Ua luhi mākou a pau i kekahi manawa. Manaʻo mau kekahi poʻe i ka luhi. Akā, ʻaʻole kēia e pili ana i ka luhi maʻamau. E pili ana kēia i kahi ʻano luhi ʻokoʻa loa a koʻikoʻi. Ua ʻike paha ʻoe i kēia. Manaʻo ʻoe ʻaʻohe ou ikaika, a ʻaʻole hiki iā ʻoe ke hana i kekahi mea, ʻoiai ma hope o ka hiamoe maikaʻi a me ka hoʻomaha ʻana i ka lā a pau? A laila e lilo kēia ʻatikala i mea nui loa iā ʻoe.
He aha ke ʻano o ka maʻi luhi mau loa (ME/CFS)?
Ua kapa ʻia kēia ma ke ʻano lapaʻau ʻo 'Myalgic Encephalomyelitis' / 'Chronic Fatigue Syndrome' (ME/CFS). I ka ʻōlelo maʻalahi, ʻaʻole kēia he luhi wale nō. He ʻano luhi hou kēia a koʻikoʻi e mau ana no 6 mau mahina ma ka liʻiliʻi . Hiki i kēia luhi ke koʻikoʻi loa a hiki ke paʻakikī ke hana i kāu mau hana maʻamau o kēlā me kēia lā, e like me nā hana hale a me ka hana.
ʻO ka mea nui loa, ʻoiai inā hoʻomaha a hiamoe maikaʻi paha ke kanaka me kēia maʻi, ʻaʻole e emi iho ka luhi.
Aia kekahi mau hiʻohiʻona kūikawā ʻē aʻe o kēia maʻi:
- ʻOiai ka hana iki ʻana e luhi ai ʻoe: ʻOiai inā ʻoe e hana iki i kahi hana kino, e like me ka hele wāwae ʻana i kahi mamao iki a i ʻole ka hana ʻana i kekahi mau hana hale, luhi loa ʻoe ma hope, ʻoiai hoʻi i ka lā aʻe . ʻEha kou kino a ʻoi aku kou luhi. Kāhea nā kauka i kēia ʻo 'post-exertional malaise'.
- Luhi ʻoiai ma hope o ka hiamoe ʻana: Ala aʻe ʻoe i ke kakahiaka me ka manaʻo ʻole ua hiamoe maikaʻi ʻoe i ka pō. Manaʻo ʻoe ua luhi ʻoe me he mea lā ua ala ʻoe i ka pō a pau. He mea maʻamau nō hoʻi ke ala pinepine ʻana i ka pō me ke kumu ʻole.
- Paʻakikī ke kālele: Hiki ke paʻakikī loa ke noho kālele ma kahi mea hoʻokahi a me ka hana ʻana i nā hana he nui. Hiki ke manaʻo ʻia ua uhi ʻia kou poʻo i ka noe.
- ʻOluʻolu ʻole i ke kū ʻana: Ke kū koke ʻoe mai kahi noho ʻana a i ʻole kahi moe ʻana, ke manaʻo nei ʻoe ua poniuniu a i ʻole ke uliuli nei kou mau maka? Ke manaʻo nei ʻoe e kuʻi ana kou umauma? Ke kū ʻoe no kekahi manawa, ʻoluʻolu ʻole loa ia, a makemake ʻoe e moe hou.
- Nā lā maikaʻi a me nā lā maikaʻi ʻole: Ua like kēia maʻi me ka roller coaster. I kekahi mau lā ua ʻoi aku kou maikaʻi, akā i kekahi mau lā ua ʻino loa ia. Akā e hoʻomanaʻo, ʻoiai i nā lā maikaʻi, ʻaʻole ʻoe e hoʻi hou i ka maʻamau.
ʻAʻohe lāʻau lapaʻau kūikawā no kēia, akā aia nā ʻano lāʻau like ʻole e kaohi ai i nā hōʻailona.
E aʻo anei kākou i kekahi mau ʻoiaʻiʻo hou aʻe e pili ana i kēia kūlana?
Hiki i kēia maʻi ke hoʻopilikia i kekahi. Hiki iā ia ke hoʻopilikia i nā keiki ʻōpio a me nā mākua ʻōpio. Eia nō naʻe, ʻoi aku ka maʻamau o ia i nā wahine ma waena o 40 a me 50 mau makahiki. ʻOi aku ka nui o ka loaʻa ʻana o kēia maʻi i nā wahine ma mua o nā kāne.
Loaʻa i ka hapa nui o nā kānaka nā hōʻailona ʻoluʻolu a i ʻole waena. ʻO ke ʻano kēia inā loaʻa iā ʻoe nā hōʻailona ʻoluʻolu, hiki paha iā ʻoe ke hana i kāu hana me kekahi paʻakikī. Inā loaʻa iā ʻoe nā hōʻailona waena, hiki paha iā ʻoe ke paʻakikī i ka neʻe ʻana a puni, a pono paha ʻoe e hiamoe i ke ao.
Eia nō naʻe, ma kahi o hoʻokahi i loko o ʻehā mau kānaka e loaʻa paha nā hōʻailona koʻikoʻi . Hiki i kēia ʻano koʻikoʻi ke like me ka hopena i ke ʻano o ke ola no kekahi me ke ʻano e like me ka lupus, ka maʻi puʻuwai, a i ʻole ka rheumatoid arthritis.
No ke aha e hiki mai ai kēia iā mākou? He aha nā kumu?
ʻAʻole maopopo i nā kauka ke kumu pololei o kēia maʻi, akā ua ʻike lākou i kekahi mau ʻano ʻē i ʻike ʻia i loko o ke kino o ka poʻe me kēia maʻi.
| Kumu kūpono | He wehewehe maʻalahi |
|---|---|
| Nā pilikia o ka ʻōnaehana pale | ʻOkoʻa ka hana a kekahi mau ʻāpana o ka ʻōnaehana pale o ka poʻe me ME/CFS, akā, ʻaʻole kēia he ʻōnaehana pale nāwaliwali e like me ka maʻi HIV/AIDS. |
| Nā pilikia hana ikehu | Lilo ia i mea paʻakikī no nā ʻāpana o kou kino ke hana i ka ikehu lawa. ʻO kēia ke kumu nui o ka luhi. |
| Nā ʻano ʻino o ka lolo | Hiki i nā scan e like me MRI a me CT ke hōʻike i kekahi mau loli i loko o ka lolo. Hiki iā lākou ke hōʻike i nā loli i nā pae hormone a me ka hana uila (nā nalu lolo) i loko o ka lolo. ʻAʻole kēia he mau loli mau loa. |
| Ke kahe koko a me ka hāʻule ʻana o ka pulse | Ke kū ʻoe i luna, hiki ke hāʻule kou koko a hiki ke piʻi aʻe kou puʻuwai. ʻO kēia ka mea e hoʻopōʻino ai iā ʻoe. |
| Ka predisposition genetic | Ua ʻike ʻia e ka noiʻi he maʻi genetic ko kekahi poʻe e loaʻa ai kēia maʻi. ʻO ke ʻano kēia, inā loaʻa i kekahi o kou ʻohana, ʻoi aku ka nui o kou loaʻa ʻana iā ia. |
| Nā maʻi a i ʻole nā maʻi ʻē aʻe | Hoʻomaka pinepine kēia maʻi ma hope o kahi maʻi, e like me ke anu, ka maʻi palū, a i ʻole ka ʻeha ʻāʻī. Hiki i nā mea hoʻolaha e like me ka maʻi Epstein-Barr a me nā bacteria o ka maʻi Lyme ke hoʻoulu iā ia. |
| Nā hormones a me nā kemika | Ua ʻike ʻia nā loli i nā pae o ka serotonin, kahi kemika koʻikoʻi o ka lolo, a me ka cortisol, kahi hormone pane i ke kaumaha, e hoʻopilikia i kēia mau hōʻailona. |
Pehea e ʻike ai au inā loaʻa iaʻu kēia maʻi?
ʻO kēia ka nīnau koʻikoʻi loa. E hoʻomanaʻo, ʻaʻole kēia he mea hiki iā ʻoe ke hoʻoholo hoʻokahi.
ʻO ka mea pōʻino, ʻaʻohe hoʻāʻo koko kikoʻī a i ʻole scan e hiki ke haʻi koke iā ʻoe inā loaʻa iā ʻoe kēia maʻi a i ʻole.
ʻO ka luhi nui kahi hōʻailona maʻamau o nā maʻi ʻē aʻe he nui, e like me ka maʻi diabetes, nā pilikia thyroid, a me ka anemia. No laila, ʻo ka mea mua a kāu kauka e hana ai, ʻo ia ke nānā inā loaʻa iā ʻoe kekahi mau maʻi like ʻē aʻe.
No laila, inā loaʻa iā ʻoe kēia mau hōʻailona, ʻo ka mea maikaʻi loa hiki iā ʻoe ke hana, ʻo ia ke ʻike koke i ke kauka kūpono a hana i kahi nānā olakino piha . E haʻi maopopo i ke kauka e pili ana i nā hōʻailona āpau āu e ʻike nei, e like me ka luhi, nā pilikia hiamoe, nā pilikia nānā, a me ka ʻeha o ke kino. E hana ʻo ia i nā hoʻokolohua e pono ai a e ʻike pololei i kou kūlana.
Leka Lawe-Home
- ʻAʻole wale ka luhi maʻamau ka maʻi luhi mau (ME/CFS). He luhi nui ia e mau ana no nā mahina ʻeono a ʻoi a hoʻopilikia i nā hana o kēlā me kēia lā.
- ʻO nā hōʻailona nui, ʻo ia ka luhi nui aʻe i ka lā aʻe ma hope o ka hana ʻana i kahi hana liʻiliʻi ('post-exertional malaise'), ka luhi me ka nānā ʻole i ka nui o kāu hiamoe, a me ka paʻakikī i ka noʻonoʻo ʻana.
- ʻOiai ʻaʻole ʻike ʻia ke kumu kikoʻī, ua manaʻo ʻia he pili ia i nā pilikia me ka ʻōnaehana pale, ka lolo, a me nā kaʻina hana hana ikehu.
- ʻOiai ʻaʻohe lāʻau lapaʻau kūikawā i kēia manawa, aia nā ʻano lāʻau like ʻole e hoʻokele i nā hōʻailona a hoʻomaikaʻi i ka maikaʻi o ke ola.
- ʻO ka mea nui loa: Inā kānalua ʻoe he mau hōʻailona kēia, mai hoʻoholo ʻoe iho, akā e ʻike pono i kāu kauka e loaʻa ai kahi hōʻailona pololei.
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