Koj puas muaj tej lub sij hawm koj xav tias koj nkees heev? Tib lub sij hawm ntawd, koj puas tau muaj tej yam txawv txawv xws li mob pob qij txha, ntiv tes o, thiab tej lub sij hawm koj cov ntiv tes tig daj thiab xiav thaum raug cua txias? Koj puas kuj txhawj xeeb txog cov tsos mob ntawm cov kab mob no uas tshwm sim ib zaug? Yog li qhov no tej zaum yuav yog ib qho mob tsis tshua muaj hu ua Mixed Connective Tissue Disease, lossis MCTD raws li peb hu ua luv luv. Tsis txhob txhawj, cia peb tham txog qhov no yooj yim.
MCTD yog dab tsi tiag?
Hais yooj yim xwb, MCTD yog ib yam kab mob autoimmune. Xav txog nws li no: peb lub cev tiv thaiv kab mob, lub cev tiv thaiv kab mob, nyob ntawd los tiv thaiv peb ntawm cov kab mob ua rau muaj kab mob. Tab sis hauv hom kab mob no, peb tus kheej lub cev tiv thaiv kab mob xav yuam kev tias peb cov nqaij noj qab haus huv yog cov yeeb ncuab thiab pib tawm tsam lawv.
Qhov tshwj xeeb ntawm MCTD yog tias nws tsis yog ib yam kab mob xwb, tab sis yog kev sib xyaw ua ke ntawm cov tsos mob ntawm peb yam kab mob tseem ceeb ntawm cov nqaij sib txuas. Yog vim li ntawd nws thiaj hu ua "Mixed". Nws kuj tseem hu ua "overlap syndrome". Peb yam kab mob no yog:
- Kab mob lupus erythematosus (SLE): Feem ntau peb hu qhov no ua 'lupus'.
- Scleroderma: Qhov no ua rau daim tawv nqaij tuab thiab tawv.
- Polymyositis: Qhov no ua rau cov leeg tsis muaj zog thiab o.
Ntxiv rau cov tsos mob no, qee tus neeg kuj tseem yuav muaj cov tsos mob ntawm cov mob xws li dermatomyositis, rheumatoid arthritis, lossis Sjögren's syndrome.
Cov tsos mob ntawm MCTD yog dab tsi?
Feem ntau, cov tsos mob no tsis tshwm sim ib zaug. Lawv tshwm sim ib qho tom qab ib qho dhau ib qho. Yog li ntawd, nws yuav nyuaj rau kuaj mob MCTD thaum xub thawj.
| Cov tsos mob | Ib qho lus piav qhia yooj yim |
|---|---|
| Xav tias nkees thiab tsis muaj sia nyob | Koj xav tias koj lub cev tsis muaj sia nyob lawm. |
| Kub cev (kub taub hau) | Nws tsis yog kub taub hau heev, tsuas yog me ntsis kub cev uas tseem kub. |
| Mob nqaij thiab mob pob qij txha | Mob nqaij thiab qaug zog, thiab o, cov pob qij txha nruj nrog mob. |
| Qhov tshwm sim ntawm Raynaud | Qhov no yog ib qho tsos mob uas ntau tus neeg pom. Thaum raug cua txias lossis ntxhov siab, cov ntshav ntws mus rau tes, taw, qhov ntswg, thiab pob ntseg yuav txo qis, ua rau lawv hloov daj ntseg, tom qab ntawd xiav. Tom qab ntawd lawv hloov liab dua thiab rov qab mus rau qhov qub. Koj yuav hnov mob lossis loog thaum lub sijhawm no. |
| Cov ntiv tes o | Cov ntiv tes yuav o thiab tawv. Qee zaum qhov no yuav ploj mus tom qab ob peb hnub, tab sis dhau sijhawm, qee tus neeg yuav tawv tawv uas ua rau nws nyuaj rau khoov lawv cov ntiv tes (sclerodactyly). |
| Cov tawv nqaij tawv | Cov pob liab los yog xim av liab los yog cov qhov txhab ntawm cov pob qij txha. |
Thaum MCTD pib mob hnyav zuj zus, nws xav li cas?
Cov neeg uas muaj tus kab mob no tej zaum yuav muaj cov tsos mob hnyav heev . Peb hu qhov no ua 'mob hnyav zuj zus'. Thaum lub sijhawm no, mob pob qij txha thiab mob nqaij yuav ua rau tsis tuaj yeem ua tau. Ib yam li ib tus neeg uas muaj 'Rheumatoid arthritis', cov pob qij txha tuaj yeem o, tawv, thiab mob. 'Raynaud's phenomenon' kuj tuaj yeem tshwm sim ntau zaus dua thiab hnyav dua.
