Koj puas muaj mob Sickle Cell Disease? Yog li ntawd, yog tias koj mob hauv siab, tsis txhob ua si! Qhov no yog hais txog Acute Chest Syndrome!

Puas muaj tej lub sij hawm koj mob hauv siab thiab ua pa nyuaj? Yog tias koj muaj cov tsos mob no nrog rau hnoos thiab kub taub hau, tshwj xeeb yog tias koj muaj tus mob hu ua Sickle Cell Disease (SCD) , tsis txhob xav tias qhov no yooj yim. Cov tsos mob no yuav yog ib qho cim ntawm tus mob hnyav dua hu ua Acute Chest Syndrome. Tsis txhob txhawj, peb yuav tham txog qhov no kom meej thiab yooj yim hnub no.

Acute Chest Syndrome yog dab tsi? Hais yooj yim xwb...

Zoo, tam sim no saib. Qhov 'Acute Chest Syndrome' no yog ib qho teeb meem loj heev ntawm tus kab mob sickle cell ('SCD') . Hais yooj yim xwb, nws yog thaum koj mob hauv siab, hnoos, kub taub hau, cov pa oxygen tsawg hauv koj cov ntshav, thiab tej yam tsis zoo, tshwj xeeb yog cov kua dej, pib sib sau ua ke hauv cov nqaij ntsws ('lung infiltrates').

Qhov mob no tuaj yeem loj hlob sai heev . Qhov tseeb, qhov 'Acute Chest Syndrome' no yog ib qho ua rau cov neeg mob uas muaj kab mob sickle cell raug mob thiab qee zaum tuag. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum paub txog qhov no.

Tam sim no tej zaum koj yuav xav paub tias Kab Mob Ntshav Qab Zib Sickle Cell (SCD) yog dab tsi. Cia peb nco ntsoov koj me ntsis txog nws. Nws yog ib qho kab mob caj ces . Qhov ntawd txhais tau tias nws yog los ntawm noob caj ces. Nws cuam tshuam rau cov protein hauv peb cov qe ntshav liab hu ua hemoglobin . Thaum ib tus neeg noj qab haus huv cov qe ntshav liab yog puag ncig, cov qe ntshav liab ntawm ib tus neeg uas muaj SCD yog zoo li ib tug sickle (zoo li lub crescent). Yog li cov qe ntshav liab zoo li no tsis tuaj yeem hla dhau peb cov hlab ntsha nyias nyias tau yooj yim. Tom qab ntawd, hemoglobin tsis tuaj yeem nqa oxygen thoob plaws lub cev kom raug. Qhov no yog qhov teeb meem tseem ceeb nrog SCD.

Mob Acute Chest Syndrome feem ntau tshwm sim li cas?

Qhov tseeb, 'Acute Chest Syndrome' yog ib qho mob uas pom ntau heev ntawm cov neeg uas muaj tus kab mob sickle cell ('SCD'). Raws li cov ntaub ntawv txheeb cais, kwv yees li ib nrab ntawm cov neeg uas muaj 'SCD' yuav muaj tus mob no tsawg kawg ib zaug hauv lawv lub neej . Txawm hais tias nws zoo li feem ntau tshwm sim rau cov menyuam yaus hnub nyoog ntawm 2 thiab 4 xyoos , nws tuaj yeem hnyav dua rau cov neeg laus dua li cov menyuam yaus . Kuj tau pom tias cov neeg uas muaj 'SCD' thiab mob hawb pob muaj feem yuav mob 'Acute Chest Syndrome' ntau dua li lwm tus.

Vim li cas thiaj muaj mob Acute Chest Syndrome? Dab tsi yog cov ua rau mob?

