Ke haʻi aku kāu kauka iā ʻoe ua loaʻa i kāu keiki ka Type 1 Diabetes (T1D), he tausani mau nīnau paha kāu e holo nei i loko o kou manaʻo. He mea maʻamau ka noʻonoʻo ʻana i nā mea e like me, "No ke aha i hiki ai kēia i kaʻu keiki?", "He maʻi anei kēia no ke ola holoʻokoʻa?", "Pehea wau e hoʻokele ai i kēia?" Mai hopohopo. ʻAʻole ʻoe hoʻokahi. E kamaʻilio kākou e pili ana i nā mea āpau ma nā ʻōlelo maʻalahi, e hōʻoluʻolu i kou manaʻo.
I ka ʻōlelo maʻalahi, he aha ka maʻi diabetes type 1 (T1D)?
I ka wā ma mua, ua kapa ʻia kēia maʻi ʻo 'juvenile diabetes'. I ka ʻōlelo maʻalahi, he maʻi ola ka T1D ʻaʻohe lāʻau lapaʻau no ke ola holoʻokoʻa. Inā loaʻa i kāu keiki ka T1D, ʻaʻole hiki i kā lākou pancreas ke hana i ka hormone insulin koʻikoʻi.
E noʻonoʻo i ka insulin ma ke ʻano he kī e wehe ai i nā puka i nā ʻāpana o ko kākou kino. ʻO kēia kī, i kapa ʻia ʻo insulin, he mea nui ia no ke kō (glucose) a kākou e loaʻa ai mai ka meaʻai a kākou e ʻai ai e neʻe mai ke koko i loko o nā ʻāpana a hoʻohana ʻia ma ke ʻano he ikehu. No laila, ke nele ka insulin, ʻaʻole hiki i kēia kō ke komo i loko o nā ʻāpana a hōʻiliʻili i loko o ke koko. ʻO kēia piʻi ʻana o ke kō koko i kāohi ʻole ʻia e hiki ke hōʻeha nui i ko kākou mau kino nui, e like me ko kākou puʻuwai, nā puʻupaʻa, a me nā maka, i ka hala ʻana o ka manawa.
He ʻokoʻa kēia mai ka maʻi diabetes Type 2 (T2D). Hoʻopuka ka mea me T2D i ka insulin, akā ʻaʻole hiki i ke kino ke hoʻohana pono iā ia. I ka T1D, aneane ʻaʻohe insulin.
No ke aha i hiki mai ai kēia i kaʻu keiki?
He mea maʻamau ka hiki ʻana mai o kēia nīnau i kou manaʻo. Manaʻo nā loea he 'maʻi autoimmune' ka T1D. ʻO ke ʻano kēia, ʻo ka ʻōnaehana pale, ka mea e pale ai i ko mākou kino mai ka maʻi, e hoʻouka hewa a luku i kā mākou mau hunaola hana insulin ponoʻī. Hiki ke hana ʻia kēia kaʻina hana i loko o ke kino ma mua o ka hōʻike ʻana o ke keiki i kekahi mau hōʻailona.
ʻAʻole maopopo loa i ke kumu o ka hana hewa ʻana o ka ʻōnaehana pale ma kēia ʻano.
- Mana hoʻoilina: Hiki i nā genes ke pāʻani i kahi kuleana. No ka laʻana, inā loaʻa i kahi makua a i ʻole kaikaina paha ka T1D, ʻoi aku ka nui o ka loaʻa ʻana o kahi keiki iā ia. Akā, he mea kupanaha, ʻo 85% o nā keiki me ka T1D ʻaʻohe moʻolelo ʻohana o ka maʻi.
- Nā kumu o ke kaiapuni: ʻAe kēia iā mākou e noʻonoʻo he mea paha i ke kaiapuni, malia paha he mea e like me ka maʻi, ke kumu o kēia kaʻina hana autoimmune.
ʻO ka mea nui loa, ʻo ia ka hoʻomanaʻo ʻana ʻaʻole kēia he hewa o kekahi. ʻAʻole ia i hana ʻia ma muli o kekahi mea āu i hana ai a i ʻōlelo ai paha. A ʻaʻohe ala e pale aku ai i kēia.No laila, mai hoʻāhewa loa iā ʻoe iho.
He aha nā hōʻailona o ka maʻi diabetes type 1?
Hiki ke ʻike koke ʻia nā hōʻailona T1D. I kekahi manawa e ulu mālie kēia mau hōʻailona. E nānā inā hōʻike kāu keiki i kekahi o kēia mau hōʻailona. E nānā kākou i kēia pakuhi e kōkua iā ʻoe e hoʻomanaʻo i kēia mau hōʻailona.
| Hōʻailona | He wehewehe maʻalahi |
|---|---|
| Manaʻo makewai ʻē aʻe | ʻO ke kō koko kiʻekiʻe ke kumu o ka nalowale ʻana o ke kino i ka wai, no laila makemake ʻoe e inu wai i nā manawa a pau. |
| Mimi pinepine | Hoʻāʻo nā puʻupaʻa e hoʻoneʻe i ke kō keu mai ke koko ma o ka mimi, no laila pono ʻoe e mimi pinepine. |
| Ka pulu ʻana i ka moe | Inā hoʻomaka koke ke keiki i ʻike ʻole i ka maʻa o ka hoʻopī ʻana i ka moena ma mua e hoʻopī i ka moena i ka pō, he hōʻailona paha ia. |
| Manaʻo luhi loa | Manaʻo mau ke keiki i ka luhi a me ka hiamoe no ka mea ʻaʻole i loaʻa i nā ʻāpana ke kō e pono ai lākou e hana i ka ikehu. |
| ʻO ka emi ʻana o ke kaumaha ʻoiai ʻo ka ʻai maikaʻi ʻana | Ma muli o ka hiki ʻole ke hoʻohana ʻia ke kō no ka ikehu, hoʻomaka ke kino e puhi i nā ʻiʻo a me ka momona, a ʻo ia ka hopena i ka pohō kaumaha. |
| Nā loli i ke ʻano a me ke ʻano | Inā huhū maʻalahi ke keiki, hoʻomaha ʻole, a i ʻole ke ʻano kaumaha, he hōʻailona paha kēlā. |
| ʻAla hua ma ka hanu | Ke puhi ke kino i ka momona, hana ʻia nā kemika i kapa ʻia he ketones. Ke hōʻiliʻili kēia mau mea i loko o ke koko, hiki i kou hanu ke ʻala ʻono a me ka hua. He hōʻailona kēia o kahi maʻi weliweli. |
Akā, ʻaʻole e hōʻike nā keiki a pau i kēia mau hōʻailona a pau. I kekahi manawa, inā aia ke keiki i nā pae mua o T1D, ʻaʻole paha lākou e hōʻike i kekahi mau hōʻailona.
He aha ka mea e hana ʻia ma hope o ka hōʻoia ʻana? Ka mālama ʻana i kēlā me kēia lā
Ke hōʻoia ʻia ka maʻi, e hoʻouna ʻia ʻoe a me kāu keiki i kahi hui lapaʻau kūikawā. Hiki i kēia hui ke komo pū me kahi loea maʻi diabetes, kahi kumu aʻo maʻi diabetes, a me kahi meaʻai meaʻai. E haʻi lākou iā ʻoe i nā mea āpau e pono ai ʻoe e ʻike e pili ana i kēia huakaʻi. Aia kekahi mau mea koʻikoʻi e pono ai ʻoe e hana i kēlā me kēia lā.
1. Ke ana ʻana i nā pae kō koko
Pono ʻoe e nānā i nā pae kō koko o kāu keiki i nā manawa he nui i ka lā. Hana ʻia kēia me ka hoʻohana ʻana i kahi mea liʻiliʻi i kapa ʻia he glucometer. Hana ʻia ka hoʻāʻo ma ke hou ʻana i ka piko o ka manamana lima me kahi nila liʻiliʻi a lawe i kahi kulu koko. I ka wā mua, he mea paʻakikī paha kēia no ke keiki a me ʻoe, akā ma hope o kekahi manawa, e lilo ia i ʻāpana maʻamau o kou ola.
2. Ke hāʻawi ʻana i ka insulin
ʻOiai ʻaʻole hana ke kino i ka insulin, pono e hāʻawi ʻia ma waho. ʻAʻole hiki ke lawe ʻia ka insulin ma ke ʻano he pila, no ka mea, ua wāwahi ʻia i loko o ka ʻōpū. No laila, pono e hāʻawi ʻia ma ke ʻano he inikini . Pono e hāʻawi ʻia kēia inikini i nā manawa he nui i ka lā, ma mua o ka ʻai ʻana. E haʻi pololei ke kauka a me nā kahu maʻi iā ʻoe pehea e hana ai i kēia. I kēia manawa, aia nā ʻenehana hou e like me nā pamu insulin.
3. ʻAi a me ka hoʻoikaika kino
ʻO ka ʻai a me ka hoʻoikaika kino ʻelua mau ʻāpana koʻikoʻi loa o ka mālama ʻana i ka maʻi diabetes. Hiki iā ʻoe ke hana i kahi hoʻolālā maikaʻi ma ke kamaʻilio ʻana me kāu kauka a meaʻai meaʻai paha e pili ana i nā meaʻai maikaʻi nou, ka nui o kāu e ʻai ai, a me nā mea e makaʻala ai i ka wā e hoʻoikaika kino ai.
Āhea ʻoe e ʻimi ai i ke aʻo lapaʻau pilikia?
I ka wā e noho ai me ka maʻi diabetes, he mea nui e makaʻala i nā pilikia.
- Ke kō koko haʻahaʻa (Hypoglycemia): I kekahi manawa hiki i nā pae kō koko ke lilo i mea haʻahaʻa loa. Inā loaʻa i kāu keiki nā hōʻailona e like me ka hou nui ʻana, ka haʻalulu, ka huikau, a me ka maeʻele, e hāʻawi iā lākou i kahi mea kō (nā papa glucose, kahi punetune kō, a i ʻole kahi mea inu ʻono) i kēia manawa. E wehewehe kāu kauka i kēia iā ʻoe me nā kikoʻī.
- Hyperglycemia/DKA: Inā piʻi nui ke kō koko , hiki ke ulu mai kahi maʻi weliweli i kapa ʻia ʻo Diabetic Ketoacidosis (DKA). Inā loaʻa nā hōʻailona e like me ka ʻeha o ka ʻōpū, ka luaʻi ʻana, ka hanu wikiwiki ʻana, ka hiamoe nui ʻana, a me kahi ʻala hua i ka hanu , e lawe koke i ke keiki i ka Emergency Department (ETU) o ka haukapila kokoke loa.
Leka Lawe-Home
- ʻOiai he paʻakikī ka maʻi diabetes type 1, me ka mālama maikaʻi ʻana, hiki i kāu keiki ke ola i kahi ola hauʻoli, olakino, a maʻamau. ʻAʻole ʻoe hoʻokahi.
- ʻAʻole kēia he hewa o kekahi, no laila e pale i ka hoʻāhewa ʻana iā ʻoe iho.
- E hahai pono i nā kuhikuhi a kāu kauka a me ka hui lapaʻau. Mai makaʻu e nīnau i kāu mau nīnau, ʻaʻohe mea liʻiliʻi.
- He mea nui e kiaʻi mau i ke kō koko o ke keiki, e hoʻokomo i ka insulin i ka manawa kūpono, a e hāʻawi i ka meaʻai kaulike.
- E wehewehe i kēia kūlana i kāu keiki ma ke ʻano e hiki ai iā ia ke hoʻomaopopo. Inā ua ʻoi iki aʻe kāu keiki, e hoʻokomo iā lākou i ka hoʻokele. E kōkua nō hoʻi kēia i ka hilinaʻi iā ia iho o ke keiki.
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