I kekahi mau lā, luhi loa mākou, ʻeā? Akā, ke loaʻa iā mākou ka hiamoe maikaʻi i ka pō a me ka hoʻomaha iki, e nalowale ana kēlā luhi. Akā, e noʻonoʻo, me ke kumu ʻole, ʻaʻohe mea nui ka nui o ka hoʻomaha āu e lawe ai, ua luhi loa ʻoe a lawe aku i kou ola? I kēia lā, e kamaʻilio mākou e pili ana i kahi maʻi e like me Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, a i ʻole ME/CFS no ka pōkole. ʻAʻole maopopo i nā kauka ke kumu o ia mea. Akā, manaʻoʻiʻo lākou he ʻoi aku ka nui o ka pilikia o kekahi poʻe i ka loaʻa ʻana. E nānā kākou i kēlā mau mea pilikia.
Pehea ka hopena o ka makahiki a me ke kāne?
ʻO ka mea kupanaha, ʻoi aku ka maʻamau o ka ME/CFS i nā wahine ma mua o nā kāne. ʻO ka ʻoiaʻiʻo, ʻehā manawa ka nui o ka loaʻa ʻana o nā wahine ma mua o nā kāne. No laila, inā he wahine ʻoe, he manaʻo maikaʻi e nānā iki aku i kēia.
He mea kākaʻikahi loa kēia maʻi i waena o nā kamaliʻi ʻōpio, akā ʻoiai i kēlā makahiki, ʻoi aku ka nui o ka loaʻa ʻana o nā kaikamahine i ia ma mua o nā keikikāne.
Inā mākou e nānā i nā pākeke, hoʻomaka pinepine kēia maʻi i nā poʻe ma waena o 30 a me 50 mau makahiki. I waena o nā kamaliʻi ʻōpio, ʻoi aku ka maʻamau o kēia ʻano ma ka poʻe ma waena o 13 a me 15 mau makahiki.
ʻAʻole kēia ʻike e manaʻo ʻaʻole i loaʻa i nā kāne a i ʻole nā hui makahiki ʻē aʻe kēia maʻi. Hōʻike wale ia i nā hui i ʻoi aku ka nui o ka pilikia ma ke ʻano helu.
Aia kekahi pilina hoʻoilina?
ʻAe, hiki ke lilo i mea hoʻoilina. Inā loaʻa i kekahi o kou ʻohana, e like me kou makuahine, makuakāne, a kaikaina paha, ka ME/CFS, aia paha ʻoe i kahi pilikia iki o ka loaʻa ʻana iā ia. I ka ʻōlelo maʻalahi, hiki ke hana ʻia kēia pilikia e ka nāwaliwali o nā genes a mākou e hoʻoilina ai mai ko mākou mau mākua.
Akā, ʻaʻole wale ke ʻano o nā genes ka mea nui ma ʻaneʻi. ʻO ka mea nui aʻe, ʻo ia ka pololei o ka "hoʻā ʻia" o kēlā mau genes. Ua like ia me ka hoʻā ʻana a me ka pio ʻana i ke kukui. Ua ʻike ʻia e ka noiʻi he loli ka hana ʻana o kēia mau genes i ka poʻe me ME/CFS, ʻoiai ma nā ʻāpana o ke kino e like me nā keʻokeʻo koko .
Eia kekahi laʻana, ua ʻike ʻia he mau genes e hoʻoulu ai i kā mākou ʻōnaehana pale a hoʻomākaukau iā ia e hakakā e "hoʻomau" mau ana a hana nui paha i loko o ke kino o kēia mau maʻi. ʻO ia ke kumu e luhi pinepine ai lākou a make.
ʻO ka pilina ma waena o nā genes a me ke kaiapuni
ʻAʻole wale nā maʻi i hoʻokumu ʻia e nā genes, akā, e nā kumu hoʻi i ke kaiapuni a mākou e noho nei. ʻO ia hoʻi:
- Nā maʻi bacteria
- Nā mea ʻawahia
- ʻO kā mākou ʻai
- Kaumaha nui
- ʻAno hoʻoikaika kino
Hiki ke hoʻokumu ʻia ʻo ME/CFS e nā kumu genetic a me ke kaiapuni . ʻO ke ʻano kēia, ʻoiai inā he predisposed genetic kekahi, hiki nō ke hoʻoulu ʻia e kahi mea e like me ka maʻi a i ʻole ke kaumaha nui.
Nā maʻi ʻē aʻe e hiki ke hana me kēia maʻi
ʻOi aku ka nui o ka poʻe me ME/CFS i loaʻa i nā maʻi ʻē aʻe. Hiki paha i kekahi maʻi ke hoʻonui i ka pilikia o ka loaʻa ʻana o ME/CFS. A i ʻole hiki paha i ka ME/CFS ke kumu o nā maʻi ʻē aʻe. ʻAʻole maopopo loa i nā kauka kēia pilina. E nānā kākou i kekahi o nā maʻi maʻamau.
| Kūlana | He wehewehe maʻalahi |
|---|---|
| ʻO ka Fibromyalgia | He kūlana e hoʻoulu ai i ka ʻeha ma ke kino holoʻokoʻa, ka luhi nui, a me nā pilikia hiamoe. |
| ʻO ka maʻi ʻōpū huhū (IBS) | He maʻi ʻōnaehana hoʻoheheʻe e hoʻoulu ai i ka ʻeha o ka ʻōpū, ka pehu ʻana, a me nā loli i nā hana ʻōpū (constipation a i ʻole ka diarrhea). |
| Nā ʻike kemika he nui | ʻO ka hypersensitivity o ke kino i nā ʻala a me nā kemika i ke kaiapuni holoʻokoʻa. |
| Nā maʻi Temporomandibular (TMD a i ʻole TMJ) | ʻEha a me nā pilikia hana ma ke hono o ka ʻāwae a me nā ʻiʻo nau. |
| ʻO ka cystitis interstitial | He kūlana e hoʻoulu ai i ka ʻeha ma ka ʻōpū mimi a i ʻole ke pelvis. |
| ʻO ka maʻi ma hope o ka haʻalulu | Nā hōʻailona mau (e like me ke poʻo ʻeha, ka dizziness) ma hope o kahi ʻeha poʻo. |
| ʻEha poʻo | ʻO nā poʻo ʻeha maʻamau i hoʻokumu ʻia e ke kaumaha. |
| ʻEha pelvic mau loa (i nā wahine) | ʻEha pelvic no ka wā lōʻihi i nā wahine. |
| ʻO ka prostatitis mau loa (i nā kāne) | Ka mumū lōʻihi a me ka ʻeha ma ka ʻōpū prostate i nā kāne. |
Inā loaʻa iā ʻoe kekahi a ʻoi aku paha o kēia mau hōʻailona, a inā hopohopo ʻoe a kānalua paha he ME/CFS paha kāu, e ʻoluʻolu e kamaʻilio me kāu kauka ʻohana e pili ana i ia mea. Mai hoʻāʻo ponoʻī ma ka ʻimi ʻana i ka ʻike ma ka pūnaewele. ʻO kāu kauka kahi maikaʻi loa e loaʻa ai ka ʻōlelo aʻoaʻo a me ke alakaʻi maikaʻi loa.
Leka Lawe-Home
- He ʻano hoʻonāwaliwali maoli ka Chronic Fatigue Syndrome (ME/CFS). ʻAʻole ia he "luhi" a "palupalu" paha.
- ʻOi aku ka nui o ka pilikia o nā wāhine, ʻoi aku hoʻi ka poʻe ma waena o 30-50 mau makahiki, i ka loaʻa ʻana o kēia maʻi.
- Inā ua loaʻa kēia maʻi i kekahi o kou ʻohana, hiki iā ʻoe ke loaʻa kahi pilikia hoʻoilina liʻiliʻi.
- ʻO ka loaʻa ʻana o nā maʻi ʻē aʻe, e like me fibromyalgia a i ʻole IBS, hiki ke hoʻonui i ka pilikia o ME / CFS.
- ʻO ka mea nui loa, inā he kānalua a hopohopo paha kāu e pili ana i kēia, mai hoʻoholo i kāu iho a nīnau koke i kāu kauka no ka ʻōlelo aʻo.
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