Dab tsi ua rau MCTD?
Tseem tsis tau pom qhov ua rau muaj tus kab mob no. Nws tsis yog ib yam kab mob uas tau txais los ntawm noob caj ces. Txawm li cas los xij, kev tshawb fawb tau pom tias yog tias ib tug neeg hauv tsev neeg muaj cov kab mob sib txuas, lwm tus yuav muaj feem yuav mob. Tsis tas li ntawd xwb, nws raug xav tias qee cov kab mob, kev raug tshuaj xws li 'polyvinyl chloride' thiab 'silica' kuj tseem yuav ua rau muaj qhov no.
Leej twg muaj feem yuav mob no tshaj?
MCTD feem ntau tshwm sim rau cov poj niam hnub nyoog ntawm 20-40.Nyob nruab nrab. Tiamsis qhov ntawd tsis tau txhais hais tias cov txiv neej lossis cov neeg hnub nyoog sib txawv yuav tsis muaj tus kab mob no. Txhua tus neeg, txawm muaj hnub nyoog li cas los xij, tuaj yeem muaj tus kab mob no.
Cov teeb meem uas yuav tshwm sim ntawm MCTD yog dab tsi?
MCTD yog ib yam kab mob uas qee zaum tuaj yeem ua rau muaj teeb meem loj, yog li nws yog ib qho tseem ceeb heev uas yuav tsum tswj tus kab mob kom zoo.
Nco ntsoov tias, tsis yog txhua tus neeg yuav muaj tag nrho cov teeb meem no. Ntau yam ntawm cov no tuaj yeem tiv thaiv tau nrog kev kho mob kom zoo.
Nov yog qee qhov teeb meem tseem ceeb:
- Kab mob ntshav siab hauv lub ntsws: Qhov no yog qhov ua rau neeg tuag coob tshaj plaws ntawm cov neeg mob MCTD. Nws tshwm sim thaum lub siab hauv cov hlab ntsha uas nqa ntshav mus rau lub ntsws nce ntxiv.
- Kab mob ntsws interstitial: o thiab caws pliav ntawm cov nqaij ntawm lub ntsws.
- Kab mob plawv
- Kev puas tsuaj rau lub raum
- Kev puas tsuaj rau txoj hnyuv zom zaub mov
- Kab mob ntshav tsis txaus
- Kev tuag ntawm cov ntaub so ntswg (necrosis)
- Kev hnov lus tsis zoo
Tus kws kho mob kuaj mob MCTD li cas?
Raws li peb tau hais ua ntej lawm, cov tsos mob ntawm tus kab mob no yuav nyuaj rau kuaj mob vim tias lawv maj mam tshwm sim dhau sijhawm. Nws yuav siv sijhawm ntau xyoo los txiav txim siab seb nws puas yog MCTD. Yog tias koj muaj cov tsos mob no, koj yuav raug xa mus rau tus kws kho mob uas tshwj xeeb hauv cov kab mob pob qij txha thiab cov kab mob autoimmune, hu ua tus kws kho mob rheumatologist .
Tus kws kho mob nrhiav plaub yam tseem ceeb kom paub tias muaj MCTD:
1. Cov tshuaj anti-U1-RNP ntau hauv cov ntshav: Qhov no yog qhov kev kuaj mob tseem ceeb rau kev kuaj mob MCTD.
2. Tsis muaj teeb meem loj raum lossis lub paj hlwb: Cov teeb meem no feem ntau tuaj yeem hnyav rau cov neeg mob lupus (SLE).
3. Muaj mob pob qij txha hnyav thiab mob ntshav siab hauv lub ntsws: Cov no tsis tshua pom muaj nyob ib leeg hauv lupus lossis scleroderma.
4. Raynaud tus mob thiab o ntawm cov ntiv tes: Cov tsos mob no tsuas tshwm sim rau 25% ntawm cov neeg mob lupus.
Cov kev kho mob rau MCTD yog dab tsi?
Tseem tsis tau muaj tshuaj kho tau MCTD. Tab sis muaj ntau yam kev kho mob zoo uas tuaj yeem pab koj tswj koj cov tsos mob, tiv thaiv cov teeb meem, thiab ua neej nyob li qub. Kev kho mob nyob ntawm seb koj cov tsos mob hnyav npaum li cas thiab cov kab mob twg raug cuam tshuam.
| Hom tshuaj | Lub hom phiaj ntawm kev siv |
|---|---|
| Cov tshuaj Corticosteroids | Piv txwv li: Prednisone. Txo qhov o ntawm lub cev thiab tswj kev ua haujlwm ntawm lub cev tiv thaiv kab mob. |
| Cov tshuaj tiv thaiv kab mob malaria | Piv txwv li, Hydroxychloroquine. Tiv thaiv kom tsis txhob muaj kev kub ntxhov thiab tswj cov tsos mob me me. |
| Cov tshuaj calcium channel blockers | Tswj tau tus kab mob Raynaud. Cov no ua rau cov leeg ntawm cov hlab ntsha so. |
| Lwm cov tshuaj tiv thaiv kab mob | Yog tias cov kabmob tseem ceeb (xws li lub ntsws, lub plawv) raug cuam tshuam, tswj lub cev tiv thaiv kab mob kom nruj. |
| Cov tshuaj tiv thaiv ntshav siab | Tswj cov ntshav siab hauv lub ntsws. |
Koj ua tau dab tsi los saib xyuas koj tus kheej?
Ntxiv rau kev noj tshuaj, kev hloov me me rau koj txoj kev ua neej tuaj yeem pab tswj cov tsos mob no tau ntau yam.
- Siv cov tshuaj tua mob: Yog tias mob me ntsis thiab o, koj tuaj yeem noj cov tshuaj tsis-steroidal anti-inflammatory drugs (NSAIDs) xws li Ibuprofen, tom qab sab laj nrog koj tus kws kho mob .
- Tiv thaiv koj tus kheej ntawm qhov txias: Qhov no yog qhov tseem ceeb kom tiv thaiv tau qhov teeb meem Raynaud. Hnav hnab looj tes thiab lub pob ntseg thaum tawm mus rau sab nraud thaum huab cua txias. Txo qhov kev sib cuag nrog dej txias thiab txias dhau.
- Tsis txhob haus luam yeeb:Kev haus luam yeeb ua rau cov hlab ntsha nqaim. Qhov no tuaj yeem ua rau Raynaud's mob hnyav dua. Yog li ntawd, yog tias koj haus luam yeeb, nws yog ib qho tseem ceeb heev uas yuav tsum tso tseg.
- Txo kev ntxhov siab: Kev ntxhov siab kuj tseem tuaj yeem ua rau muaj tus kab mob Raynaud. Yog li sim ua kom koj lub siab tus los ntawm kev ua pa thiab kev xav. Nrhiav kev pab los ntawm tus kws pab tswv yim kev noj qab haus huv ntawm lub hlwb yog tias tsim nyog.
Thaum twg koj yuav tsum mus ntsib kws kho mob?
Yog tias koj muaj ib qho ntawm cov tsos mob uas peb tau tham ua ntej, tshwj xeeb tshaj yog tias lawv cuam tshuam rau koj cov dej num txhua hnub, nws yog ib lub tswv yim zoo kom mus ntsib kws kho mob. Yog tias koj muaj mob nqaij lossis mob pob qij txha tshiab, o ntawm koj cov ntiv tes, lossis cov tsos mob ntawm Raynaud's, nws yog qhov zoo tshaj plaws mus ntsib kws kho mob kom kuaj xyuas lawv.
Qee cov lus nug uas koj tuaj yeem nug tus kws kho mob:
* Dab tsi yog qhov ua rau kuv cov tsos mob?
* Kuv puas muaj ntau tshaj ib yam kab mob ntawm cov nqaij sib txuas?
* Kuv yuav tsum tau ua cov kev ntsuam xyuas twg?
* Cov kev kho mob rau tus mob no yog dab tsi?
* Kuv ua tau dab tsi los tiv thaiv kom tsis txhob muaj kev kub ntxhov?
Nyob nrog tus kab mob no tej zaum yuav nyuaj rau qee lub sijhawm. Tab sis nrog kev kho mob thiab kev ua neej zoo, koj tuaj yeem nyob tau zoo. Sib txuas lus nrog koj tus kws kho mob thiab tham txog koj qhov kev txhawj xeeb.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- MCTD yog ib yam kab mob nyuaj, tsis tshua muaj uas ua rau cov tsos mob ntawm ntau yam kab mob los ua ke.
- Vim tias cov tsos mob tshwm sim ib qho tom qab ib qho, nws yuav siv sijhawm me ntsis los kuaj mob kom meej.
- Txawm hais tias tus kab mob no kho tsis tau tag nrho los xij, nws muaj peev xwm tswj tau cov tsos mob, tiv thaiv cov teeb meem, thiab ua neej nyob li qub.
- Kev tiv thaiv koj tus kheej kom tsis txhob muaj mob khaub thuas, tsis txhob haus luam yeeb, thiab tswj kev ntxhov siab yuav pab tau koj kom tsis txhob muaj cov tsos mob ntau yam.
- Nrog koj tus kws kho mob tham txog koj tus mob tas li thiab txuas ntxiv mus kuaj thiab kho mob kom zoo. Koj tsis yog tib leeg xwb!
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus