Ua manaʻo paha ʻoe ʻaʻole kou leo ponoʻī ke ʻōlelo ʻoe? Me he mea lā ua ʻū ʻia kou leo, haʻalulu, a puka mai paha me ka nui o ka hoʻoikaika. ʻAʻole kēia he maʻi anu a ʻāʻī paha. He maʻi laha paha ia i kapa ʻia ʻo spasmodic dysphonia . Mai makaʻu i ka inoa. I ka ʻōlelo maʻalahi, he maʻi ia i hoʻokumu ʻia e kahi pilikia me nā hōʻailona e hele mai ana mai ko mākou lolo i nā ʻiʻo e kāohi ana i ko mākou leo. I kēia lā, e kamaʻilio mākou e pili ana i ia mea ma ke ʻano maʻalahi hiki iā ʻoe ke hoʻomaopopo.
He aha nā hōʻailona nui o kēia maʻi?
Hiki i ke kanaka me kēia maʻi ke loli i ko lākou leo. E noʻonoʻo, ke hoʻāʻo nei ʻoe e kamaʻilio me kekahi, akā manaʻo ʻoe ʻaʻole hiki iā ʻoe ke kāohi i kou leo e like me kou makemake. ʻO kēia ka ʻike nui o kēia maʻi.
ʻIke pinepine ʻia nā hōʻailona i ka makahiki mua a ʻelua paha a laila noho mau ma ka pae like.
| Nā loli hiki ke loli i ka leo | He wehewehe maʻalahi |
|---|---|
| leo haʻalulu | Lilo ka leo i kaumaha a ʻoʻoleʻa. |
| Haʻalulu/Haʻalulu | Ke haʻalulu a me ke kūpaʻa ʻole o kou leo i ka wā e ʻōlelo ana. |
| Paʻa/Kūpilikiʻi | Puka mai nā huaʻōlelo me ka paʻakikī nui, me he mea lā e ʻōlelo ana ʻoe me ka puʻu i ʻū ʻia. |
| Hanu/Hāwanawana | I ka wā e ʻōlelo ana, me he mea lā he nui loa ka ea e puka mai ana mai loko mai o ka leo, me he mea lā e ʻōlelo ana ʻoe me ka hāwanawana. |
| ʻOkiʻoki | ʻAʻole hoʻomau ka leo, akā, ua māhele ʻia i loko o nā pahū pōkole. |
Akā ʻo ka mea kupaianaha, ʻoiai inā loaʻa iā ʻoe kēia mau pilikia i ka wā e ʻōlelo ana, hiki i kāu larynx ( pahu leo ) ke hana maʻamau i ka wā e hana ana i nā mea ʻē aʻe.
Eia kekahi laʻana, ʻaʻole paha ʻoe e ʻike i kēia mau hōʻailona ke hana ʻoe i kēia mau mea:
- I ka wā e uē ana
- I ka ʻakaʻaka ʻana
- I ka hanu ʻana
- I ka wā e hawanawana ana
- I ke mele ʻana
- I ka moni ʻana i kahi mea
No ke aha lā kēia e hana maoli nei?
Ke hoʻāʻo nei nā loea e ʻike pono i ke kumu o kēia. Akā ʻo ka manaʻo nui, he pilikia ia i loko o ka lolo . Loaʻa iā mākou kahi ʻāpana o ko mākou lolo i kapa ʻia ʻo ka basal ganglia . Kōkua kēia ʻāpana i ka hoʻomalu ʻana i nā neʻe ʻana o nā ʻiʻo o ko mākou kino. No laila, ma kēia kūlana i kapa ʻia ʻo Spasmodic Dysphonia, hoʻouna kēia ʻāpana o ka lolo i nā hōʻailona hewa a kūpono ʻole i nā ʻiʻo i loko o kā mākou mau kaula leo e hana ai i ko mākou leo.
Ma muli o kēia mau hōʻailona hewa, ʻūlū koke a ʻūlū paha nā ʻiʻo o kou larynx ke hoʻāʻo ʻoe e ʻōlelo. Hoʻoneʻe kēia i nā kaula leo i ke ʻano kūlohelohe ʻole, e loli ai kou leo i ke ʻano āu i ʻōlelo ai ma mua. Hana ʻia kēia me kou mana ʻole.
Ua hōʻike kekahi mau noiʻi i ka wā e piʻi ai ke kaumaha , hiki i kēia mau ʻiʻo ke lilo i mea hana hou aʻe. ʻO ke ʻano kēia e ʻike paha ʻoe i kahi loli i kou leo i nā lā āu e kaumaha nui nei.
Pehea e ʻike ai nā kauka i kēia maʻi?
Hiki ke paʻakikī ke ʻike i ka Spasmodic Dysphonia no ka mea ʻike ʻia ka larynx ma ke ʻano maʻamau ma nā hoʻokolohua e like me MRI a i ʻole CT scans. Eia kekahi, hiki ke like nā hōʻailona me nā maʻi ʻē aʻe.
No laila, pono ke kōkua o kahi hui o kekahi mau kauka e ʻike pololei i kēia.
- Neurologist: Nānā i ka lolo a me ka ʻōnaehana nerve e hoʻoholo ai inā mai ka lolo mai ka pilikia.
- Kauka ʻŌlelo: E aʻo pono i kou leo, ʻōlelo, a me nā ʻano ʻōlelo e hoʻomaopopo ai i ke ʻano o ka pilikia.
- He kauka lapaʻau otolaryngology (ENT):E nānā ʻia kou puʻu, larynx, a me nā kaula leo. He loea nō hoʻi kahi laryngologist ma kēia wahi. ʻO ka maʻamau, ʻike kēia mau loea i kēia maʻi.
E hoʻolohe mua kāu hui lapaʻau i kou leo. Eia kekahi, hiki i kāu kauka ENT ke hana i kahi hoʻokolohua kūikawā i kapa ʻia ʻo videostroboscopy . ʻO kēia ke komo ʻana i kahi ʻōmole liʻiliʻi i lako me ke kāmela ma kou ihu a i lalo i ke kua o kou puʻu, kahi e nānā ai lākou i kou mau kaula leo e neʻe ana ma kahi pale i kāu ʻōlelo ʻana. Hiki i kēia ke kōkua iā ʻoe e ʻike i nā ʻūmiʻi ʻiʻo kūpono ʻole.
He aha nā lāʻau lapaʻau no kēia?
ʻAʻohe "pila kilokilo" hiki ke ho'ōla loa i kēia maʻi. Akā, mai hopohopo, he nui nā lāʻau lapaʻau kūpono e hiki ke kōkua iā ʻoe e kāohi i kāu mau hōʻailona a ʻōlelo maʻamau.
| ʻAno lapaʻau | He aha ka mea e hana nei? |
|---|---|
| Nā inikini Botox | ʻO kēia ka lāʻau lapaʻau i hoʻohana pinepine ʻia a holomua hoʻi. Hoʻokomo kahi loea i kahi liʻiliʻi loa o Botox i loko o nā ʻiʻo o nā kaula leo. Hoʻonāwaliwali kēia i nā ʻiʻo no kekahi manawa a hoʻōki iā lākou mai ka ʻoni ʻana. Hoʻi ka leo i ka maʻamau. Eia naʻe, ʻo ka hopena o kēia he mau mahina wale nō. No laila, pono nā inikini hou. |
| Hoʻōla Leo | E aʻo aku kekahi mea lapaʻau ʻōlelo iā ʻoe i nā ʻano hana like ʻole a me nā hoʻomaʻamaʻa e hoʻololi i ke ʻano o kāu ʻōlelo ʻana, kaohi i kou hanu ʻana, a hoʻomaha i kou mau ʻiʻo. Hiki i kēia ke kōkua i ka hōʻemi ʻana i ka hopena o kāu mau hōʻailona. |
| ʻoki kino | I kekahi mau hihia, ua ʻōlelo ʻia ke ʻoki kino. ʻO SLAD-R kekahi ʻano hana. Pili kēia i ka ʻoki ʻana i nā aʻalolo e lawe ana i nā hōʻailona hewa mai ka lolo a hoʻopili hou iā lākou ma ke ʻano ʻē aʻe. ʻO Thyroplasty kekahi ʻoki kino e hoʻololi ai i nā kaula leo. Hana pinepine ʻia kēia inā ʻaʻole i holo pono nā lāʻau ʻē aʻe. |
| Nā lāʻau lapaʻau ʻē aʻe | ʻO nā lāʻau lapaʻau e hōʻemi i ke kaumaha a me nā lāʻau lapaʻau e like me ka hoʻokuʻu myofascial , ka mea e hoʻomaha ai i nā ʻiʻo ma ka ʻāʻī, hiki ke kōkua i kekahi poʻe. |
Pehea e ola maikaʻi ai me kēia kūlana?
ʻO ka mea mua, ʻaʻohe ala e pale aku ai i kēia maʻi. Eia kekahi, he maʻi ia no ke ola holoʻokoʻa. ʻOiai e hoʻomaikaʻi paha nā hōʻailona me ka mālama ʻana, hiki iā lākou ke hoʻi hou i ka hala ʻana o ka manawa. Akā, ʻaʻole pono ʻoe e ʻae iā ia e hōʻino i kou ola. Nui nā mea hiki iā ʻoe ke hana e ola i kahi ola kiʻekiʻe me kēia maʻi.
- Nā Pūʻulu Kākoʻo: E hui pū me nā poʻe e hele ana i ka mea like me ʻoe. Hiki iā ʻoe ke aʻo nui mai ko lākou mau ʻike a loaʻa ka hōʻoluʻolu.
- Kākoʻo mai nā poʻe aloha: E kamaʻilio ākea e pili ana i kēia me kou ʻohana a me nā hoaaloha. ʻO kā lākou kākoʻo a me ka hoʻomaopopo ʻana he kumu ikaika nui ia nou.
- Ola kino: Hiki i ke kaumaha a me ka luhi ke hoʻonui i kēia ʻano. No laila, e hoʻomaha nui, e hoʻomaha, a hana i nā mea e like me ka noʻonoʻo ʻana. He mea nui hoʻi e ʻimi i ke aʻo ʻana inā pono.
- Nā mea kōkua leo: Hiki iā ʻoe ke hoʻohana i nā mea e like me nā microphone (nā mea hoʻonui leo) e kōkua i kou leo e lohe maopopo ʻia.
ʻO ka mea nui loa, inā loaʻa iā ʻoe kekahi o kēia mau hōʻailona, mai hoʻowahāwahā iā lākou a e ʻike koke i kāu kauka . E kuhikuhi ʻo ia iā ʻoe i kahi loea inā pono.
Leka Lawe-Home
- ʻAʻole wale ka Spasmodic Dysphonia he ʻeha puʻu. He maʻi neurological ia e kū mai ana ma muli o nā hōʻailona o ka lolo.
- E makaʻala i nā hōʻailona e like me ka leo palahalaha, ka haʻalulu, ka leo palahalaha, a i ʻole ke kani ʻana o ka leo.
- No ka ʻike ʻana i kēia, pono ke kōkua o kahi hui lapaʻau, e like me ke kauka ENT a i ʻole ke kauka neurologist.
- ʻOiai ʻaʻohe lāʻau lapaʻau piha, hiki i nā lāʻau lapaʻau e like me nā inikini Botox a me ka hoʻōla ʻōlelo ke kaohi pono i nā hōʻailona.
- Inā he loli kou leo no ka manawa lōʻihi me ka wehewehe ʻole ʻia, e kamaʻilio pono me kāu kauka.
- ʻO ka mālama ʻana i ke kaumaha a me ka loaʻa ʻana o ke kākoʻo mai nā poʻe aloha he ikaika nui ia e ola ai me kēia maʻi.
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