Ke ulu koke nei paha ʻoe i nā ʻulaʻula ʻeha ma kou ʻili a me ke kuni? Hiki paha iā ia ke ʻano he (Sweet Syndrome)!

Ua lohe paha ʻoe i ka maʻi (Sweet Syndrome)? Malia paha ke lohe ʻoe i kēia inoa, manaʻo ʻoe he maʻi kō ia, akā ʻaʻole. He mea kākaʻikahi loa kēia, ʻo ia hoʻi, ʻaʻole ia he maʻi i loaʻa i nā kānaka he nui. Akā, he ʻehaʻeha ia e ʻike koke ʻia ma ke kino, nā lima, nā wāwae, a me ka ʻāʻī, me ke kuni. E kamaʻilio hou anei kākou e pili ana i kēia? No ka mea, ʻoiai he mea kākaʻikahi ia, he mea pono ke ʻike ʻia.

He aha maoli ka (Sweet Syndrome)?

I ka ʻōlelo maʻalahi, ʻo Sweet Syndrome kahi maʻi mumū o ka ʻili. Hoʻomaka koke ia. ʻO nā hōʻailona nui he kuni nui, ʻulaʻula, ʻeha nā ʻeha ʻili, a i kekahi manawa he mau pehu liʻiliʻi. ʻIke pinepine ʻia kēia mau ʻeha ma nā lima, nā wāwae, ke kino o luna, a i kekahi manawa ma ka maka a me ka ʻāʻī. Ua kapa pū nā kauka iā ia he Acute Febrile Neutrophilic Dermatosis. ʻAʻole anei he inoa lōʻihi kēlā? ʻO ia hoʻi "he maʻi ʻili e pili ana i ke kuni koke e pili ana i kahi ʻano cell i kapa ʻia ʻo neutrophil." ʻO Neutrophils kahi ʻano cell koko keʻokeʻo i loko o kā mākou ʻōnaehana pale.

I kekahi manawa hiki ke loaʻa kēia (Sweet Syndrome) me nā maʻi ʻē aʻe. No ka laʻana, hiki ke ʻike ʻia i nā maʻi kanesa (Cancer), nā maʻi ʻōpū (Gastrointestinal Infections), a i ʻole i ka wā hāpai. Ua ʻike ʻia hoʻi hiki ke hana ʻia kēia maʻi e kekahi mau lāʻau lapaʻau a mākou e lawe ai. No ka laʻana, hiki i kekahi mau ʻano (Antibiotics), ʻo ia hoʻi, nā lāʻau pepehi bacteria, (e.g. (Co-trimoxazole (Bactrim™)) a me (NSAIDs) (Nonsteroidal Anti-inflammatory Drugs) nā mea hoʻomaha ʻeha (e.g. (Advil®)) ke hana i kēia.

ʻO ka mea maikaʻi loa, aia kahi lāʻau lapaʻau no kēia. ʻO ka hapa pinepine, ua kuhikuhi ʻia ke ʻano lāʻau lapaʻau (Corticosteroid) (e.g. (Prednisone)). Hoʻemi kēia mau lāʻau lapaʻau i ka mumū a kāohi i nā hōʻailona. Inā hana ʻia kēia e kahi maʻi kumu, a laila e hoʻomaikaʻi pū ka (Sweet Syndrome) ke mālama ʻia kēlā maʻi.

Pehea ka maʻamau o kēia ʻano?

He maʻi laha ʻole ka Sweet Syndrome. He kakaikahi wale nō nā hihia i hōʻike ʻia ma ka honua holoʻokoʻa. No laila, ʻaʻole ia he mea maʻamau ka lohe ʻana e pili ana i ia mea.

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ʻO wai ka mea kūpono loa e hoʻomohala i kēia?

Hiki i kēia "Sweet Syndrome" ke hiki i kekahi. Eia nō naʻe, e like me nā hōʻike , ʻoi aku ka maʻamau o kēia ʻano maʻi i nā wahine ma waena o 30 a me 50 mau makahiki. Eia naʻe, ʻaʻole ia manaʻo ʻaʻole hiki i nā kāne a i ʻole nā ​​​​kānaka o nā hui makahiki ʻē aʻe ke loaʻa iā ia.

He aha nā pilikia ʻē aʻe e hiki ke kū mai ma muli o ka (Sweet Syndrome)?

I kekahi mau hihia, hiki i ka Sweet Syndrome ke hoʻopilikia i nā mea ʻē aʻe ma mua o ka ʻili wale nō, akā hiki ke hoʻopilikia i nā ʻōnaehana kino ʻē aʻe o ke kino. No ka laʻana, hiki ke hoʻopilikia ʻia ka ʻōnaehana nerve a me ka ʻōnaehana gastrointestinal.

Eia nō naʻe, ʻo ka pilikia maʻamau ka pilikia o nā maka.Hiki i kēia ke komo pū me ka mumū o nā maka (ʻulaʻula, ʻeha), ka piʻi ʻana o ke kaomi o ka maka (glaucoma), a me ka ʻeha o ka cornea. No laila, he mea nui loa i kekahi me Sweet Syndrome ke mālama i ko lākou mau maka.

He aha nā kumu o ka (Sweet Syndrome)?

ʻO kaʻoiaʻiʻo, ʻaʻole i ʻike ʻia ke kumu kikoʻī o ka Sweet Syndrome. Eia nō naʻe, ua hoʻokaʻawale nā ​​​​kauka iā ia i ʻekolu mau ʻāpana nui e pili ana i ke ʻano o kona hanana ʻana:

1. Kaila kuʻuna

ʻO ka mea e hana ʻia ma kēia hihia, ʻo ia ka ʻike ʻia ʻana o ka "Sweet Syndrome" i ka manawa like me kekahi maʻi ʻē aʻe.

• Eia kekahi laʻana, hiki ke hele mai me nā maʻi hanu o luna e like me nā maʻi ʻāʻī a me nā maʻi māmā. E noʻonoʻo he anu nui kou, he kuni, a laila loaʻa koke iā ʻoe kēlā mau ʻulaʻula ʻili. Hiki paha ke like me ia.
• Hiki i kēia ke hana i ka wā hāpai no kekahi poʻe.
• Hiki ke pili pū me nā maʻi gastrointestinal (e.g., ʻeha ʻōpū, diarrhea).

2. Pili i ka maʻi ʻino

I kekahi manawa, pili ka Sweet Syndrome me kekahi mau ʻano maʻi kanesa . He ʻoiaʻiʻo loa kēia me nā maʻi kanesa e pili ana i ke koko e like me ka Acute Myeloid Leukemia. Hana ʻia kēia maʻi ʻili ma muli o nā loli i ke kino i hoʻokumu ʻia e ka maʻi kanesa.

3. (Hoʻoulu ʻia e ka lāʻau lapaʻau) ma muli o kekahi mau lāʻau lapaʻau

He mea nui nō hoʻi kēia. Hiki i kekahi mau lāʻau lapaʻau a mākou e lawe ai ke hana i ka "Sweet Syndrome".

• Kekahi mau ʻano (Antibiotics), no ka laʻana (Bactrim™) (nona ka (Co-trimoxazole)).
• Nā lāʻau hoʻopau ʻeha a me nā lāʻau anti-inflammatory i kapa ʻia ʻo "NSAIDs".
• He lāʻau lapaʻau i kapa ʻia ʻo Granulocyte Colony-Stimulating Factor (G-CSF). Hāʻawi ʻia kēia e hoʻoulu i ke kino e hana i kahi ʻano keʻokeʻo koko i kapa ʻia ʻo Neutrophil. ʻO kēia mau keena nā mea e hakakā ai i nā maʻi.

E noʻonoʻo, ma hope o kou hoʻomaka ʻana e lawe i ka lāʻau lapaʻau no kahi maʻi, inā loaʻa koke iā ʻoe ke kuni a me nā ʻulaʻula ma kou ʻili i loko o kekahi mau lā a i ʻole hoʻokahi a ʻelua paha pule, pono ʻoe e kānalua he hiki ke kumu o kēlā lāʻau lapaʻau.

He aha nā hōʻailona o ka (Sweet Syndrome)?

Hoʻomaka koke nā hōʻailona o ka "Sweet Syndrome". ʻO nā hōʻailona nui e ʻike ʻia:

• ʻIke ʻia nā puʻupuʻu ʻulaʻula ʻeha a i ʻole nā ​​pehu liʻiliʻi i piha i ka nahu ma ka maka, ka ʻāʻī, nā lima, a me nā wāwae. Aia paha kekahi a ʻoi aku paha o kēia mau ʻeha, a i kekahi manawa hiki iā lākou ke ulu pū.
• Nā ʻeha a i ʻole nā ​​​​​​pūpū ma ka ʻili a i kekahi manawa i loko o ka waha.
• ʻOle ke kala o ka ʻili: Hiki ke loli ke kala o nā wahi i hoʻopilikia ʻia i ka hala ʻana o ka manawa.
• Wela loa.Ke lawe nei. Aia paha ke kuni he 38 kekelē Celsius (100.4 Fahrenheit) a ʻoi aku paha.
• ʻEha ʻiʻo a me nā hono, ʻeha poʻo, a me ka luhi.
• He manaʻo maʻi maʻamau.

