hōʻemi ʻana i ka hiamoe i ke ao hiki ʻole ke kāohi ʻia. Kōkua kēia iā ʻoe e hiamoe maikaʻi i ka pō.
- Cataplexy: Loaʻa i kekahi poʻe ka nāwaliwali koke o nā ʻiʻo, e like me ka wā e ʻakaʻaka ai a i ʻole ke kahaha ʻia. Ua kapa ʻia kēia he cataplexy. Hiki i kēia lāʻau lapaʻau ke hōʻemi i ka hanana ʻana o ia mau hanana.
He lāʻau lapaʻau kēia i kauoha ʻia e ke kauka. ʻAʻole ia he lāʻau lapaʻau hiki iā ʻoe ke lawe iā ʻoe iho.
Nā mea āu e haʻi aku ai i kāu kauka ma mua o ka lawe ʻana i ka lāʻau lapaʻau
Inā loaʻa iā ʻoe kekahi o nā kūlana i helu ʻia ma lalo nei, e hōʻoia e haʻi i kāu kauka ma mua o ka hoʻomaka ʻana i kēia lāʻau lapaʻau. ʻAʻole kūpono kēia lāʻau lapaʻau no nā mea āpau. Hiki ke lilo i mea weliweli me kekahi mau kūlana.
| Kou kūlana a i ʻole kou ʻano maʻamau | No ke aha ʻoe e hoʻomaopopo ai i ke kauka? |
|---|---|
| Inā ʻoe e inu i ka waiʻona | He mea weliweli loa ka lawe ʻana i kēia lāʻau lapaʻau me ka waiʻona. Hiki iā ia ke hana i nā hopena hoʻoweliweli i ke ola, e like me ka hoʻopau ʻana o ka hanu. |
| Kaumaha, nā manaʻo pepehi kanaka, a i ʻole nā maʻi noʻonoʻo ʻē aʻe | Hiki i kēia lāʻau lapaʻau ke hoʻonui i kekahi mau maʻi noʻonoʻo, no laila he mea nui e ʻike ke kauka i kēia. |
| Nā maʻi hanu (e.g. Sleep Apnea) a i ʻole nā maʻi māmā | Hiki i ka lāʻau lapaʻau ke hoʻolohi i ka hanu ʻana. He mea weliweli kēia no kekahi mea i loaʻa mua nā pilikia hanu. |
| Maʻi akepaʻa a maʻi puʻupaʻa paha | Ma muli o ke komo ʻana o kēia ʻōkana i ke kaʻina hana o ka wehe ʻana i ka lāʻau lapaʻau mai ke kino, pono paha e hoʻololi i ka nui o ka lāʻau lapaʻau. |
| Inā loaʻa iā ʻoe ka maʻi puʻuwai, ke koko kiʻekiʻe, a i ʻole e ʻai ana i ka paʻakai haʻahaʻa | Loaʻa i kēia lāʻau ka nui o ka sodium (paʻakai), no laila hiki ke hoʻopilikia i ka poʻe me kēia mau kūlana. |
| He kūlana laha ʻole i kapa ʻia ʻo succinic semialdehyde dehydrogenase deficiency | He maʻi hoʻoilina laha ʻole kēia. ʻAʻole hāʻawi ʻia kēia lāʻau lapaʻau i ka poʻe me kēia maʻi. |
| Inā hāpai ʻoe, e hoʻāʻo ana e hāpai, a he makuahine hānai paha | Pono ʻoe e kūkākūkā me kāu kauka i nā hopena hiki ke loaʻa i kāu keiki i hānau ʻole ʻia a i ʻole ka pēpē hānai. |
Pehea e pono ai iaʻu ke hoʻohana i kēia lāʻau lapaʻau?
He ʻokoʻa iki ke ʻano o ka hoʻohana ʻana i kēia lāʻau lapaʻau, no laila e hahai pololei i kēia mau kuhikuhi.
- E hahai i nā ʻōlelo a kāu kauka: E lawe mau i ka nui like me ke kauoha a kāu kauka. E heluhelu pono i nā ʻōlelo aʻoaʻo ma ka lepili lāʻau.
- Ana pololei: E hoʻohana i ka syringe waha kūikawā a i ʻole ke kīʻaha ana e hele mai me ka lāʻau lapaʻau e ana. Mai hoʻohana i nā punetēpuni hale a i ʻole nā puna sopa. ʻAʻole lākou e hāʻawi iā ʻoe i kahi ana pololei.
- Ke hoʻomākaukau ʻana i ka lāʻau lapaʻau: Pono ʻoe e hoʻohui i ka nui o ka lāʻau lapaʻau i kuhikuhi ʻia me kahi wai liʻiliʻi a inu. E wehewehe kāu kauka pehea e hana ai i kēia.
- E lawe i ka ʻōpū ʻole: Pono e lawe ʻia kēia lāʻau lapaʻau ma ka liʻiliʻi he 2 mau hola ma hope o ka ʻai ʻana.
- ʻO ke kaʻina hana ʻelua mahele lāʻau: ʻO kēia ka mea nui loa. E haʻi ʻia iā ʻoe e lawe i ʻelua mahele lāʻau i ka pō.
1. Ka mahele mua: I ka wā hiamoe,E moe a inu i ka wā e moe ana.
2. Ka lua o ka mahele lāʻau: E lawe iā ia i 2.5 a 4 mau hola ma hope o ka mahele lāʻau mua. Pono paha ʻoe e hoʻonohonoho i kahi alarm no kēia.
- He aha inā e poina iaʻu kahi lāʻau? Inā e poina ʻoe i kahi lāʻau, e hōʻalo iā ia. E lawe wale i ka lāʻau aʻe i ka manawa i hoʻonohonoho ʻia. Mai lawe i ʻelua mau lāʻau i ka manawa hoʻokahi.
He aha inā lawe ʻoe i ka nui o ka lāʻau lapaʻau? (Overdose)
Inā manaʻo ʻoe ua lawe nui ʻoe i ka lāʻau lapaʻau, he pilikia ia. E kāhea koke i ke Kikowaena ʻIke Lahui no nā Poisons ma ka Halemai Lahui ʻo Colombo, a i ʻole e hele i ka ʻOihana Pilikia (ETU) o ka haukapila kokoke loa.
He mea nui loa: Nou wale nō kēia lāʻau lapaʻau. Mai kaʻana like me kekahi. He lāʻau lapaʻau kēia i hiki ke hoʻohana hewa ʻia, no laila he hewa hoʻopaʻi ka hāʻawi ʻana a kūʻai aku paha i kekahi.
Nā mea e makaʻala nui ai i ka wā e lawe ai i ka lāʻau lapaʻau
Pono ʻoe e noʻonoʻo nui e pili ana i kou palekana i ka wā e hoʻohana ana i kēia lāʻau.
- Hiamoe koke: Hoʻohiamoe loa kēia lāʻau lapaʻau iā ʻoe ma hope koke iho o ka lawe ʻana. No laila ua ʻōlelo ʻia e lawe i ka mahele mua ma mua pono o ka hiamoe ʻana. Mai hana i kekahi mea ʻē aʻe ma hope o ka lawe ʻana i ka lāʻau.
- Ka hoʻokele a me nā mīkini: Mai hoʻokele, hoʻohana i nā mīkini, a hana paha i kekahi mea ʻē aʻe e pono ai ka makaʻala no ka liʻiliʻi he 6 mau hola ma hope o ka lawe ʻana i ka lāʻau.
- E pale loa i ka waiʻona: E pale loa i ka inu ʻana i ka waiʻona i ka wā e lawe ana i kēia lāʻau lapaʻau. ʻO ka lawe pū ʻana i nā mea ʻelua hiki ke hana i nā kūlana weliweli e like me ka hopu ʻana o ka hanu.
- Nā ʻano e pili ana i ka hiamoe: He mea kūikawā kēia āu e ʻike ai me kēia lāʻau. E noʻonoʻo, lawe ʻoe i ka lāʻau a hiamoe. Akā me ka ʻike ʻole, ala ʻoe mai kahi moe, kuke, kāhea aku i kekahi, a hoʻokele paha i kahi kaʻa ('sleep-driving'). Akā i ke kakahiaka aʻe, ʻaʻole ʻoe e hoʻomanaʻo i kekahi o kēia. He mea weliweli loa kēia. Inā ʻike ʻoe i kekahi mea e like me kēia e hana nei iā ʻoe a i kou ʻohana paha, e haʻi koke i kāu kauka.
- Nā loli noʻonoʻo: Inā ʻike ʻoe a i ʻole kou ʻohana i kekahi mau loli i kāu ʻano, ke kaumaha hou a i ʻole ka hoʻonui ʻia ʻana o ke kaumaha, nā manaʻo pepehi kanaka, ka hopohopo nui, a i ʻole ka nalowale o ka hoʻomanaʻo, e hoʻomaopopo koke i kāu kauka.
He aha nā hopena ʻaoʻao e hiki ke loaʻa mai kēia lāʻau lapaʻau?
E like me nā lāʻau lapaʻau āpau, hiki i kēia ke loaʻa nā hopena ʻaoʻao. He koʻikoʻi kekahi o lākou, he mea maʻamau kekahi.
| ʻAno o ka hopena ʻaoʻao | Nā hōʻailona |
|---|---|
| Nā hopena ʻaoʻao koʻikoʻi e pono ai ke kōkua koke ʻana o ke kauka | |
| Nā hopena alerika | ʻŌhūhū ʻili, maneʻo, pehu o ka maka, nā lehelehe, ke alelo a i ʻole ka puʻu. |
| Ka kaumaha o ka ʻōnaehana nerve waena (CNS Depression) | Hanu lohi a papau paha, paʻakikī ka hanu ʻana, poniuniu loa, nalowale ka ʻike. |
| Nā loli noʻonoʻo a me ke ʻano | Hopohopo, hoʻomaha ʻole, hallucinations, manaʻo pepehi kanaka, hoʻonui i ke kaumaha. |
| ʻAneʻane hiamoe | Ke kani nui ʻana, ke ʻūʻū/kū ʻana a hoʻi hou i ka hanu ʻana i ka wā hiamoe, a me ka hiamoe nui i ke ao. |
| Hiamoe hele wāwae | Ke hele wāwae nei a i ʻole ke komo ʻana i nā hana ʻē aʻe me ka ʻike ʻole ʻia. |
| Nā hopena ʻaoʻao maʻamau e pono e hōʻike ʻia i ke kauka inā hoʻomau lākou | |
| ʻĒ aʻe | Ka pulu ʻana i ka moena, ka poniuniu, ka ʻeha poʻo, ka nele o ka makemake e ʻai, ka nausea, ka luaʻi. |
Hiki paha nā pilikia me nā lāʻau lapaʻau ʻē aʻe?
ʻAe. Hiki i kēia lāʻau lapaʻau ke launa pū me nā lāʻau lapaʻau ʻē aʻe.
E pale: E pale loa i ka waiʻona a me nā lāʻau hiamoe ʻē aʻe i ka wā e lawe ana i kēia lāʻau. ʻO ka lawe pū ʻana iā lākou hiki ke hoʻōki i kou hanu ʻana a hiki ke hoʻoweliweli i ke ola.
Eia kekahi, hiki ke loaʻa nā pilikia me nā lāʻau lapaʻau e hiki mai ana:
- Nā lāʻau lapaʻau no nā maʻi ʻaleka, nā ʻū, a me ke anu (Antihistamine)
- ʻO kekahi mau lāʻau lapaʻau no ke kaumaha (e like me Amitriptyline, Fluoxetine, Sertraline)
- ʻO kekahi mau lāʻau lapaʻau no ka maʻi epilepsy (e like me Phenobarbital)
- Nā lāʻau hoʻomaʻamaʻa laulā
- Nā lāʻau lapaʻau i hāʻawi ʻia e hoʻomaha i nā ʻiʻo i ka wā o ke ʻoki ʻana
- Nā lāʻau hoʻopau ʻeha (ʻoi aku ka morphine)
- Nā lāʻau lapaʻau e like me Divalproex sodium, Valproic acid
ʻAʻole i piha kēia papa inoa. No laila, e haʻi i kāu kauka e pili ana i nā lāʻau lapaʻau āpau, nā huaora, nā lāʻau lapaʻau lāʻau, a me nā mea hoʻohui āu e lawe nei.
Leka Lawe-Home
- E lawe mau i kēia lāʻau lapaʻau e like me ke kauoha a kāu kauka, ma ka nui kūpono, a i ka manawa kūpono. E hahai pono i ka papa hana ʻelua lāʻau i ka pō.
- Mai lawe pū me ka waiʻona a i ʻole nā lāʻau hiamoe ʻē aʻe no kekahi kumu. He mea weliweli loa ia.
- E makaʻala i nā ʻano hana ʻē e like me ka hiamoe hele wāwae a me ka hoʻokele hiamoe. Inā hana ʻia kēia, e hoʻomaopopo koke i kāu kauka.
- Inā ʻike ʻoe i nā loli i kou kūlana noʻonoʻo, ʻano, a i ʻole nā manaʻo pepehi kanaka, e ʻimi koke i ke kōkua lapaʻau.
- E mālama i kēia ma kahi palekana i hiki ʻole i nā poʻe ʻē aʻe ke kiʻi aku. Mai kaʻana like me nā poʻe ʻē aʻe.
👩🏽⚕️ Nā nīnau hou aku (FAQs)
💬 He aha ka mea e hoʻohana ʻia ai ʻo Sodium Oxybate (Sodium Oxybate / Xyrem)?
He mea i kāohi ʻia kēia (GHB) ʻaʻole i loaʻa ma nā hale kūʻai lāʻau maʻamau a he mea hoʻohaʻahaʻa CNS i hoʻokuʻu ʻia ma lalo o nā lula paʻa loa! Hoʻohana ʻia ia e mālama i kahi maʻi koʻikoʻi i kapa ʻia ʻo 'Narcolepsy'. ʻO ia hoʻi, nā maʻi e hāʻule koke i ka hiamoe hiki ʻole ke kāohi ʻia (Cataplexy) i ka wā e hele ana/e hoʻokele ana i kahi kaʻa, a me nā maʻi e ʻeha nei i ka hiamoe nui o ke ao (EDS).
💬 Pehea e kōkua ai kēia lāʻau lapaʻau (Sodium Oxybate) me ka narcolepsy?
ʻO ka mea ʻoiaʻiʻo, ʻaʻole ʻoe e lawe i kēia lāʻau lapaʻau i ke ao, akā ma mua o kou hiamoe ʻana i ka pō (a ala hou i waenakonu o ka pō)! ʻO ka hana a kēia, ʻo ia ke koi ʻana i ka mea maʻi i ka hiamoe hohonu (Slow-wave sleep) i ka pō (GABA-B Receptor Activation). Ke hiamoe pono ʻoe i ka pō, ua hoʻōla loa ʻia ka hiamoe hiki ʻole ke kāohi ʻia (EDS) a me ka cataplexy e hiki koke mai ana i ke ao.
💬 He aha nā hopena ʻaoʻao weliweli loa (Black Box Warning) o kēia lāʻau lapaʻau (Xyrem)?
He lāʻau lapaʻau kēia i pili pono i ka māhele 'Street Drugs / Date Rape Drug - GHB'! Inā ʻoe e lawe i kēia me ka waiʻona/nā lāʻau hiamoe, aia kahi manawa kiʻekiʻe o ka hanu ʻana a me ka make/coma! Eia kekahi, inā ʻoe e hoʻomau i ka lawe ʻana i kēia, hiki iā ʻoe ke loaʻa i ke kaumaha nui, ka hiamoe ʻana, a me ka psychosis (no laila, hoʻokuʻu wale ʻia kēia ma o kahi papahana REMS i hoʻopaʻa inoa ʻia).
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