Koj puas tau muaj mob plab uas mob heev ua rau koj tsis tuaj yeem sawv ntsug? Qee zaum qhov mob no tsis yog mob plab xwb. AHP uas peb tab tom tham txog hnub no, uas sawv cev rau Acute Hepatic Porphyria, yog ib qho mob hnyav uas ua rau mob plab hnyav thiab lwm yam tsos mob. Nws tsis zoo ib yam rau txhua tus. Ib txhia neeg muaj mob plab ntau zaus. Lwm tus tsuas muaj ob peb qhov mob no hauv lawv lub neej.
Qhov zoo tshaj plaws yog tias peb tuaj yeem tswj tau qhov mob hu ua AHP no zoo heev nrog kev siv tshuaj thiab kev hloov pauv hauv lub neej . Tab sis nws tsis tuaj yeem kho tau tag nrho. Hauv cov xwm txheej hnyav tshaj plaws, yuav tsum tau hloov siab . Tab sis tsis txhob ntshai. Qhov tseem ceeb tshaj plaws yog kuaj mob thaum ntxov, pib kho kom raug, thiab nyob deb ntawm cov yam ua rau . Yog tias peb ua li ntawd, peb tuaj yeem tiv thaiv cov kab mob loj no kom tsis txhob tshwm sim thiab zam kev mob hnyav xws li ntshav siab , mob hlwb , thiab mob raum tsis ua haujlwm .
Cov kws kho mob kho AHP li cas?
Hais yooj yim xwb, kev kho mob AHP muaj ob ntu. Qhov tseem ceeb tshaj plaws yog txheeb xyuas seb yam dab tsi ua rau koj cov tsos mob thiab zam kom tsis txhob muaj ntau yam tshwm sim. Qhov thib ob yog siv cov tshuaj kom raug los txo qhov zaus ntawm kev mob hnyav thiab tswj cov tsos mob thaum lawv tshwm sim.
Muaj plaub hom AHP tseem ceeb. Koj tus kws kho mob yuav sau ntawv kho koj raws li hom koj muaj thiab nws hnyav npaum li cas.
| Lub npe hom AHP | Kev Taw Qhia Luv Luv |
|---|---|
| Mob porphyria mob ib ntus (AIP) | Qhov no yog hom AHP feem ntau. |
| Aminolevulinic acid dehydratase deficiency porphyria (ALAD) | Qhov no yog ib hom tsiaj tsis tshua muaj. |
| Kab mob porphyria variegate (VP) | Cov tsos mob ntawm daim tawv nqaij kuj tseem yuav tshwm sim rau hom no. |
| Kab mob coproporphyria uas los ntawm noob caj noob ces (HCP) | Hom no kuj tseem tuaj yeem ua rau muaj cov tsos mob ntawm lub paj hlwb thiab daim tawv nqaij. |
Qhov tseem ceeb tshaj plaws yog tias yog koj muaj mob AHP hnyav heev, koj yuav tsum tau mus pw hauv tsev kho mob thiab kho mob. Vim tias qhov mob hnyav , ntshav siab , xeev siab, ntuav, thiab electrolyte tsis sib npaug uas tshwm sim thaum ntawd tsis tuaj yeem tswj tau hauv tsev.
Peb yuav ua li cas thiaj li tsis txhob muaj cov teeb meem uas ua rau cov tsos mob ntau ntxiv?
AHP yog tshwm sim los ntawm kev hloov pauv hauv peb cov noob caj noob ces. Txawm li cas los xij, qee yam ib puag ncig thiab qee yam ntawm peb cov cwj pwm tuaj yeem ua rau cov tsos mob no tshwm sim sai sai. Peb hu cov no 'cov ua rau mob'. Los ntawm kev paub meej tias cov no yog dab tsi thiab nyob deb ntawm lawv, koj tuaj yeem tiv thaiv tus mob kom tsis txhob tshwm sim, lossis txo qhov zaus ntawm koj cov tsos mob.
Koj yuav tsum tau ceev faj heev txog tej no.
| Yuav tsum zam dab tsi / yuav tsum ua raws li dab tsi | Yuav ua li cas? |
|---|---|
| Qee cov tshuaj | Muaj qee cov tshuaj uas ua rau muaj cov tsos mob AHP. Piv txwv li suav nrog carbamazepine (Tegretol), phenobarbital, thiab phenytoin (Dilantin).thiab cov tshuaj tua kab mob sulfonamide . Nug koj tus kws kho mob kom paub cov npe tshuaj no tag nrho. Ua ntej noj lwm yam tshuaj, nco ntsoov qhia rau koj tus kws kho mob tias koj muaj AHP. |
| Cov cwj pwm tsis zoo | Zoo tshaj plaws yog tsis txhob haus cawv kiag li. Yog tias ua tsis tau li ntawd, ces tsis txhob haus ntau dhau (tsis pub haus ntau tshaj ib khob ib hnub rau cov poj niam thiab tsis pub haus ntau tshaj ob khob rau cov txiv neej). Tsis txhob siv cov tshuaj yeeb xws li tshuaj marijuana kiag li. Yog tias koj haus luam yeeb, nrog koj tus kws kho mob tham txog tej yam uas yuav pab tau koj tso tseg (xws li kev kho mob hloov nicotine). |
| Kev noj zaub mov tsis sib npaug | Noj zaub mov kom sib npaug. Tsis txhob noj zaub mov kom ntau dhau xws li noj zaub mov sai sai lossis txo cov carbohydrates kom tag, vim tias kev txo cov calories sai sai tuaj yeem ua rau mob hnyav dua. |
| Kev kis kab mob thiab kev txhaj tshuaj tiv thaiv kab mob | Mus txhaj tshuaj tiv thaiv kab mob raws sijhawm. Nug koj tus kws kho mob txog qhov no. Yog tias koj kis tau kab mob, mus kho tam sim ntawd. |
| Kev ntxhov siab | Kev ntxhov siab yog ib qho ua rau muaj AHP, yog li nrhiav txoj hauv kev los so koj lub siab thiab lub cev. Nws tuaj yeem yog kev xav, yoga, mloog nkauj, lossis txhua yam uas koj nyiam. |
| Kev raug tshav ntuj | Hauv qee hom AHP (tshwj xeeb tshaj yog VP thiab HCP), daim tawv nqaij yuav rhiab heev rau lub hnub ci. Yog li ntawd, nyob hauv tsev ntau li ntau tau ntawm 10 teev sawv ntxov thiab 4 teev tsaus ntuj , thaum lub hnub ci ultraviolet muaj zog tshaj plaws. Yog tias koj yuav tsum mus sab nraud, hnav khaub ncaws tiv thaiv hnub, lub kaus mom dav dav, thiab siv tshuaj pleev thaiv hnub zoo nrog SPF ntawm 30 lossis siab dua. |
Thaum xub thawj yuav zoo li nyuaj rau koj hloov koj txoj kev ua neej li no. Tab sis nrog cov kev hloov me me no, koj tuaj yeem tswj tau qhov tshwm sim ntawm cov tsos mob AHP. Nws yog qhov zoo tshaj plaws los tham nrog koj tus kws kho mob tsis tu ncua thiab txiav txim siab seb kev kho mob thiab kev ua neej zoo tshaj plaws rau koj.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- AHP yog ib qho mob caj ces loj heev tab sis tswj tau, yog li ntawd tsis txhob ntshai nws yam tsis tsim nyog.
- Ob qho tseem ceeb ntawm kev kho mob yog zam kev ua rau mob thiab noj cov tshuaj uas koj tus kws kho mob tau sau tseg.
- Ua ntej noj tshuaj rau lwm yam mob, nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob tias koj muaj AHP.
- Kev noj zaub mov kom sib npaug, tsis txhob siv tshuaj, thiab tswj kev ntxhov siab yuav pab tiv thaiv tau tus kab mob no.
- Yog tias cov tsos mob hnyav zuj zus, xws li mob plab uas tsis tuaj yeem ua tau, tsis txhob nyob hauv tsev thiab mus rau tsev kho mob tam sim ntawd kom tau txais kev kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus