Peb txhua tus paub tias qee yam kab mob tuaj yeem kho tau ntawm lub tsev muag tshuaj. Tab sis muaj qee yam kab mob tshwj xeeb uas tsis tshua muaj uas kho tau hauv tsev kho mob, nyob rau hauv kev saib xyuas ncaj qha ntawm cov kws kho mob. Hemin yog ib qho tshuaj zoo li no, siv rau hauv cov xwm txheej tshwj xeeb heev, thiab muab rau hauv cov hlab ntsha. Yog li hnub no, cia peb tham luv luv txog cov tshuaj tiv thaiv Hemin no, nws ua dab tsi, nws muab rau leej twg, thiab tej yam koj yuav tsum paub txog nws.
Hemin yog hom tshuaj dab tsi?
Cov tshuaj no hu ua Hemin siv los kho ib yam mob uas tsis tshua muaj neeg mob hu ua 'Acute Intermittent Porphyria.' Lub npe no nyuaj me ntsis, yog li cia peb piav qhia yooj yim.
Qhov no yog ib qho mob caj ces. Yog hais kom meej, nws yog tshwm sim los ntawm qhov tsis zoo hauv cov txheej txheem ntawm kev tsim cov khoom ntawm peb cov ntshav hu ua 'Heme'. Qhov 'Heme' no yog qhov tseem ceeb rau hemoglobin hauv peb cov qe ntshav liab. Thaum cov txheej txheem no raug cuam tshuam, cov tshuaj lom neeg phem sib sau ua ke hauv lub cev, ua rau muaj ntau yam tsos mob xws li mob plab hnyav thiab teeb meem ntawm lub paj hlwb.
Yog li, cov tshuaj no hu ua Hemin (lub npe lag luam ntawm cov tshuaj yuav yog 'Panhematin') tswj qhov tsis txaus ntawm kev tsim cov 'Heme' thiab txo cov tsos mob. Hauv lwm lo lus, qhov no yog cov tshuaj uas cuam tshuam rau cov txheej txheem tseem ceeb uas ua rau muaj kab mob.
Tej yam yuav tsum qhia rau koj tus kws kho mob ua ntej siv cov tshuaj no
Vim tias qhov no yog ib yam tshuaj tshwj xeeb heev, nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog koj keeb kwm kev noj qab haus huv ua ntej pib kho mob. Nco ntsoov qhia rau lawv txog cov hauv qab no:
- Teeb meem ntshav txhaws: Yog tias koj muaj teeb meem ntshav txhaws (piv txwv li, ntshav tsis nres sai), qhia rau peb paub txog qhov ntawd.
- Kev Ua Xua: Yog tias koj muaj kev ua xua, tsis yog rau cov tshuaj no hu ua Hemin xwb, tab sis kuj rau cov roj hmab latex, lwm yam tshuaj, khoom noj, thiab txawm tias qee cov xim, nco ntsoov qhia rau peb txog nws.
- Cev Xeeb Tub: Yog tias koj cev xeeb tub lossis tab tom sim cev xeeb tub, nws yog ib qho tseem ceeb uas yuav tsum qhia rau koj tus kws kho mob.
- Yog tias koj yog niam pub niam mis: Yog tias koj yog niam pub niam mis, koj yuav tsum qhia rau koj tus kws kho mob ua ntej pib kho mob.
Yuav muab tshuaj tiv thaiv Hemin li cas?
Cov tshuaj no tsis yog tshuaj uas koj coj mus tsev tau. Nws yog ib yam tshuaj uas muab ua kua ntsev rau hauv cov leeg ntshav (infusion) los ntawm ib tug kws kho mob uas tau kawm tiav hauv tsev kho mob lossis chaw kho mob. Cov neeg ua haujlwm kho mob yuav saib xyuas koj tus mob tas li thaum koj tau txais kev kho mob no.
Koj puas muab cov tshuaj no rau menyuam yaus?
Cov tshuaj no feem ntau tuaj yeem muab rau cov menyuam yaus hnub nyoog tshaj 16 xyoo hauv qee kis tshwj xeeb. Tab sis nws ua nrog kev saib xyuas zoo thiab rau cov laj thawj tshwj xeeb. Yog li ntawd, yog tias koj muab cov tshuaj no rau koj tus menyuam, nws yog ib qho tseem ceeb kom muaj kev sib tham zoo nrog koj tus kws kho mob menyuam yaus thiab nkag siab txhua yam kom meej.
Yog koj noj tshuaj ntau dhau yuav ua li cas?
Vim tias cov tshuaj no yog muab rau hauv kev saib xyuas ntawm tus kws kho mob, qhov muaj feem yuav muaj 'dose' tshwm sim tsawg heev. Txawm li cas los xij, yog tias koj xav tias koj tau overdose, tam sim ntawd hu rau National Poisons Information Center ntawm Colombo National Hospital lossis lub tsev kho mob Emergency Treatment Unit (ETU).
Cov tshuaj no tsuas yog muab rau koj xwb. Tsis txhob muab rau lwm tus siv txawm yog vim li cas los xij.
Puas muaj teeb meem nrog lwm cov tshuaj? (Kev Sib Cuam Tshuam)
Yog, qhov no tuaj yeem ua rau muaj teeb meem nrog qee cov tshuaj. Qhov no tseem ceeb heev yog tias koj noj cov tshuaj uas tiv thaiv cov ntshav txhaws, xws li warfarin.
Daim ntawv teev npe no tsis yog tag nrho. Yog li ntawd, nco ntsoov qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj (xws li cov tshuaj uas yuav tsum tau kev tso cai thiab cov tshuaj uas yuav tsum tau kev tso cai, cov vitamins, cov tshuaj ntsuab, thiab cov tshuaj ntxiv), thiab seb koj puas haus luam yeeb, haus cawv, lossis siv lwm yam tshuaj. Tsuas yog thaum ntawd koj thiaj li kho tau zoo.
Cov kev mob tshwm sim uas yuav tshwm sim thaum lub sijhawm kho mob
Ib yam li lwm yam tshuaj, tshuaj tiv thaiv Hemin tuaj yeem ua rau muaj qee yam kev phiv. Qee qhov no yuav tsum tau kho tam sim ntawd, thaum lwm tus feem ntau tsis loj heev. Cia peb saib cov no hauv daim ntawv teev.
| Cov kev mob tshwm sim ntawm cov tshuaj tiv thaiv Hemin | |
|---|---|
| Tej yam yuav tsum qhia rau koj tus kws kho mob lossis cov neeg ua haujlwm kho mob tam sim ntawd | |
| Kev Ua Xua | Kev khaus ntawm daim tawv nqaij, khaus lossis tawm pob, o ntawm lub ntsej muag, daim di ncauj lossis tus nplaig. |
| Kev hloov pauv ntawm kev tso zis | Txo qis lossis lwm yam kev hloov pauv ntawm cov zis tawm. |
| Kev los ntshav tsis zoo li qub | Mob nqaij tawv yooj yim los yog los ntshav uas yuav tsis nres. |
| qaug zog txawv txawv | Xav tias nkees heev los yog tsis muaj zog. |
| Tej yam uas feem ntau tsis loj heev, tab sis yuav tsum tau tshaj tawm yog tias lawv tseem muaj | |
| Kub taub hau me ntsis | Hnov me ntsis sov so hauv lub cev. |
| Mob ntawm qhov chaw txhaj tshuaj | Mob los yog o ntawm qhov chaw txhaj tshuaj. |
Daim ntawv teev npe no yuav tsis suav nrog txhua yam kev mob tshwm sim, yog li ntawd yog tias koj ntsib teeb meem txawv txawv, tsis txhob ntshai tham nrog koj tus kws kho mob txog nws.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Hemin yog ib yam tshuaj tshwj xeeb uas muab rau hauv tsev kho mob los kho ib yam mob uas tsis tshua muaj, uas yog los ntawm noob caj ces hu ua 'Acute Intermittent Porphyria'.
- Ua ntej pib kho mob, nws yog ib qho tseem ceeb uas koj yuav tsum qhia rau koj tus kws kho mob txog txhua yam mob uas koj muaj, kev ua xua, thiab txhua yam tshuaj uas koj noj.
- Cov tshuaj no yog muab los ntawm cov leeg ntshav (IV infusion) los ntawm ib tus kws kho mob uas tau kawm tiav. Cov tshuaj no tsis yog cov tshuaj coj mus tsev.
- Yuav tsum paub txog tej yam tshwm sim loj xws li ua xua thiab los ntshav tsis zoo li qub. Yog koj pom tej yam zoo li no, qhia rau cov neeg ua haujlwm kho mob tam sim ntawd.
- Yog koj muaj lus nug txog cov tshuaj no, txawm tias me me li cas los xij, thov nug koj tus kws kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus