He aha kou manaʻo ke loaʻa iā ʻoe kahi mea e like me ka puʻu i loko o kou umauma? ʻO ka hapa nui o ka manawa, manaʻo mākou, "ʻAuē, ʻaʻole au e maʻi e like me kēlā i koʻu mau makahiki, he puʻu wale nō paha." ʻOiai inā he ʻōpiopio ʻoe, ʻaʻole paha ʻoe e noʻonoʻo e pili ana i ka maʻi kanesa. Akā i kēia lā, ʻo ka moʻolelo o kahi makuahine ʻōpio 31 makahiki i kapa ʻia ʻo Natoya Pascacio he moʻolelo ia e aʻo nui mai ana iā mākou a pau a lawe mai i ka ikaika nui i ko mākou mau naʻau.
ʻO wai kēia Natoya? He aha ka mea i hana ʻia iā ia?
He makuahine hoʻokahi ikaika ʻo Natoya no nā keiki ʻelua. I kona makahiki 31, ua ʻike ʻia ʻo ia he ʻano maʻi ʻaʻai umauma kakaʻikahi a ikaika hoʻi. Ua kapa ʻia ʻo ia he 'Triple-Negative Breast Cancer'. ʻO ka maʻamau, i ke kamaʻilio ʻana e pili ana i ka maʻi ʻaʻai umauma, ʻo nā wahine ma luna o 50 mau makahiki ka mea i loaʻa i ka pilikia kiʻekiʻe loa. Eia nō naʻe, ʻo kēia ʻano 'Triple-Negative' he mea maʻamau loa ia i waena o nā wahine ʻōpio ma lalo o 40 mau makahiki.
ʻO ka mea kupanaha loa e pili ana i kēia moʻolelo, ʻo ia kēia. Ua ʻike mua ʻo Natoya i kahi puʻupuʻu ma kona umauma i ka wā e hānai waiū ana i kāna pēpē. ʻOiai ʻaʻohe mea o kona ʻohana i loaʻa ka moʻolelo o ka maʻi kanesa, ʻōlelo mua nā kauka, "ʻAʻohe mea e hopohopo ai, ʻaʻole e ʻoi aku ka ʻino i kou mau makahiki, ʻaʻohe pono e hoʻāʻo."
E noʻonoʻo, he aha ka mea a ke kanaka maʻamau e hana ai ke ʻōlelo nā kauka i kēlā? "ʻĀ... a laila ʻaʻohe hewa," ʻeā? Akā, ʻaʻole i hana ʻo Natoya i kēlā. ʻĪ maila kona puʻuwai, "ʻAʻole, aia kekahi mea hewa ma ʻaneʻi." Ua kūʻē ʻo ia i ka ʻōlelo aʻo a nā kauka, a me ka paʻakikī nui, ua loaʻa iā ia kahi mammogram . Mai kēlā hoʻāʻo ʻana i ʻike maopopo ai ʻo ia he maʻi ʻaʻai kona. Ua hilinaʻi ʻo ia i kona puʻuwai, a ua hoʻopakele ʻia kona ola.
He aha ka maʻi ʻaʻai umauma Triple-Negative?
E hoʻomaʻalahi kākou i kēia. E noʻonoʻo i nā hunaola kanesa e like me ka ʻaihue e komo ana i loko o ka hale. Pono kēia ʻaihue i nā wahi e like me nā puka a me nā puka makani e komo ai i loko. Pēlā nō, hoʻohana ka nui o nā hunaola kanesa umauma i ʻekolu 'puka' kūikawā i kapa ʻia ʻo "nā mea loaʻa" e ulu, ʻo ia hoʻi, e ulu a laha.
ʻo lākou:
- Nā mea loaʻa Estrogen
- Nā mea hoʻokipa Progesterone
- ʻO ka mea hoʻokipa ulu Epidermal kanaka 2 (HER2)
He nui nā lāʻau lapaʻau kanesa a mākou e hāʻawi nei i kēia manawa e hana me he mea lā e laka ana i nā 'puka' e hiki ai i ka ʻaihue ke komo. ʻO ia hoʻi, hoʻōki lākou i ka hana o kēia mau mea loaʻa. A laila ʻaʻole hiki i nā hunaola kanesa ke ulu.
Eia nō naʻe, ʻo ka mea kūikawā o kēia ʻano 'Triple-Negative' ʻo ia ka loaʻa ʻole o nā 'puka' ʻekolu i ʻōlelo ʻia i loko o nā hunaola kanesa. ʻO ia ke kumu i kapa ʻia ai he "triple-negative". No ka mea, ua nalowale kēia mau 'puka', he mea paʻakikī i kēia mau lāʻau lapaʻau maʻamau ke kāohi i kēia kanesa. No kēia kumu, ulu koke kēia ʻano kanesa, pālahalaha koke , a ua kaupalena ʻia nā koho lapaʻau.
| ʻAno maʻi kanesa | ʻO nā 'puka' (nā mea loaʻa) i loko o ke kele kanesa | Nā koho lapaʻau |
|---|---|---|
| Nā maʻi kanesa Hormone Receptor-Positive | ʻEstrogen a me/a i ʻole progesterone | Hoʻopono maikaʻi i nā lāʻau lapaʻau i kuhikuhi ʻia e like me ka hormone therapy. |
| Nā maʻi kanesa me HER2 (HER2-Positive) | HER2 | Hoʻolohe maikaʻi ka HER2 i ka lāʻau lapaʻau i hoʻolālā ʻia. |
| Kanesa ʻAʻai ʻEkolu-Nino | ʻAʻohe o nā mea loaʻa ʻekolu i luna. | Ua kaupalena ʻia nā koho lapaʻau, ʻo ka chemotherapy hoʻi. |
Ka huakaʻi lapaʻau paʻakikī a Natoya
ʻAʻole maʻalahi ka mālama ʻana i ia ʻano maʻi kanesa koʻikoʻi. Ua pono ʻo Natoya e kū i nā ʻano lāʻau lapaʻau paʻakikī loa.
- Kemotherapy intravenous: He ʻano lāʻau lapaʻau ikaika loa kēia no ka maʻi kanesa. Hāʻawi ʻia ia e pepehi i nā hunaola kanesa ma ke kino holoʻokoʻa.
- Lumpectomy: ʻO kēia ka wehe ʻana i ka puʻupuʻu kanesa a me kahi liʻiliʻi o nā ʻiʻo olakino a puni, me ka ʻole o ka wehe ʻana i ka umauma holoʻokoʻa.
- Lapaʻau Radiation: Ma hope o ke ʻoki ʻana, hoʻohana ʻia nā kukuna ikehu kiʻekiʻe e luku i nā hunaola kanesa i koe. Ua loaʻa iā Natoya he 25 mau pōʻai o kēia.
- Kemotherapy Waha: Ma waho aʻe o nā lāʻau lapaʻau intravenous, pono pū ʻo ia e hoʻohana i ka chemotherapy waha.
ʻOi aku ka nui o nā pilikia o ke ola ma mua o ka maʻi kanesa
He mau pilikia nui ʻē aʻe ko Natoya i kona ola, ʻoi aku ka nui ma mua o ka hoʻomanawanui ʻana i ka ʻeha o kēia mau lāʻau lapaʻau. E noʻonoʻo, pono ʻo ia e hemo i kāna kāne he 12 mau lā ma mua o kona ʻike ʻia ʻana he maʻi kanesa. Pehea ka paʻakikī no kahi makuahine hoʻokahi me nā keiki ʻelua ke alo i kēlā maʻi make mehameha?
ʻAʻole wale ia, ua hana ʻia kēia mau mea a pau i ka wā i ʻeha ai ka honua i kahi maʻi ahulau. ʻAʻole hiki iā ʻoe ke hele i waho, ʻaʻole hiki iā ʻoe ke hālāwai me nā kānaka. Akā, ʻaʻole i haʻalele ʻo Natoya. ʻO kona ikaika nui loa, ʻo ia kona hoʻomana a me kāna mau keiki ʻelua. Eia kekahi, ʻo kāna mau hoaaloha, nā kānaka o ke kaiāulu āna i noho ai, a me kāna `therapist` (kākāʻōlelo noʻonoʻo) he kumu ikaika nui nona.
ʻO Natoya kekahi kanaka i ʻae ʻole i ka maʻi kanesa e kāohi i kona ola. Ua hakakā ʻo ia i ka maʻi, ua ʻeha ʻo ia, akā ma o ia mea a pau, ua puka mai ʻo ia ma ke ʻano he wahine ikaika.
Leka Lawe-Home
- E hoʻolohe i kou kino: ʻO kēia ka haʻawina nui loa hiki iā kākou ke aʻo mai ka moʻolelo a Natoya. Inā ʻike ʻoe i kahi loli ʻē i kou kino, ʻoiai he puʻupuʻu i loko o kou umauma, mai hoʻowahāwahā iā ia a ʻōlelo, "He mea wale nō kēia."
- ʻAʻole he kumu ka makahiki: Mai manaʻo ʻoe ʻo ka ʻōpiopio ʻana ʻaʻole ʻoe e loaʻa i ka maʻi ʻaʻai umauma. Hiki i kekahi mau ʻano kakaikahi ke ulu i nā poʻe ʻōpio, no laila e mālama mau i kou kino.
- E ʻimi i ke aʻo lapaʻau me ka makaʻu ʻole: Inā he kānalua kou, e ʻike koke i kāu kauka . E nīnau a hiki i ka pau ʻana o kou kānalua. Mai makaʻu e kiʻi i ka manaʻo ʻelua inā pono.
- ʻAʻole ʻoe hoʻokahi: He mea nui loa ka ʻimi ʻana i ke kākoʻo mai ka ʻohana, nā hoaaloha, a, inā pono, he kākāʻōlelo i ka wā maʻi. He kumu ikaika nui kēia nou.
- Mai hoʻokuʻu i ka manaʻolana: E kū i nā pilikia me ka manaʻolana maikaʻi a me ka ikaika e like me Natoya. ʻOiai ke paʻakikī o nā manawa e hiki mai ana i ke ola, e hoʻomau i ka manaʻolana.
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