Thaum koj tus kws kho mob sau ntawv kom koj txhaj tshuaj tiv thaiv kab mob hu ua Ravulizumab (feem ntau muaj nyob rau hauv lub npe lag luam ULTOMIRIS), nws yog ib qho ib txwm muaj ntau cov lus nug. Qhov no yog ib qho tshuaj tshwj xeeb heev, tab sis muaj zog heev. Qhov no tsis yog tshuaj rau mob khaub thuas lossis mob ntsws. Yog li kuv yuav tham txog nws hauv txoj kev yooj yim uas koj tuaj yeem nkag siab.
Yuav kom meej meej, Ravulizumab yog hom tshuaj dab tsi?
Hais yooj yim xwb, Ravulizumab yog ib yam tshuaj uas tswj cov txheej txheem tsis zoo uas tshwm sim hauv peb lub cev tiv thaiv kab mob. Qee zaum peb lub cev tiv thaiv kab mob ua haujlwm ntau dhau thiab pib tawm tsam peb cov hlwb noj qab haus huv. Thaum lub sijhawm zoo li no, cov tshuaj no pab tswj cov haujlwm tsis xav tau ntawd.
Qhov no yog ib hom tshuaj tshwj xeeb hu ua monoclonal antibodies . Uas yog, nws yog ib qho protein ua nyob rau hauv chav kuaj mob siv cov thev naus laus zis tshwj xeeb. Zoo li lub foob pob tua kab mob, nws mus rau qhov chaw tseeb ntawm qhov teeb meem hauv lub cev thiab tswj nws.
Cov kws kho mob siv cov tshuaj no los kho ntau yam mob tseem ceeb:
- Kab mob ntshav liab tsis zoo li qub (aHUS): Qhov no yog ib qho mob uas cov qe ntshav liab tawg thiab cov ntshav txhaws tsim nyob rau hauv cov hlab ntsha me me, ua rau muaj cov mob xws li ntshav tsis txaus .
- Paroxysmal Nocturnal Hemoglobinuria (PNH): Qhov no kuj yog ib qho mob uas cuam tshuam txog kev puas tsuaj ntawm cov qe ntshav liab.
- Myasthenia Gravis : Qhov no yog ib yam kab mob ntawm cov hlab ntsha thiab cov leeg. Nws ua rau cov leeg qaug zog sai heev thiab ua rau qaug zog.
- Neuromyelitis Optica Spectrum Disorder (NMOSD): Hauv tus kab mob no, cov hlab ntsha hauv lub qhov muag thiab cov hlab ntsha caj qaum yuav o.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej noj cov tshuaj no
Zoo, ua ntej koj muab cov tshuaj no rau koj, tus kws kho mob yuav nug koj ob peb lo lus nug. Tab sis muaj ob peb yam uas koj yuav tsum hais thiab. Vim tias koj txoj kev nyab xeeb yog qhov tseem ceeb tshaj plaws.
- Tam sim no koj puas muaj kab mob? Qhia rau koj tus kws kho mob txog tej kab mob, xws li kub taub hau, hnoos, lossis mob khaub thuas .
- Koj puas muaj kev ua xua?Yog tias koj muaj kev tsis haum rau cov tshuaj Ravulizumab no lossis lwm yam tshuaj, khoom noj, lossis xim zas, nco ntsoov qhia rau peb paub.
- Koj puas cev xeeb tub? Los yog koj tab tom yuav muaj menyuam? Tham nrog koj tus kws kho mob txog qhov no qhib siab.
- Koj puas yog ib leej niam pub niam mis rau menyuam? Nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau tus kws kho mob txog qhov no thiab.
Tsis txhob zais cov ntaub ntawv no. Tus kws kho mob yuav txiav txim siab seb yuav kho qhov twg zoo tshaj plaws thiab muaj kev nyab xeeb tshaj plaws rau koj raws li cov ntaub ntawv tseeb uas koj muab.
Cov tshuaj no muab rau lub cev li cas?
Qhov no tsis yog tshuaj ntsiav lossis kua txiv hmab uas koj tuaj yeem nqa mus tsev. Qhov no yog ib qho tshuaj txhaj uas koj muab tso rau hauv cov leeg ntshav. Yog li koj yuav tau txais kev kho mob no hauv tsev kho mob lossis chaw kho mob. Tus kws kho mob lossis tus nais maum uas tau kawm tiav yuav muab rau koj.
- Daim ntawv qhia MedGuide: Ua ntej txhua zaus kho mob, koj yuav tau txais ib daim ntawv qhia tshwj xeeb (ib daim 'MedGuide') uas muaj cov ntaub ntawv hais txog cov tshuaj no. Nyeem kom zoo zoo thiab tsis txhob ntshai nug cov lus nug uas koj muaj.
- Siv rau cov menyuam yaus: Tej zaum koj yuav xav paub seb qhov no puas siv tau rau cov menyuam yaus. Yog lawm, nws siv tau rau cov menyuam mos uas muaj ib hlis rau qee yam mob uas tau xaiv. Tab sis nws yuav tsum ua nrog kev ceev faj heev thiab nyob rau hauv kev saib xyuas ntawm tus kws tshwj xeeb.
- Yog koj noj tshuaj ntau dhau: Yog koj xav tias koj tau txais cov tshuaj no ntau dhau, koj yuav tsum mus rau chav kho mob ceev (ETU) ntawm tsev kho mob tam sim ntawd . Los yog hu rau National Poisons Information Center ntawm Colombo National Hospital kom tau txais lus qhia.
- Tsis txhob muab faib rau lwm tus: Cov tshuaj no tsuas yog muab rau koj xwb. Tsis txhob muab faib rau lwm tus.
Tej yam yuav tsum ceev faj thaum noj tshuaj
Koj yuav tsum tau ceev faj me ntsis thaum noj cov tshuaj no.
- Mus ntsib koj tus kws kho mob tsis tu ncua: Koj tus kws kho mob yuav kuaj xyuas koj tsis tu ncua kom pom tias koj cov tsos mob puas zoo dua lossis hnyav zuj zus. Nco ntsoov mus rau cov hnub ntawd.
- Ceev faj txog kev kis kab mob: Qhov no yog qhov tseem ceeb tshaj plaws. Koj txoj kev pheej hmoo ntawm kev kis kab mob yuav nce me ntsis thaum noj cov tshuaj no. Yog li ntawd, yog tias koj muaj cov tsos mob xws li kub taub hau, mob khaub thuas, mob lub cev, mob caj pas, lossis qhov txhab kho qeeb, tsis txhob mus nrhiav tshuaj ntawm koj tus kheej . Hu rau koj tus kws kho mob tam sim ntawd thiab tau txais kev qhia. Tsis tas li ntawd, txo qhov kev mus rau qhov chaw uas tib neeg mob.
- Tshuaj Tiv Thaiv Kab Mob: Yuav kom txo koj txoj kev pheej hmoo ntawm kev kis kab mob, koj tus kws kho mob yuav pom zoo kom koj txhaj tshuaj tiv thaiv kab mob ua ntej pib kho mob no.
- Daim Npav Nyiaj Rau Tus Neeg Mob:Koj yuav tau txais daim npav tshwj xeeb ('Daim Npav Nyiaj Rau Tus Neeg Mob'). Khaws cia nrog koj txhua lub sijhawm . Qhia nws txawm tias koj mus ntsib lwm tus kws kho mob los xij. Nws muaj cov ntaub ntawv hais txog cov kev mob tshwm sim loj heev uas tuaj yeem tshwm sim nrog cov tshuaj no.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li lwm yam tshuaj, Ravulizumab tuaj yeem ua rau muaj kev phiv rau qee tus neeg, tab sis tsis yog txhua tus neeg yuav muaj. Qhov tseem ceeb tshaj plaws yog qhia rau koj tus kws kho mob yog tias koj pom muaj dab tsi txawv txawv.
| Hom kev phiv tshuaj | Kev piav qhia |
|---|---|
| Cov kev mob tshwm sim uas yuav tsum tau qhia rau koj tus kws kho mob tam sim ntawd | |
| Kev ua xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig lossis caj pas. |
| Cov tsos mob ntawm Meningitis | Kub taub hau, mob caj dab los yog mob nqaij tawv, pom tsis meej, mob taub hau heev, xeev siab, ntuav, tsis meej pem. |
| Kev kis kab mob | Kub taub hau, mob khaub thuas, hnoos, mob caj pas, cov qhov txhab tsis kho, mob thaum tso zis, thiab tsis xis nyob lub cev. |
| Cov tshuaj tiv thaiv kab mob | Mob hauv siab, ua pa nyuaj, tsaus muag. |
| Ntshav siab qis | Kiv taub hau, tsaus muag, pom kev tsis meej. |
| Cov kev mob tshwm sim uas yuav tsum tau qhia rau tus kws kho mob yog tias lawv tseem muaj | |
| Cov kev mob tshwm sim feem ntau | Raws plab, kub taub hau, mob taub hau, xeev siab, ntuav. |
Cov tshuaj no puas cuam tshuam nrog lwm cov tshuaj?
Yog, qee cov tshuaj tuaj yeem cuam tshuam nrog qhov no. Piv txwv li, cov tshuaj xws li 'Efgartigimod' thiab 'Immune globulin (IVIG)'.
Yog li ntawd, qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj - txawm tias rau lwm yam mob, cov vitamins, cov tshuaj ib txwm muaj, lossis cov tshuaj ntxiv. Tsis tas li ntawd, qhia rau koj tus kws kho mob yog tias koj haus luam yeeb lossis haus cawv.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Ravulizumab yog ib yam tshuaj tshwj xeeb uas muab rau hauv cov leeg ntshav hauv tsev kho mob. Nws yog siv los kho ntau yam mob hnyav.
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog tag nrho koj cov mob, kev ua xua, thiab lwm yam tshuaj uas koj noj.
- Thaum noj cov tshuaj no, yuav tsum ceev faj txog cov cim qhia tias koj muaj kab mob (xws li kub taub hau, mob caj pas). Yog tias qhov no tshwm sim, nrhiav kev pab kho mob tam sim ntawd.
- Khaws daim npav 'Patient Wallet Card' uas tau muab rau koj nrog koj ib txwm.
- Tsis txhob ncua lub sijhawm teem tseg rau kev kho mob. Yog tias koj tuaj tsis tau, thov qhia rau tus kws kho mob lossis lub tsev kho mob ua ntej.
- Yog koj muaj lus nug, kev txhawj xeeb, lossis kev txhawj xeeb txog cov tshuaj no, tsis txhob ntshai tham nrog koj tus kws kho mob.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus