Ke kani nei kāu keiki liʻiliʻi i kekahi manawa ke hanu lākou? A i ʻole ke ʻike nei ʻoe iā ʻoe iho e paʻakikī ana i ka hanu ʻana me ke kumu ʻole, me ka manaʻo ua ʻūmiʻi kou umauma? ʻOiai he nui ka poʻe e manaʻo nei he mea maʻamau kēia, i kekahi manawa he hōʻailona ia o kahi mea e hopohopo ai. I kēia lā e kamaʻilio mākou e pili ana i kekahi ʻano maʻi kakaʻikahi akā koʻikoʻi loa. Ua kapa ʻia ʻo Subglottic Stenosis. ʻOiai paha he mea weliweli iki ka inoa, e mālama kākou i ka maʻalahi.
He aha ka Stenosis Subglottic?
I ka ʻōlelo maʻalahi, ʻo Subglottic Stenosis kahi haʻahaʻa o ka ʻaoʻao o luna o ko mākou windpipe (trachea), ʻo ia hoʻi ka bronchi . Aia kēia ma lalo pono o ko mākou mau kaula leo. E like me ka inoa e hōʻike nei, ʻo "Subglottic" ʻo ia hoʻi ma lalo o nā kaula leo. ʻO "Stenosis" ʻo ia hoʻi ka haʻahaʻa.
ʻO ke ala maikaʻi loa e hoʻomaopopo ai i kēia me ka laʻana o kahi ʻōpala inu. E noʻonoʻo e inu ana ʻoe i ka wai mai kahi ʻōpala inu. Ke hāmama ka ʻōpala, hiki iā ʻoe ke inu maʻalahi i kahi wai. Akā he aha ka mea e hana ai inā ʻoe e hoʻopaʻa iki i ka ʻōpala a hoʻohaiki iā ia? E emi ana ka nui o ka wai e puka mai ana. Inā ʻoe e hoʻopaʻa hou aku, e emi nui ana ka nui o ka wai e puka mai ana, a i kekahi manawa e hoʻomaka ana ka wai liʻiliʻi e puka mai ana me ka walaʻau. ʻO ia ka mea e hana ai i kēia kūlana. Ke haiki ke ala ea, e emi ana ka nui o ka ea e komo i loko o nā māmā. Hiki i kēia ke hana i ka paʻakikī o ka hanu ʻana a me ke kani ʻūlū.
He mea maʻamau anei kēia kūlana?
ʻAʻole. He maʻi laha ʻole kēia. Hoʻopilikia ia i hoʻokahi i loko o ʻehā haneli tausani (400,000) mau kānaka. Nui paha ka poʻe i lohe ʻole i ia mea. Akā inā loaʻa iā ʻoe a i ʻole kāu keiki kēia mau hōʻailona, he mea nui e makaʻala iā ia.
He aha nā hōʻailona?
Hiki i kēia mau hōʻailona ke ʻoluʻolu, kaulike, a koʻikoʻi paha, ma muli o ke ʻano o ka haiki o ke ala ea. E nānā kākou pehea e ʻokoʻa ai kēia mau hōʻailona i nā keiki ʻōpio a me nā pākeke.
| Maʻi | Nā hōʻailona e ʻike ʻia |
|---|---|
| Nā kamaliʻi/pēpē |
|
| Nā mākua a me nā keiki makua |
|
No ke aha lā kēia e hana nei? He aha nā kumu?
Aia kekahi mau kumu o ka stenosis subglottic. I kekahi manawa, ʻaʻole hiki ke loaʻa ke kumu.
- ʻO Congenital Subglottic Stenosis: Hānau ʻia kekahi mau pēpē me kahi ala ea haiki. Hōʻike pinepine kēia i nā hōʻailona ma hope koke iho o ka hānau ʻana.
- ʻO ka Stenosis Subglottic i loaʻa: ʻO kēia ke kūlana maʻamau . ʻO ia hoʻi, ua haiki ke ala ea ma hope o ka hānau ʻana no kekahi kumu. Hiki ke hana ʻia kēia e:
- Ke noho ʻana ma luna o kahi ventilator no ka manawa lōʻihi: Hoʻokomo ʻia kahi kanaka maʻi loa i ka tube a hoʻopili ʻia i kahi ventilator e kōkua iā lākou e hanu. Inā pono lākou e noho ma luna o kahi ventilator no nā pule ʻelua a ʻoi aku, hiki i ka tube ke hōʻino i ka uhi palupalu o nā alaloa, e hana ana i nā ʻiʻo ʻeha a hoʻohaiki i nā alaloa i ko lākou ho'ōla ʻana.
- ʻEha i ke ala hanu: ʻO kahi ʻeha nui i ka ʻāʻī a i ʻole ka umauma hiki ke hōʻino i ke ala hanu.
- ʻO kekahi mau kūlana olakino: ʻO nā maʻi autoimmune kakaikahi loa a i ʻole nā kūlana e like me ka vasculitis hiki ke hoʻoulu i ka pehu a me ka ʻeha o nā ʻiʻo i loko o nā alaloa, e hoʻohaiki ana iā lākou.
- ʻO ka Idiopathic Subglottic Stenosis: I kekahi manawa, ʻoi aku hoʻi i nā pākeke, ʻaʻohe kumu maopopo e loaʻa ai no kēia ʻano. He mea maʻamau ia i nā wahine ma waena o 30 a me 60 mau makahiki .
Pehea e ʻike ai ke kauka i kēia maʻi?
Ke haʻi aku ʻoe i kāu kauka e pili ana i kēia mau hōʻailona, e hana ʻo ia i kahi hoʻokolokolo kino. E nīnau ʻo ia iā ʻoe e pili ana i kou mōʻaukala olakino a me nā hōʻailona. Inā kānalua ʻia ka stenosis subglottic, e kuhikuhi paha ʻo ia iā ʻoe i kahi loea pepeiao, ihu, a me ka ʻāʻī (loea ENT a otolaryngologist paha) . Hiki i ke loea ke hana i kekahi mau hoʻokolohua e hōʻoia i ke kūlana.
| Hoʻāʻo | I ka ʻōlelo maʻalahi... |
|---|---|
| Laryngoscopy maʻalahi | Ma kēia, ua hoʻokomo ʻia kahi ʻōmole lahilahi a palupalu me kahi kāmela liʻiliʻi ma ka hopena i lalo o ka puʻu e nānā i loko o ka larynx a me ka windpipe. |
| Hoʻāʻo Hana Pulmonary | He hoʻāʻo e ana i ka wikiwiki a me ka nui o ka ea hiki iā ʻoe ke hanu i loko a i waho. Inā emi ka holo ʻana o ke ea, he hōʻailona ia o ka haiki ʻana o nā ala ea. |
| ʻO ke kiʻi ʻikepili Computed Tomography (CT) | Hiki ke hana ʻia kahi CT scan e ʻike maopopo i ke ʻano o ke alaea, kahi o ka hāiki, a me kona nui. |
He aha nā lāʻau lapaʻau?
No ka mea he maʻi laha ʻole kēia, ʻaʻohe lāʻau lapaʻau hoʻokahi e kūpono i nā mea āpau. Aia ka lāʻau lapaʻau i nā mea e like me ka makahiki o ka mea maʻi, ke koʻikoʻi o ke ʻano, a me ke kumu.
No nā kūlana akahai
Inā ʻaʻole koʻikoʻi loa ke ʻano, ʻo ia hoʻi ua haiki iki ke ala ea, ʻaʻole paha e mālama koke kāu kauka iā ʻoe, akā e kau paha iā ʻoe ma ka nānā mau ʻana . ʻO ke ʻano kēia o ka nānā ʻana iā ʻoe i nā manawa maʻamau e ʻike ai inā e ʻoi aku ka ʻino o kou ʻano.
Nā lāʻau lapaʻau holomua hou aʻe
- Nā inikini Steroid:Hiki ke hoʻohana ʻia kēia ma ke ʻano he lāʻau lapaʻau mua. Ma kēia, hoʻomānoino ʻia ka ʻāʻī a me ke ala ea me ka anesthesia kūloko, a hāʻawi ʻia kahi inikini steroid ma o ka ʻāʻī i loko o ke ala ea i haiki. Hiki i kēia ke kōkua i ka hōʻemi ʻana i ka pehu a me nā ʻiʻo ʻeha. Hāʻawi pinepine ʻia kēia moʻo o nā inikini i kēlā me kēia 4-6 pule.
- ʻOki kino: Inā koʻikoʻi ke kūlana a ʻaʻole holomua nā lāʻau ʻē aʻe, pono paha ke ʻoki kino. Aia nā ʻano hana ʻoki kino like ʻole.
- Hoʻonui Endoscopic: Ma kēia, hoʻokomo ʻia kahi pōpō liʻiliʻi i loko o ka wahi i haiki ʻia me ka hoʻohana ʻana i kahi endoscope a hoʻopiha ʻia e hoʻonui i ka wahi. Eia naʻe, ʻaʻole kēia he hopena mau loa i ka hapa nui o nā hihia. Hiki i ka haiki ke hoʻi hou mai i ka hala ʻana o ka manawa, no laila pono paha e hana hou ʻia ke kaʻina hana.
- ʻO ka ʻoki ʻana o Cricotracheal: He ʻoki paʻakikī kēia. Ma kēia, ʻoki loa ʻia a wehe ʻia ka ʻāpana i haiki ma lalo o nā kaula leo, a hoʻopili hou ʻia nā ʻāpana olakino ʻelua i koe. Hiki i kēia ke hopena i kahi ho'ōla mau loa.
- ʻO ka Endoscopic Laryngotracheoplasty: Ma kēia ʻoki kino, ua hoʻoili ʻia nā ʻāpana o ke cartilage i lawe ʻia mai kahi ʻāpana ʻē aʻe o ke kino o ka mea maʻi (e laʻa, he iwi ʻaoʻao) i loko o ka wahi i haiki ʻia e hoʻonui i ke ala ea. Ua kapa ʻia kēia ʻo Laryngotracheal Reconstruction.
He mea maʻamau ke makaʻu i ka wā e ʻike ai ʻoe e pili ana i kēia maʻi. Akā e hoʻomanaʻo, aia nā lāʻau lapaʻau kūpono no kēia. ʻO ka mea nui loa, ʻo ia ke ʻimi i ke aʻo lapaʻau i ka manawa kūpono.
He aha ka mea e hana ʻia ma hope o ka lāʻau lapaʻau?
I ka hapanui o nā hihia, me ka mālama koke a kūpono, hiki ke hoʻomalu maikaʻi ʻia kēia maʻi, a i kekahi manawa hoʻōla ʻia. Eia nō naʻe, ʻo ka mea nui e hoʻomanaʻo ai, i kekahi manawa hiki ke hoʻi hou kēia maʻi . Inā hana ʻia kēia, he mea nui loa e ʻimi hou i ka lāʻau ma mua o ka ʻoi aku o ka ʻino o nā hōʻailona.
Āhea wau e ʻike ai i ke kauka?
Inā ua mālama ʻia ʻoe a i ʻole kāu keiki no ka Subglottic Stenosis a ʻike ʻoe e kū hou ana nā hōʻailona e like me ka paʻakikī o ka hanu ʻana a me ka wheezing (stridor), mai hoʻokaʻulua a e ʻike koke i kāu kauka. Hiki i ka ʻike mua ʻana ke kōkua i ka hoʻomalu ʻana i ke kūlana ma mua o ka lilo ʻana i mea ʻino. Eia kekahi, inā ʻike mua ʻoe i kēia mau hōʻailona, he mea nui e ʻimi i ka ʻōlelo aʻoaʻo lapaʻau ma mua o ka hoʻowahāwahā ʻana iā lākou e like me ka mea maʻamau.
Leka Lawe-Home
- He maʻi laha ʻole ka subglottic stenosis i hoʻokumu ʻia e ka haiki ʻana o ka ʻaoʻao o luna o ka ʻōpū makani.
- ʻO nā hōʻailona nui ka leo hū (stridor) a me ka paʻakikī o ka hanu ʻana.
- Hiki ke loaʻa kēia ʻano i kekahi, mai nā pēpē hānau hou a i nā pākeke.
- Inā loaʻa i kāu keiki a i ʻole ʻoe kekahi o kēia mau hōʻailona, mai hoʻowahāwahā iā lākou a e ʻike koke i ke kauka.
- Aia kekahi mau lāʻau lapaʻau kūpono no kēia, akā he mea nui e makaʻala i nā hōʻailona, no ka mea, hiki i ke ʻano ke hoʻi hou mai ma hope o ka lāʻau lapaʻau.
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