Yu dɔn ɛva gɛt bad bad bɛlɛ pen, nɔs, ɛn dak urine we yu nɔ ebul fɔ ɛksplen? Sɔntɛnde, di tin we kin mek dis apin kin bi wan sik we nɔ kin apin so ɔltɛm we nɔbɔdi pan wi nɔ yɛri bɔt. Bikɔs i nɔ kin bɔku, bɔku pipul dɛn nɔ kin no bɔt am. Tide wi de tɔk bɔt wan pan dɛn kayn sik ya, we na Acute Hepatic Porphyria (AHP). Nɔ wɔri, wi go tɔk bɔt dis simpul wan, di we we ɔlman go ɔndastand.
Fɔ tɔk am simpul wan, wetin na Akyu Ɛpatik Pɔfyuria (AHP)?
Acute Hepatic Porphyria, ɔ AHP fɔ shɔt, na wan sik we kin kam bikɔs di porphyrins, we na wan kayn kemikal we dɛn kin mek na wi bɔdi, na di liva ɛn ɔda pat dɛn na di bɔdi kin gɛda pasmak. Dis nɔto rili wan sik, bɔt na wan grup fɔ sik dɛn. We di pɔfyurin dɛn gɛda dis we, i kin afɛkt di nervɔs sistɛm ɛn mek bɔku ɔda sayn dɛn we nɔ kin fayn.
Pan ɔl we dɛn nɔr dɔn gɛt ɛni mɛrɛsin yet fɔ dis sik, di rayt tritmɛnt kin ɛp fɔ kɔntrol di sayn dɛm ɛn ɛp yu fɔ liv bɛtɛ layf.
Wetin mek dis sik kin apin? Lɛ wi tek tɛm luk gud wan.
Fɔ ɔndastand dis fayn fayn wan, wi fɔ no fɔs bɔt sɔntin we rili impɔtant na wi bɔdi. Dɛn kɔl dat ‘ Hɛm ’ .
hεm na imכtant pat pan di protin εmoglobin we de insay wi rεd bכdi sεl dεm. As yu no, ɛmoglobin na di tin we de pik ɔksijɛn frɔm di lɔng dɛn ɛn sheb am ɔlsay na di bɔdi. So dis hεm impɔtant fכ mek ples dεm lεk di liva, mכsul dεm, εn bon mכro wok.
naw luk, we wi bכdi de mek dis ‘hεm’, 8 tכp εnzym dεm de εp fכ mek da prכsεs de apin fayn fayn wan. I tan lɛk se dɛn nid 8 kayn spays fɔ mek dish. if fכ sכm rizin dεn de dכn כ wik εni wan pan dεn 8 εnzym dεm ya, di prכsεs fכ mek ‘hεm’ de stכp af. Wetin kin apin da tɛm de na di ‘pɔfyrin’ we wi bin dɔn tɔk bɔt bifo tɛm, we na di tin dɛn we dɛn kin yuz fɔ mek ‘hɛm’, kin bigin fɔ gɛda na di bɔdi .
insay AHP, dis kεmikכl we dεn kכl ‘ pכfyurin ’ de kכmכt mכtalman na di liva . di ifekt dεm we dis akyumyuleshכn de gi na dεn wae de sho lεk di simptom dεm.
| Di sayn dɛm we dɛn kin si bɔku tɛm | Smɔl mɔ bɔt dis |
|---|---|
| Bɛlɛ pen bad bad wan | Dis na di men ɛn di sayn we kin rili bad. Yu kin gɛt wan bad bad bɛlɛ pen we yu nɔ ɛksplen ɛn we nɔ gɛt ɛni rizin. |
| Nɔs ɛn vɔmit | Dis kɔndishɔn kin apin wit siriɔs bɛlɛ pen. |
| Dak urine | Yurin kin gɛt dak brawn ɔ rɛd kɔlɔ. |
| Skin sɛnsitiviti | Insay sɔm kayn pɔfyuria, di skin kin rili fil bad we di san de shayn. |
| Prɔblɛm dɛn we de na di nervɔs sistɛm | Bɔrku tin lɛk wae yu de fil lɛk yu nɔr de fil fayn, yu de fil pen, yu mɔsul dɛn de wik, ɛn yu de fil lɛk yu de fil. |
Wan "atak" fɔ AHP kin bigin wit siriɔs bɛlɛ pen. Dis kin las fɔ sɔm dez. If dɛn kayn tin ya apin , dɛn fɔ put pɔsin na ɔspitul . Dis min se yu fɔ go na di Imejɛnsi Dipatmɛnt (ETU).
Udat kin gɛt dis sik? Udat dɛn de pan denja?
Bɔku tɛm, dis sik kin kɔmɔt frɔm dɛn mama ɛn papa . Dat min se yu gɛt di jin dɛn we de mek yu gɛt dis sik frɔm yu mama ɛn papa.
Bɔt di impɔtant tin ya na dat nɔto ɔlman we gɛt di jin we de mek pɔsin gɛt di sik go gɛt sɔm sayn dɛn . Bɔrku pipul dɛm wae gɛt di AHP jin kin de wɛl ɔl dɛn layf ɛn nɔr gɛt ɛni sayn.
Dis na lɛk layɔn we de slip. ivin if di jin de, if nכ trig de fכ wek am, כ "wek" am, i kin de witout nכ prכblεm.
So wetin na de tin wae kin mek yu gɛt dis sik?
Dis na pat we rili impɔtant. If yu ɔ pɔsin we yu sabi gɛt AHP, i impɔtant fɔ no bɔt dɛn tin ya.
| Stat | Impɔtant pɔynt dɛn |
|---|---|
| Sɔm mɛrɛsin dɛn | Sɔm mɛrɛsin dɛn we de mek pɔsin fil pen, tin dɛn we de mek pɔsin fil pen, barbiturates, tin dɛn we de mek pɔsin fil fayn, ɛn tin dɛn we dɛn kin yuz fɔ mek uman nɔ bɔn pikin kin bi di men tin dɛn we kin mek pɔsin fil pen. If yu sɔspɛkt ɔ dɛn dɔn no se yu gɛt AHP, nɔ tek ɛni mɛrɛsin we yu nɔ go to dɔktɔ. |
| Fɔ drink rɔm ɛn fɔ smok | Dɛn tin ya kin mek pɔsin gɛt di sik izi wan bikɔs dɛn kin put bɔku prɛshɔn pan di liva. |
| Strikt it ɔ fast | Fɔ stɔp fɔ it ɔ fɔ lɛf fɔ it fɔ tray fɔ lɛf fɔ it bɔku bɔku it wantɛm wantɛm, dat kin rili bad fɔ dɛn sik pipul ya. Nɔr gɛt di kalori dɛm wae di bɔdi nid na strɔng trig. |
| Stret na di maynd ɛn bɔdi | Tin dɛm lɛk siriɔs strɛs, ɔpreshɔn, ɛn infɛkshɔn kin mek bak de sik. |
Wetin a fɔ du?
If yu de gɛt ɛni wan pan di sayn dɛn we wi tɔk bɔt na dis atikul, mɔ di bad bad bɛlɛ pen we yu nɔ ebul fɔ ɛksplen, ɔltɛm , duya nɔ tink se na nɔmal tin. Go to dɔktɔ we sabi du di wok wantɛm wantɛm.
Di dɔktɔ go chɛk yu ɛn if nid de, i go tɛl yu fɔ du yu urine, blɔd, ɛn yu jenɛtik tɛst fɔ no if yu gɛt dis sik.
Wan balans it rili impɔtant fɔ pɔsin we de liv wit AHP. If nid de, yu dɔktɔ kin sɛn yu to pɔsin we sabi bɔt it.
Mɛsej we dɛn kin kɛr go na os
- Acute Hepatic Porphyria (AHP) na wan sik we nɔ kin apin so ɔltɛm, we pɔsin kin gɛt frɔm in mama ɛn papa, we wan kemikal we dɛn kɔl porphyrin bɔku na di liva.
- di praymar kכz fכ dis na di dεfisit insay wan εnzym we dεn nid fכ mek ‘hεm’.
- Di men sayn na di bɛlɛ pen we yu nɔ go ebul fɔ bia. I kin mek bak yu gɛt prɔblɛm wit yu nervɔs sistɛm.
- Ivin if yu gɛt di jin we de mek yu gɛt di sik, if yu avɔyd di tin dɛn we de mek yu gɛt di sik, yu nɔ go si di sayn dɛn.
- Sɔm mɛrɛsin, rɔm, smok, strikt it, ɛn strɛs na di men tin dɛn we kin mek pɔsin gɛt prɔblɛm.
- If yu gɛt ɛni wan pan dɛn sik ya ɔ yu tink se yu gɛt AHP, fɔ tru, tɔk to dɔktɔ. Nɔ ɛva go na do ɛn gɛt mɛrɛsin fɔ yusɛf.
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