He aha ka Soft Tissue Sarcoma? E kamaʻilio maʻalahi kākou e pili ana.

I kekahi manawa, ke ʻauʻau a hoʻololi paha i nā lole, loaʻa paha iā mākou kahi mea ma ko mākou kino i loaʻa ʻole iā mākou ma mua, e like me kahi puʻupuʻu. He mea maʻamau ke manaʻo iki i ka makaʻu i ka wā e hana ʻia ai kēlā. ʻOiai ʻaʻole weliweli nā puʻupuʻu āpau, pono e mālama ʻia kekahi o lākou. I kēia lā, e kamaʻilio mākou e pili ana i ka 'Soft Tissue Sarcoma', kahi maʻi ʻaʻai laha ʻole e pono e mālama ʻia. Mai makaʻu i kou lohe ʻana i kēia inoa, e wehewehe maʻalahi kākou i nā mea āpau e pili ana.

I ka ʻōlelo maʻalahi, he aha ka Soft Tissue Sarcoma?

ʻO 'Soft Tissue Sarcoma' kahi inoa maʻamau no nā puʻupuʻu kanesa e hana ʻia ana i loko o nā ʻiʻo palupalu o ko mākou kino. He ʻano kanesa kakaikahi kēia. I kēia manawa ke noʻonoʻo nei paha ʻoe i ke ʻano o ka ʻiʻo palupalu. He mea maʻalahi loa ia. ʻO ia ka ʻiʻo palupalu e hoʻopuni ana a kākoʻo i nā iwi a me nā ʻōpū o ko mākou kino.

E noʻonoʻo penei: Inā he hale ko kākou kino, ʻo nā iwi ke kiʻikuhi o ia hale. ʻO nā ʻiʻo palupalu nā paia, nā uwea, a me nā paipu e hoʻopuni ana i kēlā kiʻikuhi. Eia kekahi laʻana:

• ʻIʻo
• Momona kino
• Nā kīʻaha koko
• Nā kīʻaha lymphatic
• Nā aʻalolo
• Nā ʻūmiʻi
• Nā ligaments

ʻOiai aia nā ʻiʻo palupalu ma nā wahi āpau o ke kino, hiki i ka 'Soft Tissue Sarcoma' ke ulu aʻe ma nā wahi āpau o ke kino. Eia nō naʻe , ʻike pinepine ʻia ia ma nā wahi e like me nā lima, nā wāwae, ka umauma, a me ke kua o ka ʻōpū . ʻOi aku ka maʻamau i nā pākeke ma mua o nā keiki.

He aha nā ʻano nui o ka sarcoma palupalu?

Aia ma mua o 70 mau ʻano o kēia mau maʻi kanesa. Loaʻa i kekahi o lākou nā ʻano like ʻole. ʻAʻole pono ʻoe e ʻike e pili ana iā lākou āpau, akā e nānā kākou i kekahi o nā ʻano nui e hāʻawi iā ʻoe i kahi manaʻo.

He aha nā hōʻailona o kēia maʻi?

ʻO kēia ka ʻāpana koʻikoʻi loa. I ka hapa nui o ka manawa, ulu mālie loa kēia mau puʻupuʻu. No laila, ʻaʻole paha ʻoe e ʻike i kekahi mau hōʻailona no nā mahina, a hiki i nā makahiki. Eia nō naʻe, he mea nui loa ia e ʻike ʻoe i kēia mau hōʻailona:

• Ke ʻike ʻia kahi puʻupuʻu hou ma nā wahi a pau o ke kino a i ʻole e ulu koke ana kahi puʻupuʻu e kū nei.
• ʻEha paha ka puʻupuʻu (ʻaʻohe ʻeha i ka wā mua, akā a laila lilo ia i ʻeha).
• Inā e piʻi mālie ana ka ʻeha o ka ʻōpū .
• Nā ʻōpala ʻeleʻele a i ʻole ke koko i loko o ka ʻōpala.
• Ka luaʻi a me ka luaʻi .
• Ka pohō kaumaha i wehewehe ʻole ʻia .

No ke aha e ulu ai kēia mau ʻano maʻi kanesa? He aha nā kumu pilikia?

ʻAʻole ʻike ʻia ke kumu kikoʻī o kēia maʻi. Eia nō naʻe, ua ʻike ʻia hiki ke hana ʻia e kekahi mau hoʻololi genetic. Eia kekahi, aia kekahi mau kumu e hoʻonui ai i ka pilikia o ka hoʻomohala ʻana i kēia maʻi i kekahi poʻe.

ʻO kekahi mau maʻi hoʻoilina

He mau maʻi laha ʻole kēia. He mea nui e hoʻomaopopo i kāu kauka inā loaʻa i kekahi o kou ʻohana kēia mau maʻi.

• ʻO ka maʻi Li Fraumeni
• Neurofibromatosis ʻano 1 (von Recklinghausen maʻi)
• ʻO ka maʻi Gardner
• ʻO ka retinoblastoma hoʻoilina

Nā kumu pilikia ʻē aʻe

• Ma hope o ka loaʻa ʻana o ka radiation therapy no kekahi maʻi kanesa ʻē aʻe: He liʻiliʻi loa ka pilikia o ka hoʻomohala ʻana i kahi sarcoma ma kahi o ka mālama mua ʻana.
• Lymphedema: ʻO ia ke ʻano e pehu ai nā lima a i ʻole nā ​​wāwae no kekahi manawa lōʻihi ma muli o ke ālai ʻia ʻana o nā kīʻaha lymphatic.
• Ka ʻike ʻia ʻana i kekahi mau kemika: No ka laʻana, nā mea e like me ka vinyl chloride a me ka arsenic.

Pehea e ʻike pololei ai nā kauka i kēia maʻi?

Ke hele ʻoe e ʻike i ke kauka me kahi puʻupuʻu, e nīnau mua ʻo ia iā ʻoe e pili ana i kāu mau hōʻailona. A laila e nānā ʻo ia i ka puʻupuʻu. A laila e kauoha paha ʻo ia i kekahi mau hoʻokolohua e hōʻoia i ka maʻi.

1. Nā Hoʻāʻo Kiʻi (scans): Kōkua kēia i ka ʻike ʻana i ka nui, kahi, a me ke ʻano o ka puʻupuʻu.

• X-ray
• Nānā CT
• Nānā MRI
• Nānā PET

2. Biopsy: ʻO kēia wale nō ke ala e hōʻoia ai i ka maʻi 100% o ka manawa. Pili kēia i ka lawe ʻana i kahi ʻāpana liʻiliʻi loa o ka ʻiʻo mai ka puʻupuʻu a nānā iā ia ma lalo o kahi microscope. Hiki i kēia hoʻāʻo i nā kauka ke ʻike pono i ke ʻano o ka sarcoma, pehea ka mamao o kona laha ʻana ( kahua ), a pehea ka wikiwiki o kona ulu ʻana/laulaha ʻana ( pae ). He mea nui kēia ʻike no ka hoʻolālā ʻana i ka mālama ʻana.

He aha nā lāʻau lapaʻau?

ʻO ke ʻano nui a me ka lāʻau lapaʻau i hoʻohana pinepine ʻia no kēia, ʻo ia ke ʻoki ʻana e wehe loa i ka puʻupuʻu kanesa. Eia nō naʻe, ma muli o ke ʻano, ka nui, a me ka laha ʻana o ka puʻupuʻu, hiki ke hāʻawi ʻia nā lāʻau lapaʻau ʻē aʻe ma waho aʻe o ke ʻoki ʻana a i ʻole ma mua/ma hope o ke ʻoki ʻana.

• Lapaʻau radiation: Hāʻawi ʻia kēia lāʻau lapaʻau e hoʻēmi i ka puʻupuʻu ma mua o ke ʻoki ʻana a i ʻole e luku i nā hunaola kanesa e waiho ʻia ma hope o ke ʻoki ʻana.
• Chemotherapy: Nā lāʻau lapaʻau i hāʻawi ʻia e pepehi i nā hunaola kanesa. Hāʻawi ʻia kēia mau mea ma ke ʻano he mau pila a i ʻole nā ​​inikini.
• Lapaʻau i hoʻolālā ʻia: Nā lāʻau lapaʻau e hoʻolālā ana i nā molekala kikoʻī e hoʻopilikia ai i ka ulu ʻana o nā hunaola kanesa.
• Immunotherapy: He ʻano lapaʻau e hoʻoulu ai i ka ʻōnaehana pale ponoʻī o ko mākou kino e hakakā i nā hunaola kanesa.

E wehewehe kāu kauka iā ʻoe i ka lāʻau lapaʻau i kūpono loa i kou kūlana.

He aha nā mea e pono iaʻu e makaʻala ma hope o ke ʻoki ʻana?

Ke hoʻi ʻoe i ka home ma hope o ke ʻoki ʻana, pono ʻoe e mālama pono i ka wā e ho'ōla ai ka ʻeha. Inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, ​​e kāhea koke aku i kāu kauka a i ʻole ka haukapila.

• kuni (inā ʻoi aku ma mua o 38.4 degere Celsius).
• ʻEha nui ke hoʻopā aku i ka ʻeha ʻoki a i ʻole ka wahi e puni ana.
• Ke kahe nei kahi wai mānoanoa, keʻokeʻo/kirimi e like me ka pea mai ka ʻeha mai.
• Inā wehe ʻia nā sutures a hoʻonui ʻia paha ka hakahaka .
• ʻUlaʻula a ʻano ʻē paha o ka ʻili a puni ka ʻeha.

Eia kekahi, e hoʻomaopopo i kāu hui lapaʻau inā ʻoi aku ka ʻino o nā hopena ʻaoʻao o kāu lāʻau lapaʻau ma mua o ka mea i manaʻo ʻia. I kekahi manawa e kuhikuhi paha lākou iā ʻoe i ka mālama palliative, kahi hui o nā kānaka i hoʻomaʻamaʻa kūikawā ʻia e hiki ke kōkua iā ʻoe e hoʻokele i ka ʻeha a me ka ʻoluʻolu ʻole i hoʻokumu ʻia e kāu lāʻau lapaʻau.

He aha ka mea e hana ʻia ma hope o ka lāʻau lapaʻau? Hiki anei ke ho'ōla piha ʻia?

Hiki ke loaʻa kēia pilikia i kekahi. Inā ʻike ʻia ka maʻi kanesa i ka wā mua, ma mua o kona laha ʻana, a hoʻopau loa ʻia ma o ke ʻoki ʻana, hiki ke ho'ōla loa ʻia kēia maʻi.

Eia nō naʻe, i kekahi manawa hiki i kēia mau maʻi kanesa ke hoʻi hou mai. ʻO ia ke kumu he mea nui loa ka hoʻomau ʻana i nā hoʻokolohua hahai e like me ka ʻōlelo a kāu kauka, ʻoiai ma hope o ka mālama ʻana. ʻO ka maʻamau, hiki iā ʻoe ke loaʻa nā hoʻokolohua pinepine no nā makahiki 2-3 mua.

Ke loaʻa iā ʻoe kahi maʻi laha ʻole e like me kēia, he mea maʻamau ke manaʻo mehameha. Akā, aia kāu kauka a me ka hui lapaʻau e kākoʻo iā ʻoe. E kamaʻilio ākea me lākou e pili ana i nā nīnau a hopohopo paha āu. ʻO ka nui o kou ʻike e pili ana i kou maʻi a me ka lāʻau lapaʻau, ʻoi aku ka hilinaʻi iā ʻoe i kāu huakaʻi.