Tej zaum koj lossis ib tug neeg uas koj paub tau raug koj tus kws kho mob hais kom muab tshuaj tiv thaiv kab mob hu ua Ravulizumab rau koj. Tej zaum koj yuav xav tias lub npe txawv me ntsis, thiab xav tias, "Cov tshuaj no yog hom twg?" Tsis txhob txhawj. Nws yog ib qho tseem ceeb heev uas yuav tsum paub txog txhua yam tshuaj ua ntej pib siv. Yog li hnub no, cia peb tham txog cov tshuaj no hu ua Ravulizumab, nws ua dab tsi, thiab yam twg peb yuav tsum tau them sai sai.
Ravulizumab yog dab tsi tiag?
Hais yooj yim xwb, Ravulizumab yog ib hom tshuaj tiv thaiv kab mob tshwj xeeb uas tswj kev ua haujlwm ntawm peb lub cev tiv thaiv kab mob. Nws yog ib hom tshuaj hu ua "monoclonal antibodies." Xav txog tias peb lub cev tiv thaiv kab mob, uas zoo li peb lub cev tiv thaiv kab mob, qee zaum ua haujlwm ntau dhau thiab pib tawm tsam peb cov hlwb zoo. Thaum lub sijhawm zoo li no, cov tshuaj no pab tswj qhov kev ua haujlwm ntau dhau ntawd.
Cov tshuaj no feem ntau yog siv los kho ntau yam mob ntsig txog ntshav.
- Atypical Hemolytic Uremic Syndrome (aHUS): Qhov no yog ib qho mob uas cov qe ntshav liab tawg thiab txhaws, ua rau muaj ntshav tsis txaus thiab lwm yam teeb meem.
- Paroxysmal Nocturnal Hemoglobinuria (PNH): Hauv qhov xwm txheej no, cov qe ntshav liab kuj tawg.
- Myasthenia Gravis: Hauv qhov mob no, lub cev tiv thaiv kab mob cuam tshuam rau kev sib txuas lus ntawm cov hlab ntsha thiab cov leeg, ua rau cov leeg tsis muaj zog thiab qaug zog sai.
Cov tshuaj no ua haujlwm los ntawm kev tswj lub cev tiv thaiv kab mob uas ua haujlwm ntau dhau, txo qhov kev tawg ntawm cov qe ntshav liab, thiab tiv thaiv cov platelets kom tsis txhob sib sau ua ke yam tsis tsim nyog thiab thaiv cov hlab ntsha.
Tej yam koj yuav tsum qhia rau koj tus kws kho mob ua ntej noj tshuaj
Ua ntej pib kho mob no, nws yog ib qho tseem ceeb heev uas yuav tsum qhia rau koj tus kws kho mob txog koj tus mob tag nrho. Nco ntsoov hais txog tej yam no tshwj xeeb.
- Yog koj muaj kab mob: Qhia rau peb txog tej kab mob uas koj muaj, xws li kub taub hau, hnoos, lossis mob khaub thuas. Cov tshuaj no ua rau koj lub cev tiv thaiv kab mob tsis muaj zog, uas ua rau qhov kab mob uas twb muaj lawm hnyav zuj zus.
- Yog koj muaj kev ua xua: Qhia rau peb paub yog tias koj muaj kev ua xua rau Ravulizumab, tsis yog rau Ravulizumab xwb, tab sis rau lwm yam tshuaj, khoom noj, lossis xim zas.
- Yog tias koj cev xeeb tub los yog tab tom sim cev xeeb tub: Nco ntsoov nrog koj tus kws kho mob tham txog qhov no.
- Yog koj yog niam uas pub niam mis rau menyuam: Koj yuav tsum qhia rau koj tus kws kho mob txog qhov no thiab.
Cov tshuaj no muab li cas?
Cov tshuaj no tsis yog ib yam tshuaj uas koj coj mus tsev tau. Ravulizumab raug txhaj rau hauv cov leeg ntshav.Nws yog muab rau lub cev. Nws yog ua nyob rau hauv tsev kho mob lossis chaw kho mob, los ntawm tus kws kho mob lossis cov neeg ua haujlwm saib xyuas neeg mob uas tau kawm tiav. Qhov ntawd txhais tau tias koj yuav tsum mus rau tsev kho mob rau nws.
Ua ntej txhua zaus kho mob, koj yuav tau txais daim ntawv qhia tshwj xeeb (MedGuide) txog cov tshuaj no. Nws yog ib qho tseem ceeb heev uas yuav tsum nyeem thiab nkag siab zoo txhua zaus.
Cov tshuaj no kuj muab rau cov menyuam yaus, nyob rau hauv qee qhov xwm txheej tshwj xeeb. Nws tuaj yeem muab tau txawm tias muaj ib hlis xwb los xij. Txawm li cas los xij, muaj cov kev ceev faj tshwj xeeb ntsig txog nws. Koj tus kws kho mob yuav piav qhia qhov no rau koj.
Yuav ua li cas yog tias qhov tshuaj ntau ntxiv?
Qhov no yog muab rau hauv tsev kho mob, yog li ntawd qhov muaj feem yuav tshwm sim tsawg heev. Txawm li cas los xij, yog tias koj xav tias muaj qee yam tshwm sim rau koj, koj yuav tsum hu rau Lub Chaw Qhia Txog Tshuaj Lom Hauv Tebchaws ntawm Tsev Kho Mob Hauv Tebchaws Colombo , lossis mus rau Chav Kho Mob Thaum Muaj Xwm Ceev (ETU) ze tshaj plaws.
Yog tias kuv tsis nco qab noj tshuaj ib zaug li cas?
Qhov no yog kev kho mob uas tau teem sijhawm tseg. Yog li ntawd, nws yog ib qho tseem ceeb heev uas yuav tsum tsis txhob ncua cov hnub uas koj tus kws kho mob tau muab. Yog tias muaj qee yam laj thawj uas koj tsis tuaj yeem tuaj koom koj qhov kev teem sijhawm tseg, hu rau koj tus kws kho mob lossis chaw kho mob tam sim ntawd thiab qhia rau lawv paub.
Thaum siv cov tshuaj no, yuav tsum paub txog tej no.
Koj tus kws kho mob yuav saib xyuas koj txoj kev noj qab haus huv tsis tu ncua thaum koj noj cov tshuaj no. Yog tias koj cov tsos mob tsis zoo dua lossis hnyav zuj zus, qhia rau koj tus kws kho mob tam sim ntawd.
Vim tias koj lub cev tiv thaiv kab mob qaug zog me ntsis thaum koj noj cov tshuaj no, koj yuav muaj feem kis tau kab mob ntau dua. Yog li koj yuav tsum ceev faj heev.
Yog koj kub taub hau, mob khaub thuas, mob caj pas, hnoos, lossis lwm yam tsos mob ntawm tus mob khaub thuas, tsis txhob noj tshuaj rau koj tus kheej. Hu rau koj tus kws kho mob tam sim ntawd kom tau lus qhia. Tsis tas li ntawd, tsis txhob mus rau qhov chaw uas cov neeg mob nyob ntau li ntau tau thaum lub sijhawm no. Koj kuj tseem yuav tsum tau kuaj ntshav tas li.
Puas nws cuam tshuam nrog lwm cov tshuaj?
Yog, qee cov tshuaj tuaj yeem cuam tshuam nrog qhov no. Piv txwv li, cov tshuaj xws li `(Efgartigimod)` thiab `(Immune globulin)`.
Yog li ntawd, qhia rau koj tus kws kho mob txog txhua yam tshuaj uas koj noj (tshuaj rau lwm yam kab mob, cov vitamins, cov tshuaj ib txwm muaj, cov tshuaj ntxiv) . Tsis yog li ntawd xwb, tab sis yog tias koj haus luam yeeb, haus cawv, lossis siv lwm yam tshuaj txhaum cai, nws tseem ceeb heev rau koj txoj kev nyab xeeb los qhia rau lawv yam tsis zais nws.
Tej yam tshwm sim tsis zoo li cas?
Ib yam li lwm yam tshuaj, cov tshuaj no muaj qee yam kev phiv. Tsis yog txhua tus neeg yuav muaj. Tiam sis nws yog ib qho tseem ceeb uas yuav tsum paub txog lawv. Cia peb muab lawv faib ua ob pawg.
| Hom kev phiv tshuaj | Cov tsos mob |
|---|---|
| Tej yam yuav tsum tau qhia rau koj tus kws kho mob lossis chav kho mob tam sim ntawd | |
| Kev ua xua | Tawv nqaij ua pob khaus, khaus, o ntawm lub ntsej muag, daim di ncauj, tus nplaig lossis caj pas. |
| Kev kis kab mob | Kub taub hau, mob khaub thuas, hnoos, mob caj pas, cov qhov txhab tsis kho, mob thaum tso zis, thiab tsis xis nyob lub cev. |
| Cov tshuaj tiv thaiv kab mob | Mob hauv siab, ua pa nyuaj, tsaus muag, kiv taub hau. |
| Ntshav siab qis | Kiv taub hau, tsaus muag, pom kev tsis meej. |
| Tej yam yuav tsum qhia rau koj tus kws kho mob yog tias lawv tseem muaj lossis ua rau koj ntxhov siab | |
| Cov kev mob tshwm sim feem ntau | Raws plab, kub taub hau, mob taub hau, xeev siab, ntuav, mob, liab, lossis o ntawm qhov chaw txhaj tshuaj. |
Daim ntawv teev npe no tsis suav nrog txhua yam kev mob tshwm sim uas yuav tshwm sim. Yog tias koj pom muaj dab tsi txawv txawv lossis txawv, tsis txhob ntshai tham nrog koj tus kws kho mob txog qhov ntawd.
Cov Lus Qhia Txog Kev Coj Mus Tsev
- Ravulizumab yog ib hom tshuaj tiv thaiv tshwj xeeb uas tswj qhov ua haujlwm ntau dhau ntawm lub cev tiv thaiv kab mob thiab kho cov mob xws li aHUS, PNH, thiab Myasthenia Gravis.
- Cov tshuaj no yog muab los ntawm cov leeg ntshav hauv tsev kho mob lossis chaw kho mob.
- Ua ntej pib kho mob, qhia rau koj tus kws kho mob txog lwm yam kab mob, kev kis kab mob, kev ua xua, thiab txhua yam tshuaj uas koj noj.
- Muaj kev pheej hmoo ntawm kev kis kab mob thaum noj cov tshuaj no. Yog tias koj muaj cov tsos mob xws li kub taub hau thiab hnoos, nrhiav kev pab kho mob tam sim ntawd.
- Thaum muab tshuaj, ceev faj txog cov tsos mob hnyav xws li ua xua thiab ua pa nyuaj.
- Tham nrog koj tus kws kho mob txog tej lus nug lossis kev txhawj xeeb uas koj muaj. Tsis txhob ntshai lossis zais cov ntaub ntawv.
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Tsis muaj lus teb tau muab tso tawm. Ntxiv koj cov lus tawm ntawm no thawj zaug.
Ntxiv koj cov lus