Cov kws tshawb fawb tseem tsis tau hais meej tias yog dab tsi ua rau muaj 'Acute Chest Syndrome'. Tab sis lawv ntseeg tias nws yuav yog los ntawm ib lossis ntau yam. Cia peb saib seb lawv yog dab tsi:

• Cov pob txha necrosis:Koj puas paub tias cov pob txha yog qhov mos mos, zoo li daim ntaub hauv peb cov pob txha loj? Yog tias cov pob txha no tuag qee yam (uas hu ua 'necrosis'), cov khoom me me ntawm nws tuaj yeem tawg thiab nkag mus rau hauv cov ntshav thiab mus ncig thoob plaws lub cev. Yog tias cov khoom no mus rau lub ntsws, nws tuaj yeem ua rau muaj 'Acute Chest Syndrome'.
• Kev txhaws ntawm cov rog: Lwm qhov ua rau cov pob txha tsis ua haujlwm zoo li tau hais los saum toj no yog kev txhaws ntawm cov rog . Hais yooj yim xwb, qhov no yog thaum cov rog me me (xav txog nws zoo li ib tee roj) daig hauv cov hlab ntsha thiab thaiv cov ntshav ntws . Qhov no kuj tuaj yeem ua rau mob Acute Chest Syndrome.
• Kev Kab Mob : Ntau yam kev kis kab mob, tshwj xeeb tshaj yog mob ntsws uas tshwm sim los ntawm cov kab mob lossis cov kab mob virus , tuaj yeem ua rau mob hauv siab. Kev kis kab mob yog qhov ua rau muaj tus mob no rau cov menyuam yaus . Txawm li cas los xij, rau cov neeg laus , nws yuav tshwm sim los ntawm cov rog embolism.

Cov tsos mob ntawm ib tus neeg uas muaj Acute Chest Syndrome yog dab tsi?

Cov tsos mob ntawm 'Acute Chest Syndrome' yuav txawv ntawm ib tus neeg mus rau ib tus neeg. Muaj qee qhov sib txawv, tshwj xeeb tshaj yog ntawm cov menyuam yaus thiab cov neeg laus. Cov menyuam yaus feem ntau qhia cov tsos mob ntawm kev kis kab mob feem ntau:

• Hnoos
• Ua npaws
• Txo cov pa oxygen hauv cov ntshav (hypoxemia)
• Ua pa ceev heev (tachypnea)
• Ua pa nrov nrov (lub suab los ntawm hauv siab thaum ua pa)

Cov neeg laus kuj tuaj yeem muaj cov tsos mob no. Tsis tas li ntawd, koj kuj tseem yuav pom:

• Mob hauv siab , tshwj xeeb tshaj yog thaum ua pa, yuav mob ntxiv.
• Mob hnyav, mob tam sim ntawd rau ntawm caj npab, ceg, thiab nraub qaum uas yog los ntawm kev thaiv cov ntshav ntws (tseem hu ua 'vaso-occlusive crisis').
• Cov kua dej sib sau ua ke hauv lub ntsws thiab hauv siab (pleural effusion).
• Ua pa nyuaj (ua tsis taus pa).

Yog tias koj muaj ib lossis ntau yam ntawm cov tsos mob no, tshwj xeeb tshaj yog tias koj muaj SCD, nws yog ib qho tseem ceeb heev uas yuav tsum nrhiav kev pab kho mob tam sim ntawd .

Yuav kuaj mob Acute Chest Syndrome li cas? (Kev kuaj mob)

Kev paub txog 'Acute Chest Syndrome' thaum ntxov tuaj yeem cawm tau ib tus neeg lub neej.Yog koj muaj SCD thiab pw hauv tsev kho mob, koj yuav tsum tau saib xyuas koj tus kheej tas li thiab kuaj mob tsim nyog. Muaj ntau yam kev kuaj mob uas tuaj yeem pab cov kws kho mob kuaj pom qhov teeb meem no:

• Kev tshuaj xyuas roj ntshav hauv cov hlab ntsha: Qhov no tuaj yeem ntsuas qhov acidity (pH), oxygen, thiab carbon dioxide ntawm koj cov ntshav.
• Kev kuaj ntshav: Kev suav cov ntshav tag nrho tuaj yeem muab cov ntaub ntawv hais txog koj cov qe ntshav liab, cov qe ntshav dawb, thiab cov platelets.
• X-ray hauv siab: Qhov no siv tau los xyuas seb puas muaj kab mob hauv lub ntsws lossis muaj cov khoom tsis zoo (infiltrates) uas peb tau tham txog ua ntej.
• Kev kuaj kab mob: Cov kev kuaj no pab nrhiav pom ntau hom kab mob sib txawv los ntawm kev kuaj koj cov ntshav, hnoos qeev, lossis lwm yam kua dej hauv lub cev.

Raws li cov txiaj ntsig ntawm kev kuaj mob no thiab koj cov tsos mob, koj tus kws kho mob yuav faib Acute Chest Syndrome ua qhov tsis hnyav, nruab nrab, lossis hnyav .

Cov kev kho mob rau Acute Chest Syndrome yog dab tsi?

Hauv qhov xwm txheej no , kev pib kho mob thaum ntxov yog txoj hauv kev zoo tshaj plaws los tiv thaiv cov teeb meem loj . Cov kev xaiv kho mob suav nrog:

• Kev ntxiv ntshav: Qhov no suav nrog kev tshem tawm qee cov ntshav ntawm koj thiab muab cov ntshav lossis cov khoom ntshav ntawm tus neeg pub rau koj.
• Cov kua dej IV: Qhov no pab tiv thaiv kom tsis txhob qhuav dej (nqa dej cia), uas tuaj yeem ua rau tus kab mob sickle cell hnyav dua thiab ua rau mob ntxiv.
• Cov Tshuaj Tua Kab Mob: Cov tshuaj xws li 'ketorolac' lossis 'opioids' yuav muab tau los tswj qhov mob.
• Lub Tshuab Ntsuas Pa: Lub cuab yeej me me no pab koj ua pa tob. Nws pab kom koj lub ntsws huv thiab ua haujlwm tau zoo.
• Kev kho mob oxygen ntxiv: Yog tias cov pa oxygen hauv cov ntshav qis, yuav muab oxygen rau.
• Tshuaj tua kab mob: Yog tias qhov mob no yog los ntawm kev kis kab mob, cov tshuaj tua kab mob yuav muab rau.
• Cov Tshuaj Tiv Thaiv Kab Mob: Yog tias qhov ua rau yog kab mob viral, cov tshuaj tiv thaiv kab mob tsim nyog yuav muab rau.

Puas yuav txo tau qhov kev pheej hmoo ntawm kev mob Acute Chest Syndrome?

Yog tias koj muaj tus kab mob sickle cell (SCD), nws yog ib qho tseem ceeb uas yuav tsum tham nrog koj pab neeg kho mob txog cov hau kev los tiv thaiv Acute Chest Syndrome. Lawv yuav qhia tej yam xws li:

• Tshuab rau hauv lub raj mis tsis tu ncua: Txawm hais tias nws yuav zoo li yog ib yam yooj yim, qhov no pab kom koj txoj hlab pa huv si thiab txo qhov kev sib sau ua ke ntawm cov kua dej tsis tsim nyog nyob ib puag ncig koj lub ntsws.
• Kev tawm dag zog tsis tu ncua: Qhov no tuaj yeem ua rau koj lub ntsws muaj zog dua.
• Kev hloov ntshav tsis tu ncua: Tej zaum yuav muaj ib txhia neeg xav tau qhov no.
• Noj cov tshuaj xws li 'Hydroxyurea' lossis 'L-glutamine': Cov tshuaj no tuaj yeem pab txo qhov mob thiab txo qhov kev pheej hmoo ntawm kev mus pw hauv tsev kho mob ntau zaus. Txawm li cas los xij, cov no tsuas yog yuav tsum tau noj raws li kev qhia ntawm kws kho mob xwb.

Yuav ua li cas thiaj li yuav rov zoo (rov zoo) rau ib tus neeg uas muaj tus mob no?

Thaum muaj "Acute Chest Syndrome" tshwm sim , nws yog ib qho tseem ceeb uas yuav tsum nrhiav kev kho mob tam sim ntawd . Yog tias ua tsis tau li ntawd, yuav ua rau muaj teeb meem loj xws li:

• Kab Mob Ua Pa Nyuaj Siab (ARDS): Qhov no yog ib qho mob ntsws hnyav uas tuaj yeem ua rau tuag taus.
• Hloov pauv txoj kev xav ntawm lub hlwb.
• Kev raug mob raum.
• Kev ua haujlwm tsis zoo ntawm daim siab.
• Kev ua tsis tiav ntawm ntau lub cev.
• Ua tsis taus pa tag nrho.
• Mob heev.
• Tu siab kawg li, txawm tias yuav tuag los kuj muaj tau.

Raws li cov ntaub ntawv suav, tus nqi tuag rau 'Acute Chest Syndrome' ntawm cov neeg laus yog kwv yees li 4% . Ntawm cov menyuam yaus, tus lej no yog kwv yees li 1% . Qhov no txhais tau tias ntau tus neeg lub neej tuaj yeem raug cawm nrog kev kho mob thaum ntxov.

Tsis tas li ntawd xwb, nco ntsoov tias txawm tias 'Acute Chest Syndrome' tau kho thiab zoo lawm los, tus neeg uas muaj 'SCD' yuav rov muaj tus mob no dua yav tom ntej .

Kuv muaj tus kab mob ntshav qab zib sickle cell. Kuv yuav tsum ua li cas yog tias kuv muaj cov tsos mob ntawm Acute Chest Syndrome?

Qhov no yog qhov tseem ceeb tshaj plaws. Yog tias koj muaj SCD thiab pib muaj cov tsos mob ntawm Acute Chest Syndrome (mob hauv siab, ua tsis taus pa, hnoos, kub taub hau), tsis txhob ncua ib pliag thiab nrhiav kev pab kho mob tam sim ntawd .

• Qhia rau cov kws kho mob tias koj muaj kab mob sickle cell thaum koj mus rau chav kho mob ceev lossis lwm qhov chaw kho mob.
• Thov kom lawv thaij duab X-ray hauv siab tam sim ntawd . Qhov no yuav ua rau koj paub tseeb sai sai seb koj puas muaj mob Acute Chest Syndrome thiab pib kho mob sai sai.

Nco ntsoov, ua sai sai rau lub sijhawm zoo li no tuaj yeem pab tau koj txoj sia.

Cov Lus Qhia Txog Kev Coj Mus Tsev

Tam sim no koj paub lawm tias 'Acute Chest Syndrome', uas peb tau tham txog, yog ib qho teeb meem loj heev ntawm tus kab mob sickle cell. Cov tsos mob tseem ceeb yog mob hauv siab, ua tsis taus pa, hnoos, thiab kub taub hau . Yog tias koj muaj tus kab mob sickle cell, nrhiav kev pab kho mob tam sim ntawd yog tias koj muaj ib qho ntawm cov tsos mob no.. Tsis txhob hnov ​​qab qhia rau koj cov kws kho mob paub tias koj muaj tus kab mob sickle cell. Kev kuaj mob thaum ntxov thiab kev kho mob sai yog txoj hauv kev zoo tshaj plaws los tiv thaiv koj tus kheej ntawm tus mob no. Nyob kom noj qab nyob zoo! Mob Acute Chest Syndrome, Mob Sickle Cell, Mob Hauv Siab, Ua Pa Nyuaj, Mob Acute Chest Syndrome, Mob Sickle Cell, Kab Mob Ntsws