Inā ʻike koke ʻia kekahi a ʻoi aku paha o kēia mau hōʻailona, ​​ʻoiai inā hele pū lākou me ke kuni a me nā ʻeha ʻili ʻeha, ʻoi aku ka maikaʻi o ka ʻimi ʻana i ke kōkua lapaʻau.

Pehea ʻoe e ʻike ai inā loaʻa iā ʻoe ka (Sweet Syndrome)?

Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​e hana ke kauka i kahi hoʻokolokolo kino piha. E nīnau lākou iā ʻoe i nā nīnau he nui e pili ana i kāu mau hōʻailona, ​​​​e like me ka wā i hoʻomaka ai, inā he mau maʻi olakino ʻē aʻe kāu, a inā paha ʻoe e lawe nei i kekahi mau lāʻau lapaʻau.

I kekahi manawa, inā ʻaʻole lawa ka hoʻokolohua kino wale nō e hana i kahi hōʻailona, ​​​​hiki i kāu kauka ke ʻōlelo aku i kahi biopsy ʻili, ʻo ia hoʻi ka lawe ʻana i kahi ʻāpana liʻiliʻi o ka ʻili a hoʻouna iā ia i kahi lab e hoʻāʻo ʻia . Hiki i kēia ke kōkua i ka hoʻoholo ʻana inā loaʻa iā ʻoe ʻo Sweet Syndrome a i ʻole kekahi maʻi ʻē aʻe ma ka nānā ʻana i nā loli i loko o kou mau ʻili ʻili.

Eia kekahi, aia kekahi mau kumu ʻē aʻe e kōkua i ka hōʻoia ʻana:

• Loaʻa ke kuni ma luna o 38 kekelē Celsius (100.4 Fahrenheit).
• Hoʻomaikaʻi maikaʻi i nā lāʻau corticosteroid.
• I ka manawa like, loaʻa i ka maʻi ʻaʻai, kahi maʻi ʻē aʻe, a hāpai paha.
• Nā pae kiʻekiʻe ma ke ʻano ʻē o nā hōʻailona koko mumū.

Ma hope o ka noʻonoʻo ʻana i kēia mau mea a pau, ua hoʻoholo ke kauka ʻo ia ka "Sweet Syndrome".

He aha nā lāʻau lapaʻau no ka (Sweet Syndrome)?

ʻO ka nūhou maikaʻi, i kekahi manawa e nalowale ana ka Sweet Syndrome iā ia iho me ka ʻole o ka lāʻau lapaʻau. Eia nō naʻe, pono ka nui o ka poʻe i ka lāʻau lapaʻau.

ʻO ka lāʻau lapaʻau nui ka lāʻau corticosteroid systemic (e.g., prednisone). Hana kēia mau lāʻau lapaʻau ma ka hōʻemi ʻana i ka mumū i loko o ke kino a me ke kāohi ʻana i ka ʻōnaehana pale. Hoʻemi nā Corticosteroids i ka helu o nā hunaola koko keʻokeʻo a me nā ʻāpana ʻē aʻe o ka ʻōnaehana pale, e pale ana i ka hōʻino ʻana o nā ʻiʻo.

ʻO ka mea nui loa, ʻo ia ka lawe ʻana i kēia lāʻau lapaʻau e like me ke kuhikuhi a kāu kauka, ma ka nui i kuhikuhi ʻia, a no ka manawa i kuhikuhi ʻia. ʻAʻole ia he manaʻo maikaʻi e hoʻōki koke i ka lawe ʻana.

• Inā he kumu ʻē aʻe o ka Sweet Syndrome (e like me ka maʻi, ka maʻi kanesa), ʻo ka mālama ʻana i kēlā kūlana e hoʻoponopono paha i kēia mau pilikia ʻili.
• Inā ua hoʻoholo ʻia ua hoʻokumu ʻia kēia e kahi lāʻau lapaʻau (Drug-induced Sweet Syndrome), e hoʻomaka nā hōʻailona e hoʻopau ke hoʻōki ʻia ka lāʻau lapaʻau .

He aha ka mea e hana ʻia ma hope o ka lāʻau lapaʻau?

No nā kānaka he nui, ho'ōla nā ʻeha a me nā ʻeha o ka ʻili i hoʻokumu ʻia e ka Sweet Syndrome me ka ʻole o ka ʻōpala. He mea maikaʻi kēia. Eia nō naʻe, ma hope o ka nalowale loa ʻana o nā hōʻailona, ​​hiki ke hoʻomau ka hoʻololi ʻana o ka ʻili no kekahi mau mahina.Ke lilo mālie nei ia i mea maʻamau.

Hiki ke pale ʻia ka Sweet Syndrome?

ʻO ka mea pōʻino, ʻoiai ʻaʻole ʻike ʻia ke kumu kikoʻī o ka Sweet Syndrome, ʻaʻohe ala e pale aku ai. Ua ʻike mākou aia kekahi mau mea pilikia (e.g., kekahi mau lāʻau lapaʻau, kekahi mau maʻi), akā ʻaʻole i loaʻa i nā kānaka a pau.

He aha ka manaʻo no kekahi me kēia maʻi? (Manaʻo)

No ka hapa nui o nā kānaka, e pau koke nā hōʻailona o ka Sweet Syndrome a i ʻole me ka mālama ʻana i ke olakino. Hiki i nā hōʻailona ke mau no kekahi mau pule a i ʻole nā ​​mahina.

Eia nō naʻe, inā ua hoʻokumu ʻia ka Sweet Syndrome e kahi maʻi lapaʻau a i ʻole ka lāʻau lapaʻau, hiki ke hoʻomau nā hōʻailona no kekahi manawa. Hiki ke hoʻomau nā hōʻailona a hiki i ka mālama ʻia ʻana o ke kumu kumu a i ʻole ka hoʻōki ʻana i ka lāʻau lapaʻau.

Āhea ʻoe e ʻike ai i ke kauka?

Inā loaʻa iā ʻoe nā hōʻailona e like me nā mea i wehewehe ʻia ma kēia ʻatikala, ʻo ia hoʻi ka hoʻomaka koke ʻana o ke kuni a me nā kiko ʻulaʻula ʻeha, nā puʻupuʻu, a i ʻole nā ​​​​​​pehu ma kou ʻili, pono ʻoe e ʻike i ke kauka. Eia kekahi, inā ua ʻike mua ʻoe he Sweet Syndrome kou a me he mea lā e ʻoi aku ka ʻino o kāu mau hōʻailona, ​​​​a i ʻole inā loaʻa iā ʻoe nā hōʻailona hou, e haʻi koke i kāu kauka. ʻO ka loaʻa ʻana o ka lāʻau lapaʻau i ka wā mua e hiki ke kōkua i ka hōʻemi ʻana i ka pilikia o nā pilikia.

Leka Lawe-Home

• ʻO ka Sweet Syndrome kahi maʻi mumū laha ʻole e hoʻoulu ai i nā ʻeha ʻulaʻula ʻeha i ka ʻili me ke kuni koke.
• ʻOiai ʻaʻole ʻike ʻia ke kumu kikoʻī o kēia, hiki ke hana ʻia e kekahi mau maʻi, ka hāpai ʻana, a me kekahi mau lāʻau lapaʻau.
• ʻO nā hōʻailona nui ka wela, nā ʻulaʻula o ka ʻili, a me nā ʻehaʻeha o ke kino.
• Hiki ke loaʻa nā pilikia maka.
• Hiki ke mālama pono ʻia me nā corticosteroids. He mea nui hoʻi e mālama i ke kumu kumu.
• I ka hapanui o ka manawa, ho'ōla ia me ka ʻole o ka ʻeha, akā aia paha kahi loli i ke kala o ka ʻili no kekahi manawa.
• Inā loaʻa iā ʻoe kēia mau hōʻailona, ​​e ʻimi koke i ke kōkua lapaʻau.

Manaʻolana wau he mea pono kēia ʻike iā ʻoe. ʻOiai ke ʻano o kou kūlana olakino, he mea nui loa ka hoʻomaopopo pono ʻia e pili ana i ia mea.

ʻO ka Sweet Syndrome, ke kuni, nā ʻeha ʻili, nā maʻi dermatological, ka mumū, nā corticosteroids, nā maʻi laha ʻole